FlutterbyFUNdraisers
@Flutterby4CF
Followers
220
Following
810
Media
115
Statuses
1K
Cystic Fibrosis Charity raising awareness and funds to support research. 100% of donations currently go to UK CF Gene Therapy Consortium
West Dunbartonshire, Scotland
Joined February 2015
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether
https://t.co/hcpfXbD2TE
1
18
10
If you need beds freed up @MattHancock why not follow the devolved nations lead and allow England to follow FDA licensing for Kaftrio 1,000s more wld be eligible you are failing CF patients in the pandemic its #inequality #EnglandNeedsKaftrio4All #KaftrioEqualityUK
1
22
23
Guys I need some help for an upcoming YouTube video for CF week! This applies to anyone who has #cysticfibrosis or has a kid with CF or a partner with CF! I am looking for a short video (5-20seconds) telling me a small fact about your life with CF... (1/3) @CFAware @cftrust
5
13
20
Anybody else out star gazing tonight? Our sky's are clearer than I've ever seen them here
1
0
1
The issue now appears to be fixed.
@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?
0
0
0
Please RT our family and friends need these urgently @piersmorgan @Lord_Sugar
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether
https://t.co/hcpfXbD2TE
0
1
1
We are desperately looking for funding. Does anyone know of any grants we can apply for? #COVID19 #cf #cffamily #cfcharity #fundraising
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether
https://t.co/hcpfXbD2TE
0
3
2
Please RT or friends and family need these urgently @GradySNP @AlexNeilSNP @neilgraysnp @DavidLinden @KennyMacAskill @StewartMcDonald @Stuart_McDonald @AnneMcLaughlin @CMonaghanSNP @DavidMundellDCT @GavNewlandsSNP @kirstenoswald @ChrisStephens @alisonthewliss
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether
https://t.co/hcpfXbD2TE
0
1
1
Please RT Our family and friends need these urgently @AmyCallaghanSNP @DrLisaCameronMP @amcarmichaelMP @wendychambLD @DougChapmanSNP @joannaccherry @ronniecowan @AngelaCrawley30 @MartynDaySNP @MartinJDocherty @DaveDooganSNP @david_duguid @marionfellows @MargaretFerrier
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether
https://t.co/hcpfXbD2TE
0
1
1
Please RT our family and friends need these urgently @VertexPharma @NicolaSturgeon @RuthDavidsonMSP @EmmaHarperMSP @ProfTomkins @HumzaYousaf @HannahB4LiviMP @MhairiBlack @IBlackfordSNP @KirstySNP @StevenBonnarSNP @AndrewBowie_MP @DeidreBrock @AlanBrownSNP
0
0
0
Please RT or friends and family need this @GaryBarlow @GordonRamsay @Charles_MDuke @KToogie @jennyagutter @richardm56 @dunmore_says @RogerBlack400 @MartinSLewis
1
1
1
Please RT our family and friends need this @ManCity @ManUtd @SpursOfficial @CFAware @scotgovhealth @DrMoragKerr @cysfib @Kazza_26 @antanddec @hollywills @Schofe @RachelleRhienne @LittleMix @ollymurs @takethat @TakeThis2013 @therealgokwan
1
1
3
Please RT our family and friends need these @cftrust @GreatStrides65 @reallorraine @JoshLJ24 @jackiebmsp @CFQuestForCure @STVNews @Alidilly @LennoxHerald @M44GYG @WindyWilson88 @ChrisMRiches @RadioClydeNews @RFC_Charity @FoundationCFC @SMFC_CF @FcDumbarton
1
1
1