RARE Revolution Magazine
@RareRevolutionM
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Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
United Kingdom
Joined July 2016
Overall, has receiving a confirmed diagnosis had a positive or negative effect on your quality of life and how you live with and manage your health?.
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EARLY BIRD ENDING .Gain access to in-depth insights, networking opportunities, and the latest advancements in the #RareDisease field. Subscribe to #RARERevolution insider today and stay ahead of the curve. .#IndustryProfessional #Healthcare #Biotech
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Introducing Cognito, your NEW RARE Rev librarian. Try it for yourself at . When you sign up to insider, as well as having access to exclusive industry articles, you also be able to unlock extra features when using Cognito. Visit
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A digital health entrepreneur launched an AI venture after her daughter's rare diagnosis to empower those with chronic conditions. 🌍💡 #HealthcareLeadership #AI #RareDiseases #EmpathyDrivenTech
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Jacqui Fish shares her journey as a carer for her son with #VascularEhlersDanlosSyndrome. Despite challenges, she empowers him to live fully and finds strength in love and community support. Read more: #vEDS #VascularEDS
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Gain expert insights from Dr. Bradley Dixon at our upcoming webinar on #GlomerularDiseases (#C3G & Primary IC-MPGN) on July 8th! Dr. Dixon, a professor of paediatrics-nephrology, specialises in kidney diseases linked to complement system abnormalities.
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🌟 Join us in creating a sustainable future for rare disease research! Engage, share stories, and advocate for medical research! #RareDiseaseResearch #Advocacy #Innovation #Healthcare #PolicyChange #CollectiveImpact
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Becoming a parent is one of the biggest moments in life, and yet, nothing can prepare you for the twists and turns that come with it, especially in the event of your child's rare disease diagnosis. Read our RARE Resources at
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Exciting advancements in tissue engineering! Cytochroma is developing animal-free mini organs from stem cells. Watch Kate's interview: #TissueEngineering #StemCells #Innovation #RareDiseases #Cytochroma
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Thrilled to announce "Hadid and I" premiered at Sunderland Shorts Film Festival and won the Audience Choice Award! 🎉💖 Read more: #HadidAndI #RareDiseaseAwareness #FilmFestival #AudienceChoiceAward #ComingSoon @niemannpickuk @inpdr_registry
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Here's a behind-the-scenes look at the team at our annual strategy week enjoying the glorious sunshine!. These weeks are essential for us to look to the next year ahead, and of course, to continue to turn the tide for rare disease. Meet our team at
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Exciting news! The Undiagnosed Hackathon is revolutionising rare disease diagnosis with global experts. Join us at Mayo Clinic in Sept 2025! Let's celebrate! #MedicalInnovation #UndiagnosedHackathon.#RareDiseases
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Join us for our next RARE Rev-inar! We'll be discussing glomerular diseases, focusing on C3G and Primary IC-MPGN. Learn from experts and patient advocates on July 8th. Register here: #RareDisease #KidneyHealth #C3G #ICMPGN #C3Glomerulopathy
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July marks Disability Pride Month, an opportunity to celebrate the achievements, diversity and culture of people with disabilities. With changes to the PIP benefit in the UK, it just shows why these campaigns are still as important as ever. Read more at
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Join our webinar on glomerular diseases with Michael Gilchrist on July 8th! His insights as a caregiver are vital. Sign up: #Caregiving #SupportGroup #C3Glomerulopathy #RareDisease #KidneyHealth #C3G #PrimaryICMPGN
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It's #SocialMediaDay! Are you connected to rare disease or conditions? Every one of you will have a story to tell. For more info, email hello@rarerevolutionmagazine.com. If you're under 30, email hello@rareyouthrevolution.com. Read our digital articles at
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June has been an exciting month, with the launch of our new venture, insider—life sciences and rare disease publication for professionals. To catch up with articles we published this month, go to Subscribe to insider today at
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🚀 Houston, we have a problem: NASA-inspired strategies for rare diseases! 🌌 Let's unite to advocate for the rare disease community! #RareDisease #Innovation #Research #PublicHealth #NASA #Healthcare
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The world's leading orphan drug and rare disease event is back from 27-29 October 2025 at the RAI Congress Centre, Amsterdam. Use code RARE20 for an additional 20% off. Register here:
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Today, Screen4Rare urges governments to prioritize universal neonatal screening. Early diagnosis saves lives and ensures every child has a healthy start! #NeonatalScreening #RareDiseases #HealthForAll
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