Patient Worthy
@PatientWorthy
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We're a resource for engaging, informative content and rare patient news, well done.
Joined April 2015
At Patient Worthy, we aim to publish the realities of #RareDisease. Your voice is integral to achieving that goal. Would you like to contribute and share your story? You can submit here - - OR let us know if you'd like to work with a writer.
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Denmark Study Confirms Lasting HPV Vaccine Protection Against Cervical Cancer Read now at #PatientWorthy #HPV #HPVVaccine #CervicalCancer
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Don't rush your healing. Don't compare your journey. Speak to yourself with the same love you give to others!.#SelfCompassion #HealingJourney #MentalWellness #PatientWorthy
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A New Dawn for Families: UK’s First Babies Born Free of Hereditary Disease Using Three-Person DNA Read now at #PatientWorthy #MitrochondrialDisease
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Heart in a Box - a new technique for heart transplantation Read now at #PatientWorthy #HeartTransplant #TransplantResearch.
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New Duchenne Drug Offers Hope to Young Patient Losing Ability to Walk Read now at #PatientWorthy #DuchenneMuscularDystrophy #DMD
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Takeda has announced a novel drug designed to help those living with narcolepsy, with promising results from clinical trials so far. Read more here:.
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Positive news for HAE patients: the FDA has approved the first oral on-demand therapy designed to treat acute HAE attacks. Read more here:.
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European Commission Approves Groundbreaking Therapy for Duchenne Muscular Dystrophy Read now at #PatientWorthy #DuchenneMuscularDystrophy #EuropeanCommission
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New research suggests your gut health may indicate how well you might do in/after ICU. Read more here:.
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Glioblastoma Awareness Day is July 16th!.Glioblastoma (GBM) is the most aggressive and deadly form of brain cancer. GBM grows rapidly and infiltrates healthy brain tissue, making full removal nearly impossible. #GlioblastomaAwarenessDay #BrainCancerAwareness #PatientWorthy
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Brogidirsen and the Promise of Exon 44 Skipping: New Horizons in RNA Therapy for Duchenne Muscular Dystrophy Read now at #PatientWorthy #DuchenneMuscularDystrophy #DMD #Exon44
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Preventative medicine can help lower the risk of developing certain conditions, and proper nutrition is one of the most reliable forms of preventative medicine out there! For more information about how to utilize food to combat chronic illness, read here:.
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A breakthrough in CAR-T cell therapy suggests a potential boon for multiple myeloma patients, with an increase in long-term survival rates even in advanced cases. Read more here:.
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A revolutionary breakthrough in cell therapy research has shown promising results in restoring insulin in diabetics during clinical trials. Read more here:.
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Real-World Outcomes of Ataluren in Duchenne Muscular Dystrophy: Evidence from the STRIDE Registry Read now at #PatientWorthy #DMD #STRIDERegistry #nmDMD
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We're summarizing the FDA's approvals from June for various cancer treatments, ranging from lymphoma to prostate cancer to squamous cell carcinoma. Read more here:.
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Achieving Global Excellence in Duchenne Muscular Dystrophy Care: The Accredited Duchenne Centers Program Read now at #PatientWorthy #DuchenneMuscularDystrophy #DMD #AccreditedDuchenneCentersProgram #WorldDuchenneOrganization
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Today is International Disability Awareness Day! A day to listen, learn, and lift up the voices of people with disabilities. Disability is not a limitation- it's part of human diversity. #DisabilityAwareness #AccessibilityForAll #CelebrateDifferences #PatientWorthy
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Analyzing the benefits of Regular exercise for Cancer Patients Read now at #PatientWorthy #Cancer #CancerExercise #CancerResearch
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The first-ever oral on-demand HAE treatment has been approved by the FDA. This medication, produced by KalVista, is a major breakthrough for HAE patients, who previously relied solely on injections. Read more here:.
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