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@curemecfs

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mecfs has been a profound, and challenging teacher for 18 years. i'm now ready to graduate. she/her #BLM #FreePalestine

Wenro Lands
Joined August 2014
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@curemecfs
Nico
2 years
@SleepyGirlGuide (Lily Silver) passed away last year, but left her legacy. Please refer to this disability survival guide, which includes many tips, including applying for disability. 💙🫂 #NEISvoid #LongCovid #Disability #DisabilityTwitter #MECFS #pwME
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@curemecfs
Nico
2 years
Not having an indoor mask mandate denies many medically compromised of us accessibility to preventive health care. My dental office is mask optional. I'm 54, with an underlying condition. I do need preventive care just like anyone else.
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@curemecfs
Nico
25 days
I'm disabled, & can't go to a protest. I lay in bed & add a ton of data to @archivegenocide I do this bc in the US, I realize my own elected officials have all pulled the "yes" lever with their votes for the genocide to proceed unhindered. I can only hope for accountability.
@MomodouTaal
Momodou ✊🏿
25 days
Funny how this moment has reinforced my political commitments. Apologies and feeling sorry are nice but what materially are you doing?
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@curemecfs
Nico
2 years
Tomorrow I'll be 55 years old. I've been living with #MECFS for 16 (if not more) years. I feel heartbroken that I'm aging & there is no legitimate light at the end of the tunnel. While many #pwme have family nearby, or are in a partnership I have neither. I'm reaching a pt in
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@curemecfs
Nico
2 years
@doingmyownnails @Sarah_Mojarad Most likely she will recover because of more variables in her favor now. My dire warning to people is not whether they may live or die from acute illness, but whether or not they end up w/ #LongCovid People need to now prepare themselves with the idea they may become disabled.
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@curemecfs
Nico
6 months
@AliAbunimah I swear they must've been playing x-box or watching soccer together during moments of less bombs & some kind of electrical connectivity. Major bro vibes all around.
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@curemecfs
Nico
7 years
@PeteHeacock @mikewarder1 @daveweigel @HenryJGomez Sometimes eloquence is overrated.I don't feel eloquent when the prospect of my privacy, health insurance, & affordable housing r threatened.
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@curemecfs
Nico
11 months
@CDCDirector Bring back mask mandates in medical and dental offices, please. Many vulnerable people are foregoing preventive medical care because it's no longer covid safe.
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@curemecfs
Nico
7 years
@angrywhitewmn6 @mflynnJR @CNN He probably misses the spotlight. This is his attention seeking behavior. Hard 2 believe this man is married and a father. Worrying.
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@curemecfs
Nico
7 years
@voidofchill @NMalliotakis @MaraGay Columbus Day marked as "Indigenous People's Day" in my calendar. Columbus and his ilk were responsible 4 horrors. Besides, Vikings b4 him.
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@curemecfs
Nico
7 years
@Patricia_DSC Mexican fire fighters have also helped with Canadian wildfires.
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@curemecfs
Nico
7 years
@MichelleKovales @LillyB116 @egyptologist134 @ChelseaClinton Didn't Mar a Lago not pass a food safety inspection just these past few months? Like pork being kept at over 40 degrees F, for instance?
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@curemecfs
Nico
7 years
@michesf @coanset15 @mireille1966 @amysilvermanaz @phoenixnewtimes Nationwide strike. If that doesn't work, ask our Nato allies to join. Until he leaves. There's got to be something. Or, wait 4 Mueller.
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@curemecfs
Nico
2 years
I pray every day that I can maintain my dental health during this time of lack of care until politicians either come to their senses, or that the pandemic really ends. How long will either take? @GovKathyHochul @DrMikeMendoza
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@curemecfs
Nico
6 years
@MiekeEerkens @mattwhitlockPM 😂😂😂 Theme song for Oscar Meyer Wieners! "Oh I wish I was...etc."
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@curemecfs
Nico
2 years
Happening in Helsinki now. #flowfestival2022 @burnaboy performing in front of what appears to be a closely packed crowd.
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@curemecfs
Nico
2 years
unrelenting being ill with ME. Anyway, I'm having a visitor tomorrow, someone I haven't seen in 2 1/2 years.
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@curemecfs
Nico
4 years
@sweatt_jeanne @CNNPolitics Especially since those restaurant employees probably won't be gifted with a handful of specialists, and the gold-standard drug cocktail-juice that was offered at Walter Reed.
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@curemecfs
Nico
7 months
@MikeBlueHair Shattering the propaganda machine.
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@curemecfs
Nico
5 months
@DoertheRosenow Doerthe, kannst Du bitte den Link zu diesem Artikel teilen? Wäre nützlich für die @archivegenocide Archive. "Journalistic Malfeasance" Katagorie. Danke im Voraus.
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@curemecfs
Nico
2 years
pandemic just exacerbates these feelings of exclusion & not part of society or a family. I am very alone, & feel very alone. Pls don't come at me with "You're never alone" cliché bc that's not true. I try to remain spiritual in my own way, & my kitty helps a bit. But, it's been
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@curemecfs
Nico
2 years
my life where simply being alive no longer makes practical sense. The pandemic has exacerbated this feeling as well, as it leaves me even more isolated. I'm not suicidal, but I'm sort of running out of hope. It's a matter of practicality to me. It's not physically or emotionally
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@curemecfs
Nico
7 years
@Terrysagirl @JensenClan88 @franklinleonard It's troublesome when a grown adult sees children as his equals in the implied understanding of promiscuity.
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@curemecfs
Nico
7 years
I don't know anything about this candidate, but there IS A CANDIDATE. And, @Rosie just donated!
@DavidYankovich
David Yankovich
7 years
I am humbled by calls & messages urging me to run against Paul Ryan. We must take our country back. Crowdpac:
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@curemecfs
Nico
6 months
@heavyredaction @pdnell @KvetchinQueen Instablock for genocide apologists. I do it a lot nowadays. I don't even engage.
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@curemecfs
Nico
11 months
This is from someone I've known really well (friend) for over 20 years. wtaf #MECFS
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@curemecfs
Nico
2 years
practical for me to age as an ill person so alone so much of the time (98%). I do have small pleasures in my small world, of course. But, over time, year after year of this... I'm not sure it's a way of living that interests me. It's just where I'm at right now. And, again, the
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@curemecfs
Nico
7 years
@TracySorrell1 @Brian55d @AngelaRoss1 @graciousanna @JoyAnnReid I just tried to watch some of it, no way. It's insanity. I lasted 45 seconds. That voice, the lies, the BS, & the poor people who follow.
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@curemecfs
Nico
7 years
@carmelmanion @mikefarb1 I did for a while, because like many I was hoping DJT was going to be charged with something. I 1st muted her for a while, then unfollowed.
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@curemecfs
Nico
6 months
@Mohammed_awed12 Qatar evacuated a lot of patients a couple of days ago. I think they have the most diplomatic leverage right now. I hope your sister gets help soon. I'm so sorry. 🙏❤️‍🩹💙 Some Qatari accounts: @qcharity @QRCS @qcharityglobal @Faisal_AlEmadi @insania_org
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Nico
7 years
@Jcmauch1 @HiMaui @JensenClan88 @feanor1138 Good on you, Joseph for speaking out. Please keep #resisting - and you know what they say: Be Prepared (for 2018!).
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@curemecfs
Nico
1 year
@TRyanGregory Largely intuition of course, but I've been telling my friends for at least a year that there is no real immunity against covid. I'm not happy that my intuition has been validated. 😫
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@curemecfs
Nico
11 months
I'm happy for the long covid community that there are clinical trials happening for Ampligen. At the same time I'm beyond fucking devastated that there are no concurrent Ampligen clinical trials for veteran #pwme . This level of neglect is perverse.
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@curemecfs
Nico
6 years
@felicianista @mattwhitlockPM I use a landline. I have a flip phone for emergencies only. I've survived this way for a long time! Incredible, isn't it! You could almost call me a dinosaur! 😂
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Nico
7 years
@Lordofsarcasm83 @jeffjockstrap @TheLSD @SarahKSilverman I thought they meant something for utilities too. They are in industrial orange.
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@curemecfs
Nico
6 years
@againsthate0696 @JArm0220 @ananavarro I can't even keep track any more. THAT is tragic. 😢 Don't forget the Sikh Temple shooting in 2012. His photo often isn't included in these montages. White supremacist. That was completely horrifying.
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@curemecfs
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7 years
@FaithRa65191073 @NefertitiVerita @JordanUhl @DeanxRiley More than PR, Jared invested a LOT of $ for settlements in Israel.My bad joke is that he's checking in on his real estate investment abroad.
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@curemecfs
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7 years
@OfficialCBC @ahimsa_pdx Well, given that it's more than 1 page....
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@curemecfs
Nico
6 years
@bannerite @tedlieu @allanbrauer Every member of congress.
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@curemecfs
Nico
6 months
@Jazzywaddles234 @WajahatAli Did you bother reading the article? If you're fundraising and donating money to part of a military effort actively engaged in ethnic cleansing and genocide, scrutiny is warranted.
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@curemecfs
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6 years
@Quinnplusfive @bj141cox @SarahBeaudinCA @FranceskaLynne @tedlieu They have tried... @RepCummings tried addressing this months ago - he was ignored. There was even a reporter who was suing to uncover the story about no security clearances LAST YEAR. (12 months ago)
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@curemecfs
Nico
1 year
#mecfs really sucks.
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@curemecfs
Nico
7 years
@therealezway @JordanUhl "Trump wants to cut 6M from housing grants" = 2 weekends, and = ~ 1 week for Melania in NYC. It's disgusting.
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@curemecfs
Nico
6 months
The tanks are two streets away from us, so we decided not to leave and stay home. We will all continue to live in it, or we will all die as martyrs in it. Forgive us, even if we leave, remember us. We are not numbers. Renad Alaa Al-Batta | Khan Younes
@itsreeenada
ريـنـاد عَـلـاء 🇵🇸
6 months
الدبابات بعيدة عنا شارعين فقررنا ما ننزح ونضل بالبيت فيَا بنضَل عايشين كُلنا فيه,يا بنموت كُلنا شهداء فيه,سامحونا ولو رُحنا اتذكرونا نحنا مش ارقام.. ريناد علاء البطة | خانيونس
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Nico
7 years
@MarkCandler @letsgomathias @StevePasquale Hello from across the Lake. I'm so sorry, neighbor.
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@curemecfs
Nico
6 years
@JuliaIsWriting @deray Someone said the actual video was an hour long...this was edited.(..allegedly!)
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@curemecfs
Nico
7 years
@HiMaui @JensenClan88 @feanor1138 is this true? I won't watch speeches, or listen ... if I can help it.
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Nico
7 years
@HiddenSocialist @ghadeerUSA @AP AlJazeera has an office in the US, btw. So.... and make really good documentaries.
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@curemecfs
Nico
6 years
@Therealkateri @_izayoixx_ @AngelicScot1963 @JayOhAye @ResistProfessor A lot of people don't know that if you see someone walking along the highway,that is an emergency. It should be reported. Or, if you see livestock or horses loose on a highway. You have to use your judgement, but 911 for a kid selling bottled water? That's a "bit" over-reactive.
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@curemecfs
Nico
1 year
@MeetJess Every adult needs to be concerned about this. Dementia development is on a spectrum, no one knows where they are on that spectrum-chronology (until measurable sx start). This is very bad, & I suspect this is what has happened to my father since his "cold" around Thanksgiving. 😔
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Nico
6 years
@deray House fire is in full active duty now 😍
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Nico
2 years
No one is allowed to blow up the planet until a cure for #MECFS and #LongCovid are found. OK, thanks.
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@curemecfs
Nico
6 years
@againsthate0696 @JArm0220 @ananavarro Easy access is also the issue, and NRA blood money/loyalties.
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@curemecfs
Nico
7 years
If you're angry and outraged by the lifting of #elephanttropy import ban you can follow the money. 1/
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Nico
6 years
@felicianista @mattwhitlockPM I also like asking for directions & looking at a map!Once I was w/someone & we need directions to closest post office. She asked her phone thingy (Alexa?) & w/out result. I asked a guy walking thru parking lot,& he led us there. Then we all waved good-bye. Also, he was very cute.
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@curemecfs
Nico
4 years
@NatButterflies @FisherSandG @BrianKolfage This is what the mafia do in Italy. Start some kind of nonsensical building project which ends up getting abandoned before completion. All about shifting monies around...
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@curemecfs
Nico
1 year
@LadyChuan This is what, I believe, is going to happen to my father. I just talked w/my sister to make sure when/if he is hospitalized I have a chance to say goodbye via video. Many really have no clue how fast this can go. Ppl around my father are taking ZERO precautions (except vax).
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@curemecfs
Nico
7 years
@Lordofsarcasm83 @jeffjockstrap @TheLSD @SarahKSilverman Others on here are adding the symbols are for telecom cables. Thanks for the info!
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@curemecfs
Nico
8 months
@moiseschiu @techladyallison @palashp40616755 @austinhumane @austinpetsalive People from Reddit were out driving around yesterday trying to help him. Poor guy, looking through dumpsters today. It's 1 thing to lose a pet which is hard enough, but to "lose" a cat in this cruel way is just fing unbelievable. Wtf is wrong w/ppl?!
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@curemecfs
Nico
2 years
I'm so grateful to these heroes. It's sad, though, that this group's number of participants doesn't represent the thousands upon thousands of us who are still sick with post-viral illness. We are cheering you on from our beds and sofas! #mecfs #LongCovid #MillionsMissing
@MEActNet
#MEAction Network
2 years
#MEAction in Washington DC to Stop #LongCovid
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@curemecfs
Nico
3 years
@DepressedYee @dcnszn @bebbisterni men can get breast cancer as well. best to go to your doctor.
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Nico
5 months
In doing research & reading for @archivegenocide , I read a lot of stuff that's really upsetting. I often want to respond to journalists who propagate hate, propaganda, racism, etc but I don't. My "job" in this is to observe & report w/out fighting back. I need to stay unblocked.
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Nico
3 years
My mother died a few nights ago. Grieving while ill w/ #MECFS is not easy. Grieving while being so isolated feels awful. I was able to say goodbye to her via Facetime, as she (and my immediate family) are across the country, I could not be there in person.
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@curemecfs
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6 years
@overbakedstyles @iketheprez @maureenjohnson What you also want to watch for is how hard NRA works *against* candidates. They actually spend MORE $ on ads against people who are liable to be less gun friendly. You can find out financials/donations on @OpenSecretsDC 's website.
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@curemecfs
Nico
6 years
@t00thyPeg @olgaNYC1211 If anyone was going to do something about anything since November 2016, it would have happened by now. I think the answer is: "probably not". Maybe "thoughts and prayers". It's weird that the US would even need an external source of natural gas. Huh? 🤔
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@curemecfs
Nico
16 days
Um, holy shit. Do they not realize that doing this is basically the equivalent of hog-tying someone. This person needs their arms & hands to propel themselves. This is unreasonable & excessive. Is this even legal!?!? #DisabilityTwitter #DisabilityJustice
@eathedocument
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DC police arresting and zip-tying a student in a wheelchair how brave! i feel so protected!
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@curemecfs
Nico
6 months
Biden has also lost the vote of many who are disabled, clinically vulnerable, immuno-compromised. By saying "the pandemic is over" when he did, made our world more dangerous by pretending to the public that it was, indeed, over.
@ajplus
AJ+
6 months
Gaza could cost Biden the 2024 election. AJ+ spoke to Arab and Muslim voters in Michigan who voted for him in 2020, but say they will never vote for him again.
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7 years
@loyal_luver @Newsweek Yeah, but military is always recruiting at schools...with permission. Hate groups though? I'm not sure that's even legal.
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@curemecfs
Nico
7 years
@VOATurkish What were the protestors saying? How did the bodyguards not get arrested? @ACLU you might want to see this.
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@curemecfs
Nico
7 years
@svhfmh @needaDTdetox @carmelmanion @mikefarb1 I was thinking of unfollowing whole lot of them, just because it's 2 time consuming, & claims = no fruition. All intrigue. Life's 2 short.
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@curemecfs
Nico
7 years
@needaDTdetox @carmelmanion @mikefarb1 It's hard coz Claude Taylor & her seemed 2 work off 1 another.But, now even his inside info exhausts me.Inside info doesn't matter it seems.
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@curemecfs
Nico
6 years
@JuliaIsWriting @deray I see a Rhoda Young detective series on the bookshelves.
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@curemecfs
Nico
6 years
@AlyssaMastro44 @realDonaldTrump @POTUS44 @march4ourlives If I had a child, I'm not sure I would permit Trump in the same room with him/her.
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@curemecfs
Nico
7 years
@G6throughF5 @IndyK58 @Dust_in_the_wnd @dustinhines @KatTimpf given that a lot of images have been digitally faked, I question this. It looks like someone used a digital drawing tablet.
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@curemecfs
Nico
2 years
I canceled my dental appt for tomorrow because the office is mask optional. People who won't implement masking continue to affect other people's lives in profound and detrimental ways.
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Nico
6 years
@mamivaal @ItzGwizzop @freewebcamporn @caitiecait21 @deray A doctor can lose their license if they give (esp a cardiac patient) the wrong advice. In an ambulance they can resuscitate and have a defibrillator. Also, sometimes paramedics ride along with high risk cases, and they are permitted to administer meds/IVs. EMTs are not.
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@curemecfs
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4 years
@AGaldamez19 @hinamii6 @Blackbeau5 @bloodbankss @mikusunite @LAVENDERTHUG @sonjumujika I dunno... IMO remain skeptical of the real Anonymous having a verified account.
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@curemecfs
Nico
3 years
I've been ill with #MECFS for 15 years. I'm still not used to it. #meawarenesshour
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Nico
8 months
Today has been my birthday. I'm 56 now.
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Nico
11 months
@grace_huckins @loscharlos @VirusesImmunity @Slate Because, Grace, you need to go learn history of mecfs. Alas, CBT is horseshit for these illnesses. It wastes what precious energy we have, & continues to detract & distract from much needed biomedical research & tx options. It's a comfort zone for an indifferent medical business.
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Nico
6 years
@Maggiethecat13 @lsilbers @timothykearney @ellencarmichael @EsotericCD I didn't know until that Stephen Miller appearance last year.
@curemecfs
Nico
6 years
@EsotericCD @Popehat It makes me sad. I'm 50 years old, and I liked the old version. But, that's what happens when you get old. You reminisce about the good old days. When "ok" really meant "ok". 👵
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1 year
@bumblebuzz6 @laurieallee That's the thing, I don't want the people I care about to find out the hard way.
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@curemecfs
Nico
6 years
@ElegantGoose @becsing88 @MiekeEerkens @mattwhitlockPM I know, right! 😅 Remember "Body on Tap?" (But, don't drink it)! And, this one
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Nico
9 months
@JessicaLexicus Then there are the doctors & politicians on social media driving the narrative to forgo survival. A concerted effort to prevent people from surviving. It's a huge mess.
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Nico
7 years
@mireille1966 @michesf @coanset15 @amysilvermanaz @phoenixnewtimes I'm too ill to march, but I can share my ideas...no matter how impractical. Thank you, neighbor 🇨🇦 🇺🇸 @ Mireille
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Nico
2 years
@WildNycgirl @Emily_Baum @nytimes This 💯 (I'd add also: a deep dive into why the FDA won't approve use of Ampligen for people with MECFS.)
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Nico
6 years
@Pevenly1 @WalshFreedom he's not alone, sadly
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Nico
7 years
@stop_ur_crap @PeterDawsonUSA @thehill I worked in hospitals. Believe me, even hardened criminals get medical care.
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6 months
@ASE @aaronjmate @StateDeptSpox Also lied about the non deliberate targeting of journalists. It's so utterly disgusting.
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Nico
7 years
@AGSchneiderman @realDonaldTrump This is a freakin' dog whistle. Mr. Schneiderman, thank you, and please stay on this (among other things your office is pursuing).
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Nico
6 years
@Resistor_2017 @SamSanderson123 @MaddowBlog There's a woman from the UK I've been tweeting with who is wondering the exact thing about us.
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Nico
2 years
@denise_dewald Being chronically ill in this world is very taxing and lonely. I feel bereft and loss of hope.
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Nico
7 years
@Claryse2 @StSusanHunt @kylegriffin1 The smirking and nodding whenever they (including Liar-Pence) talk about this. It's really disgusting.
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