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Long Covid SOS Profile
Long Covid SOS

@LongCovidSOS

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27,333
Following
954
Media
1,283
Statuses
12,861

UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email info @longcovidsos .org

Charity reg no 1199120
Joined July 2020
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@LongCovidSOS
Long Covid SOS
3 months
We have set up a petition to support our #LongCovid Bill of Rights Join the movement and add your name - help us get this important issue in front of goverment, the NHS and research funders! #LongCovidAwarenessDay #LongCovidBillOfRights
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@LongCovidSOS
Long Covid SOS
1 year
Chandler is only 23 3 months after #COVID in Dec 2020 she went to A&E with numbness in her hands Her symptoms were dismissed as anxiety “I was told to move along, so I left" She has now been diagnosed with multiple ischemic strokes, caused by inflammation
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@LongCovidSOS
Long Covid SOS
2 years
#LongCovid does not discriminate. People of all ages and backgrounds have had their lives and careers robbed from them by this disease. A 🧵 highlighting some younger people with #LongCovid .
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@LongCovidSOS
Long Covid SOS
2 years
A combination of 2 vascular biomarkers can identify #LongCovid with 96% accuracy according to this study Both ANG-1 and P-SEL are related to endothelial injury Authors suggest angiogenesis (dev of new blood vessels) as a target for potential treatments
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@LongCovidSOS
Long Covid SOS
4 years
Today #LongCovid sufferers are sending a #messageinabottle to Government. Watch it here:
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@LongCovidSOS
Long Covid SOS
1 year
Today is #LongCovidAwarenessDay This is our message: #LongCovid can rob people of everything they once held dear... Things need to change We are fighting to be a lifeline for people with #LongCovid Hear our SOS and help us be that change #LongCovidAwarenessMonth @LCawarenessInt
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@LongCovidSOS
Long Covid SOS
6 months
The Long Covid groups speak as one today, telling the world that anyone can get #LongCovid Please share our message and call for treatment, #CleanAir and support for the millions living with Long Covid. #ItCouldHappenToYou
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@LongCovidSOS
Long Covid SOS
11 months
After earlier reports that @robbiewilliams has #LongCovid , we are saddened to learn that this appears to have been said as a joke. We are sure that no-one would publicly claim to have other chronic illnesses in this way. 1/3
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@LongCovidSOS
Long Covid SOS
4 months
"Please don’t tell me I look well, or, even worse, tell me that you’re glad to see that I’m feeling better" Our patron @EmmaSamms1 writes poignantly about living with an invisible illness, #LongCovid
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@LongCovidSOS
Long Covid SOS
1 year
A major barrier to the right care and diagnostics for #LongCovid had been the belief that #Covid is a respiratory disease Is it not - it impacts all organs but in particular the vascular system It is a 'blood vessel problem'
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@LongCovidSOS
Long Covid SOS
2 years
Study points to vagus nerve dysfunction as a central pathophysiological feature of #LongCovid Evidence of changes to the vagus nerve were observed, causing symptoms including dysphonia, dizziness, tachycardia, POTS and diarrhoea
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@LongCovidSOS
Long Covid SOS
3 months
"Right now there are thousands of staff who are deeply traumatised... staff who have been left severely disabled from #LongCovid and even now when we go into our hospitals we don't have proper PPE...that is a national scandal" @doctor_oxford spoke to @skysarahjane @SkyNews 🙏
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@LongCovidSOS
Long Covid SOS
4 months
We're outside St Thomas' Hospital demanding #CleanAir in medical settings Protect #doctors AND #patients FFP2 / FFP3 should be the minimum We demand protection NOW! @covidactionuk @cv_cev @DoctorsInUnite @long_covid @hazardscampaign @LongCovidKids @waltz_tales
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@LongCovidSOS
Long Covid SOS
19 days
David Putrino @PutrinoLab believes that politicians are starting to get scared by the extent of post viral illness #unitetofight2024 But governments are yet to sit down and listen and take this massive issues seriously #LongCovid
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@LongCovidSOS
Long Covid SOS
2 years
Six months after infection, neurocognitive deficits in working-age patients with #LongCovid found to be "of the same magnitude as intoxication at the UK drink driving limit or the deterioration expected with 10 years ageing" Grim news
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@LongCovidSOS
Long Covid SOS
1 year
"Vaccination alone is insufficient to protect against the harmful effects of infection by the #SARSCov2 virus ... this advice is now backed by research that suggests the risk of #LongCovid is higher on reinfection" Primer on recent advice from @WHO
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@LongCovidSOS
Long Covid SOS
19 days
A new highly contagious coronavirus variant is spreading rapidly throughout the UK with the number of cases rising “Recognising Covid-19 symptoms can be tricky as they are very similar to that of the flu" It's not flu season. Assume it is #covid and TEST
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@LongCovidSOS
Long Covid SOS
8 months
Today we found out that @BorisJohnson scrawled 'BOLLOCKS’ across a @DHSCgovuk document about #LongCovid He admitted in his witness statement that he didn’t believe #LongCovid ‘truly existed’ We now know that he thought it should be dismissed as "Gulf War Syndrome stuff"
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@LongCovidSOS
Long Covid SOS
2 years
Great little print-out guide from @UKPoTS - perfect to give to your #GP if they say they haven't heard of #LongCovid #PoTS before. Includes advice on how they can give you a simple stand test to help with diagnosis.
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@LongCovidSOS
Long Covid SOS
3 months
📽️Fascinating treatment in Japan for inflammation of the epipharynx - claimed among other things to help restore function of the hypothalamus thus resetting the autonomic nervous system Has helped with #LongCovid symptoms Recommend watching to the end
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@LongCovidSOS
Long Covid SOS
10 months
Considering viral persistence has been found at two years, we agree with the call for more thorough testing of donors and donated organs before transplant:
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@LongCovidSOS
Long Covid SOS
7 days
"Long-haul flights where masking was enforced reported no transmission of SARS-CoV-2, indicating that masking could significantly lower aircraft-acquired COVID-19" A clear no brainer - but relies on all passengers to comply Mask up on flights! 😷
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@LongCovidSOS
Long Covid SOS
1 year
"She’s experienced gaslighting in such a catastrophic way that she actually disengaged with all services" Kitty no longer has the cognitive ability she had before #LongCovid but received no special advice or support to address the gaps in her education
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@LongCovidSOS
Long Covid SOS
6 months
“Given we’ve got millions of leftover vaccines from the autumn booster campaign, why not try to put them in people’s arms instead of the bin?” - @chrischirp Seems negligent of JCVI and @DHSCgovuk to leave so many people vulnerable to #covid and #LongCovid
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@LongCovidSOS
Long Covid SOS
1 year
Today @LongCovidSOS along with 20 other organisations has written to @SteveBarclay calling for a Public Space Ventilation Bill in order to prevent #COVID19 transmission "There is no downside to clean air, it will benefit everyone" #LongCovid #VentilationBill Read the letter here
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@LongCovidSOS
Long Covid SOS
8 months
"There is no reason for that number of people to have died - we couldn't have been less prepared" Damning evidence from Prof John Edmunds @covidinquiryuk "There was no real strategy, no long-term thinking" @long_covid @LongCovidKids @BhattMurphy @Jane_Ryan_
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@LongCovidSOS
Long Covid SOS
1 year
We are completely delighted, overwhelmed and proud that Charlie, along with his family by his side, dad Tony and brother Howie have reached Everest Base Camp and achieved their Climb for Long Covid. Thank you so much to Charlie for fundraising via his truly monumental feat.
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@LongCovidSOS
Long Covid SOS
1 month
Excellent information and set of infographics from @YaleSPH Thank you for sharing your knowledge These should be seen by as many people as possible H/t @fitterhappierAJ Individual images in 🧵
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@LongCovidSOS
Long Covid SOS
5 months
According to @NHS children with #Covid (advised NOT to test by @UKHSA ) can go to school and spread it to other children who may have vulnerable family members, and to staff, who may also be vulnerable Is this how to prevent the spread of a notifiable disease? #LongCovidKids
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@LongCovidSOS
Long Covid SOS
7 months
"Patients with lower levels of taurine had a lot more symptoms, more of them were hospitalized" The amino acid was also found to be a predictor for #LongCovid and could be a potential treatment - further studies are proposed
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@LongCovidSOS
Long Covid SOS
2 years
Latest #LongCovid prevalence figs from @ONS show a jump in numbers ♦️2.3 MILLION people in the UK have #LongCovid - 3.5% of the population - ⬆️15% ♦️1.8 million 12 weeks+ ♦️More than a million have had symptoms for a year or more ⬆️23% ♦️514,000 have been unwell for 2 YEARS+⬆️20%
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@LongCovidSOS
Long Covid SOS
8 months
“Everyone wants a single biomarker, everyone wants a single treatment. That’s not realistic for long Covid.” However the latest published research from @PutrinoLab @VirusesImmunity offers concrete, biological evidence that #LongCovid is real
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@LongCovidSOS
Long Covid SOS
2 months
🧵Today Long Covid SOS launches a brand new GP leaflet endorsed by @rcgp Most people with #LongCovid are still unhappy with the knowledge and treatment options available from their GP according to our recent survey data 1/5
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@LongCovidSOS
Long Covid SOS
7 months
🚨📢 New #LongCovid research from @ReactStudy @imperialcollege 🧵 ♦️ 242,712 adults surveyed ♦️ 10% persistent symptoms 4 weeks+ ♦️ 7.5% symptoms 12 weeks+ ♦️ 5% have symptoms 1 year+ ‼️ ♦️ Fatigue, cognitive dysfunction, joint pain most common 1/3
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@LongCovidSOS
Long Covid SOS
8 months
Heneghan is asked whether the existence of #LongCovid suggests the approach of the Great Barrington Declaration re 'letting young people live their lives" is flawed He claims evidence for #LongCovid is not conclusive and cites 'recent research' Hallett is not impressed
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@LongCovidSOS
Long Covid SOS
11 months
2/3 This damaging behaviour is heartbreaking for #LongCovid sufferers, who may feel isolated about their often-invisible but life-changing illness. Did you ever consider the impact that your ‘joke’ would have on an already fragile community, Robbie?
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@LongCovidSOS
Long Covid SOS
1 year
The Robbie Williams story now picked up by MSM in thy UK It is so important to get the message out there - #LongCovid can impact anyone including celebrities So sorry @robbiewilliams that you're having to deal with this
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@LongCovidSOS
Long Covid SOS
1 year
Robbie Williams struggling with #LongCovid "If you look closely, you will see Williams suffering. Sit, lie down, walk instead of run, dance as little as possible; they are all self-sparing methods" See screenshot below and in thread for the story in English
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@LongCovidSOS
Long Covid SOS
2 years
Long Covid SOS is now a registered charity! Today is 2 years since we sent out our SOS and it all began with our #messageinabottle film. Our advocacy for #longcovid is needed now more than ever We are proud to mark this date by launching our new website
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@LongCovidSOS
Long Covid SOS
1 year
This Wednesday, 15th March 2023 is International Long Covid Awareness Day Advocates from all over the world are gathering together to spread the word about the reality of #LongCovid Things need to change #LongCovidAwarenessDay #LongCovidAwarenessMonth
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@LongCovidSOS
Long Covid SOS
11 months
3/3 We would welcome the chance to talk to @robbiewilliams and his team about the truly stark and disabling impact of #LongCovid on so many lives, and ask him to back our call for recognition, research, and rehabilitation for #pwLC
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@LongCovidSOS
Long Covid SOS
2 years
The retinal capillary system is representative of the entire human body’s microcirculation Results of this study (preprint) suggest that changes to retinal microvascular circulation could be used as a biomarker for those with #LongCovid and fatigue
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@LongCovidSOS
Long Covid SOS
2 years
Researchers found those with #LongCovid had virus-specific T cell levels 100x higher than controls suggesting persistent virus or viral fragments Antivirals may be a treatment option
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@LongCovidSOS
Long Covid SOS
3 years
Please speak out against the views of this individual who is repeatedly given airtime by @BBCNews @BBCNewsnight to promote views on #LongCovid contrary to scientific evidence #medtwitter #ScienceTwitter @Daltmann10 @amibanerjee1 @michael_zandi @DanAyoubkhani @Dr2NisreenAlwan
@allthecitizens
The Citizens
3 years
The UK medicines regulator says Pfizer safe for over 12s Over 12s being vaccinated all across the world This sociologist say he & his JCVI committee will not allow it because Long Covid isn’t real. The 2m UK sufferers have ‘psychosomatic symptoms’
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@LongCovidSOS
Long Covid SOS
1 month
🧵The @ONS have published #LongCovid prevelence data from the Winter CIS England+Scotland only ❗️2 million (3.3%) have #LongCovid ❗️1.5 m adversely affected ❗️381k severely impacted ❗️71.1% have had symptoms a year or more ❗️51.3% 2 years + ❗️30.6% 3 years + 600k people 1/3
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@LongCovidSOS
Long Covid SOS
1 year
Special callout for the "Masks don't work 🤡" community This study in schools shows that airborn #SARSCoV2 decreased by 69% during mask mandates, 39% with air filters Masks wearing cut tranmission by 80% #LongCovid #LongCovidKids #WearAMask
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@LongCovidSOS
Long Covid SOS
2 years
"We found a consistent pattern of memory deficits in those that had experienced the COVID-19 infection" Cognitive and Memory Deficits in #LongCovid : A Second Publication From the COVID and Cognition Study #LongCovid
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@LongCovidSOS
Long Covid SOS
2 months
Universities of Stirling, Oxford & York research finds return to work policies unfit for those with #LongCovid Terms ‘able’ or ‘disabled’ are not helpful for people with Long Covid, which is unpredictable, has invisible symptoms, and varies in severity.
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@LongCovidSOS
Long Covid SOS
1 year
"Sometimes, I wake up with strong pain as if I had run a marathon, but I was only sleeping in my bed...this reminds me that I did not fully recover from COVID-19" An immunologist’s reflections on nine months of #LongCovid Interview with @stephanie200586
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@LongCovidSOS
Long Covid SOS
5 months
@royalhospital What a bizarre response. Why withdraw something when you know it’s working?
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@LongCovidSOS
Long Covid SOS
1 year
1 in 20 new diabetes cases could be linked to #Covid "If this is the case, it has serious implications for health systems around the world ... That might also mean having to take ongoing waves of Covid19 more seriously"
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@LongCovidSOS
Long Covid SOS
1 year
“Sadly on the long Covid front, it is fair to say that it has cancelled my life until further notice.” Astronomer royal Catherine Heymans was “efficient, effervescent, and unstoppable” until she developed #LongCovid
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@LongCovidSOS
Long Covid SOS
1 year
#LongCovid "may be associated with disruptions to the menstrual cycle, gonadal function, ovarian insufficiency, premature menopause, and fertility problems" More research is needed into the impact of #LongCovid on reproductive health @patientled
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@LongCovidSOS
Long Covid SOS
2 years
#LongCovid : The nightmare a million of us still can't shake off Forecasters predict #LongCovid could cost the economy £10 billion a year and this is based on only 100k out of work. The full impact of #Omicron is still unknown
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@LongCovidSOS
Long Covid SOS
8 months
"We felt abandoned...many people felt that they were really on their own - no one was researching us" "There was a huge amount of gaslighting...the trauma of not being believed was one of the worst aspects" Our Co-founder @selkieO at @covidinquiryuk @long_covid @LongCovidKids
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@LongCovidSOS
Long Covid SOS
3 months
@educationgovuk @ChristmasRowena @NHSuk A fever is NOT the only sign of illness. Stomach upset and diarrhoea isn't even mentioned. If a child feels unwell but doesn't have a fever they shouldn't be forced to go to school and potentially infect others. Parents be the judges
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@LongCovidSOS
Long Covid SOS
1 year
Study finds that electrical stimulation can improve muscle perfusion and oxygen delivery and could support exercise intolerance in people with #LongCovid Results showed increased levels of oxygenated haemoglobin to the foot and improved muscle endurance
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@LongCovidSOS
Long Covid SOS
2 years
The only way to prevent #LongCovid is to avoid infection. We alerted govt to the risk of allowing uncontrolled #COVID19 transmission a year ago and this is the consequence Now can we please have more investment into research and treatment?
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@LongCovidSOS
Long Covid SOS
8 months
"Many people with #LongCovid have organ damage 🫁🫀which hasn't been detected because they didn't get the right tests" More research needed on those who weren't in hospital Our Co-Founder @selkieO spoke to @LBCNews about data from the @PHOSP_COVID study
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@LongCovidSOS
Long Covid SOS
4 months
📹Fantastic speech from Joseph Healy @verde1957 from ⁦ @covidactionuk ⁩ At St Thomas' Hospital today #breathtaking #masksinhealthcare #covidisnotover #CleanAir #longcovid
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@LongCovidSOS
Long Covid SOS
2 years
This preprint found that although children have milder #COVID19 infections which clear faster than adults, their T-cell immunity, is not robust enough to resist reinfection. So much for building herd immunity by infection in schoolchildren #LongCovidKids
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@LongCovidSOS
Long Covid SOS
6 months
People with #LongCovid don't burn fat during exercise properly according to this paper The suggests that muscles are not functioning as they should and could account for exercise intolerance More research needed...
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@LongCovidSOS
Long Covid SOS
8 months
The Long Covid charities are at the Long COVID Inquiry today. Using their voice with dignity, with power, with exhaustion. We Will Not be Forgotten! #longcovidruinslives #weneedanswers #listenlearnhope #giveushope @long_covid @LongCovidKids @LongCOVIDPhysio @LCNMUK
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@LongCovidSOS
Long Covid SOS
1 year
10.8% of civil servants report that they have #LongCovid , 7.4% adversely impacted - it's the 4th leading cause of long-term sickness Lost working days have risen by nearly 30% If this impact on their employees doesn't concern the govt, what will?
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@LongCovidSOS
Long Covid SOS
1 year
Dylan has given up his dreams of becoming a doctor. "I had to learn to live with this disability and grieve my old life. I had to accept I would not become the doctor I had dreamed of being" #LongCovid
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@LongCovidSOS
Long Covid SOS
8 months
“Was it foreseeable to those of you who understand these things that there might be long term sequelae from covid 19? “ “it was foreseeable to us before the pandemic because of sars cov 1 & it was even more apparent to us early on in the pandemic it would be a potential problem“
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@LongCovidSOS
Long Covid SOS
2 years
Two million - 3.1% - in the UK with #LongCovid . Data from @ONS just published 🔸1.4m symptoms 12 weeks+ 🔸826k unwell for 1 year+ 🔸376k not recovered after 2 years 🔸1.4 million adversely affected 🔸398k severely impacted 🔸629k from Omicron wave
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@LongCovidSOS
Long Covid SOS
2 years
Time for changes to employment law? ‘Policymakers are starting to suspect the condition is a factor behind the labour shortages seen in the US and UK’ Piece in the @FT highlighting the impact of #LongCovid and other #chronicillness on working lives
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@LongCovidSOS
Long Covid SOS
2 years
Tolerating mass infection in the hope that it won't lead to mass hospitalisations ignores the huge risk of mass disability. Excellent thread illustrating how policy makers in certain countries including England are continuing to get it wrong #LongCovid
@math_rachel
Rachel Thomas
2 years
“Covid zero is impossible with omicron, so what’s the point in even trying to reduce/slow transmission?” My answer: 🧵 1/
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@LongCovidSOS
Long Covid SOS
2 months
Here is our statement in response to Rishi Sunak’s ‘full-on assault on disabled people’ as @guardian described it The system blames and fails us in equal measure, but we will continue to address these injustices and do our best to campaign against them and advocate for change.
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@LongCovidSOS
Long Covid SOS
2 months
NHS hospitals must start LISTENING to patients with #SevereME . Millie is deteriorating rapidly in hospital due to their continuous psychologising of her physical illness Please tweet and retweet and sign below #BringMillieHome #DontLetMEDie @gmcuk @rcphysicians @rcpsych
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@LongCovidSOS
Long Covid SOS
2 years
Even mild #Covid linked to heart disease and strokes 'The researchers said the burden of heart disease caused by Covid-19 was becoming “a dominant public health concern”' Why is there no public health messaging so people understand their risk? #LongCovid
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@LongCovidSOS
Long Covid SOS
1 year
#LongCovid resolves in a year? This may seem to be good news for some with more recent infections, but sadly 1.2 million in the UK have not recovered by 12 months according to @ONS 95% were not hospitalised 670,000 are still unwell after two years
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@LongCovidSOS
Long Covid SOS
5 months
"I've gone from climbing mountains to not being able to feed or wash myself. The biggest struggle is that there is not a clear end and it isn't a disease we can treat." @alexis___me describes how #LongCovid has left him bedbound #TreatLongCovid
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@LongCovidSOS
Long Covid SOS
1 year
Our KC Anthony Metzer speaking now @covidinquiryuk "People with #LongCovid deserve answers and deserve to know what the government knew about this pernicious disease and what steps if any it took when confronted with the reality of huge numbers of people not recovering from it"
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@LongCovidSOS
Long Covid SOS
5 months
"As the death of Derek Draper and the grief of his family should remind us, #LongCovid is an especially cruel disease, and one that we should be far more concerned about... we need more research into long Covid, and an end to unhinged conspiracy theories"
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@LongCovidSOS
Long Covid SOS
6 months
Researchers are warily watching for the worst: a potential connection between #LongCovid and cancer Viral infections are thought to be responsible for about 15% to 20% of cancer cases globally Sobering reading
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@LongCovidSOS
Long Covid SOS
3 months
"People who had had #Covid were performing less well, particularly in executive function.” Strange isn't it how we're told #LongCovid doesn't exist and it's just like the flu? Yet after each infection - even mild - we are all measurably losing cognition
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@LongCovidSOS
Long Covid SOS
1 year
Tomorrow, Wednesday 15th March is the first International Long Covid Awareness day Advocates from all over the world are uniting for better recognition of #LongCovid Things Need to Change #LongCovidAwarenessDay
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@LongCovidSOS
Long Covid SOS
2 years
We’d just like to say we’re incredibly proud of the team over at @LongCovidKids , and of all those kids who went to @10DowningStreet . The bravery they showed today will be remembered.
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@LongCovidSOS
Long Covid SOS
2 years
In the UK we are moving towards 2m people with #LongCovid Figures released today from @ONS : ♦️1.8M have #LongCovid - almost 3% of the population ♦️1.3M are 12 weeks + ♦️791,000 have had symptoms for a year or more ♦️235,000 have had #LongCovid for two years+
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@LongCovidSOS
Long Covid SOS
15 days
Emily Mason @LCEducatorsUK “We were told to ‘go into schools, carry on keeping the country running, children have to be in school’. And we’re hung out to dry now when so many of us can’t work,” she said.
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@LongCovidSOS
Long Covid SOS
5 months
"There is the sense that something is going on in America that we're not addressing...to all those who are dealing with #LongCovid : we hear what you're experiencing, we take it seriously" @BernieSanders
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@LongCovidSOS
Long Covid SOS
6 months
🧵Today, Boris Johnson, when faced with the document on #LongCovid upon which he had scrawled 'BOLLOCKS' said: "I regret very much using that language and should have thought about the possibility of future publication" No regrets about dismissing a disabling condition? 1/3
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@LongCovidSOS
Long Covid SOS
2 years
Read our statement in response to yesterday's announcement that all #COVID19 restrictions will be scrapped "We risk condemning hundreds of thousands more previously healthy and economically active people to a debilitating long term illness"
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@LongCovidSOS
Long Covid SOS
2 years
More on how #LongCovid affects the brain from @VirusesImmunity & @michelle_monje ♦️6 ways: Neuroinflammation, infection, autoimmune response, reactivation of latent herpesviruses, microvascular/thrombotic disease and pulmonary/multiorgan dysfunction.
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@LongCovidSOS
Long Covid SOS
1 year
Long Covid SOS stand in support with the #millionsmissing on ME Awareness day. We have changed our ribbon to blue for you💙 We are stronger together, fighting for all chronic illnesses. #ME #MEAwarenessDay2023 #longcovidawarenss #chronicillnessawareness #learnfromme
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@LongCovidSOS
Long Covid SOS
11 months
It's 3 whole years since we released our #messageinabottle film It has since had hundreds of thousands of views on different platforms We're glad that some people featured are now recovered but many are not Things - still - need to change #recognition #research #rehabilitation
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@LongCovidSOS
Long Covid SOS
3 months
#LongCovidAwareness Day is fast approaching Please keep supporting us in this cause 🪧 Share our images in the wider community 💬 Talk about your #LongCovid whenever you can 🫵🏼 We need YOUR help to make Long Covid something everyone is aware of ❤️‍🩹 Share your stories with us
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@LongCovidSOS
Long Covid SOS
1 year
We wrote to the @bmj_latest to correct errors & assumptions in their recently published study It "fails to align with self-reported #LongCovid symptom persistence and the global lived experience of patients" @ResearchAidNet @LongCovidKids @Vickyvdtogt
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@LongCovidSOS
Long Covid SOS
8 months
📢 Join us in making a difference! The Long Covid Groups are taking center stage at the Covid Inquiry Hearings today. We refuse to be forgotten, unheard, disbelieved, isolated, unemployed, disabled, or immobile. #LongCovidLivesRuined #LongCovidRuinsLives #WeNeedAnswers
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@LongCovidSOS
Long Covid SOS
5 months
We are deeply saddened by the news of Derek Draper’s death Kate Garraway has been a hugely important voice in the mainstream media highlighting the very real danger that a Covid infection poses @selkieO #LongCovid for many people is a serious condition
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@LongCovidSOS
Long Covid SOS
3 years
Long Covid must be recognised as occupational disease, says BMA @amyismall describes how she lost her job as a doctor after suffering from #LongCovid for 6 months, having caught #COVID19 at work "The government has airbrushed long Covid" @CNagpaul
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@LongCovidSOS
Long Covid SOS
1 year
Robbie Williams struggling with #LongCovid "If you look closely, you will see Williams suffering. Sit, lie down, walk instead of run, dance as little as possible; they are all self-sparing methods" See screenshot below and in thread for the story in English
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@Vickyvdtogt
Vicky van der Togt
1 year
After just 3 songs, Robbie Williams leans on his knees for support. The band has just started the 4th song, but he tells them to stop. "I'm fucked," he says out of breath. With a boyish look at the audience: "It's #LongCovid . Not my age, you bastards!"
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@LongCovidSOS
Long Covid SOS
8 months
🚨📢 BREAKING NEWS! The #LongCovid Groups appear on @BBCNews at 6 @covidinquiryuk "Thousands caught #Covid before the lockdown when we knew it was spreading massively" - and so many then developed #LongCovid : our Co-founder @selkieO @long_covid @LongCovidKids @BhattMurphy
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@LongCovidSOS
Long Covid SOS
1 year
Study evidenced organic alterations along the vagus nerve in people with #LongCovid May suggest evidence for future studies to investigate & lead to therapeutic interventions
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@LongCovidSOS
Long Covid SOS
11 months
“There are so many invisible disabilities that people don’t understand: “You don’t look sick.’ Yes, that’s because you’re seeing me at my most energetic! It’s like living an Instagram life, you’re always projecting the best bits & hiding everything else.”
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@LongCovidSOS
Long Covid SOS
3 years
Research suggests that reactivation of other viruses such as herpes/EBV/CMV may play a part in the development of #LongCovid Study found high EBV levels in 73% of participants with #LongCovid compared to 10% in controls
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