Amy Mitchell
@amymitchellart
Followers
4K
Following
73K
Media
2K
Statuses
21K
Artist & Pet Sitter 🐈 LCAP Activist ✊️ Advocate for Lyme, MCAS, CVID, APS1, POTS, gluten ataxia, #longcovid https://t.co/iKR4aqhKtW 💜 https://t.co/PeOMd0jBUs
Joined January 2012
Lyme since 2016. Immune deficiency since 2019. Long COVID since 2020. COVID+ since March. I'm able to work part time while sick, but it's not enough to pay for overwhelming medical expenses plus $1700 furnace repair. All help needed & greatly appreciated.
28
65
109
Yesterday I went back to the hospital where I caught COVID to begin the process of evaluating my heart damage from the virus. I wore N95 and face shield. It is noted and flagged in my chart that I'm immune compromised and request that staff mask. The doctor was acting strangely.
134
638
6K
I'm sick, too, Mr. President. While you have access to Paxlovid, Pemgarda, and treatments only available in research trials to treat your COVID, my insurance won't cover any more treatments. I've been testing positive since March 12. I tested positive again today. 127 days:
I'm sick.
233
1K
6K
When the gov says "we have the tools" they mean they do, not the rest of the population. I caught COVID during a procedure at a hospital last week. My doctor wants me to take 10 days of paxlovid bc I'm immune deficient and have LC. Insurance approved 5 days and no more until 2/24.
84
671
4K
Until basic infection protocol is taught and implemented at medical facilities, the cycle of COVID infection leading to organ damage leading to further evaluation will never end. I had an endoscopy to evaluate anemia, caught COVID, had heart and possible lung damage, and now. .
8
293
3K
My mom's sick with a "not COVID" (1 negative test) cold, and my brother's family spent the morning in children's hospital ER. Their baby was having trouble breathing, diagnosed with RSV. One uncle is struggling to recover from sepsis and a gut infection, diagnosed with myasthenia
186
584
3K
I'm expected to risk COVID again at the follow-up evaluation appointments: pulmonology, heart CT, heart echo, electrocardiology, stress test, and a return visit. Is it worth it? Will I receive answers and treatment? Or will I catch COVID again and repeat the cycle forever?.
39
184
3K
. infection control at medical facilities? Why would someone as intelligent as a doctor dance around the edges of a room to avoid infection transmission?.Then he suggested pulmonology to evaluate my lung capacity, every bit as dangerous as the endoscopy that infected me.
18
120
3K
. appointment that I was paying for, I had to give my doctor permission to examine me. I had to tell him politely if he had COVID that he'd already given it to me in the time we'd been in that closed room. Was he afraid of me? How have we gotten to collective amnesia of basic. .
3
101
3K
. just in case, he wanted to be careful. He wasn't going to do a physical exam because he was afraid of giving me an infection. He seemed conscientious enough to care about protecting me, but had completely forgotten that masks exist. Because I'd waited weeks for this. .
5
95
3K
"Increased risk of other infections" is a soft way of saying COVID causes immune deficiency and dysfunction.
COVID-19 is not just a cold. While some may experience mild symptoms, the virus can lead to serious long-term health issues, including damage to the lungs, heart, and brain. Even those with mild cases may face lingering effects. Protect yourself and others by staying informed and
26
839
3K
He came into my exam room unmasked, like everyone else. He didn't come near me; instead, he stayed in the corner or leaned on the counter. He finally explained that he was trying to avoid giving me germs, in case he had an infection. He didn't think he had an infection, but. .
7
92
2K
It took 7-10 years for people with HIV to develop AIDS. Those infected with SARS-COV2 can see immune system damage, including lymphocytopenia, in the first month. I am not advocating for calling the condition "airborne AIDS" as this article does, but acknowledging the acquired
Understanding the similarities and differences between HIV/AIDS and SARS-CoV-2, COVID-19, and Long COVID is vital for informed advocacy.
45
670
2K
Today is my 2 year COVID infection anniversary, the day that started #LongCOVID. I was unmasked while meeting a client. It was a week before state lockdown. No cases had been announced. My client was sick, but he didn't tell me until an hour later.
54
358
2K
When my lymphocytes subsets labs say it's like HIV, and the NIH says it's like HIV, and my medications say it's like HIV. and my HIV test says it's not HIV. It's #longCOVID.
19
389
2K
Caught COVID Aug 31st at hospital. Have spent all of September fighting COVID. Finished 20 days of Paxlovid yesterday. Negative test today, but I'm not safe yet. Bell's palsy and relapsing fever starting on 26th means reactivated Lyme has joined the party. It never ends.
107
235
2K
Hiding in a corner room, with only a curtain separating me from nurses who are comparing their loss of taste from COVID. Receiving an iron infusion should not come with risk of SARS-COV2. Despite signs warning of COVID outbreak, staff and patients were not masked.
31
259
2K
I've had COVID for 9.5 months. Initially I was only allowed 5 days of Paxlovid and 3 days of Remdesivir. I wasn't able to receive Pemgarda monoclonal antibodies until 6 months had passed. I'm still testing positive. How much better could my outcome have been if I'd been allowed
> “I cared for a patient who had COVID for over a year, who was heavily immunocompromised, and I couldn't help thinking at the time, if we had something like this [monoclonal antibody] for them, it really would have changed their entire life,” .
38
321
2K
I was infected on March 6, 2024. I have tested positive for 9 months and counting. Chronic COVID is real. I have never been vaccinated for COVID. This is not the vaccine. While some antivirals and supplements hold back my symptoms, Paxlovid is the only drug that causes the RAT
The sequences in the cancer cells are from the virus itself which is replicating, not from the vaccine. #covid #coloncancer. #cancer .Ongoing evidence of viral persistence after an infection.
84
363
2K
I tested + for COVID again today. Same infection since March. 179 days. My insurance won't cover more Paxlovid to treat or Pemgarda to prevent (likely also treat). Still trying for mAbs, but FDA has threatened to pull Pemgarda. Afraid I'll lose my chance to clear this infection.
191
324
1K
Today marks my 6th month of testing + for COVID. Infected March 6 at medical appointments. First tested + on March 12th. Though Paxlovid has temporarily caused negative results, I have been + almost continuously since. 2 tests with different expiration dates: double +. Not false.
47
268
1K
My dog was diagnosed at 12 years old with dementia. She was exhibiting "sun downing" behavior like early Alzheimers. At that point, she'd been exposed to 5 COVID infections by me. She couldn't sleep at night, cried in confusion, paced in circles, and exhibited OCD behaviors.
Screw humans and Covid as a topic for once. Dogs. Want your dog to be as smart as it has ever been?. Don't let it catch Covid. My dog is a Novid Dog. No dog parks, no trips to Lowe's, and no face kisses from people. Just long walks and cuddling with Dad.
23
217
1K
I've had lymphocytopenia since my March 2020 COVID infection. COVID reduced my T and B cell subsets by 30-50%. My T cells don't respond to antigens. My immune system is damaged to this day. My doctors compare my condition to HIV. #COVID gave me #AIDS. #CoVAIDS
SARS-CoV-2 can cause a new form of AIDS, leading to increased vulnerability to infections and some tumors. Each infection can age the body and brain, damage blood vessels, and affect various organs. It also increases the risk of psychiatric disorders.
31
379
1K
I've had #longCOVID for 3 years. This is my art studio, frozen in time. I was painting to exhibit in my college alumni show. I've lost my ability to visualize/imagine, energy to be creative, and tolerance for paint media. I've become allergic to oil paint. #LongCovidAwarenessDay
34
252
936
I had a cardiology appointment scheduled this week to discuss elevated troponin I levels since #COVID in September. I have experienced vascular issues, some are ANA+ autoimmunity, in flares. My cardiologist is refusing to see me due to my "recurrent coronavirus."
62
158
916
I've had #COVID 6 times. I have autoimmunity and immune deficiency. I developed #longCOVID after my first infection. My 1st, 3rd, and 6th infections were the worst. I didn't have monoclonal antibodies to treat them, unlike the other infections. I caught # 3 and 6 in hospitals.
34
198
937
. my hospital acquired infection. There is nowhere safe for people with immune deficiency to be, and there is no adequate help available when we get sick. The gov policy is eugenics. The hospital told me to prove I got COVID there. No responsibility. #keepmasksinhealthcare.
8
99
892
Getting bitten by a kitten may have accidentally led me to another COVID treatment. After a week of cefuroxime for the bite infection, presumed to be bartonella, I felt better than I had in ages. I tested clear negative on a COVID RAT today. .
16
147
909
These ghouls know that the vulnerable will fall by wayside and die -Fauci, and I am one of the vulnerable. The hospital didn't follow through with promised masking protections during my procedure, and now my insurance + Paxlovid still stuck in FDA EUA limbo will fail to treat. .
4
65
870
NIH special population guidelines for #COVID will be removed on August 16th. Immune Compromised, HIV, Pregnancy, Transplant, Influenza co-infected, and Cancer patient guidelines will disappear from their main site. Screenshot and download immediately!.
31
474
866
Like HIV, SARS-COV2 infects and depletes CD4 T cells, but not CD8. Are we allowed to say CAIDS or CoV-AIDS yet? Many #pwLC are experiencing lymphocytopenia years after acute infection. #COVID19 #longCOVID #AIDS.
25
284
863
@dumpstercommie @Antonio_Caramia @fitterhappierAJ SARS-COV2 COVID at least temporarily causes lymphocytopenia (including T cells) immune suppression. The virus has been found to infect CD8 T cells. HIV AIDS is typically defined by CD4 T cell destruction. This study found COVID infected CD8 T cells.
27
325
806
I made it 3 days off of #Paxlovid, only to test positive again. I've had COVID all of September. 20 days of Pax wasn't enough. Chain pharmacies won't fill another rx; local pharmacies refuse bc I'm using telehealth. Local docs aren't familiar w/ immune deficiency. =No more Pax.
73
120
760
Viral reservoirs in megakaryocytes means the bone marrow is infected with SARS-COV2. This would cause chronic infection and be extremely difficult to eradicate. In HIV, reservoirs like this have only been cleared by bone marrow transplant. With SARS-COV2 constantly spreading in.
“At least 2/3 of individuals with Long COVID contained [SARS-CoV-2] infected megakaryocytes,” says Dr. Morgane Bomsel. “This suggests that megakaryocytes form reservoirs in LC patients—which may produce platelets sheltering infectious SCV2.”
12
302
837
*I tried to pay for the extra course of Paxlovid because insurance wouldn't cover it. Due to its EUA status, I can't receive Paxlovid without insurance approval and there is no way to purchase it otherwise. #Paxlovid.
18
71
722
Infected on August 31st, at hospital for an endoscopy/colonoscopy. Positive RAT on Sept 2nd. 10 days of Paxlovid later: still positive. Another 5 days of Paxlovid bc I have no other options. Immune deficient patients need better medical protections 😷 and treatments for #COVID19
37
150
693
Dr Hyman, I was eating paleo, exercising daily, spending time outdoors, had spiritual practice, fulfilling hobbies, and community. Lyme was treated and in remission. CVID diagnosed and treated. I was on immuneglobulin. I had worked with functional medicine to develop a balanced.
Autoimmune diseases like lupus, MS, and Type 1 diabetes are spiking post-COVID. Research suggests viral infections may trigger immune dysregulation, and long-COVID is a real, ongoing crisis. But where’s the conversation about supporting immune resilience instead of waiting for.
12
135
793
With no COVID-free individuals left to donate, are the plasma supply and all the immuneglobulin products tainted by autoantibodies from COVID?.And what about the blood supply: does it contain SARS-COV2?.Let it rip policy is once again hurting the most vulnerable patients.
@1goodtern I get IGG antibodies every 4 wks (IVIG), I've definitely noticed some new/worsening symptoms that fit LC sequelaie (esp the last 2 yrs) and am still Novid as far as I know. But I need the other antibodies to survive. Choosing my poison is a dance I no longer enjoy(?).
29
194
694
I've been tired for 2 years, all because someone didn't value my health enough to warn me. The meeting easily could have been rescheduled. Taking off my mask now could allow a stranger I never met to do the same thing. I can't trust the safety of an indoor place.
8
87
666
A summer tip for the COVID cautious: don't store your 3M Aura masks in the hot car. The adhesive for the foam nosepad detaches. One nosepad came off entirely; others shifted or bubbled up.
16
246
695
The virus is stealthy: hiding in both the asymptomatic and those who would expose others for their convenience. I don't know when I'll ever be able to trust taking my mask off indoors again, but it certainly won't be on "infection day.".
14
65
650
@politicsusa46 The way Vance repeats over and over that it was wrong to overturn Romania's election after suspected interference makes me suspect all the more that he won by the same interference. Both with social media manipulation and changing votes. Because future manipulation is planned to.
19
70
739
@Shawneemom They are providing healthcare and know my medical history. They understand what immune deficiency is. I'm not talking about restaurant or sales service, or even the actions of other patients. This is medicine. The medical staff is knowingly endangering my life.
4
15
602
Spoiler: the HIV/AIDS patients have better T cell counts than COVID patients, in part because the HIV/AIDS patients have treatment options. #treatlongCOVID #CovAIDS #PASC.
T cell counts of AIDS & COVID-19 PATIENTS. Can you see which one has a lower number of t cells ?.Should be the Aids patients right ??
7
233
599
A single #COVID infection, acquired during a procedure at a hospital, has so far triggered: month-long infection, heart damage, neuro Lyme reactivation, shingles, vasculitis, blood clotting, new autoimmunity. This is on top of all the other conditions COVID's previously given me.
41
154
613
@ChinaKatWrites Thank you for trying. I'm sure these hospitals' poor infection control practices are intentional. Anything to save a bit of money on masks and avoid protests from staff or patients.
5
17
570
When hospitals say, "You can't prove you got COVID here," instead of "You couldn't have caught it here," that's an infection control problem. Hospitals are using surface sanitization to control an airborne infection. Patients & staff aren't tested, so responsibility can be denied.
5
131
535
It takes years for HIV to progress to AIDS lymphocytopenia. SARS-COV2 can cause low T and B cells of all subsets, not just CD4 like HIV, within weeks of infection. I was infected in March 2020 and had lymphocytopenia detected during my ER visit. My counts were normal in 2019.
'News has come in from two preprint papers that covid attacks the immune system faster and harder than HIV. From the paper AIDS and Covid-19 are two diseases separated by a common lymphocytopenia.
4
173
561
B and T cells are infected and depleted by SARS-COV-2. COVID causes a new AIDS. #COVAIDS #LongCovid.My T and B (CD19) cells were normal in 2019. COVID wiped out 30-50% of these immune cells, and many are still low today:
SARS-COV-2, the "evil" virus. How Does SARS-CoV-2 Exploit Interactions with T Cells and B Cells to Establish a Persistent Viral Reservoir and Induce an "Acquired Immune Deficiency Syndrome-like" Condition?.Thanks to @RealCheckMarker.for this top study 💥💯.
15
165
588
Today I was asked to take my mask off indoors, at a sleep specialist appointment. They reasonably wanted to check my throat, to evaluate apnea. One does not simply take off her mask on infection anniversary day. I know too much about the virus and what it can do to unmask.
5
38
497
Update: Sick baby will be staying home with a parent to avoid spreading RSV. This is a wise and kind gesture. Not sure if that's enough, in case someone can carry RSV asymptomatically. Maybe one of my readers knows.
10
26
528
@cocosmompdx If they won't wear surgical masks that their own hospital provides, I doubt it. And I've already been exposed once they come in the room unmasked.
20
13
469
I've been saying this since Mar 2020, when COVID caused lymphocytopenia in the first month of my infection. Once I was finally able to get a lymphocytes subsets panel in Dec 2020, I shared my knowledge but couldn't find an audience who'd listen. No one wanted to believe #CoVAIDS
This is the #Leonardi_Effect . This is exactly what @NjbBari3 and I have been saying for 3 years. A sustained CD 4 count of <500 will get you there. That's data from HIV positive people. @dbdugger has the receipts. He too has been warning of this inevitably.
19
94
468
I can't find any evidence that doctors attempted to treat this poor man. Was it too expensive to try Paxlovid, immuneglobulin, or Remdesivir? Yet it wasn't too expensive to sequence all of the variants his body generated for 2 years? This man was abused by research.
Elderly Dutch man was infected with COVID for 613 days, the longest case ever found, according to a new report. The 73-year-old man was infected in February 2022 and continued to test positive until he died in October 2023.
13
106
463
On August 31st, I went to a hospital for an outpatient endoscopy/colonoscopy to evaluate anemia. I had to unmask. I left with #COVID. The staff mostly wore surgical masks. The anesthesiologist arrived with his mask off. Patients deserve better than sloppy infection control.
Got Germs? Coming to a Hospital Near You. “Hospitals should be a place where everyone can go to feel safe. The CDC shouldn't be making us choose between getting care and getting Covid”. “That's not healthcare”
6
96
440
So my throat remains unevaluated. I plan on doing a sleep evaluation at home first. If that doesn't reveal anything, then I will have to risk it all and take off my mask for a study. I haven't slept well since COVID. Sleep is unrefreshing, interrupted by rapid HR and anxiety.
3
30
443
Lucky COVID number 7!!.Wednesday's immunology & dysautonomia appointments gave a parting gift. Woke up with a sore throat today, though I've felt off since Thurs. Was it my dad who drove me, who tested negative & wore N95 the whole time? Or unmasked HCW/patients at 2 hospitals?
52
55
433
I'm fighting infection number 7 as of today. Caught COVID at healthcare appointments last week. All patients and healthcare staff were unmasked. I've had to cancel in-person work, purchase tests, and I may have to buy more Paxlovid if I rebound. Help needed. Again. 😞.
I caught my 6th COVID infection on Aug 31st at a hospital. I had to unmask for a medical procedure. I tested positive for an entire month. My ability to work has been greatly reduced since then. My heart was damaged. ❤️🩹 Help needed and appreciated.
59
148
443
My FlowFlex tests are giving warped results. I think I have a new variant. I'm naming it CurVID. Day 8 of Paxlovid. Infected August 31st during medical procedure at hospital. #COVID19
21
57
439
I started Paxlovid for my hospital acquired COVID infection on the day the @POTUS joked about not masking. COVID isn't funny and masks could have prevented my infection.
History rhymes. When Joe Biden joked at a Sept. 6 White House event about not wearing a mask following a known COVID exposure, it drew eerie parallels to the Reagan administration's mishandling of the AIDS epidemic. Their apathy wasn't funny then and it isn't funny now. #MaskUp
18
98
406
Keep educating your doctors and telling them your experience, pwLC. I've seen my infectious disease doctor for 2 years. Today was the first time she said she believed "COVID can stay in the body like HIV, causing inflammation and related conditions, like cancer.".
7
90
438
I went in N95 masked and face shielded to several lab appointments over the past 2 days. No masking at either facility. I could ask for masking to the unmasked receptionist or lab tech, but by the time I've done that, they've breathed in my face. #BringBackMasks in healthcare.
@PRPAREXCEL @oliviaahliv @ToshiAkima Medical staff won't care. I told multiple people at 2 different hospital systems today that I'm immune compromised. None of them offered to mask. They thought I was explaining why I was masking. "Oh so you need to protect yourself.".
28
82
388
@dlingenfelter SARS-COV2 doesn't just infect and destroy CD4 T cells like HIV. It takes out all types of T and B cell lymphocytes, causing immune deficiency. Here are my lymphocytes subsets, before and after COVID:
32
123
418
@DavidRLinn @zillowgonewild I'm imagining HGTV getting this house and painting everything gray.
2
1
437
@ShouldHaveCat Who gets a purebred Bengal and leaves them out to freeze?.I leave my garage cat door open in winter so the strays have a place to stay warm. Not all cats will feel comfortable coming indoors with people, but it's important to have outdoor shelter available.
4
6
446
I'm one of 46 people in the world to know they have COVID S1 spike protein in their monocytes causing #LongCovid #PASC. Up until this study, I had no proof of COVID: no positive antibody or PCR tests. But at 15 months, I still had S1. Thank you, Bruce.
New paper is in print! Persistence of SARS CoV-2 S1 Protein in CD16+ Monocytes in Post-Acute Sequelae of COVID-19 (PASC) Up to 15 Months Post-Infection | bioRxiv
18
127
402
5
1
317
. she suggested I was "having a flare" of the virus, as if it were a chronic infection. I was told to have it treated before I returned to their office. As if there was a test or treatment for chronic/#LongCovid. As if pwLC hadn't been begging for help for 4 years.
1
8
347
I was infected during medical appointments on March 6, 2024. I wore N95, but no medical facilities had masking. I've received 4 boxes of Paxlovid and 3 days of Remdesivir. Both helped. I would test negative, stop treatment, then the infection would return, and I'd test + again.
9
23
368
Of course I believe that LC can be caused by chronic infection, though I haven't shared this with my cardiologist. I am being treated like Typhoid Mary or early AIDS patients, refused care and expected to isolate, with no treatment available.
3
16
339
I was exposed to a sick, poorly masked person with a "bad cold" in a waiting room on Thursday, and dodged another when my vascular NP cancelled today. Meanwhile, some of my body fluids are still testing + from a COVID infection August 31st. Just assume everyone has #COVID.
17
50
335
My insurance will only cover Paxlovid once every 6 months, no matter how many times I catch COVID. They won't make a special allowance for my immune deficiency. I can't afford $1350/box for Paxlovid. There are no monoclonal antibodies for acute infection.
3
23
337
I use Truvada (HIV antiviral PreP drug) off-label to treat EBV and long COVID. Thanks to ACA, it's completely covered by insurance. I'm a straight demisexual: the total opposite of "promiscuous" behavior that this drug supposedly encourages. But if I did choose a sexual.
The Obama and Biden administrations made it so that HIV prevention drug PrEp is required to be covered by all insurers. Republicans are suing to have that requirement revoked claiming it "promotes homosexual behavior".
13
36
366
This isn't my first COVID infection. I've had COVID 7 times. I've had long COVID since March 2020. My LC is likely from chronic SARS-COV2 infection. There are no tests or treatments for LC, either. While you can joke about your COVID infection, my sickness is no laughing matter.
15
28
321
I'm on day 2 of 3 #Remdesivir #Veklury infusions, treating acute #COVID. I'm doing okay, and have no side effects besides chills and gut upset. I could taste my food last night 😋, but no other improvements. Has anyone else taken this? Not sure what to expect.
165
52
327
A #MaskFreak color coordinates all her accessories while staying safe.💚😷
Can we get a new mask trend going to show @andersoncooper how many of us freaks are still masking? (Preferably to Rick James’ anthem “Super Freak”). Okay, I’ll start…#MaskFreak
5
36
315
@Khoshtistic @bennessb More like none of the things I'm gifted in have marketable application. They'll not get me a job or an edge at work. As a child I had advanced reading comprehension, writing skills, imagination, and art/music virtuosity. I won quiz team, spelling/geography bees. Who cares now?.
2
25
313
Denying care for a disability is illegal. Conventional medicine doesn't acknowledge "recurrent coronavirus" as a diagnosis, though it should. I could go to the ER for care, and probably catch COVID again, and worsen my situation.
2
13
298
I caught my 6th COVID infection on Aug 31st at a hospital. I had to unmask for a medical procedure. I tested positive for an entire month. My ability to work has been greatly reduced since then. My heart was damaged. ❤️🩹 Help needed and appreciated.
30
146
310
On March 3, 2020, I was infected with SARS-COV2 for the first time. On March 3, 2024, I am still suffering. Today, I am submitting my image to @LCawarenessInt to be represented at @LCDCmarch15 It's past time for the government to act on #LongCOVID. We need care and antivirals.
15
98
300
@mryoung151 @DrEricDing @mtosterholm @SherrodBrown I can't believe you're siding with Vance. As an immune compromised voter in Ohio, I'm not going to forget that you don't care if I'm safe. I can't get medical care without being exposed to COVID because no one there is masked. I caught COVID when I had an endoscopy!.
3
31
256
March is my COVID anniversary month. I've had long COVID since March 2020. 5 years is too long. There are no biomarker tests or treatments for Long COVID. Since March 2024, over a year, I've tested positive for #COVID. 1 year is too long. There are no antivirals or monoclonal
18
95
318
My insurance is calling Pemgarda, a monoclonal antibodies infusion that prevents COVID, "investigative and experimental" in spite of FDA EUA approval. They have stalled my Pemgarda infusion for over 40 days. #ImSick. My insurance won't treat my acute COVID or help me prevent it.
1
22
294
I was able to get a second 5 day pack of #Paxlovid at a different pharmacy. My insurance refused to cover more, but the pharmacy used an override to allow another pack from the gov supply. It's unlikely I could get any more until February. Big thanks to my doctor who called. .
8
16
271
@Shawneemom When you go into a hospital, they are literally responsible for your medical care. Demanding that they be responsible is simply asking for medical staff to do their jobs.
1
5
261
I did not say I had acute COVID, only that the purple spots on my feet, aka "COVID toes," had returned. The doctor suddenly considered troponin levels, which have been elevated for 3 months, to be an emergency and not his problem. When I told the nurse I didn't have acute COVID,.
3
6
271
At 1:28:43, the Immune Deficiency Foundation answers my question about lymphocytes being lowered by COVID. T cells (CD4, CD8, and CD45RO) in particular are affected. COVID can cause immune deficiency in everyone, not just the previously immune compromised.
8
113
283
Doctors are allowed to deny patients care over a chronic/#LongCovid infection, but they aren't allowed to treat it. There are no tools and no guidelines. There is no government effort to change this standard, no intense funding. Demand change:.
12
41
270
@Khoshtistic @bennessb I mean my strength was my ability to remember random facts, figures, and concepts. Google outsourced my party trick brain.
5
9
275
@CaffeinatedTdlr Low T and B cells since the first month of my COVID infection, March 2020. Unlike HIV, COVID doesn't waste any time waiting around to cause AIDS. It starts immediately.
I've had lymphocytopenia from COVID since March 2020. My T and B cells are low. I catch infections easily; latent infections reactivate. Spike protein & continued + RAT tests point to viral persistence. This is acquired immune deficiency. #AIDS #longCOVID .
3
62
274
The neglected patient will deteriorate or even die. I will be blamed for not going to the ER if this happens. I have no good or safe options. No one cares if you have asymptomatic COVID these days, but if you have non-contagious chronic COVID, there is no help, only closed doors.
2
22
250
Have you ever gone to the doctor with symptoms of low thyroid, had labs done, only to have the doctor say your thyroid is fine? Many doctors only measure thyroid stimulating hormone (TSH) and T4 thyroid hormone. But many people, especially those of us with chronic inflammation,
12
46
288
@hfkzelda You should reply that the boy in the bubble had friends, doctors, and family that went to great lengths to protect him because they loved him. His family didn't make fun of him because they understood he was vulnerable.
0
15
272
Laura is exactly right. While I do say my conditions emerged or became worse after COVID infections, I often use my primary immune deficiency diagnosis and genetic + autoimmune conditions to get the help I need. Infectious disease doctor said to me last year, "I am no longer.
I have almost entirely quit using the term LongCovid with doctors & in my daily life. I have been sick for so long, it’s no longer mysterious. I now have a long list of documented serious diagnoses I didn’t have in 2019. These diagnoses will shorten my life expectancy. The stigma.
6
34
278
@laurenashastro Pushing Daisies pushed daisies thanks to a writer's strike.🌼.It was a perfect show.🥀
7
19
235
I started taking a statin a few days ago. Now I'm testing negative for COVID. I thought the drug was targeting vascular inflammation and clotting, but apparently statins can also have an antiviral effect. This may be temporary, but I'm hoping for the best.
17
50
242
@joaquinlife I've had COVID 4 times for sure, and up to 7 times with the "maybe" mild cases. No, i'm not ok. I catch COVID even when wearing a N95 mask. My immune system is severely compromised.
6
15
224
If doctors know their patients have chronic COVID, what are they to do? They can treat the patient like a hot potato and pass them off, like my cardiologist. Or they can acknowledge the situation, but face a complete lack of treatment options.
1
13
222