Explore tweets tagged as #RareSupport
The road is long, but the payoff is LIFE. #RareDisease Paving the way Advocates. Patients. Parents. Friends. Family. Community. RESEARCH. NIH. Genetic. FDA. Medical. Doctor. HOPE #chronicpain #disability @GlobalGenes @KFS_Freedom @RareAdvocacy @Raresupport @RarePOV @SanfordCoRDS
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Happy #thanksgiving @RarePOV @emilemi @GlobalGenes @Raresupport @RareAdvocacy @SanfordCoRDS @PatientWorthy @RareAdvocates @RareDiseases @US_Pain @ThinkGenetic @Ilovepigenetics @GeneticAlliance & everybody in the rare disease chronic illness pain Advocate community #givethanks
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Biti suhljate postave ne pomeni biti anoreksičen! #marfan #anorexiabody #raredisease #IKnowMarfan #RareSupport #Woman #Man #DontJudgeChallenge #DontJudge #KnowFightWin
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TODAY is Rare Disease Day! We Care About ALL Rare Disease + Klippel-Feil syndrome 🗝🔐❤🦓#WRDD2019 #RareDiseaseDay @RareDiseases @eurordis @hopethezebra @GlobalGenes @ThinkGenetic @PatientWorthy @RareAdvocacy @RareAdvocates @SanfordCoRDS @MyCityMed @Raresupport @UndiagnosedRare
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TODAY is KFS Awareness Day! I'm a Rare Disease Patient 🗝️Educate Empower Advocate Action Patient Power What's Klippel-Feil syndrome ?> https://t.co/1cOD8uWLgB 😎 Awareness > https://t.co/BWbowbyMHE
@ORDR @GlobalGenes @MD_Briggs @SanfordResearch @RarePOV @NIH @Raresupport
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My husband has just informed me that while I was @ #WODCUSA he took all my @RareDiseases zebras and hid them around the house "This year we hunt zebras in honor of #RareDiseases not eggs" We dont have kids so he is making me look for them #RareSupport
#ButImJewish
#CRPSLove
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Esta enfermedad rara también le puede afectar a un familiar tuyo: 🤗 https://t.co/RNI7x9hJhj
#XerodermaPigmentoso
@RareRevolutionM @TeddingtonTrust #RareDisease @Raresupport @rarediseaseday @GlobalGenes @RareUniversity @RareDiseases @XPFamilySupport @FEDER_ONG
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Klippel-Feil syndrome - a rare disease. 🗝️tools > https://t.co/cCkLaG2LMD 😎 KFS Awareness Day info > https://t.co/BWbowbyMHE KFS Survey > https://t.co/9UAAMgHQJu KFS Advocates take action! @RarePOV @Raresupport @RareAdvocacy @RareDiseases @MD_Briggs @ORDR @KFS_Freedom @CSFinfo
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We wish, for the entire rare disease community, kindness, peace, love, and joy this holiday season. Cover others with kindness & warmth. #winter #wonderland #snow #beautiful @GlobalGenes @PatientWorthy @RareAdvocacy @Raresupport @RareAdvocates @BYMRKH @TheEDSociety @CSFinfo @dmrf
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Infants Toddlers Kids w a rare disease deserve better, 2 say the very least! #RareDisease #RareDiseaseDay #WRDD2019 #parentadvocates #citizenscience #FDA #NIH #CareAboutRare @ORDR @GlobalGenes @rarediseaseday @ParentProjectMD @MyCityMed @Raresupport @RareAdvocates @SanfordBenF
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Interested in first-hand adult rare disease input? Adult rare patient knowledge offers a lifetime of supportive tools, 4 rare of all ages. @RareAdvocacy @GlobalGenes @ThinkGenetic
@RarePOV
@Raresupport
https://t.co/m5hkkymPwP
https://t.co/6uy74gKOkT
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Join the #NYRareActionNetwork on May 18th at a Meet & Greet for an opportunity to learn about NYS efforts, connect with other #RARE patients, families, and supporters! #RareDisease #RareSupport @OleyFoundation @RareDiseases
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@lisadbudzinski @DrPas84Ele @RackerbyAmanda @AarskogSyndrome @thetinman_org @CDG_Portugal @PMTJames @ataxiascot @LabPapaleo @MinddsAction @RACC_UK @mydediego @PandasIRL @PandasPans @AS_UK @NIHDirector @NIMHDirector #raredisease
#SmallWorld ( @RarePOV @GlobalGenes #2019ggsummit ) #pinksocks #health
#RareSupport
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