RT @RepBrianFitz: Each week, we share the stories of extraordinary individuals whose leadership, service, and dedication strengthen the fab….

RT @hcmefford: We're looking for a talented scientist 👩‍🔬👨‍🔬to join our group @StJudeResearch! Help us develop/characterize #stemcell/#orga….

RT @MargaretAtwood:

RT @BarackObama: Don’t let anyone or anything stop you from making your voice heard in this election. If you have any questions or concerns….

.@RareDiseases to host a webinar for parents & other caregivers of teens with #RareDiseases on February 29 at 7-8pm ET which will include mindfulness exercises plus discussions of grief, radical acceptance, boundaries & self-advocacy #RareDiseaseDay

RT @WendyKChung: Enormously proud and honored to do this important work. ❤️.

RT @FamilieSCN2A: #SCN2A Fact of the Day.Knowledge is power, & sharing these insights, we can create a more informed & supportive community….

RT @AdventurerInn: 📣 To WIN a FREE OCEANFRONT 2 Room Suite May 2nd-May 6th, 4 nights:.1. FOLLOW us on X. 2. Re-Tweet as many Adventurer Twe….

Love the willingness to listen to & learn from #raredisease community—> “More often than not, patient groups are teaching us,” says Jodi Rutter of @ncats_nih_gov at @EveryLifeOrg Community Congress

RT @Rakuten: 💰GIVEAWAY DAY 8💰 Is there any better gift than CASH?? For a final giveaway we’re adding $250 to one lucky winner’s Cash Back b….

RT @US_FDA: Registration is open for our #FDARareDiseaseDay event on March 1. Join us to hear from experts on empowering patients and hea….

RT @bsw5020: Two years ago @CBSSundayMorning came to our house to talk about the ALS movement. This summer, they came back to talk about….

RT @PatientWorthy: What is a myth or misconception about living with a #RareDisease or #ChronicIllness that you still see spread? . Let's c….

RT @NeenaNizar: Grateful for the rare disease warriors in the space who continue to be the voice of change for so many. ♥️ .

RT @NGEFSC: "People get to be angry. Our job is to be as thoughtful as possible and normalize that this process can be terrifying." - Jessi….

RT @NGEFSC: "Remove the 'I know what's best' and lay out all the options for families to make the best decisions." - @SaritaEdwards (@Every….

RT @lukebrosen: Got hockey? It’s gonna be a GREAT Saturday. Check out this action-packed event all benefitting rare disease. This Saturday….

RT @alsadvocacy: Fact: ALS caregivers typically don't take care of their own health. They don't do annual checkups, they don't have their….

RT @alsadvocacy: @DrCaliff_FDA Califf an article by science writer Ed Yong in The Atlantic: “Technological solutions also tend to rise into….

RT @PatientWorthy: "Researchers often think they know the most meaningful endpoint, but that can be different for patients as a whole, but….