We're at a turning point. Since losing Co-Founder Ondine Sherwood in March, we need your help to continue our vital work. We’ve launched a funding appeal for a paid team member to keep fighting for #LongCovid. Can you help secure our future? Donate today: https://t.co/5npKlwqveJ

As clinics close and treatment is getting harder to find, help us to support the thousands living with the condition. Don’t let them be left behind. Share this post or support us today  🔗

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Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.

Recently we asked our #community to share their experiences of living with #LongCovid. What they told us was powerful, urgent and impossible to ignore.

Tokyo researchers studied 105 Long COVID patients and found that those whose immune systems shifted toward making more spike-specific IgG4 antibodies were nearly 4 times more likely to recover. IgG4 class switching predicted clinical improvement. https://t.co/MDaFIUojiO

In our most recent day of hearings, the Chair announced the Inquiry’s plans for publishing its remaining reports. Reports for all of the Inquiry’s 10 investigations are due to be published before the end of the first half of 2027.

Protecting others protects us all With #Covid currently circulating there are steps we can take to prevent ongoing transmission 🏠 Stay at home 😷 Mask up 🧪 Test for Covid 🗣️ Tell others

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💜 It’s #PoTSAwarenessDay 2025 #Covid uncovered what many already knew — #PoTS changes everything. Many with #LongCovid are now being diagnosed with #PoTS — causing dizziness, brain fog, racing heart, fatigue + more. 💬 Have you been diagnosed after Long Covid?

Tomorrow buildings and landmarks across the UK will be lighting up in purple for #PoTSAwarenessDay! To see where is lighting up near you please visit our website: https://t.co/CkcOQsOCWx  ⭐️Anyone who emails in their light up pictures (denise@potsuk.org) or tags us on their

New research has identified a potential biological cause for post-COVID fatigue/muscle fatigue. Scientists found that a molecule called soluble IL-2 receptor (sIL-2R), linked to immune activation, may directly harm mitochondria in muscle cells.

Researchers studied 163 adults with long COVID and no asthma. At least 75% had small airway dysfunction. Those treated with inhaled corticosteroids and long-acting bronchodilators saw fatigue fall from 96% to 15% and breathlessness from 83% to 18%. https://t.co/Tvr2ZjlHbG

Long COVID symptoms can last for weeks, months or even years. These symptoms can be mild or severe. Learn more about how to manage long COVID and how you can support someone living with long COVID: https://t.co/paiKZT1o2H

"Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome" Davenport et al., Nature Communications - Matters Arising. https://t.co/ObsyHcnWmh #MECFS #MEresearch

Invisible Disabilities Week is Oct 19–25 Not all disabilities are visible - but they deserve recognition, respect & support For people with #LongCovid, disbelief has real consequences. Invisible doesn’t mean imaginary. #InvisibleDisabilitiesWeek https://t.co/P2TCrEbgZa

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“In January 2024, a study published in the Proceedings of the National Academy of Sciences found that chronic absenteeism… nearly doubled following the Covid pandemic.” “In total, nearly 30% — some 13 million children — regularly missed school.”

Today, the Inquiry heard how the Government ignored the risk of Long Covid to children. There was a deliberate policy of allowing children to acquire Covid and Long Covid. Part of an opening statement by @sangeethaiengar on behalf of @LongCovidKids.

The joint union guidance on ventilation in schools and colleges has been updated. Good ventilation and measures to clean the air will help reduce sickness absence and therefore help maximise attendance. Download the guidance: https://t.co/R8BfIypo1V

Johns Hopkins scientists found that female mice recovering from COVID showed lasting memory loss and brain inflammation. The effect was driven by having two X chromosomes, revealing a genetic cause for why long COVID hits women harder. https://t.co/RJA4i2LGgk

Asked about providing guidance to schools re #LongCovid Gavin Williamson suggests providing no information was better than incorrect information. It appears this extended to not even confirming its existence leaving families we support subject to disbelief and fines #CovidInquiry

Quantum Computing is hitting an inflection point. @JoeMattia @QuantusNetwork @QuantumCanary_

Today, at public hearings for Module 8: Children and Young People we will hear evidence from two witnesses: Sir Gavin Williamson CBE and Jean Blair.

**Today** is the #PoTS debate in @UKParliament with @CatSmithMP, @AshleyDalton_MP and MP’s. Members of the @UKPoTS with be there! Turn in to watch live on the Parliament TV channel. #MedTwitter #MedEd #TeamGP