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FlutterbyFUNdraisers

@Flutterby4CF

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Cystic Fibrosis Charity raising awareness and funds to support research. 100% of donations currently go to UK CF Gene Therapy Consortium

West Dunbartonshire, Scotland
Joined February 2015
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
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@Alidilly
Ali Dillon πŸ’™ NHS
5 years
If you need beds freed up @MattHancock why not follow the devolved nations lead and allow England to follow FDA licensing for Kaftrio 1,000s more wld be eligible you are failing CF patients in the pandemic its #inequality #EnglandNeedsKaftrio4All #KaftrioEqualityUK
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@Flutterby4CF
FlutterbyFUNdraisers
5 years
delighted to be one of the chosen charities for this incredible challenge.
@_PaulHamilton
Dr Paul Hamilton
5 years
Some friends and I have chosen eight charities (close to our hearts)... Between now and the end of 2021 we will attempt eight separate fundraising cycles... πŸš΄πŸ»β€β™‚οΈπŸ‘πŸ»
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@Flutterby4CF
FlutterbyFUNdraisers
5 years
Amazing news πŸ’œπŸŒΉ
@CFQuestForCure
Quest For A Cure
5 years
'Life-transforming' cystic fibrosis wonder drug coming to Scotland soon
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@thevftos
Kate Eveling
6 years
Guys I need some help for an upcoming YouTube video for CF week! This applies to anyone who has #cysticfibrosis or has a kid with CF or a partner with CF! I am looking for a short video (5-20seconds) telling me a small fact about your life with CF... (1/3) @CFAware @cftrust
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@CFQuestForCure
Quest For A Cure
6 years
πŸ‘‡πŸ‘‡#staysafe this is excellent advice πŸ‘‡πŸ‘‡
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
Anybody else out star gazing tonight? Our sky's are clearer than I've ever seen them here
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@jasonleitch
Jason Leitch
6 years
The NHS is openβ€¦πŸ‘‡πŸΌ
@scotgov
Scottish Government
6 years
Don't ignore the early warning signs of serious conditions. If you or your child are unwell with non-coronavirus symptoms, it's important to seek medical help by contacting your GP. If your symptoms worsen out of hours, call 111. In an emergency, dial 999.
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
Our very own hero taking time out for the kids #cf #eventsbytlc #batman #happyeaster
facebook.com
Happy Easter :)
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
Just stay home...PLEASE
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
The issue now appears to be fixed.
@M44GYG
Maggieg
6 years
@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
Get involved.
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
Please RT our family and friends need these urgently @piersmorgan @Lord_Sugar
@Flutterby4CF
FlutterbyFUNdraisers
6 years
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
We are desperately looking for funding. Does anyone know of any grants we can apply for? #COVID19 #cf #cffamily #cfcharity #fundraising
@Flutterby4CF
FlutterbyFUNdraisers
6 years
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@Flutterby4CF
FlutterbyFUNdraisers
6 years
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