🚨 Don’t miss out! The #RareDiseaseDay 2026 launch webinars are almost here 🎉 Join on 27 or 28 Oct to explore new designs, advocacy toolkits & multilingual resources — all ready to power your campaign 🌍 👉 Register now: https://t.co/PnsEWy7Hcp

🌍 For 30 million Europeans living with a #raredisease, research is hope. Yet only 18% have had chance to part in #research to develop new therapies (Rare2030). This has to change. Here’s why 👉 https://t.co/lGYU1bw4xu

Mark your calendars. After 4 years of building. $PRDT launches November 1st, 2025 - 12PM CET. Let’s make history together. 💚

POV: You just shared your experience in the #RareBarometerSurvey Us: 🥹💙 (Robert Redford - Jeremiah Johnson) The more voices we hear, from different countries, conditions, and experiences — the more powerful the results will be! 👉 Take the survey: https://t.co/7bJTaPnAYu

📣 The World Orphan Drug Congress Europe 2025 takes place in Amsterdam, 27–29 October! Join global leaders in the #RareDisease community to explore innovation, access & collaboration in #OrphanDrugs. 💡 EURORDIS members get a free pass! 👉 https://t.co/DX1lvw1aA1

We’re now accepting poster abstract submissions for #ECRD2026! 📝 Share your research, advocacy, or policy work with Europe’s rare disease community — the largest patient-led event of its kind. Submit by 6 March 2026! 👉 https://t.co/jxukcykrSc

Abraham Watkins Law Firm is incredibly honored to have represented a remarkable family who suffered unimaginable tragedy — the loss of a loved one and life-altering injuries. This $60 million mid-trial settlement brings justice and closure to a family that placed their trust in

🔍 New insights from @‌IRDiRC! A new paper explores how Undiagnosed Diseases Networks (UDNs) have evolved & the ethical questions that arise — highlighting the importance of collaboration & equity in rare disease diagnosis. 📄 Read: https://t.co/gq7co8s6xW

⏰ The countdown is on! Get ready for the launch of #RareDiseaseDay 2026🎉 Join one of our launch webinars on 27 or 28 Oct to discover this year’s campaign: new designs, toolkits, and multilingual resources to power your activities worldwide! 👉 Register: https://t.co/PnsEWy7Hcp

We and the European Access Academy (EAA) will jointly host the Fall Convention 2025 at Université Paris Cité on 6–7 Nov. 📢 Join the Public Session – EU HTA: Procedural Insights & First Learnings online (6 Nov, 15:30–19:00 CET). Register by 31 Oct: https://t.co/zjSz31emIE

The journey to a rare disease diagnosis can be long and difficult. If you’ve been there, you know the toll it takes on patients and their families alike. That’s why we’re asking you. What helps you live with a rare condition? 👉 https://t.co/7bJTaPnAYu

Reimplemented NERF today on my MAC CPU NERF TLDR: Generate new photos of an object/scene from a few real ones In practice few ~= 100s of images (below result is from 100 input images)

💡 The DIA Patient Partners Programme offers patient representatives a chance to attend #DIAEurope2026 (Rotterdam, 24–26 March 2026) with a Full Fellowship & Registration Waiver. 📅 Apply by 28 Oct 2025 👉 https://t.co/TRMqZvB2qf

🎉 Today marks the 40th meeting of the EURORDIS Roundtable of Companies! Since 2004, the ERTC has fostered a long-term educational relationship and a constructive dialogue between EURORDIS and companies addressing rare diseases. Learn more 👉 https://t.co/4n94zr4kh3

⏰ Final Call: Applications close this Friday! Empower your voice. Learn. Connect. drive the change you want to see for your rare disease community. 🕐 Apply by 17 October 2025! 👉 https://t.co/WCi31iUIRl

🔬 New insights from #IRDiRC’s N-of-1 Task Force! A #newstudy applies the eligibility roadmap for individualised therapies to Duchenne muscular dystrophy, highlighting both promise & challenges of N-of-1 approaches in rare diseases. 📌 Read the paper: https://t.co/Fl0a7tmfFV

💫 The Edge Nobody Talks About is Looking Beyond The Line Everyone’s chasing data. We’re chasing energy. Numbers can tell you what should happen — but not what a player feels. They can’t measure birthdays, redemption games, heartbreaks, first starts after loss, or nights when

Today is #WorldMentalHealthDay. 🧠 Living with a rare disease affects more than the body, it touches every aspect of everyday life. 💬 Take the #RareBarometer survey and help shape care that supports the whole person. 👉 https://t.co/7bJTaPnAYu

⏰ Reminder for #EURORDIS Members! Join us Friday 10 Oct, 14:00–16:00 CEST for our webinar on the EU Biotech Act, a key chance to shape #EU policy for rare diseases. 👉 Register now: https://t.co/NrrLh2c6Am

New episode of ERNs on Air! Patients, clinicians & researchers join forces to tackle endocrine medicine shortages across Europe. 🏆 A winner of the EURORDIS 2025 Patient Partnership Good Practice Challenge. 🎧 Listen now: https://t.co/MfPvD1uAJY

As trilogue talks on the #EU Pharmaceutical Legislation resume, we & @eupatientsforum urge the Council to strengthen—not weaken—patient involvement in regulatory decisions. 🗳️ There’s no future for pharma without patients at the table. 👉 https://t.co/uM4aKkEGGN

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What if you could sit at the same table as leading scientists & shape the future of #raredisease therapies? #EURORDISOpenAcademy equips advocates & young researchers to be equal partners in innovation 💡 🕰️ Apply by 17 Oct 2025 👉 https://t.co/IyS6khrJPC

Today is #EuropeanCarersDay! Carers in the rare disease community face huge challenges: 👩‍⚕️ 2 in 3 spend >2h/day on disease-related tasks 💼 7 in 10 reduce or stop work Their role is vital - it must be visible, valued & supported. Learn more👇 https://t.co/vsGDMmSCeN

In case you missed it... the latest episode of 10 Minutes With is now available! 🎥 Host ‌Rhiannon Walls sits down with @‌Avrilbdaly to revisit the #Rare2030 recommendations, reflecting on the first five years and the priorities that lie ahead. 👉 https://t.co/nh3qRarj2Z