As the national response to COVID has waned so has philanthropic funding. @Survivor_Corps shut down 3/31/23 (and ended our relationship w/ @multiplier_team our fiscal sponsor). @dianaberrent, in her role as Founder, will remain active as a #LongCovid subject matter expert.

TL;Dr 👇

@NPRHealth @NPR @hmkyale @SujataSrini @wnpr @Derya_ @jacksonlab @kavitapmd @nprscottsimon @MorningEdition_ @danaparish 🚨🚨🚨 "COVID is reactivating underlying infections that the immune system can no longer suppress. We should be looking at these latent infections that underlie a significant percentage of Long COVID patients." /End

@NPRHealth @NPR @hmkyale @SujataSrini @wnpr @Derya_ @jacksonlab @kavitapmd @nprscottsimon @MorningEdition_ @danaparish 🚨 These were the important parts of my quote that were *not* included in the article... ↪️ "With the massive numbers of individuals affected we should be seeing clinical trials where there are none." "We desperately need a standard of care to be disseminated to doctors." 1/

“Nowhere do you see more medical gaslighting than in this area. It's like we're playing basketball using a football and expecting the game to go on.” /3 @NPRHealth @NPR @hmkyale @SujataSrini @wnpr @Derya_ @jacksonlab @kavitapmd @nprscottsimon @MorningEdition_ @danaparish

"“There are things that can help alleviate symptoms but the barrier to treatment is often the doctor's own skepticism about the patient's complaints,” she said." 2/3

Quick 🧵 regarding #LongCovid and #ChronicFatigueSyndrome from @NPR @SujataSrini featuring @jacksonlab @Derya_ @hmkyale @jjsso0 and me. Cc: #MedTwitter

🎙️"Chronic fatigue in #longCOVID patients keeps them from returning to work and caring for their families, said @dianaberrent, Founder of #PandemicPrepConsulting and @Survivor_Corps." 1/3 CT study seeks to refine biomarkers for #ChronicFatigueSyndrome

51yo (a year late) but I got round one of my Shingles vaccine today. Round two in 2-6 months. Don't forget to get yours!

Subject: Akathesia (feelings of inner vibrations) Question: What cures it? #MedTwitter #LongCovid #Lyme #EhlersDanos #akathesia @kavitapmd @WesElyMD @VirusesImmunity @hmkyale @ryanhurt9296 @Ravi_Ganesh_MD @StevePhillipsMD @danaparish @drsanjaygupta @VinGuptaMD @JeromeAdamsMD

How gut inflammation can induce brain inflammation https://t.co/hoAAF6Boyb @Nature

This is relevant to so many chronic illnesses not just Long COVID. @danaparish @LauraMiers @kavitapmd

RSVP today for FREE to attend live or via Zoom. You won't want to miss this powerful event. Make your voices HEARD. #LongCovid #ChronicIllness #publichealth @TheAtlantic @NewYorker @WNYC @TheaterofWar

This is a must-attend event (in person or via Zoom) for everyone concerned about #LongCovid and US #HealthCare RSVP to this free event!

This is relevant to so many chronic illnesses not just Long COVID. @danaparish @LauraMiers @kavitapmd

RSVP today for FREE to attend live or via Zoom. You won't want to miss this powerful event. Make your voices HEARD. #LongCovid #ChronicIllness #publichealth @TheAtlantic @NewYorker @WNYC @TheaterofWar

'Long COVID Showed Me the Bottom of American Health Care: Theater of War Productions, Presented by WNYC' 'Please join us on May 28th at 7 PM for the fifth installment of Theater of War Productions’ new long-form journalism series at WNYC .' https://t.co/c00EqQBFom

I just volunteered for a study to test psilocybin for treatment resistant depression. I really hope they pick me. P.s. Thanks @Survivor_Corps for this gif and others 🙏 @COMPASSPathway

Dr. Daniel Griffin, a physician in New York who has treated thousands of Covid patients, said, “I think that changes like this will lead to more unnecessary deaths.”

I was published in @Nature! I am proud to have conceived of this study (along w/ @DanielGriffinMD) @VirusesImmunity @hmkyale et al at @YaleMed) and assisted from recruitment on, in order to study the effects of vaccination on individuals with #longcovid. https://t.co/eNep0LWhEk

@VirusesImmunity @connorbgrady @bornali_27 @SilvaJ_C @hmkyale Acknowledgement should be given to those who conceived of the trial, gathered data for the IRB and did the recruitment (with you) for the trial. Credit citizen scientists for their work! P.s. where's my tag? @yaledailynews @YaleMed @YaleMedAlum @Survivor_Corps