Hazie Thompson
@haziethompson
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Long Covid/ME 2020, Mitigation Advocate, Founder @BIRcovidhealth
Joined April 2019
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Please consider donating if you are financially secure & safe, if not to me then one of the many others who could use help. I am grateful to everyone who’s helped me make it this far.
Look out for each other & stay gold.
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If I die of from or with Covid please note that my most important co-morbidity was poverty.
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Them: I had covid & I’m fine.
Me: Glad to hear!
Also Them:
I can’t sleep through the night.
The sun in too bright.
The birds are too loud.
I can’t tolerate alcohol anymore.
Everything tastes weird.
I’m tired all the time.
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I love how chronically ill people are painted as nervous hypochondriacs then they’ll be on here like, ‘I lost vision in my right eye, my mouth is full of sores & it looks like I’ve lost a baby toe, not sure if I should bother going to the doctor?’
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You gotta love how Canadians pretend white nationalism stops at the the border then pole vaults up to Alaska without even casting a shadow.
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Had to walk 425 feet to get my heart meds today.
Guy in a Megadeath shirt asks if it was the wildfire smoke. I said, yeah & Covid, been sick since March 2020.
He says, damn, really?
I said I didn’t recommend it & he was like, no doubt, I’m really sorry.
No yelling. No denial.
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I do not want any more ‘self care tips for the chronically ill’ that ignore poverty as a serious & pervasive factor in health outcomes.
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I’ve seen & received a lot of advice about managing & surviving disability/chronic illness and while details may vary the one overarching theme boils down to - Don’t. Be. Poor.
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We had a 14 day isolation period. We still need a 14 days isolation period.
10 days was a insult, 5 an injury. They are making us fight for crumbs.
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If your Covid infection leads to disability there is no safety net.
There is no money, no housing, no treatment. Those long covid clinics you heard about can’t cure you. At best they’ll help manage your symptoms, at worst you’ll get sicker.
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March 15 2020, my birthday, had a sore throat. I was going to go out to celebrate but decided against it ‘just in case’
It was Covid & I’m now disabled. I could have brushed it off & infected dozens but caution & care stopped me. If you’re sick, mask up, stay home if you can. xo
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Folks new to disability through the gift of Covid now realize that the safety net they’d been told about (the one where people fake sick to live the high life) are not only inaccessible but punitive. The level of degradation required to live 40% below poverty is obscene.
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Referencing the 1918 pandemic is popular because it (officially) only lasted two years. Those disabled are rarely mentioned.
Polio is a better comparison.
Folks think of it nostalgically, a blip on North American normalcy but outbreaks lasted from the 1920s through the 1950s.
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@dereckapurnell
@theleilaraven
The cruelty of paying a stranger to take in someone’s child instead of giving those resources directly to the parent is so violent.
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Yesterday evening I had a brief moment where I felt well enough to sit outside.
I encountered two Black women being harassed & threatened by a older white man. I jumped, okay rollated, to their defence. The man lunged at me then screamed that I attacked him by pushing…
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One of the first things people do when they join a
#LongCovid
support group I’m in is spend time telling us how active, fit, busy, healthy etc. they were pre-infection.
They want us to know haven’t done anything to ‘deserve’ illness. They want us to know they are worthy of care.
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Seeing folks masked up brought tears to my eyes.
Good work. Good work.
🚨 BREAKING 🚨 Palestine protestors take over the Brooklyn Bridge, Manhattan Bridge, Williamsburg Bridge, and Holland Tunnel to demand an end to the ongoing American-funded, American-led genocide of the Palestinian people in
#Gaza
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Went to my PCP today.
First one in the waiting room. In walks an unmasked woman announcing she’s there to get her TB results.
I offered her an N95 which she happily took and put in her purse.
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This isn’t my first experience with folks abandoning Black woman in danger. When I saw the story of the woman attacked & hit with a brick while onlookers did nothing my hearth broke one more time.
A lot of you brothers need to hand in your folding chairs.
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Someone dm’d me, not here, to thank me for talking about my experience with Long Covid. I jokingly said I had nothing to lose. They replied that they did & that’s why they were staying silent.
It took me a minute but now I’m angry. I understand wanting to protect yourself…
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#LongCovid
post for those that are still listening.
There’s a point in everyday where I wonder if it’s worth continuing to live. I’m two weeks away from 2 years into heart & brain damage with no end in sight. I can’t eat most foods, can’t read books or listen to music. 1/
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Y'all may or may not know that there was a Covid outbreak in my home. Something we don't see talked about often is the effect on pets. The cat, who belongs to the person I share my home with, has passed away. House pets, especially cats, are susceptible to Covid infections.
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920 days since I contracted covid & just over 2 years since my heart stopped beating properly. I’ve been sick everyday. Today is a bad one. I don’t want to burden folks with my fear. Most don’t want to hear, can’t comprehend it. I don’t blame them. I wouldn’t understand either.
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Bringing quitting smoking into lung cancer advocacy is a huge mistake….
Bringing masks into long covid advocacy is a huge mistake I think. People don't like covid restrictions and making them a condition of caring about long covid they'll prefer not to care.
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Canada has no food stamps, no rent geared to income housing & no ADA. Income support is aprox 50% below the poverty line & you’re expected to pay for market rent, food, meds, phone etc. For those unable to work it’s impossible to cope, this is why the MAiD program is so dangerous
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This you?
We’re in the midst of mass disabling events across the globe—from the ongoing COVID pandemic, to the genocides on the continent of Africa, to the genocide unfolding in Palestine. Disabling events disproportionately target the racialized, impoverished, & colonized across the globe
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@justxhenry
My mother called me the day Diana died, in tears.
Me: I didn’t know you were even friends.
Mother:
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I’ve been thinking about my reaction to stories about people not wearing masks until they see others put their’s on & it’s not kind. It’s hard for me to understand grown folks bowing so easily to peer pressure with something as vital as the health of themselves & others. 1/3
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Here’s a short list of what I’ve lost since acquiring a chronic illness.
My business
My family
My friends.
My dog
My home
My autonomy
But all that ‘attention’ I get has more than made up for it!
Look at me, jet setting from bed to bathroom!
Paying my bills with likes!
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"Long COVID is now the country’s third leading neurological disorder, the American Academy of Neurology declared in July."
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I’m broken. People are still dying, being disabled, suffering & those least impacted have decided that it’s okay, that the wheels of industry are more important than you & your loved one’s health & safety. Flood, famine, drought & disease but ‘the economy’ reigns supreme.
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Nobody is forcing you to choose
#MAiD
🤨
We’re just:
Denying you meds & healthcare.
Forcing you to use food banks, if you can get there & if you can eat the food provided once a month, no second helpings.
Asking you to pay market rent while living 50% below the poverty line.
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ps: yes I was wearing an N95, hat & eyewear.
pps: I really want out of the city.
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…my rollator out to keep distance between us. The women, who had stood behind me kept begging, cajoling & screaming at the man to leave them alone. He said he ‘had rights’ & would not comply. I told him he did not have the right to other people…
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The back & forth went on for 15 minutes as others watched or walked on by. The exchange was exhausting, my adrenaline through the roof & all I could think of was the hot mingled breath near my face.
Eventually he mumbled away & I was left with a racing heart & possible exposure.
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Another point in my already skewed bias about the kindness of long haired, heavy metal loving, brunette dudes.
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The way ‘pacing’ is being framed is dangerously close to ‘self care’ Sometimes symptoms can be managed, sometimes they can’t.
No amount of pacing will help if digesting food requires more energy than your body can produce.
This is an illness, not a mindset.
#MECFS
#LongCovid
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One of the more insidious aspects of infantilizing disabled people is that assumes benevolence, that disabled people are possessed of a child-like innocence that frees them of prejudice, when every ism & phobia is just as present, often amplified, in the disability community.
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I just want it to go on record that I very much want to live. I’ve done everything I can manage, so when I finally give into MAiD it will not be because of a desire for death but because I am unable to afford living, in Canada one world’s of the top 10 wealthiest countries.
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Saw family at my folks funeral. Everyone has had covid and they’re fine…except for their messed up appendix, their wonky heart rate, sudden onset dementia, vertigo that the docs can’t fix, poor memory, pain everywhere and insomnia.
So glad they’re all okay.
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They spend hours angry, resentful that ‘lesser’ people have dodged the
#LongCovid
bullet.
It’s difficult for me to hear. I keep trying to gently remind them that that’s not how this works.
Illness & disability are not punishments, that health is not a reward for productivity.
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I’m mostly alone in a room all day every day and today is one of those days where it’s not okay. I’m sick of being sick. I’m sick of being alone. I’m sick of the stress of not having an income. I’m also very fucking angry today.
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‘Stay home if your’ sick has never, not once, been uttered in the restaurant industry.
this is the problem with “stay home if you’re sick” and “wear a mask if you’re sick” messaging — who defines what feeling sick is? feeling “sick” is subjective, esp in a society where we’re encouraged to continue on as tho we’re not.
the solution? wear a mask. all the time.
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They don’t realize they are being ableist because ablism is so baked into the everyday fabric of our lives.
It takes awhile to listen & talk then down. To let them know slowly & quietly that nobody ‘deserves’ illness & everyone is worthy of care. Some people can’t make the leap.
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Had to move to a shared space after losing everything to
#LongCovid
Tried for months to find an immune compromised roommate, no luck. Anyhow, the roomie went to visit a sick friend on Sunday.
Them: it’s not covid
Me: it’s all covid
Tuesday Them: uh, it’s covid
#BringBackMasks
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Every single one of these people, who are experts on aerosol transmission, believes that they are too healthy, too intelligent, too virtuous to succumb to the devastating long term impacts of covid.
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A friend took their life on Monday. Someone said ‘isolation of lockdowns’ was the reason. An automatic response fed by propaganda & despite the evidence of their own eyes & lives. We shut bars for a few months in ‘20 & 21. Everything is & has been open for ages. Dark gd days.
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I am begging the ‘Covid Cautious Community’ to ditch the word NOVID.
It’s cruel and reeks of elitism.
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Short list of things
#LongCovid
can take:
1. Sex
2. Bathing regularly
3. Brushing your hair
4. Eating normally
5. Reading books
6. Watching movies/tv
7. Listening to music
8. Sleeping
It’s not being ‘a little tired’ You don’t have a full understanding of the risk
#MaskUp
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958 days in I finally got a call from the premier Long Covid clinic near me. Intake on Nov 15th.
The program? Four weeks of virtual group appointments with experts to tell me how to manage!
No blood work, no testing, no cardiologist or neurologist, just vibes!
#BringBackMasks
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There are poor old people. There are poor old people who’ve done the reading. There are poor old people who worked hard. There are poor old people who are all kinds of queer. There are poor old people that are overjoyed to see you thriving. There are poor old people that tried.
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Collective liberation can not be reached without masks…
(video description: a series of people talk about their empty careerist seminars wearing the latest in non-profit spokesperson chic)
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Looking forward to people posting pics of themselves guzzling raw milk and eggs for freedom.
⚠️ BREAKING:
USDA releases new testing recommendations for dairy suspected to be infected with H5N1.
Testing remains voluntary and only symptomatic dairy cows are eligible for testing.
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I should be clear both my mother’s death and my father’s disablement are due to covid exposures. My father was exposed in LTC and my mother while visiting him. Her death was sudden and brutal, his final days will be spent in a mist of confusion. Wear a fucking mask.
Yesterday I took two unnecessary risks, removing my mask to kiss the forehead of my just dead mother and quickly dying father separated from one another by hospital wards.
I don’t care about your petty grievances or oneupmanship.
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Long Covid killed one of the best of us. The creator of
#YourSlipIsShowing
is gone.
Look out for each other.
Mask the fuck up.
I'm going to say, again, that when long COVID effects kill me - sooner than later - I need y'all to recognize and say LOUDLY what it was.
Long COVID is keeping my blood pressure at 230/128, in spite of taking an elaborate cocktail of meds.
Long COVID is shredding my kidneys.
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If you are struggling with this give yourself time to grieve, it’s necessary.
I’m sorry you’re hurting but the person who didn’t hit the gym or get the promotion isn’t your enemy, more importantly neither is your body. It’s doing it best to keep you alive. xo
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No drinking, no dancing, no running, no work, no play, no money. There’s no way to no who gets
#LongCovid
I beg you not to take unnecessary risks for yourself or the ones you love.
I wouldn’t wish this on anyone. Please mask up, please be careful & look out for each other.
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Today would have been my mum’s birthday but thanks to the constant downplaying of covid risk & the lack of masking in healthcare facilities both she & my father were buried last month. I am failing to bounce back. This virus has taken friends, family and my health. I’m drowning.
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@PEARLfectChassi
19 months in bed. I can only eat about 8 things without getting rashes or very ill, phantom smells. Can't listen to music because it hurts my brain, cant read anything longer than a paragraph. Scars on my heart, chest pain, swollen limbs, no short term memory. Vax up, mask up. xo
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Me, dutifully posting screen shots of the latest infection data on fb & ig knowing none of my friends or family will listen.
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Please do not talk to me about Rest as Resistance unless you are prepare me to talk about who is allowed to rest without losing access to to food, housing or healthcare.
Save it for your throw pillows.
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I recently met a group of folks who though that when they finally, after waiting up to a year, accessed a Long Covid clinic would be offered a cure.
I can not stress this enough. There is no cure.
The few symptom management options offered are rudimentary & largely…
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I need to qualify this. There are folks, mostly marginalized, who seriously can’t disclose without great risk, but if your biggest worry is what your ‘friends’ will think please don’t come to me for solace.
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but if your doing it at the expense of others, letting other fight the battle for you & take the slings and arrows why would I consider you a comrade?
Why do you think I want to take on more emotional labour be being your confident when you aren’t willing to step into the fray.
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Y’all ain’t acting scared enough period.
To misquote
@sassycrass
“Do you know how sick you can get (and stay for a very long time) before you die?”
y’all ain’t scared of dying enough for me
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I’m not expecting everyone to appear on the nightly news but your silence is taking it’s toll on those of us who can’t hide. It feeds into the myth that this mass disabling event only impacts very few & far between. I’m rankled af.
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Of the folks I know irl about 50% percent fall into this category. I’m not trying to be alarmist, I just want folks to be aware of the possible health impacts, especially with the possibility of reinfection, & to know when to seek care for symptoms. xo
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You’re disabled!?!
Here’s less than half the amount of money a person needs to barely survive!
Be grateful, if you ate better food, took your meds & didn’t live in squalor you’d probably be better by now!
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70% of Polio cases in children were asymptomatic.
Less than 1% of cases caused paralysis.
Post-polio syndrome, a deterioration of motor neurons, takes 15 to 40 years to present.
We are sacrificing our collective children.
It is not too late to mask up.
It is not to late.
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Sitting here thinking maybe I’m wrong, maybe covid isn’t that bad & I’m overreacting. Seriously, I’m wavering here or maybe just crumbling.
The isolation is too much.
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In line for the endocrinologist when two unmasked folks behind me fake cough & sneeze, make fun of me for leaning against the wall because “she shouldn’t touch things if she’s afraid off getting sick” and singsonging “covid is over”
Can’t wait for my next trip to the hospital.
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If you won’t wear a mask during an ongoing pandemic that disproportionally impacts marginalized communities I don’t want to hear about your gym routine.
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It is necessary to shake the idea that doctors, nurses & researchers are above prejudice. Our current medical system is based in myriad biases. If you are poor, disabled, chronically or mentally ill, racialized, queer, trans, female, femme presenting etc. safety is not a given.
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I’m going to paraphrase my incredibly understanding neurologist.
“We don’t know anything, we have nothing to offer.
Medical school taught us nothing about post-viral illnesses. I am sorry.”
Doctors don’t know shit about covid.
my favorite part of the weird covid discourse last night was when i was like "bernie's doctor probably told him it was fine to respond to emails while on bed rest or whatever" and instead of saying "you don't know that" the common refrain was "doctors don't know shit about covid"
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The stress of my parent’s death has devastated my baseline. I have stayed at their apartment the last couple of days to rest before tomorrow’s funeral & now I’m unsure if I’ll even be able to attend. Send a little strength my way. xo
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Get that accessibility aid! Cane, walker, rollator, wheelchair, scooter, shower chair, overbed table, whatever. Get it! People will find something to judge no matter what. Save yourself the pain & exhaustion. Get whatever help you can. Now. xo
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Seemingly small but common ailments folks have after SARS-2 infection.
Emergency gall bladder removal/appendectomies
Kidney/Gallstones
Hair loss
Rapid tooth decay/loss
New onset allergies
High susceptibility to other viruses
Insomnia
Sexual/Reproductive difficulties.
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Long Covid is not lingering symptoms. It’s not ‘taking a bit’ to recover. It’s not static. It’s a cascade of injury & illness that starts with an infection & ricochets wildly through every organ & system possibly forever.
The clinics you heard about don’t have a clue or a cure.
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The benefits ($1169 for shelter, food, meds & everything else) you think disabled people are scrounging can take months or years, if your ever approved & in the meantime you get nothing or if your destitute you can try to stay housed, fed & clothed for $733 a month.
#MaskUp
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@1anjohn
Hair loss is a very common symptom after covid & during
#LongCovid
We don’t know what post viral consequences are long term. Stay as safe as you can. xo
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Yesterday I took two unnecessary risks, removing my mask to kiss the forehead of my just dead mother and quickly dying father separated from one another by hospital wards.
I don’t care about your petty grievances or oneupmanship.
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Friends, family, your own self should be enough for you to step up. Be the change & all that. You have the ability, everyday to literally be a hero, to help save a life, to prevent suffering. A mask is your cape, your superpower! It signals solidarity, community & care! xo 3/3
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@MelechThomas
@jbrous41
Here’s the whole thing. It’s even worse. It’s a shop for useless, irritating things, including shiftless n*ggas.
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I’m begging the
#LongCovid
#MECFS
#Disability
community at large to recognize that the Canadian
#MAiD
(medical assistance in dying) program is to euthanize those that are too ill to support themselves. No geared to income housing, no EBT. Please, we need international attention.
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Things progressed but did not present with the typical, at the time, symptoms. I had gut issues, fatigue, headaches & the sore throat. No sniffles, no chest congestion. So again, don’t take chances with other people’s health. If you are sick, with anything, rest, mask or isolate.
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You know that flu that goes around every March.
Nicki Minaj cancels New Orleans concert at The Smoothie King Center just hours before show due to illness
“Nicki has been very sick with the flu for the last few days”
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@Wiglette
Lots of people still very much feel this way.
No good comes from pretending this level of ‘polite society’ racism is a thing of the distant past.
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Mask forever?!
Clean Air!?!!?
What’s next?
Housing for all?!
Robust public transportation!?
Food in bellies!?! Healthcare!?!
Pfft! Bunch of crybabies!
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There is absolutely no need for masks to be lowered to watch a movie.
@CineplexMovies
is endangering the lives of its paying customers.
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Post-viral illnesses aren’t new. The current crisis is not just about
#LongCovid
but the decades of suffering that so many have endured & the ongoing neglect by those who had & have the power to alleviate it.
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