My latest short film “ANTIVIRALS NOW” is about creating the OUTRAGE against gov negligence for allowing SARS2 persistence to spread unchecked & the empathy we must collectively feel to
#ConfrontLongCovid
& mobilize congress to fund novel antiviral research
10 days (+)
7 days (-)
Now, day 18 (+) again
We are ill-informed
@CDCDirector
about how SARS2 works, how long COVID-19 infections last, how to test, & the life-altering & life-threatening consequences of developing Long Covid.
Take action 🔗
#JN1
“Covid deaths are down by 90%” Biden
#SOTU
Yet, Long Covid is everywhere. It’s crippling families & the economy, there’s no cure or treatment, no gov committee…& a Harvard study this week reported 44% of nurses developed long Covid out of 1900 infected. This is an emergency.
The way you prevent long Covid, is to not be infected w/ Covid. My wife’s diet & her physical activity could not have stopped this from happening. There’s no magic beans 🫘
#vaccineinjuries
#LongCovidKids
#COVID19
“Today Covid no longer controls our lives” Biden
#SOTU
Speak for yourself Mr. President, there are millions of us who’s lives were stolen by Long Covid & we’re not going to sit back & allow our lives to remain threatened by an army of reinfections
The title should be “No One Knows If You Can Prevent Long Covid, But We’re Certain Every Infection Puts You At Risk” because that’s essentially what it says - the evidence is clear that neither vaccines or paxlovid do the job & they’re dancing around it
Potential source of Parkinson’s disease discovered: “strains of Desulfovibrio bacteria are likely to cause PD. The disease is primarily caused by environmental factors, that is, environmental exposure to the Desulfovibrio bacterial strains”
#longcovid
My mild Covid infection turned into 2+ years of Long Covid - w/ signs of LC remaining dormant until 30-60 days after initial Covid symptoms when a pure inferno took hold. Bottom line is no Covid encounter is mild - do whatever you can to protect yourselves.
#keepmasksinhealthcare
"In the current understanding of what happens when a virus enters the brain, there are two outcomes, either cell death or inflammation, but we've shown a third possible outcome, which is neuronal fusion."
#longcovid
#sarscov2
#longcovidkids
36% prevalence of Long Covid among university students who were mandated to be “fully vaccinated” is not the narrative media/government are telling the public about Covid vax reinfection/risk. This headline is now top of the
@LongCovidAP
billboard list
New research pointing Long Covid to Viral Persistence regardless of vaccination status: “All tissues analyzed showed the presence of SARS-CoV-2 genomic RNA…even among those cases who had been COVID-19 vaccinated…[also] presence Omicron sub-variants”
Worldwide 70x more people have been killed by COVID than weapons of mass destruction.
2x as many Americans died from SARS-CoV-2 than all U.S. wars combined.
Long Covid is the fastest growing disease in America.
COVID-19 inaction by political parties is killing Americans.
Note
@washingtonpost
“He’s no longer seeing any health care provider for long COVID, citing frustrations over hearing his extreme fatigue being described as “annoying” rather than life-changing, & prescribed physical therapy [crashing] his energy”
Win 🔥 I just heard from a rep who read the LCAP
#CureLongCovidLetter
- they're now taking steps to include our demands to "Establish ≥$28 Billion in Funding for Long Covid Programs & Research" in budget hearings for 2024. Keep sending letters!
🔗
In November 2023, David Cutler, health economist and professor of economics at Harvard University, verified to Public Herald’s investigative journalist
@JoshuaPribanic
(also founder of LCAP) that an ask of $28 billion for Long Covid is reasonable, “an amount equal to HIV funding,…
Today I turned 41,000 yrs old
#LongCovid
Any palm readers out there want to take a crack at this? 🔮
What LC symptom do we call this? When do I get my fkn honorary wizard staff
@POTUS
?
Do we need to start a Long Covid Daily Show cause this shit is getting deeper & deeper into a propaganda state, except in this case we’re talking about a BSL-3 virus that’s airborne…”we’re in a better place…we have common sense strategies now like washing your hands” 😂 wtf
How can you get involved in the discussion about the
#climatecrisis
? Join us,
@MarkRuffalo
,
@pearl_remote
+ ten orgs from around the world on March 13 for a virtual Youth International Screening of INVISIBLE HAND + a youth-led panel of climate activists: .
@CDCDirector
It’s a relief that you’re feeling better, but if it took you more than two weeks to return to work then in all decency the CDC guidelines need revisited to be updated beyond 5 days for the rest of us.
I wear a respirator to help protect everyone from
#SARS2
. Stop letting government run society off a disability cliff. Long Covid could be one infection away from turning your life or a loved one’s life into inferno. We can end this - demand a cure for LC.
#longcovidawareness
If you don’t know what Rights of Nature is, checkout our award-winning documentary INVISIBLE HAND w/
@MarkRuffalo
where we unveil this global movement fighting injustice for Nature, & demanding serious paradigm shifting action:
If Long Covid proves to be a condition caused by viral persistence then Omicron is a variant who’s ability to escape immune system ‘killers’ by shutting down the T cell alarm system only hypothesizes the likeliness of it being a strong mutation for more LC
Protecting soldiers = solving Long Covid. Dear Congress, a soldiers health comes 1st “Researchers say they believe more than 40,000 veterans connected to VA healthcare are suffering from long COVID, based on reviews of department cases”
#LongCovidAwareness
@CDCDirector
Tell the CDC what’s really going on w/ COVID-19 & how we need common sense protections like RESPIRATORS IN HOSPITALS! They’re cc’d here - write your letter
Living w/ Long Covid can mean your feet turn purple, your eyes turn red, & your head turns on fire 🔥 we need
@JoeBiden
to hold a
@WhiteHouse
press conference about this condition & the billions it’s going to take to solve it. Pay attention
@POTUS
#LongCovidAwareness
Confirmed by leading Long Covid researcher
@microbeminded2
:
1. Long Covid is new & novel
2. Long Covid’s major driver & area of research: SARS persistence
3. ME & LC are not =. Both can be viral persistence, origins/pathogen activity biologically different
#LongCovidKids
When it says Paxlovid reduces Long Covid by X% = every major news headline, but if it says “Resistance to Paxlovid is already evident among viral SARS-CoV-2 variants currently circulating globally” = no major news headline
@pfizer
As waves of Covid-19 narratives build, a new article in
@Salon
points out how SARS-CoV-2 infections can lead to Long Covid at all ages in ways that mirror neurodegeneration “long COVID patients are possibly experiencing early stages of neurodegeneration”
That’s code for SARS2 vaccines are not working, mutations outsmarting pharma: “JN.1 may evade our immune systems & dodge protection built up from previous infection & vaccination…it may replicate faster” we need real antivirals now
@CDCDirector
@BernieSanders
Declare Long Covid a National Emergency 🆘 pass new legislation for novel antivirals w/ $28B allocated annually for LC viral persistence research & programs. Tell Bernie Sanders & the HELP committee to take action by sending your letter to congress & NIH
So, Long Covid in wildlife - we know this has to be happening…another story that’s not being told. I feel like we need another letter to government just to give voice to Nature, as it’s completely discarded in discussions, or amend our existing one
Today I heard about 2 parents, one receiving care & one watching over as caretaker. Hospital wheeled a patient into the room w/out checking them for Covid. Both parents were infected & one of them died. US hospitals are killing people.
#SARSCoV2
#LongCovid
I didn’t go to the emergency room for a broken leg. I went 3x times because I was near death from Long Covid. Everyday there are lethal signatures of Long Covid sewn throughout my body. Death is a real threat for those of us living w/ this disease. Do not attempt to minimize it.
Dear
@elonmusk
, we understand twitter’s working out issues, but is there any way you can lift the wrongful suspension of our friend Junior who’s battling
#LongCovid
? This illness is incredibly isolating & twitter is one place we all come together in solidarity. Sincerely
Viral persistence is a scientific fact for SARS-CoV-2 as
@PutrinoLab
points to in this video & it’s fringe science to turn against this & not demand novel antivirals. Orgs & influencers need to stop muddying the
#LongCovid
waters w/ hypothetical beliefs.
Holy shit, this is your headline “During that time, more than 1,900 participants contracted COVID-19. Among these, 44 percent developed long COVID” - this is alarming 🚨 forget whatever stretches they make about lifestyles being consistent for 5yrs - 44% long Covid rates!
Children infected by SARS-CoV-2 have persistent virus hidden in tissues or fluids throughout the body. This kind of biomedical evidence conveys a medical emergency w/ national security implications. We need a Ryan White Care Act for Long Covid immediately. Cure Long Covid.
“11 studies reported the persistence of SARS-CoV-2, or parts, in children's tissues or biological fluids for weeks/months after acute infection. Time between the initial infection [&] examination ranged from 4 to 303 days”
#LongCovidKids
#LongCovid
Long Covid is everywhere. In an interview today w/ a film festival they asked about my LC & went into how a cousin who has battled this for 4 yrs feels like they have dimentia. This disease is slaughtering America 🇺🇸. Where are our antivirals? 💊
@POTUS
@SenSanders
@RepPressley
Not one mention of viral persistence. I cannot stress how important it is as a journalist writing about Long Covid to cite & discuss viral persistence if you’re trying to create a discussion around anything associated w/ SARS-CoV-2. Every study looking for it, finds it.
#fatigue
🛑I wrote about what “fatigue” really means for people with long COVID and ME/CFS, and why this profoundly debilitating symptom is so often misunderstood and trivialized.
(This piece also covers PEM.) 1/
"The spike protein has the capability to change your soluble clotting protein to insoluble little microclots and that's where everything starts…vascular damage in endothelial damage and you will have a micro cloud presence in some individuals”
#longcovid
Cornell University Molecular Biology professor
@DrMaureenHanson
says concluding Long Covid & ME/CFS are identical is unwarranted w/ current data identifying unique differences in both symptoms & etiology - challenging Harvard’s Michelle Williams LC/ME conflation
@statnews
piece
I just wrote the
@LongCovidAP
letter "Find a Cure For Long Covid" & told gov that Economist David Cutler says we need ≥$28 billion annually now! 11 demands articulate this in the letter.
Write your letter here:
Be Loud.
Take Power.
Fight Long Covid!
Anything pointing Long Covid to neurodegenerative diseases like Parkinson’s is extremely bad & increases the need for emergency attention from
@POTUS
@NIH
In short, loss of gray matter equals loss of brain cells. It’s found in diseases like Alzheimer’s and Parkinson’s. Now, it’s being found in Long Covid patients. The participant’s ages ranged from 22-60. All were formally healthy and had mild acute onset.
This sincerity & frustration lives w/ me everyday on Long Covid Island - much of 2022 felt like “nobody knows what to do next” but I’m optimistic that 2023 will be the year over 23 million people scream Long Covid & congress will jump. Solidarity
@wendydheard
I’m sorry to hear you’re going through this. I was in the same position almost 2yrs back. Here are the top things that helped: 1. Low histamine diet (check mast cell 360) 2. Increase intake magnesium/coQ10/niacin 3. Sea salt mineral water 4. Serrapeptase & nattokinase 5. Ginseng
I just signed, The CARE for Long COVID Act letter. Ask your elected officials to cosponsor the CARE for Long COVID Act today! This will try to create the initial investments to support long COVID patients.
@PandemicPatient
#advocacy
#longcovid
@timkaine
By Monday we'll have over 300K
#CureLongCovid
letters. This is now the largest Long Covid action in the U.S. It's 100% grassroots truth to power! LCAP achieved what some thought was impossible — solidifying a voice for LC. Join the movement!
#DemandHELP
🔗
An excellently worded article by
@tesskou
about Long Covid risks from reinfections “It is akin to playing Russian roulette” along w/ 🎯 language about SARS2 forcing itself into T cells “to activate the cell's self-destruction programming & implode”
They’re creepy, they’re crawly, and they’re an excellent indicator of water quality - Learn how aquatic insects help us gauge the health of Pennsylvania’s rivers, lakes, and streams:
Hospital workers deserve the right to sue their employers if the work environment creates a 27% risk of having your life as you know it taken away from you & replaced w/ inferno. Long Covid isn’t going anywhere anytime soon - demand respirator mandates
@ClevelandClinic
@UPMC
Study finds 27% rate of long COVID in infected health workers
Multiple
#COVID19
infections were predictive of developing
#LongCOVID
Photo: Hospital Clinic / Flickr cc
@AshishKJha46
@POTUS
Long Covid is dominating millions of lives in America. Vaccines are not stopping Long Covid. We need a cure, we need treatment, we need funding, we need acknowledgment, & we need warp speed action from this administration yesterday.
Symptoms decreased AFTER 5yrs w/ Long Ebola, but still greatly impact their lives…but u don’t risk reinfection w/ Ebola every 3 months…Long Covid is a new paradigm in our history of illness; what other virus can do what SARS-CoV-2 is doing through LC?
It’s in our bones. SARS-CoV-2 viral persistence is in our bone marrow. There are reservoirs of SARS2 being found all over the body & tied to Long Covid.
@NIH
RECOVER must be forced to change trial focus to antivirals to see if anything can stop these reservoirs.
@RepAnnaEshoo
🧵 on our preprint with
@ZaidYounes9
and team
In this study, we delve deep into COVID pathophysiology to show that:
SARS-CoV-2 infects the human bone marrow megakaryocytes, and this shapes the trajectory and severity of the illness by triggering ...
🔗
@RepRashida
💯 it’s critical we establish an emergency Long Covid committee to fast track trials & treatment - & a permanent wing dedicated to chronic illness at the
@NIH
. Without either, our Democracy will be crippled if the massive growth of disability from Covid19 continues
Study confirms PD hypothesis “the detection of viral proteins in the substantia nigra and the vagal nuclei support the notion that..SARS-CoV-2, may predispose, or precipitate, the development of neurodegenerative diseases, especially Parkinson’s Disease”
How powerful is the
#longcovid
community? In two days we organically reached hundreds of thousands of people on Twitter from The New Republic letter
@PublicHerald
+ hit the top 3 spots for Google News & Top Stories! Our strength in numbers when united is not to be trifled with.
Solidarity to everyone w/ LC & all those suffering from chronic & lethal health conditions who could not be w/ family today because we have a government & society unwilling to mitigate the spread of SARS-CoV-2.
& to cultures suffering the trauma of a colonizing holiday.
@AshishKJha46
Will
#XBB15
症状 cause an increase in Long Covid? Yes. Will Long Covid seriously affect your health? Yes. Is there a treatment for Long Covid? No. Has the
@WhiteHouse
declared Long Covid a public emergency & issued operation warp speed measures for solutions? No. Why? No answer
Duquesne University Scientist Says State’s Water Testing For Fracking Chemicals Cannot Be Trusted “
@PennsylvaniaDEP
’s practice or policy in collecting these water samples, in my opinion as a scientist, is invalid.”
Not at any point in this speech did I hear
@ewarren
deliver a genuine original message - all of it sounded like a plagiarized watered down regurgitation of
@BernieSanders
2016 campaigns but w/out the credit - it feels dishonest
#dreambig
#cometogether
#bernie2020
Calling all hands on deck - what NIH has done to the Long Covid community through RECOVER can no longer be without action. Time to fight back & demand accountability. We are not defined by 12 points. I will not stand by as children who need LC care get locked out for 6 months.
LCAP has started an NIH Committee to draft the Long Covid community’s concerns regarding both the NIH press release & RECOVER paper published in JAMA. If you’re willing to volunteer your time/skill on this committee please send us a DM.
Be Loud.
Take Power.
Fight Long Covid.
@DLeonhardt
Congratulations, you managed to write an entire article on ☠️ Covid-19 w/out once mentioning
#LongCovid
- the fastest growing crisis the global population faces from SARS-CoV-2 which will undoubtedly lower life expectancy.
I’m sure this is a reliable report
#massdisablingevent
We owe so much to the HIV/AIDS community for fighting the hard fight against a system hell bent on sidelining people who are suffering & dying from curable diseases. Solidarity to all those who continue the fight to find a cure & to so many who have died in its wake
#WorldAIDSDay
“If u can hear my voice & u know 2 or 3 people who have COVID…that 5% to 10% of your friends already have COVID. That means there’s a lot of COVID out there & we’re not testing for it.” Dr. Birx
We’re living in a ‘Fantasy World’ 💯
#LongCovid
Are you kidding me
@Harvard
“The researchers analyzed data from more than 32,000 female nurses in the Nurses’ Health Study II, who reported on lifestyle in 2015 and 2017 and reported history of SARS-CoV-2 infection from April 2020 to November 2021.” Lifestyle from 5yrs prior…
What other study or project on chronic illness or Long Covid has this kind of immediate results? We need to ramp up funding & attention to
@remissionbiome
for Long Covid - it’s within reason that a cure could come from a source in the gut.
@mrigankshail
@WHO
@mvankerkhove
Long Covid again goes unaddressed by
@WHO
when discussing concerns or variants & alerting the public. This is unacceptable- if you think mortality rates are the biggest concern for variants w/out including long Covid rates you’re actively lying to the public
My God
@JoeBiden
@CDCDirector
“Estimates suggest between 4% & 25% of kids who get COVID develop long COVID” this crippling illness is like being tortured & poisoned. Do you have any idea the harm your lack of action on Long Covid is doing?
I signed for the children w/ Long Covid who were absent in publicly funded research.
I signed because an academic experiment scorecard is not pathogenesis & molecular science on LC.
Sign/share.
Be Loud.
Take Power.
Fight Long Covid.
@LongCovidAP
Paxlovid is & has been a ruse regarding Long Covid. Which begs the question: if pax is not preventing Long Covid, what is it capable of doing…& does that outweigh risks of resistance? Who will file the next lawsuit for fraud against Pfizer & the NIH⬇️?
@nataliesurely
Your article is one of the sloppiest pieces of journalism I’ve seen on accurately reporting science - & we investigate oil & gas development. Long Covid studies for yrs have documented patterns of damage to organs as well as the vascular & lymphatic system
@Mar40195750Todd
@Ninjazz636
Unlike what the public believes, cdc has Recs that say test for minimum of 10 days after a negative. They clearly know this can resurge & they’re not talking about it .
@jonfavs
Will you put words into action & join those calling on gov to meet demands drafted by people w/ Long Covid? LCAP (
@LongCovidAP
) got economist David Cutler to confirm we need to be asking for $28B+ annually & are meeting w/ officials for legislative action
Urgent Action🚨
@CDCgov
is threatening SARS-CoV-2 wastewater surveillance - the last reliable data we have on COVID & new variants. This is a national security threat. Here’s my comment to
@CDCDirector
- free to copy or add your own 🔗 (comments end today!)
This article takes the 🎂 for
#POTS
&
#LongCovid
- patients waiting yrs to see a Dr “study of more than 4,800 POTS patients found most didn’t get diagnosed until a 1yr or more after first seeing a doctor, & the average diagnostic delay was nearly 5yrs”
We’re fighting back against the misinformation on Long Covid this week that’s been irresponsibly published - we need your help to hold
@Slate
accountable! Sign & share, Solidarity ✊🔥
On Sunday, Slate published a harmful and error riddled article on
#LongCovid
. I've written a retraction letter that I'll send to editors this week.
If you'd like to sign, please do so in the Google Form below-
Special envoy at
@WHO
@davidnabarro
arguing Covid is primarily droplet born & only airborne in some circumstances…we’re living in cyclone of global Covid misinformation from alleged health experts. These people need stripped of their position of power
@BBGEquality
What’s Biden doing about
#LongCovid
? Not one press conference addressed it, RECOVER is underfunded, Harvard study found 44% of nurses developed long Covid out of 1900 who reported infection. This is a disabling illness, individually & for the economy. We need action
@LongCovidAP