Putrino Lab
@PutrinoLab
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We make people (and technology) better at Mount Sinai. Opinions are my own.
New York, USA
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With some new followers on board, I wanted to take the time to re-introduce myself to the
#LongCovid
community (and everyone else). I’m David Putrino: Director of Rehab Innovation at
@MountSinaiNYC
, Associate Prof at
@MountSinaiRehab
for
@IcahnMountSinai
1/
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Tragic to say this out loud, but here it is:
As a
#LongCOVID
researcher, I strongly urge the public to ignore recent
@CDCgov
guidance and input from
@CDCDirector
on the topic of
#COVID
. It is NOT based on consensus science and it has NOT been designed to protect you. Disgraceful
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Ok. As promised, here is a super-🧵 on cognition and
#LongCovid
. This will be a combination of published material and things that we have observed in-clinic. This is not intended to be definitive nor epidemiological and so it is highly likely that your personal experience (1/n)
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Of all the "COVID-recovered" people who are kindly emailing us to participate in our study (meaning they had COVID >12 weeks ago and feel recovered), only about 1 in 5 are actually passing our screening questionnaire. The rest actually have persistent symptoms.
#LongCOVID
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When someone is seriously ill with
#LongCovid
and presenting to a health care provider for help, “all your tests came back normal” should be the words that trigger the beginning of an extensive investigation, not the end of a superficial one.
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I don’t know who needs to hear this, but if someone with
#LongCovid
tells you that they feel cognitively impaired, but they’re testing “within normal limits” please don’t tell them that it isn’t a concern. High functioning people who have lost function should be concerned.
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After 8 months, we just received the news that
@NIH
WILL NOT be funding our
#LongCovid
microclot study. They declined to provide reviewer comments. I'm so sorry to everyone in the community who was counting on this work, I don't know what to say other than we will keep fighting
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New rule: Unless you're a person with
#LongCovid
or a clinician who is managing an endless waitlist of people with LC, how about you just keep your damn mouth shut on the topic of how the risk of LC is now "only" 5-10%? That is an enormous number. We should be screaming.
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What a week for public health 🤦🏻♂️
I don’t know who needs to hear this, but: surviving an infection doesn’t make you “stronger” for it. Surviving a
#COVID19
infection leaves a mark. Like a boxer, every fight leaves it’s mark on your body. It can be an easy fight or a hard fight 1/
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Them: what’s challenging about
#LongCovid
is that there are no objective signs and symptoms. Everyone tests “normal”.
Me: Hi and welcome to the clinic. Could you plz stand for 10mins
~70% of ppl with LC: *legs change color and HR spikes*
That seems objectively not normal.
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It’s 2023. That means my clinic is now seeing a new generation of
#LongCovid
patients who say “I didn’t think this would happen to me, I got through the last *n* infections just fine”. Be careful out there: viruses don’t care about the pet theories you tell yourself to feel safe
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Them: Microclots and platelet hyperactivation in
#LongCovid
can't be quantified by conventional standards, so we shouldn't use it as a biomarker
Us: Hold our beer(s).
Step 1: Take blood, spin blood, stain blood, look at blood under a microscope and capture an image of it 1/
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Ok. One last time:
#LongCOVID
,
#PEM
and exercise. Let's talk and I'll try to be REAL clear and REAL simple. If someone has PEM, exercise is contraindicated. Not only do you not prescribe/suggest exercise, you recommend avoiding exercise. That's it. Simple. No gray area.
Why? 1/
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Time for a 🧵 about metabolically-led post-exertional symptoms. This is quite possibly the most dangerously misunderstood piece of
#LongCovid
,
#MECFS
and infection-associated chronic illness puzzle (including non-viral pathologies that involve mitochondrial damage). (1/n)
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We are in our fourth year of work to understand
#LongCovid
and we now know things about it thanks to science. After being told again by a quasi-well meaning, if uninformed, clinician that LC is just functional neurological disorder (FND). Here’s a 🧵 on why LC IS NOT FND (1/)
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You know what,
#medtwitter
? Fair warning: I’m coming into the week pretty pissed off. I spent the MLK day weekend catching up on reading and thinking about the experiences of people with
#LongCovid
, chronic
#lyme
,
#MECFS
and other PAIS. I finally read Brian Vastag’s touching 1/
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Because I haven't seen it posted here, I just wanted to share what our "enemies" (insurers, worker's comp, long-term disability auditors) are saying when people with
#LongCovid
are trying to access rights that they are entitled to since they were diagnosed with 🧵(1/)
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Soon, we will be formally announcing the launch of our new clinic: a center dedicated to recovery from complex chronic illnesses. In this clinic we will treat folks with conditions like
#EDS
,
#LongCOVID
,
#MECFS
and
#LongLyme
. We were incredibly intentional about the decision 1/
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Working with a
#LongCovid
patient who just isn’t getting better no matter what you try is tough and confronting. That’s why we hired a psychologist. For our STAFF. That way, they can process those feelings of frustration/failure and not be tempted to gaslight/blame their patient.
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[TW: story about severe ME/CFS]
Some time ago, a person with severe
#MECFS
requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)
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Thrilled to announce that the first of our
#LongCOVID
papers from our collaboration with the incredible
@VirusesImmunity
has been published in
@Nature
today. This work is incredibly important as it highlights clear objective differences in the blood 1/
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An historic moment yesterday as we started
@IcahnMountSinai
's first ever course for med students about infection-associated complex chronic illness. We discussed
#LongCOVID
,
#MECFS
, chronic
#Lyme
and much more. Students were intrigued, inquisitive and eager for more!
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This afternoon (US time) I was asked for comment on the recent statements on
#LongCOVID
in Australia. Here is the statement I provide:
As a scientist, an Australian and one of the world's leading authorities on LongCOVID I was disgusted to see John Gerrard's irresponsible 1/
🥺🥺
Dave... Please don't look at the local Aussie News... It will break you🤬
Long Cøvid Awareness Day and the Minimisers are out in full dress uniform...
A Congo Line of shitheads☹️
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Honestly I just can’t with these “journalists” who claim to be allies of those with complex chronic illnesses, yet they attack studies like the recent VA study showing an alarming number of folks with
#LongCOVID
with an almost religious fervor. It’s transparent and pathetic. 1/
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The folks out there pushing Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for infection-associated disease states like
#LongCOVID
,
#MECFS
and chronic
#Lyme
produce bad science and peddle harmful/dangerous rhetoric are truly deplorable, but what's more, 1/
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In addition to the ever-growing
#LongCovid
toll, here’s something that weighs on me daily since our governments collectively decided the pandemic was over and has begun a gradual retraction of protections ever since:
I work at a hospital in NYC. In order for me to get to 1/
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Felt this hard today.
Every clinician/researcher who has touched
#LongCovid
,
#MECFS
and chronic
#lyme
should see this as the unacceptable price for decades of underfunding, stigma and ignorance.
Every patient who is seeing this and being affected: Please hold fast if you can ❤️🩹
Lauren was one of my oldest, coolest friends. She was kind, funny, intelligent, and always up for an adventure.
Severe
#MECFS
forced her into choosing euthanasia because the alternative was worse.
The pain is unimaginable. Rest in peace, my love.
#DagLieveLauren
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Here’s the thing: whenever we publish a
#LongCOVID
paper it is the most-read thing on the journal, whenever we write a LC opinion piece it is the most-read thing on that outlet. Millions with LC are fighting for basic survival, and politicians: I promise you that for every 1/
Thank you DER SPIEGEL for featuring our work on
#longCOVID
through this interview with
@VHackenbroch
and Nina Weber.
Currently at the top of the most-read stories on the
@derspiegel
website 💪🏼
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I am humbled to announce that thanks to a generous grant from
@cohengive
our
#LongCOVID
center (opening early 2024) will work to understand the differences and similarities between LC and
#Lyme
,
#MECFS
and other infection-associated chronic illnesses. 1/
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Small note to all the clinicians expressing “regret” over the “needless” deaths of pw
#longcovid
and
#mecfs
because “we have the tools to help”
With all my heart: go fuck yourselves.
We have no approved therapies.
Pretending otherwise with your uninformed arrogance kills.
Felt this hard today.
Every clinician/researcher who has touched
#LongCovid
,
#MECFS
and chronic
#lyme
should see this as the unacceptable price for decades of underfunding, stigma and ignorance.
Every patient who is seeing this and being affected: Please hold fast if you can ❤️🩹
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Tell me again how CBT and GET are actionable treatments for
#LongCOVID
,
#MECFS
and other disease states where PEM is a symptom?
#MedTwitter
: if you're still prescribing exercise for these conditions you're causing damage. This is malpractice.
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I’ve been quiet on this platform this week as I had the privilege and singular honor to be invited to a very remote location in Kenya, working with the Maasai people to better understand their physiology. Why am I telling you this?
1. Because it is objectively awesome
1/
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unyielding principle that the “pandemic is over” crowd fails to grasp is that we live in a society. And if our society was not so incredibly fucking ableist and individualistic, it wouldn’t be a stretch for citizens to realize that public space is shared by people with 4/
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I know
#LongCovid
twitter has been buzzing today bc
@NIHDirector
has unambiguously named viral persistence as a driver of LC pathobiology. I’m thrilled to see this too and I view it as an historic moment. However, today I’d like to do a little
@microbeminded2
appreciation post 1/
The NIH director clearly states COVID is a virus with persistence, with the agent being found in tissues & nerve cells.
@jeremyfaust
seemed to doubt initially. Will “experts” start taking 1-2x forced Covid infections annually in our children more seriously now?!
@fitterhappierAJ
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@ashishkjha
Here’s an ounce of data. Per your bio, it should be worth the thousand pounds of opinion you just aired? We showed clear signs of immune dysfunction in folks with
#LongCovid
. Plz don’t make uninformed public statements like this one. People listen to you.
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Today's 🧵 is about autonomically-led post-exertional symptom exacerbation (PESE) in
#LongCovid
,
#MECFS
and other infection-associated chronic illnesses. This form of PESE is different to metabolically-led PESE, but it is also possible to have both occurring at the same time (1/)
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Today is
#LongCovidAwarenessDay
. A day for acknowledgement of the now hundreds of millions of people worldwide who have had their lives indelibly changed by
#LongCOVID
. This year's Long COVID Awareness Day comes with an edge, though. If we were a thinking, anti-ableist 1/
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I don't like any confusion or lack of transparency about our thoughts/approaches regarding our research strategy surrounding
#LongCOVID
, chronic
#Lyme
,
#MECFS
, vaccine injury and other complex chronic illnesses that we study, so I wanted to post an end of year thread to share 1/
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Step 5: Thank our wonderful collaborators like
@resiapretorius
,
@VirusesImmunity
,
@microbeminded2
,
@VitalikButerin
who make rapid research and discovery like this possible. To the
#LongCovid
community: every time the establishment raises a barrier, we will knock it down fast /end
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I've been busy the last week or so, you know, actually working the fucking problem and so I was unable to immediately react when the same old clown car of 'experts' (i.e. clinicians on twitter who have not actually read or understood the literature on
#LongCOVID
) tagged this 1/
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Some of these
#LongCovid
,
#Lyme
and
#MECFS
minimizing clowns really, deadass think that we’re just going to stop looking for answer for our patients because they say so. “Stop publishing about microclots, we can solve this with talk therapy”, or “Don’t talk about viral 1/
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expediency, not science. To folks with
#LongCovid
, chronic
#lyme
,
#MECFS
and other PAIS who follow. I’m sorry for the rage. I’m usually better at regulating and this morning it just all got away from me. I’ll suck it up tomorrow. Everyone else, as always: see you in hell. /end
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different needs to them. That the choice to accept a personal risk of COVID infection should not give you the right to place others at risk or endanger vulnerable populations because you are sharing public space with people who are literally going to step off the train and 5/
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@NIH
- HOW do you have the audacity to fund even a single exercise therapy/CBT trial for
#LongCovid
, let alone a whole mess of them and expect to be taken seriously by a patient population that has such large representation from former athletes and high performers? Why are you 7/
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Today, a post about viral persistence, antivirals and how it plays into the complexity of
#LongCOVID
and other post-acute infection syndromes (PAIS). If you've been following me for a while, you probably know that I've been saying for a few years now that LC is a complex 1/
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obituary for Beth Mazur and I just need to ask: how many more? How many more stories do you need of vibrant, exceptional people being cut down in their prime by these illnesses to finally act? How can you read what
@meghanor
and
@danaparish
articulate about chronic
#lyme
and 2/
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Shame on you, our population deserves better. What about you
@CDCgov
, and
@CDCDirector
? Care to take some steps to encourage people to, you know, not get infected by a devastating pathogen that can cause lifelong disability? Masks, free tests, HEPA filters, clean air? Any of 10/
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who want to come at me to continue to minimize
#LongCOVID
,
#MECFS
,
#Lyme
and other infection-associated complex chronic illness with your laughable pseudoscience and bad takes:
- You're the absolute worst.
- We are coming for you.
- (as always) I'll see you in hell.
🙏♥️
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#tbt
to the time I was at a
#LongCOVID
conference that was being filmed. After ~3hrs of listening to the science of LC the cameraman left and refused to come back out of fear of getting COVID and I remember thinking “damn, what an appropriate and proportionate response to facts”
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Another bright spot of news in a day of good news: I am DELIGHTED to announce that
@ravenscimaven
has joined our team and will be leading the rapid development of FREE educational content for
#LongCOVID
,
#MECFS
,
#EDS
, chronic
#Lyme
and other PAIS 1/
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mandates. Our citizens clearly can’t be trusted to make the ethical, pro-social decision for themselves, so maybe you can save a few thousand lives of critically ill patients in hospitals and a few hundred thousand people from
#LongCovid
while you’re at it. /end
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Everyone still trying to explain away PEM as DOMS/deconditioning needs to read this. I’ve lost count of my
#LongCOVID
,
#Lyme
and
#MECFS
patients who were former athletes. Who know *better than non-athlete doctors* what DOMS and deconditioning feels like. This ain’t it.
What my “exercise” looks like now…if I’m ambitious, washing the dishes or using the vacuum with ear protection. If I’m doing REALLY well,
@TheAlinker
.
Before nursing school, I was a Division I collegiate track captain & worked as a personal trainer.
ME is not deconditioning.
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I love it when the “sanctity of life” crowd also talk about the elderly and disabled being expendable in service of the economy with a totally straight face.
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#MedTwitter
: Infection-associated chronic illnesses like
#LongCovid
,
#MECFS
,
#Lyme
and
#MS
are real, but cookie-cutter, non-specialized testing does not pick them up. Studies that show that LC patients test normal on normal testing are simply indicative that we need better tests.
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Hey
@CDCDirector
: just curious - do you ever review *checks notes* your OWN DATA before *checks notes again* publicizing public health policy that will disable millions of Americans? No? Didn’t think so.
#LongCovid
The rate of people experiencing
#LongCovid
has jumped to 6.8% of all US adults, up from 5.3% just four months ago.
That's 1 in 15 adults, and is the highest it's been since 2022.
We can reasonably expect a future increase from January's wave.
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With very little due respect to this tweet: STOP minimizing getting infected with a virus that causes a life-altering chronic illness,
#LongCovid
, at least 10% of the time. At the very least, public health orgs that FOLLOW THE SCIENCE should raise the alarm EVERY time a new 1/
With all of due respect, there is absolute NO CONCERN of Omicron EG.5 in South Africa or most of the world. It would be a good idea if people STOP to spread alarm when a lineage of Omicron emerge or giving SILLY NAMES, this one is called 'Eris' by a single scientist, that has no…
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their experiences with me and my team. We are learning so much from this extraordinary community and we are endlessly appreciative of the kindness, selflessness and partnership that you continue to entrust us with. Thank you. 🙏🏻 (End)
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Why the hell is anyone agreeing to take off their shoes to get on a plane that doesn’t require masks? Safety from shoe bombs but not from
#COVID19
or
#LongCOVID
? Give me a break.
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I really hesitated to share this experience, but ultimately I decided to share for a few reasons:
1) We so rarely hear about the day-to-day reality of those who live on the extremely severe end of the
#MECFS
spectrum, it is crucial that we understand what so many are going (9/)
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disgusted. In short, how can you view so much suffering every day and have the casual cruelty, the nerve even, to say "you're just deconditioned" or "the brain can have a powerful effect on the body” as though that has any utility in explaining what is happening to these folks 6/
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Let’s say it again for those in the back: the only way to avoid
#LongCOVID
is to avoid getting
#COVID
. If
@POTUS
still wants to declare the pandemic over, then maybe it’s time to declare the new pandemic: the Long COVID pandemic.
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ICYMI,
@CDCgov
: we are still waiting for the
@CDCDirector
to acknowledge that every
#COVID
infection places you at risk of
#LongCOVID
, rather than talking about death and hospitalization like it is the only serious consequence of SARS-CoV-2 infection. This is a bad look.
ICYMI: CDC updated recommendations on how to protect yourself + others from common respiratory illnesses like COVID, flu, & RSV. We're giving clear, commonsense solutions that are easy to understand and follow. Check it out 👇
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people coming to you for help, ignore the scientific and clinical evidence showing severe immune dysfunction, neurological damage, vascular and metabolic disease, organ dysfunction and continue to consider GET and CBT to be the only tools in your toolkit? For real? I'm beyond 5/
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Yet we, as a society, don’t do it. We’d prefer to be slightly more ‘comfortable’ in our personal commute, prefer to be able to drink or eat on the train because god forbid we should wait two seconds to get off the train/bus to have a fucking snack.
@nycgov
- bring back mask 7/
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of Queenslanders at risk of severe and permanent disability. He has placed a politically expedient, personal opinion ahead of four years of high-quality scientific research on the topic and if he had any integrity left he would resign. /end
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Fantastic new
#longcovid
research out today from a phenomenal interdisciplinary team showing more biological differences in a cross-species study. Congrats to
@MaayanLevy_Lab
, Ben Abramoff and many other incredible scientists on this beautiful work.
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Many folks have tagged me in the
@ManvBrain
article about
#LongCOVID
and I have just been so swamped that I haven't had a minute to respond, but I've retweeted some stuff by
@meghanor
and
@sunsopeningband
that say a lot of things that I wanted to say. I'll say a few more 🧵1/
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There is a critical need for the clinical world to move on from the misguided understanding that physical inactivity is harmful ABOVE ALL ELSE. Physical activity and exercise (even mild) is very clearly harmful for so many people with
#LongCOVID
. A thread (1/n)
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all they have done with their lives before and since, yet continue to perpetuate a myth that this illness is made up? How can you read
@julierehnyer
’s account of fighting for her life her sheer will to live a full life and come to the conclusion that pw
#MECFS
are simply 3/
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malingering? How many more years will you continue to repackage “conversion disorder” in increasingly opaque language with the same, frankly, pathetic science backing it and expect people to swallow it? More importantly, how long will you continue to dismiss the words of the 4/
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In light of some truly terrible
@guardian
#LongCOVID
reporting in the last 24hrs, I'm incredibly grateful to
@m_scribe
for her piece on the alarming increase in Long COVID cases in the US.
Numbers don't lie. Governments do.
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Many changes are always needed, of course, but I'm seeing a specific need to shift an aspect of how mainstream media reports on
#LongCOVID
,
#MECFS
and other complex chronic illnesses. Recently there has been a slew of articles written by "learned doctors" (or even the 1/
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It’s not that John Gerrard said what he said about
#LongCovid
: we’re used to uniformed minimizers using bad science to push an anti-LC agenda. It’s that he, in a calculated fashion, chose to push this garbage on
#LongCovidAwarenesDay
that speaks to how petty and hateful he is.
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share space with critically ill individuals. All that is needed in order to protect HCWs (and ppl with chronic illnesses as well of course) sharing mass transit space with you from an exposure event is to place a scrap of material over your mouth and nose. That’s it. 6/
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I am incredibly proud to be named as a part of this incredible team focusing on treating
#LongCovid
. Much more to come, but expect RAPID research, TRANSPARENT results and INTERVENTIONAL trials. To the community of infection-associated chronic diseases: we will not let you down.
Today we are excited to announce the Long Covid Research Initiative - a collaboration of researchers, clinicians, and patients working to rapidly study and treat
#LongCovid
. We launch with $15M+ in funding commitments. 1/
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These psychosomatic minimizers are nothing if not consistent. Let’s break down their pathology:
1) They insist you don’t understand the condition the way they do (superiority complex)
2) Swear that they can cure you with positive thinking and GET (delusions of grandeur)
1/
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allowing committee members to even entertain this? The shameful history of the CBT/GET research community for falsifying data, such as in the PACE trial, alone should be enough to make you want to distance yourself from this whole line of research and yet you continue to 8/
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This visit wasn’t about me helping, it was about me bearing witness and understanding the worst possible severity of
#MECFS
. In almost 20 years of clinical practice, practice that has not been short of highly confronting clinical situations, I can honestly say that was the (6/)
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Fixed it.
@VirusesImmunity
you’re the best. Thanks for letting me help as we set the record straight on the pathophysiology of
#LongCovid
. Full read here:
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have any capability to help them, they knew that spending time with me would cost them. They chose to do it anyway so I could learn. That level of selflessness and bravery for a cause is so rare and needs to be acknowledged.
3) If there are people with
#MECFS
reading this (11/)
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these ultra basic things ringing a bell? Shame on you. You are entrusted with the solemn responsibility of safeguarding the most important resource your country has - the health of the population and you are squandering it and avoid hard decisions in the name of political 11/
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In fact, there are MILLIONS out there with
#LongCOVID
who do not know it yet because their media doesn’t run stories about it so they are going to continue to push through their symptoms until they crash and their disease process progresses (for this is a progressive disease) 4/
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who are in a similar situation, I wanted you to know what I’ve seen. I’ve seen first-hand how severe this illness can get. This is an experience that will stay with me for life, and until we have treatment options for people living with this severity of
#MECFS
, our work (12/)
4
53
954
Recently there have been members of the
#LongCOVID
community on this app who have expressed a significant dislike/dissatisfaction of me generally and the content that I share. A lot of people ask me why I don't respond to these comments, so here is my response: I get it. 1/
92
114
958
in scrubs and masks, trying to find space/avoid unmasked fools who somehow seem to ignore all cues for personal space and I feel as though we are all thinking the same thing - what if this is the train ride that gives me
#COVID19
and I pass it onto a patient. The single, 3/
4
71
944
offering any other treatment is malpractice. We wouldn't walk up to someone who is actively on fire and say "I know that being on fire can be very upsetting, but honestly let's work on reframing how upset this really makes you" yet this is "treatment" for
#LongCOVID
and
#MECFS
8/
12
204
942
Today I heard about a lawyer with
#LongCovid
that made a simple process error that delayed a project by 10 weeks. The human cost of LC is unfathomable, but there are also daily indirect economical consequences we must track. The lawyer has since stepped down from their position.
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179
911
and minimized for so long? They are passionate. They are fastidious. They are determined. They are WAY smarter than you, and...they keep receipts. Sleep tight, and, as always: see you in hell. 🤗 /end
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I am thrilled to share that the incredible
@resiapretorius
is in-house teaching us to look for microclots and platelet pathology in folks with
#LongCovid
!! Watch this space, but massive gratitude to
@VitalikButerin
,
@polybioRF
and Balvi for making this possible! 🫶🏼
#teamclots
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919
most prolonged and intense instance of human suffering that I had personally witnessed, and it was the most helpless I have ever felt as a clinician. My time was up. I thanked my host profusely and left their room. As their caregiver shut the door they said “they haven’t (7/)
2
66
903
Another day, another huge study warning us not to be complacent about the looming risk of
#LongCOVID
.
Is anyone listening?
32
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894
through behind closed doors.
2) I wanted to share how overwhelmed I was by the dignity, grace and selflessness on display by this individual in the face of unimaginable suffering. They gave me some of their precious energy so that I could meet them. They knew I would not (10/)
2
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892
comments regarding
#LongCOVID
in the media. The most prominent scientific journals in the world have published systematic reviews of the literature highlighting the fact that 7-12% of acute SARS-CoV-2 infections result in Long COVID - a chronic disease state that has no 2/
3
155
905
As I reflect today on
#InternationalLongCovidAwarenessDay
I know that there is a lot of suffering, loss and grief to account for, but I wanted to offer a message of hope. Today, we:
1) Categorically know more about
#LongCovid
than we did last year
2) Have educated thousands of 1/
35
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throw good money after bad. Why? I know, I know: “because it is low cost, highly scalable and relatively low risk (if you know nothing about PEM), and although it is *slightly* controversial (see above re: blatantly falsified data) it deserves deeper investigation.” Really? 9/
3
57
896
work, I rely on public transportation. For me to take a cab to and from work would run me ~$160/day which is not feasible and so here I am, every day being forced to share a subway car with ~50% of unmasked people that want the pandemic to be done. I see all my other HCWs 2/
4
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What a week! Thank you to the incredible
@resiapretorius
for teaching us how to search for microclots in the blood of folks with
#LongCovid
. I know a lot of folks are waiting but please bear with us as we learn to do this right. We will be ready for research soon!
#TeamClots
27
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I learned, with a mix of horror and shame, that extremely knowledgeable patients had been screaming this for decades, begging providers to listen. But those screams were being smothered by fools and charlatans pushing GET and CBT to “heal” physiological damage. So no more. 15/
2
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know what else? Let’s say we’re wrong. Let’s say rather than 1 in 5 folks, it’s 1 in 10, even 1 in 20: you really think I’m sitting here thinking “boy my face is red that I sounded the alarm on
#LongCOVID
because it is *only* severely disabling 5% of the population?” 6/
7
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