LCAP (Long Covid Action Project)
@LongCovidAP
Followers
3,270
Following
139
Media
60
Statuses
2,422
LCAP is a united, diverse force of non-partisan individuals taking action to end the Long Covid crisis through awareness & government accountability.
Washington, D.C.
Joined January 2023
Don't wanna be here?
Send us removal request.
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Pinned Tweet
"ANTIVIRALS NOW" a new short film directed by
@JoshuaPribanic
on SARS2 viral persistence reveals the destabilizing truth about Long Covid. Scientists,
#pwLC
& activists illustrate how society is threatened by COVID persistence.
Take action 🧵
#LongCovidAwarenessDay
36
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523
In November 2023, David Cutler, health economist and professor of economics at Harvard University, verified to Public Herald’s investigative journalist
@JoshuaPribanic
(also founder of LCAP) that an ask of $28 billion for Long Covid is reasonable, “an amount equal to HIV funding,…
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We Call for a Congressional Hearing & Criminal Investigation of CDC!
Demand CDC is criminally investigated for official misconduct.
Sign the letter!
#CDCKills
#LongCovidAwareness
@DrJudyStone
@DOJCrimDiv
@TXAG
@attorneygeneral
@FBI
@AGRobBonta
17
231
505
Hear this recording & act. LCAP emails from pwLC will stop when the
#CureLongCovid
11 demands are in legislation, when
@JoeBiden
Declares LC a National Emergency 🚨, when LCAP can testify 2HELP, when children receive LCantivirals
@kbr227
#NoCureNoPeace
🆘
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158
383
Long Covid Activists, including
@joaquinlife
, protesting
#CDCKills
today in Washington, DC after the historic first
@LCDCmarch15
#LongCovidAwarenessDay
(created by
@LCawarenessInt
)
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Deborah Birx, former White House COVID response coordinator, says Omicron will take down Paxlovid. “If we lose Paxlovid, we could easily double the number of deaths,”
"Americans have accepted repeat infections...[therefore a] “high level of long COVID,”
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Long Covid Direct Action 🥷 is breaking through the U.S. press 🎯 demanding to Declare Long Covid a National Emergency 🚨 Antivirals NOW 💊 & $28B NOW! LCAP believes the HELP Committee excluded a large swathe of long COVID voices from the meeting.
🔗 …
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“early in the hearing, two [LCAP activists] advanced to the front of the Senate chamber w/ banners reading, “Declare Long Covid a national emergency.”…calling for $28 billion in research funds & comparing Long Covid to HIV/AIDS.”
🔗
#LongCovidAwareness
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@DLeonhardt
No talk of life expectancy or
#LongCovid
in a story about Covid deaths…so society as a whole is still on course to die faster in the long run but short term we’re good unless we roll the dice too many times for Long Covid. Are there still editors at nytimes?
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New Call-to-action ⚡️ LCAP w/ community action has successfully pressured the Senate HELP Committee to hold a hearing for
#LongCovid
on Jan 18.
Tell HELP that LCAP must be called as a key witness to testify & take Q&A on the LC 11 demands. ✅
#DemandHELP
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Do no harm. Mandate Universal Respirator Use in Healthcare! New International Action Launched! 🚀
🖊️✅
Sign LCAP's new action created in partnership w/
@winslow_la
&
@theacecoalition
to demand we protect people from SARS-CoV-2, COVID-19, infections.
Get…
9
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“11 studies reported the persistence of SARS-CoV-2, or parts, in children's tissues or biological fluids for weeks/months after acute infection. Time between the initial infection [&] examination ranged from 4 to 303 days”
#LongCovidKids
#LongCovid
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@Hayley_Gleeson
this is how the HELP hearing senator
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
5
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“Patients are developing AIDS-like immunodeficiency and succumbing to opportunistic infections and cancer. But these stories are not being told. The situation is urgent. We have no treatments and no seat at the table to shift the focus to one that will save lives.”…
1
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I just wrote the
@LongCovidAP
letter "Request for
@NIH
to Retract RECOVER Study Regarding 12 Symptom PASC Score For Long Covid" — Write one here:
Be Loud.
Take Power.
Fight Long Covid.
7
49
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@ChrisCuomo
@NewsNation
[breaking] this is how the HELP hearing
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting…
0
22
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“We recently published a paper on people w/ brain fog or new [neuro injury] symptoms [months] after COVID. It found they had COVID proteins in their blood. That was very surprising, because the virus that causes COVID is not supposed to persist”
#LongCovid
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For Immediate Release: Long Covid Activists Disrupt Senate Hearing — “We had no choice but to act. If you fund the proposed legislation you’re not funding what we need. The amount of “moonshot” funding is insufficient, the focus of the legislation is not on development of…
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LCAP is sending allies to HELP in DC to advocate for the 11
#CURELongCovid
demands. With only a week’s notice that means our 💰 costs are 🆙 In this rare & important interest we’re asking for donations to help cover expenses. If able Donate/share 🙏
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Tinnitus can be more than ringing in your ears.👂🔔
For some, it's a debilitating condition with no cure that destroys quality of life, and is one of the over 200 common symptoms of Long Covid.
Demand treatment. Take action. Link in bio.
#LongCovidAwarenessDay
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35,559 letters sent!
Be Loud.
Fight Back.
Stop s/sx Gatekeeping.
Demand Children’s Voices Are Heard.
Demand Pathogenesis & Molecular Science.
Solidarity 🔥✊
#LongCovid
#longcovidkids
#SARSCoV2
3
18
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@DrEricDing
It’s time to demand a Congressional hearing & criminal investigation into the decisions that have harmed public health over the last 4yrs & beyond - join us in this call to action & hold CDC accountable!
We Call for a Congressional Hearing & Criminal Investigation of CDC!
Demand CDC is criminally investigated for official misconduct.
Sign the letter!
#CDCKills
#LongCovidAwareness
@DrJudyStone
@DOJCrimDiv
@TXAG
@attorneygeneral
@FBI
@AGRobBonta
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“Declare Long Covid a National Emergency!” LCAP activists get front page coverage/video
#LongCovid
#LongCovidkids
#LongCovidSenate
direct action gets the goods
#LCAPFightsBack
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ACTIVISTS OUT TO SAVE LONG COVID LIVES TODAY protesting at HHS in our nation's capital ✊🏿✊🏾✊🏽✊🏻✊
Activists protest in front of
@HHSGov
re
@POTUS
@congressdotgov
@SenSanders
@HELPCmteDems
continued lack of urgent & relevant action for
#LongCovid
&
#LongCovidKids
on…
0
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LCAP has started an NIH Committee to draft the Long Covid community’s concerns regarding both the NIH press release & RECOVER paper published in JAMA. If you’re willing to volunteer your time/skill on this committee please send us a DM.
Be Loud.
Take Power.
Fight Long Covid.
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Volunteers took action today in DC 🔥 Screening “ANTIVIRALS NOW “ w/ HELP committee Senators offices 🎞️ 👀 & lobbying 11
#CureLongCovid
Demands: $28B & Antivirals Now, SARS2 persistence trials/research! LCAP fights back! Support
#LongCovidAwarenessDay
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🙌 “The fact that every new SARS-CoV-2 infection may have the potential to become chronic and cause devastating illness is perhaps the single most concerning aspect of the COVID-19 pandemic,” says Dr. Amy Proal, President of PolyBio. “Only by working rapidly and collaboratively…
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Backstory: the Senate HELP committee is holding a hearing on Long Covid Jan 18 that was given one week's notice. LCAP organized a campaign on Friday to legislators & staff on the HELP committee to deliver LCAP's
#CureLongCovid
11 demands & request LCAP be called as a witness.
0
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@Jamie_Ducharme
this is how the HELP hearing senator
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
0
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"ANTIVIRALS NOW" premiere 🎞️ in 4 days. Subscribe to LCAP on YT & click "notify me" 🔗
Be loud. Join
#LongCovidAwarenessDay
on March 15
@LCDCmarch15
.
#LongCovid
#pwLC
#LongCovidKids
#LCAD24
#SARS2
#Covid_19
#ShortFilm
#fujifilm
#ViralPersistence
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LCAP denounces
@PlzSolveCFS
plan to bury
#LongCovid
under an umbrella brand & call on LC orgs/advocates/allies to speak out & protect our narrative.
We demand SolveME cease this campaign & apologize for unilaterally trying to rebrand LC.
Silence = complicity
GET LOUD
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At 3pm (your time) today. People w/ Long Covid & advocates globally can help raise awareness by posting about: living w/ LC, facts about LC, Long Covid News.
Be Loud.
Take Power.
Fight Long Covid ✊
#LongCovidAwareness
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@thesicktimes
[breaking] this is how the HELP hearing
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
0
9
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Fauci tries to explain why Long Covid is buried by the US gov instead of there being NIH trials underway to find a cure.
There are no trials at NIH that match the kind of research demand needed to solve viral persistence w/ LC.
We need to be loud.
Thank you Mehdi.
“Clinical trials likely should have been done sooner.”
On today's
@MehdiHasanShow
, I pressed Dr. Anthony Fauci on the slowness of our government to address what he calls the “serious problem” of Long COVID - and on Biden never mentioning it.
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@nicolekarlis
this is how the HELP hearing
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
0
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Long Covid is a National Security Threat — from the US military, "Nearly half of 363,000 US veterans who tested positive for COVID-19 still had symptoms up to 6 months later...risk factors for this condition were Black race/age/diabetes/severe infection"
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I in solidarity with the Long Covid community demand that your political office take immediate action to respond to these demands to help find a cure and social support structure for Long Covid.
#LongCovidAwareness
0
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Incredible. LCAP ‘s action now has 211,062💥
#CureLongCovid
letters delivered to 19 gov agencies/wh/congress w/ 11 demands spotlighting Economist David Cutler’s support for ≥$28B annually to LC.
@ChrisCuomo
#NoCureNoPeace
🆘 1M by March 15 ✊
✅🔗
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“government action is a matter of life and death”
#LongCovid
Thank you
@Julia_Daye
@MiamiHerald
for publishing our stories & demands & informing the public about LC 🔗
We are “looking at [our] deathbeds” w/ Long Covid
Viral persistence by an airborne pathogen w/ AIDS-like ability to kill your immune system is a national security threat & demands $28bn 🔄 from the American government🇺🇸
#SARS2
#AntivralsNow
Story 🔗
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@CovidCastaways
@JoeBiden
It’s shocking anyone would treat people dying from a disease in such a way. We need
@LastWeekTonight
to help Ken handle the dreaded Scotland 🏴 email
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"As US COVID public health emergency (PHE)—to end May 11—draws to a close, Birx is concerned that apathy has overtaken common sense. She says she’s more worried about the lack of progress on vaccines & therapeutics than about the government declaring an end to COVID crisis"
1
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Tell
@SenSanders
that $1B/yr:10yrs is not sufficient. ~$33/yr PP is not enough for an illness
@NIHDirector
confirmed (per 100s of studies proving it) has
#ViralPersistence
. LC need
#AntiviralsNow
& comprehensive legislation to
#HELPHEALUS
✊🏼
1
16
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“I felt compelled to act today because the government continues gatekeeping the patient community to curate a “moonshot” story that minimizes Long Covid demands,” said Roberts.
@grace_wade_
@HallieZLevine
@haussamen
@IreneEWright
@JackieFortier
…
2
13
44
For
#LongCovidAwarenessMonth
and
#LongCovidAwarenessDay
we invite everyone to join w/ LCAP, a non-partisan trans-founded organization, to call for solidarity & actions that are inclusive, diverse, & anti-oppressive in order to take down structural discrimination. LCAP affirms its…
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Urgent Action Alert 🚨 We Have 4hrs to contact Senate HELP Committee to Set The Record Straight! Tell HELP ON RECORD that
#LongCovid
is a new disease in & of itself & we demand steps be taken immediately to secure repurposed & novel antivirals NOW!
🔗✅
5
26
42
@Pien_Huang
this is how the HELP hearing senator
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
0
5
41
@SmithDanaG
this is how the HELP hearing senator
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
0
4
41
Activists protest in front of
@HHSGov
re
@POTUS
@congressdotgov
@SenSanders
@HELPCmteDems
continued lack of urgent & relevant action for
#LongCovid
&
#LongCovidKids
on
#LongCovidAwarenessDay
(created by
@LCawarenessInt
) after an historic day of Long Covid Activism & Solidarity at…
1
13
42
“we won’t be silenced about Long Covid demands that will save the lives of children and adults. Moonshot kills. Expect us.”
@DeFran3837
@ddiamond
@SmithDanaG
@dawessner
@DoreeLewak
@DrJudyStone
@edyong209
@EmyleWatkins
@erinallday
@felicejfreyer
…
1
10
40
Exciting news! The
#LongCovid
short film ANTIVIRALS NOW has been featured in
@sanduskyregistr
online & in print! 🗞️ 🎬✨ “a serious effort needs to be made to develop antiviral drugs to help people with Long COVID. Activism is needed similar to the…
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LCAP remained excluded not only from Thursday’s senate hearing, but every prior governmental meeting on Long Covid that has taken place between legislators and so-called advocacy organizations. After 4 years of those meetings there are zero FDA-approved effective therapeutics…
0
8
38
LCAP’s action calling for CDC accountability 🔥 is covered today in the
@thesicktimes
by
@mileswgriffis
“Long Covid Action Project has organized a letter to public officials demanding a congressional hearing and criminal investigation of the CDC”
✅ 12,000+ letters have been…
5
20
36
@kdangerfield
this is how the HELP hearing senator
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
0
4
37
New LC story by
@taracobham
@Independent
cites LCAP’s
#ENDLC
international action letter for
#LongCovidAwareness
🔥“UK government [has] so far received over 74,000 letters demanding it tackle the long Covid crisis as part of a campaign launched by LCAP”
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10
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@austieJFish
this is how the HELP hearing
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
1
3
35
Caption: Artwork for “Find a Cure for Long Covid, These Are Our Demands”designed by
@haziethompson
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@SenSanders
LCAP has 11
#CureLongCovid
demands that only through direct action were presented at the hearing. Senate HELP committee must schedule a new hearing (w remote options) to ensure those severely disabled by LC can be represented & inform the Senate - their lives are on the line.
Long Covid Direct Action 🥷 is breaking through the U.S. press 🎯 demanding to Declare Long Covid a National Emergency 🚨 Antivirals NOW 💊 & $28B NOW! LCAP believes the HELP Committee excluded a large swathe of long COVID voices from the meeting.
🔗 …
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One of the LCAP direct action banners dropped at the HELP committee was created by Tracey Thompson. If you’re able, please consider donating 💰 to Tracey’s campaign to show your support & appreciation! Solidarity
#LongCovid
#LongCovidKids
#DonateToday
#pwLC
#LongCovidAwareness
1
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Credits: ANTIVIRALS NOW
EXECUTIVE PRODUCER: CS ANDRA
PRODUCERS: PUBLIC HERALD STUDIOS, LCAP
DIRECTOR, WRITER: JOSHUA BOAZ PRIBANIC
EDITOR: ANDREW GELLER
MUSIC: SONORA MUSIC
#fujifilm
#Documentary
#shortfilm
#shortfilmfestival
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Long COVID activists crash 💥 Senate hearing. Here’s what they’re demanding
“Only 10 minutes into the hearing, activists stepped into the center of the floor, holding signs the size of themselves. “Declare long COVID a national emergency,” they said in a video shared by Sen.…
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For
#LongCovidAwarenessMonth
, LCAP reps will meet w/ legislators & federal agencies in D.C. 🙌 & we need your help.
Donate today:
Help lobby for:
#LongCovid
legislation 🗳️ SARS2 antivirals 💊 🇺🇸Emergency 🆘 $28B🔬💰 CDC accountability 😷 & 11 demands 📝
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Update, Ken has blocked us:
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@tesskouthis
this is how the HELP hearing senator
@SenatorBaldwin
's chief of staff is responding to people w/ Long Covid who are trying to inform legislators & demand a voice in the hearing about how laws are drafted about our disease. Please consider reporting about this.
1
3
32
LCAP is slated to launch a blitz action tonight for people w/ Long Covid to have a chance to go on record w/ Senate HELP before the midnight window closes & to be clear LC is a novel disease & that we need novel antivirals now tackling SARS2 viral persistence. Please stay tuned.
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@SenSanders
Two LCAP activists w/ Long Covid were blocked from attending the HELP hearing on their own disease after they unfurled a banner to Declare Long Covid a National Emergency. They sent 11 demands for HELP to act. Antivirals now. $28B now.
@itsJalenB
1
6
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11 months of LCAP activism:
✅ 12
#LongCovid
actions
✅ 6 LC committees
⏰ 164 hrs of spaces
🔥 139,000+
#LongCovid
letters & calls to gov
🔥 117K+ letters to healthcare
✊ 11
#CureLongCovid
demands
💰 LC $$ ask 🎯
💥 40+ volunteers
#GivingTuesday
🔗
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@LauraMiers
Thank you for sharing your voice Laura - we all deserve to be heard, every 23M+ at the table until we get results. Solidarity
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“We believe we're in a very strong position to continue to fight COVID. & this is not new. People know what it's like to have COVID”
Attn
@PressSec
, you don’t know what it’s like to have Long Covid - a new disease - & ur not informing people of the risk.
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LCAP is calling for donations 💰 to send allies to DC on March 15 to hold direct actions at CDC & LCDC for
#LongCovidAwarenessDay
& to release a short film 🎥 on LC viral persistence.
If able Donate/share 🙏
We have $5K in matching funds for those who…
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“It’s important to internalize that those in charge have done so with climate and are doing so with COVID; there are no adults taking care of us, only oligarchs squeezing profit from us.”
#LongCovid
#LongCovidAwarenessMonth
#ClimateEmergency
#LongCovidEmergency
#AntiviralsNow
Major media continued its assault on Long COVID patients by denying their very existence on Long COVID Awareness Day. As the voices of the victims of "let it rip" (unchecked disease spread) get louder, attempts to silence them intensify.
New from me:
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1K
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I. Take Direct Action, Donate, Volunteer w/ LCAP to end the Long Covid crisis
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
#LCAD24
#pwLC
1
9
29
Call our lawmakers to declare
#LongCovid
a National Emergency!
Renowned economist Dr David Cutler, PhD, Harvard University says our ask should be at least $28B
Info on how to call & action letter you can personally tailor below.
Be Loud 📣
#CureLongCovid
💯…
1
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LCAP space is postponed till a later date - in the interim there are new emails from FDA, HUD, HHS, NIH, CDC & more that were added today by volunteers to the Cure Long Covid Letter of demands. We’re asking everyone to send a new personalized letter 🔥 ✊
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Call details - follow LCAP’s call-in guide for help & folks can use the CDCKills letter for a script
0
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LCAP is dismayed with
@PlzSolveCFS
plan to further generalize
#LongCovid
. Changes to the advocacy effort should be addressed in some effort via the Long Covid community.
Anti-science schemes will increase research failures & perpetuate Long Covid deaths.
Silence = complicity…
0
7
22
An excellent article by Jeannette Burmeister (
@JKBurmeister
) regarding Dr Brian Walitt & how
@NIH
has handled ME and their latest, controversial study on
#MECFS
Myalgic Encephalomyelitis, “Deep phenotypic of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome.”
Ms…
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II. Take Action & call congress to share the 11 demands asking for Long Covid to be Declared a National Emergency, to demand ANTIVIRALS NOW, & $28bn is allocated in annual funds through new legislation or executive action. Use LCAP’s Call-in guide to find your congress person or…
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Sweden healthcare contacts have just been uploaded to the respirator action letter - if you’ve already signed, consider resigning to send another letter in solidarity w/ Sweden ✊
12,425 letters sent 🔥
🖊️ ✅ x2
Do no harm. Mandate Universal Respirator…
1
13
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Img alt: Declare Long Covid a National Emergency "Long Covid is the fastest growing disease in America.
Over 23M+ people of all ages are potentially undergoing HIV/AIDS-like damage to their immune system.
This is a national security threat. Declare an emergency & fast-track…
0
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LCAP is one year old 🎂!!
We wish for all 11
#CureLongCovid
demands to be completed in 2024💥
Declare LC a national emergency 🆘 & allocate $28B+ annually. Let’s talk about it. Tonight @ 7pm est.
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We did it! Awesome 👏
#LCBLITZ
everyone! This was a very short action over a few hrs to set the record straight about Long Covid viral persistence & disease novelty & to file statements w/ the HELP committee asking for a new hearing - great work! If u missed it & still want to…
Urgent Action Alert 🚨 We Have 4hrs to contact Senate HELP Committee to Set The Record Straight! Tell HELP ON RECORD that
#LongCovid
is a new disease in & of itself & we demand steps be taken immediately to secure repurposed & novel antivirals NOW!
🔗✅
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1
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@JoshuaPribanic
Shows us the records
@washingtonpost
! We're working w/
@LongCOVIDnetwk
& a group of Long Covid partners to tell Washington Post that the article on Long Covid is unacceptable - here's our list of corrections & demands. Sign & Share, Solidarity
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Ending COVID’s health emergency shouldn’t happen in a whimper. There are tens of millions of Americans battling Long Covid, & up to 26% of children infected by SARS-CoV-2 who have LC. We need gov to step up in the fight against COVID-19, not step down.
#LongCovid
#LongCovidKids
Ending Covid's health emergency status brings with it many problems, not the least of which is the loss of needed help for those suffering from Long Covid.
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SIGN THE LETTER! Demand a government response to the Long Covid Crisis in the UK.
Goal: 25,600 letters
Currently: 14,930 letters AND COUNTING! 💪
SIGN & SHARE:
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Q: “Why isn’t LCAP a 501c3?”
A: If you’re not aware of restrictions w/ tax exempt status, there’s 2 ways it would stop LCAP (& does stop existing c3 orgs) from performing the type of constant political action Long Covid needs for change. i.e. ❌ lobbying ❌ political support🧵
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Set a reminder for LCAP’s upcoming Space Jan 18, 10am est, to Senate HELP Committee Hearing on LC! Listen-in 🎙️ LIVE w/ the Long Covid community - take action on issues discussed & those unheard.
#DemandHELP
#pwLC
#LongCovidKids
#LongCovidAwareness
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LC must demand tissue viral load tests for SARS-CoV-2 +🩸
“persistence of SARS2 in tissue is a major target for [research/trials]"
@VitalikButerin
“research thus far strongly suggests we [look] at viral persistence as the deep cause of Long Covid” 🙌
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ATTENTION MEDIA🚨
To help the public take action on
#LongCovidAwarenessDay
, LCAP UK has created an online letter that when signed can be sent to the UK government.
Find the full press release demanding action for Long Covid patients HERE
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We fight w/ those who will enact policies that eradicate racism, poverty, and militarism. As we remember
#MartinLutherKing
, we
#DemandHELP
end racial injustice in healthcare w/ new legislation to: “Ensure racial and gender health equity in research, access to clinical trials,…
Dear politicians/political influencers:
When you evoke my father this
#MLKDay
, remember that he was resolute about eradicating racism, poverty, and militarism. And about corrective justice work.
Don’t just quote him.
Encourage and enact policies that reflect his teachings.
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