Miles W. Griffis
@mileswgriffis
Followers
4,393
Following
1,083
Media
247
Statuses
9,631
Co-founder/editor @thesicktimes Columnist @highcountrynews miles @thesicktimes .org #LongCovid 🇵🇸
The Wayside
Joined July 2016
Don't wanna be here?
Send us removal request.
Explore trending content on Musk Viewer
Pedro Sánchez
• 378290 Tweets
Wizkid
• 276358 Tweets
woozi
• 204742 Tweets
#CDTVライブライブ
• 169392 Tweets
Scotland
• 105502 Tweets
The Gift
• 72699 Tweets
Thiago Silva
• 68061 Tweets
#キュウゴー
• 58275 Tweets
#TimnasDay
• 52868 Tweets
アンセム
• 51570 Tweets
Mufasa
• 45893 Tweets
Uzbek
• 34856 Tweets
Matisse
• 32074 Tweets
#アンメット
• 20787 Tweets
Blue Ivy
• 20257 Tweets
ドラゴンボール
• 17461 Tweets
Medina
• 17186 Tweets
UNIT SONGS
• 11917 Tweets
Rock in Rio
• 11868 Tweets
Wasit
• 11838 Tweets
Qちゃん
• 11377 Tweets
鈴木千裕
• 10934 Tweets
Pinned Tweet
🚨: Introducing THE SICK TIMES: A new nonprofit publication dedicated to
#LongCovid
, the continued COVID-19 pandemic, and infection-associated illnesses. From me and
@betsyladyzhets
.
8
93
264
A friend who works in healthcare has a co-worker that went to the Beyoncé concert over the weekend. The co-worker was sick all day, but didn’t test until the end of the day 🫠They saw numerous patients unmasked.
They tested positive for COVID.
#MasksInHealthcare
263
639
3K
Nauseating to look back at this article from the original WaPo leak two weeks ago and see that the CDC was aware the science around infectiousness "has not changed" and that the guidance would be criticized by disabled people. Then, they cut public comments.
21
1K
3K
🚨NEW: After blocking public comment on their new guidance released today, the
@CDC
is now hiding critical comments from the public on X, many of them from disabled, immunocompromised, or
#pwLongCovid
. Studies & articles in opposition of the guidance were also hidden.
59
941
2K
Today is
#LongCovidAwarenessDay
This was my last solo backpacking trip before I got sick in 2020. I was 27 & walked 40 miles in two days. Now I’m lucky to make it through a half day of work.
I’ve had two surgeries & am one of millions disabled by
#LongCovid
#ME
61
518
2K
“I’ve been tested again & I’m clear…but they keep telling me because it has to be ten days or something, I gotta keep wearing [a mask]. Don’t tell them I didn’t have it on when I walked in.”
700k+ dead on
@POTUS
watch, millions w/ Long Covid. Pathetic leadership.
🇺🇸 Biden expresa su molestia con tener que usar máscara de nuevo: "No paran de decirme... que tengo que seguir llevando [una máscara], pero no les digan que no la llevaba puesta cuando entré".
29
64
171
53
303
2K
I’m planning to apply for an investigative journalism grant to cover
#LongCovid
.
What would you like to see investigated? What coverage has been missing?
314
235
1K
Two people I know who considered themself 100% recovered from
#LongCovid
(after having the disease for a year+, followed by months of no symptoms) messaged me this week to say they relapsed. They are devastated. These stories are common in
#LongCovid
.
62
326
1K
Two weeks ago, I sent our corrections letter to the
@newrepublic
about their misinformed and dangerous column on
#LongCovid
/
#ME
. Over 200+ experts signed the letter but we still haven’t received a response.
Today it was published in
@PublicHerald
30
405
1K
🚨 We (journalists, physicians, researchers, patients, etc.) wrote a corrections letter to The New Republic about their harmful, anti-science column on
#LongCovid
. Please read & sign if you believe the column should be corrected and/or retracted online.
79
337
1K
TW/ Death
I'm planning to begin reporting on deaths in the Long Covid community. If you've lost a loved one to the disease and you are at a place where you are ready to share their story, please reach out to me at miles
@thesicktimes
.org 🙏
26
427
995
🚨BREAKING:
#ME
and
#LongCovid
advocates have erected an enormous public art display of 300 cots on the National Mall in D.C. to represent the millions living with chronic illness for
#MEAwarenessDay
🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️🛏️
3
311
911
A family member’s Covid test today. Please test before gathering and wear n-95s indoors. This family member is on Medicaid and bc of the Biden administration’s delinquency was quoted $1,700 for paxlovid. “We have the tools.”
86
238
878
Passed my four year anniversary with
#LongCovid
earlier this week.
Thinking of everyone in the community as these cursed days are observed over the next few months and beyond ❤️🩹
65
71
866
It's not lost on me that the CDC released this anti-science guidance not only on a Friday afternoon, but on the first day of
#LongCovidAwarenessMonth
.
50
279
859
Microclots were found in the blood of all 70
#LongCovid
patients in this pre- print study. All patients who were put on anticoagulant and anti platelet therapy saw their symptoms improve after a month of treatment.
Our latest preprint: microclots and platelet hyperactivation in
#LongCovid
. NB this was not an RCT, but a report based on clinical practice. A WARNING: careful PROFESSIONAL monitoring of any danger of hypocoagulation/bleeding THROUGHOUT is a prerequisite:
52
215
624
10
251
741
Mehdi is the only broadcast journalist who has covered both
#LongCovid
and the current genocide with journalistic integrity. I hope he finds a new platform and an employer who values truth. MSNBC are cowards for this.
8
219
706
🚨BREAKING: Today Sen. Bernie Sanders and
@C19LH_Advocacy
announced a resolution to formally designate March 15 as Long Covid Awareness Day. Read about it in
@thesicktimes
.
11
186
703
I’ll be ending 2023 & starting 2024 with my 2nd reinfection. My first made my
#LongCovid
symptoms worse. I’m devastated & angry but hanging in there.
I’ve been radically resting, isolated since my exposure, & taking pax/metformin to hopefully reduce more adverse outcomes of LC.
22
68
653
The Economist states the excess deaths from SARS 2 since the beginning of the pandemic is 27 million deaths, and that over two million have died this year alone. Over 65 million have
#LongCovid
.
17
344
637
🚨I wrote about how
#LongCovid
is affecting the wildland fire service for
@highcountrynews
The complex chronic illness is not only damaging firefighters’ health & livelihoods, it could also hamper their response to prolonged & intensified fire seasons.
23
271
583
Update: Editor Emily Cooke at
@newrepublic
responded to our letter on Friday. The publication will not be issuing any corrections, apologizing, or offering an editor's note. They claim our corrections are a matter of "interpretation". This is shameful.
Two weeks ago, I sent our corrections letter to the
@newrepublic
about their misinformed and dangerous column on
#LongCovid
/
#ME
. Over 200+ experts signed the letter but we still haven’t received a response.
Today it was published in
@PublicHerald
30
405
1K
36
177
570
A quick thread of THREADS 🤯 from experts, journalists, and advocacy groups who have spoken out against the inaccurate, biased, and harmful
@NYMag
/
@intelligencer
story on ME and Long Covid.
14
207
567
Who are some of the most notable Long Covid deniers? I'm researching a story and looking at prominent doctors, journalists, pundits, etc. who have not just been silent on Long Covid, but actually have denied it as legitimate. Please feel free to DM me!
100
168
549
On Sunday, Slate published a harmful and error riddled article on
#LongCovid
. I've written a retraction letter that I'll send to editors this week.
If you'd like to sign, please do so in the Google Form below-
43
210
538
THREAD 📣 Vito Russo's 1988 ACT UP speech "Why We Fight" and it's many parallels to the continuing COVID-19 pandemic currently causing 1k+ deaths p/week + mass disability
#LongCovid
#ME
#POTS
16
251
533
Despite calls for a correction,
@nytimes
has still not updated its story by
@amy_harmon
that states that
#LongCovid
lasts for “months”. Long Covid can last for years.
This is harmful misinformation that minimizes a disabling disease.
9
87
514
We are dying of Long Covid, wake up!
People of color, those with lower incomes, and others with marginalized identities may be similarly less likely to have medical documentation of Long Covid symptoms, leading to inaccurate death certificates if they pass away.
Link ➡️
2
76
152
31
161
507
THREAD. Despite being 2.5 years into the pandemic, journalists continue to minimize Long Covid and spread misinfo by non-experts. This recent
@GuardianAus
is a dangerous recent example.
16
129
486
I just sent in a set of questions to
@CDCgov
asking why CDC director Mandy Cohen has been absent for the past two weeks during one of the largest Covid surges of the pandemic. The director hasn't posted on X since 12/29/23 and to my knowledge has not made any public statements.
ok, this *is* weird: we are in the 2nd biggest covid wave ever, and
@CDCDirector
hasn't tweeted since last year? for two weeks?? what's going on?
29
102
452
18
126
478
Long Covid patients discovering their own microclots:
12
83
460
Does anyone have any tips for
#LongCovid
nausea? Much of the day I feel like I’m on a small boat being rocked by a storm. Do we know why this is a symptom?
170
74
446
NEW: As COVID precautions drop, many disabled & high risk people can't safely participate in society — even in leftist spaces. For
@Them
I wrote about Creating Change, an annual LGBTQ+ conference that disability advocates say is excluding high risk folks.
10
163
405
@loscharlos
This is so gross and explains a lot of the ableist bias in legacy media. It also mirrors the NYTs egregious minimization of the AIDS crisis, which is why ACT UP organizers dubbed them “The New York Crimes”
3
48
403
Since getting COVID 3+ years ago, I've developed low humoral immunity which did not improve after getting a pneumococcal vaccine. My doctor now wants me to try immunoglobulin, a treatment used for primary immunodeficiency.
#LongCovid
#ME
25
65
360
I hope that
@newrepublic
,
@emilyecooke
,
@mtomasky
, and Win McCormack, address these corrections, issue an extensive editor’s note, and apologize for the harmful misinformation they spread on Long Covid.
7
109
349
Not to be dramatic but every morning I feel like I died in my sleep, had to crawl through the burning underworld and ford the River Styx. When I wake I still feel like I’m in between worlds.
#LongCovid
#ME
33
45
337
Now that The Atlantic published Ed's scientific article on PEM & ME, I predict next week they'll launch a garbage op-ed from someone w/ clear ties to the insurance industry who says fatigue is a symptom of being a weak ass b*tch.
#LongCovid
#ME
13
34
316
“Joe Biden said it wouldn’t be like this. And yet, what we’re seeing today feels scarcely different from the denialism and diminishment of far-right Trump-ites who once laughed at our masks.”
For
@newrepublic
, I wrote about the Biden administration pretending the pandemic is over amid a surge in cases. But Covid-19 isn’t done with us—or our politics.
90
412
1K
4
110
312
Nauseating to look back at this article from the original WaPo leak two weeks ago and see that the CDC was aware the science around infectiousness "has not changed" and that the guidance would be criticized by disabled people. Then, they cut public comments.
21
1K
3K
0
102
306
This is great public health messaging, I wish we could have the same here in America. A person with Long Covid telling their community about it. Simple, effective - we aren’t just numbers 😷
Jordan got COVID in January 2022, & his life hasn’t been the same since.
He shares how his life has been impacted by long COVID & urges Victorians to stay ahead of the virus with protective steps.
Learn more about the symptoms & how to stay safe:
1/2🧵
785
2K
4K
15
70
303
@cdc
The
@nihceal
also hid critical comments from people with
#LongCovid
last summer and admitted they "inappropriately" censored people.
@CDC
, why are you "inappropriately" censoring people?
4
74
303
"Millions of
#LongCovid
patients, all too aware of what a single COVID infection can do, have to expend inordinate time, energy, & money simply to continue existing in a society hellbent on infecting them again & again & again." -
@julia_doubleday
4
103
297
@NCSHospital
The WHO and CDC both advise against exercise as a treatment for Long Covid and ME because of the cardinal symptom, post-exertional malaise. Please do the most basic research before spewing hopium.
1
31
294
3/ The scientific consensus on
#LongCovid
is not "fiercely debated." A recent review all LC research states, "Long COVID is a multisystemic illness encompassing ME, dysautonomia, impacts on multiple organ systems, & vascular & clotting abnormalities."
2
69
288
Using this stock photo to raise awareness about a disease that makes people bed and housebound is so f*cking tone deaf. A slap in the face to pwLC.
March 15 is International
#LongCOVID
Awareness Day. Long COVID is real and has affected millions of people across the U.S.
Read the
@HHSGov
report on what CDC and other federal partners are doing to
#ConfrontLongCOVID
.
168
99
203
12
53
287
We are in our 4th year of the pandemic & the media is still unable to properly report on
#LongCovid
. Long Covid can last for *years* & has no cure — many of its associated conditions are lifelong.
Please issue an immediate correction,
@washingtonpost
,
@goldsteinamy
,
@majohnso
.
8
70
283
@PushBidenLeft
@thrasherxy
+ Allows CDC to gut covid-19 isolation guidance to one day, leading to more disability, death, and less worker protections.
9
20
280
🚨I wrote about the Sisyphean effort of trying to live with Long Covid as we get reinfected over and over again. Each reinfection has plummeted my health — many have become further disabled as the virus spreads unchecked. New in
@thesicktimes
-
Link:
8
116
271
I can't believe
@NYMag
published that misogynistic, factually inaccurate story on Long Covid & ME. It is a heavily biased tour in debunked studies, bad science, & dishonest actors.
Please fact check your stories and hire journalists capable of covering disability.
7
34
269
2/ I responded today & requested
@newrepublic
include an editor's note with a link to our letter. Platforming demonstrably false information about a marginalized & heavily stigmatized community of chronically ill & disabled people is cruel. We deserve balanced reporting.
2
54
270
I reported on Long Covid clinics last fall and unfortunately, nearly a year later, many are still prescribing harmful therapies and gaslighting patients. A complete failure.
9
71
271
After 6+ weeks, I can confidently (but unfortunately) say that two stellate ganglion block treatments (one left, one right) did not give me any relief from my symptoms (fatigue, cog impairment, nausea, PEM, dizziness, headaches) N=1
24
38
265
This is an incredible win for patients, healthcare workers, and the entire city of Los Angeles 😷
It’s a shame that people had to fight so hard and for so long just for basic health protections during an ongoing, airborne pandemic.
We did it! Mask requirements are back in healthcare settings in LA County as of today Dec 29th! Thank you to everyone who has been tirelessly working on protecting our community for months, you made this happen!
4K
1K
6K
39
47
263
“For some people with Long Covid who attended or watched the hearing, a lack of universal masking among Senators and their staff undercut their remarks about the disease’s debilitating outcomes.”
Great nuanced reporting from
@betsyladyzhets
.
9
106
260
4/ To publish a column that spotlights a fringe, scientifically unsupported idea while omitting the biomedical consensus is irresponsible and raises serious questions about
@newrepublic
's editorial standards & biases. We stand by our corrections.
4
51
257
I post about
#LongCovid
often on Instagram and receive lots of DMs from people w/LC or their worried friends/loved ones.
Here’s the latest message, another pwLC has lost their job bc of their illness is so severe.
8
35
250
For
@Popsci
, I reported on
#LongCovid
clinics, or "post-COVID care centers." Though these centers specialize in the disease, patients still face rejection, gaslighting, outdated (and harmful) therapies, as well as long lists of unanswered questions.
13
87
250
Some good news! I've been nominated for a health justice award at my alma mater for my reporting on
#LongCovid
,
#ME
, associated conditions, & disability.
Grateful to all of my brave sources, as well as my editors who cover this severe illness w/ truth & empathy 🙏
27
13
244
"It is ironic that individuals with a severely energy-limiting disease are using their limited energy to protest and request help, even though such exertion can worsen our symptoms."
Thanks for this important op-ed,
@julialmv
3
83
240
🚨: For
@c19datadispatch
, I wrote about the NIH censoring people with
#LongCovid
on social media. The hidden comments follow the agency's failure to listen to and implement input from
#pwLC
into its $1.15 billion study, RECOVER.
6
102
235
@luckytran
Exactly! I also don’t know how writing “post-pandemic” in a headline/article passes a fact check. It is inexcusable for such esteemed publications.
3
18
226
I'm working on a story about reinfections with Long Covid for
@thesicktimes
. I'll be writing a little bit about my own reinfections and am hoping to include other stories. If you're comfortable sharing your experience, please reach out to me here or at miles
@thesicktimes
.org
22
129
227
#journorequest
: I'm reporting a story about Long Covid clinics & treatment centers in the U.S. I'm hoping to speak with Long Covid & ME patients to hear about their experiences.
Did they help you? Were they a waste of time? Feel free to DM or email me-
31
123
225
@amy_harmon
Please issue a correction
@amy_harmon
@nytimes
. Long Covid can last for years, not months. Please inform yourself, you are spreading harmful misinformation.
7
15
223
I've been disabled with
#LongCovid
for over 2 years.
This illness has completely changed how I interact with the outdoors. For
@REI
, I wrote about my first solo camping trip with Long Covid and how I'm learning to stay within my energy envelope.
12
59
221
Grateful to all of the contributors, as well everyone who took the time to sign it. We must hold publications accountable for fair and accurate reporting on our condition.
1
22
219
@ATT
How much money have you donated to anti-lgbtq politicians in the past five years? Are these figures from 2017/18 reported by Credo accurate?
0
15
199
“However, Covid-19 is not like RSV or influenza, particularly given the long-term organ damage caused by the SARS2-CoV virus. That issue is not addressed by the CDC.”
#CDC
Drops Five Day Covid-19 Isolation Despite Controversy via
@forbes
… Thx to
@NationalNurses
@luckytran
@NohaAboelataMD
@19joho
for comments
14
86
214
6
61
206
It’s particularly infuriating to see so many leftists continue to belittle and mock the experience of immunocompromised and disable people and their families during this surging pandemic. We’ve all been tossed aside and deserve so much better.
0
34
200
@amy_harmon
Hello
@amy_harmon
@nytimes
, please issue a correction. Long Covid does not last for “months”. It can last for years. Please do the most basic research before covering our disease, thanks.
8
20
191
Rest in peace P-22.
I’ll never forget meeting you three years ago. It was dusk and I was jogging beneath the dark cedars. I first thought “Who let this strange dog off leash?” But then you showed me your collar and long tail and disappeared into the Toyon like a phantom.
6
26
187
One fun thing about
#longcovid
is that I feel like a bear who has been shot by a tranquilizer with a dose not quite strong enough to knock it out, so it just delusionally wanders the dark forest in a painful dream state for 15 months 🐻💉 does anyone else feel this send tweet
29
22
187
It’s not just the new strain, this is a common outcome of COVID. Most Long Covid cases are in non-hospitalized patients with a mild acute illness.
Incidentally, fwiw, my LA doc said he’s recently had 100s of people in with similar symptoms & most tested positive for Covid several weeks before. (I didn’t but he thinks I had it). The new strains seem to be mildish on infection but spark lingering crap for weeks afterwards.
531
214
1K
2
51
185
We need extended sick leave for all people, clean air, free access to tests/treatments/masks, public education about Covid and Long Covid and leaders that treasure life and health, among so many other common sense things.
1
42
180
1. I knew it would be riddled with misinfo and poor sourcing the from the DEK. It says Long Covid can persist for "weeks". Long Covid can last for YEARS. I & many others have been disabled for 2.5 years, & many with ME/CFS have lived w/ their illness for decades. It is not rare.
1
12
177
Has anyone else experienced microvascular angina since getting Covid or
#LongCovid
? I have consistent symptoms of it and they have gone overlooked by doctors. Grateful for any thoughts on it, how to confirm, what treatments have been helpful ❤️🔥
37
31
178
@DailyJLee
“We need to help people with Long Covid by blocking all of them, not listening to anything they have to say, and ignoring mountains of credible research for one preprint I cherry picked.”
7
18
173
If you can’t spell “Myalgic Encephalomyelitis” please don’t write an article about it, thank u.
10
14
172
‼️BREAKING: The HELP committee announced its panelilts who will testify before the senate committee on
#LongCovid
Panel one: Angela Meriquez Vázquez, Rachel Beale, and Nicole Heim
Panel two: Michelle Harkins, Ziyad Al-Aly, Charisse Madlock-Brown, Tiffany Walker
5
62
172
Set my new location to “The Wayside” since it’s where I’ve fallen.
11
21
168
7/ "The media tells them that they don't have to care, because the people who really matter are not in danger."
1
39
169
‼️ This afternoon
@Slate
responded to our retraction letter and chose to platform disinformation.
@hilella
wrote,
"Miles, Thank you for your letter. We have reviewed it and we stand by our reporting. Take care, Hillary"
📨UPDATE: The letter has been sent to
@Slate
. I emailed editor-in-chief
@hilella
, executive editor
@susanematthews
, and senior health editor
@shanpalus
.
Thank you to all who signed and shared! Please continue to sign/share as we await their response.
3
29
127
12
45
165
@BernieBissett
@UniCanberra
This is incredibly irresponsible, harmful, and goes against the WHO’s recommendations for
#LongCovid
. Please familiarize yourself with the vast biomedical research on Long Covid. Many of us have tried to exercise and gotten worse.
1
7
164
These are sensible requests. In 2019,
@newrepublic
retracted and apologized for a homophobic op-ed. In 2021, they wrote an extensive editor’s note about a column when the article wasn’t thoroughly fact checked.
The New Republic has pulled an article that criticized 2020 candidate Pete Buttigieg — which its editor-in-chief Win McCormack described as "inappropriate and offensive"
3
11
32
2
19
161
5/ "Living w/ AIDS in this country is like living in the twilight zone...[Everyone is] walking the streets as though we weren't living through some sort of nightmare."
1
25
156
4/ "If I'm dying from anything, it's from indifference and red tape, because these are the things that are preventing an end to this crisis...If I'm dying from anything, I'm dying from the President of the United States."
2
40
157
16/ Russo's above ending quote is heart-wrenching to read as the world counts ~18 million excess Covid deaths and at least 65 million people with
#LongCovid
. Russo died of AIDS-related complications in 1990.
2
30
150
3. Patients are experts! Many of the misinfo in this article could have been avoided by speaking with Long Covid patients. Physicians have an appalling history of gaslighting patients and minimizing chronic illnesses.
1
22
153
15/ "After we kick the shit out of this disease, we're all going to be alive to kick the shit out of this system, so that this never happens again."
2
39
151
📢 Big news! The Silver Giving Foundation is matching every dollar donated to
@thesicktimes
up to 15k for March! Donate if you're able to, share with five people you know, or repost our donation link on your socials. Let's do this!
6
80
150
Today is my
#covidversary
.
A year ago I came down with a strange set of symptoms—headaches, fatigue, neuro issues, fainting—that waxed and waned until they developed two months later into
#LongCovid
. I'm still learning to live with this uninvited guest.
12
21
149
"We’ve failed at our field’s core tenets — to hold power to account & to follow the evidence...As reporters, it’s our responsibility to accurately represent the needs of diverse perspectives and avoid an ableist bias..."
-
@KendraWrites
4
51
148
“It’s literally ripped our lives apart. The best way to not get Long Covid is to not get Covid in the first place.”
Most people safely recover from COVID completely. But some continue to experience symptoms months after getting COVID.
Alicia shares her story about how long COVID has impacted her life.
To learn more about the symptoms & diagnosis of long COVID, visit
93
317
698
7
37
148
Covid is still here. The pandemic is part of the violence and genocide being perpetuated against Palestinians.
Ehab is experiencing covid like symptoms. Fortunately he received medicine from the doctor and he is already thinking of what to provide for his community next. Donate here
8
498
488
4
82
147
