Rare Disease Day
@rarediseaseday
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29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Worldwide
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Today is
#RareDiseaseDay
!
There are over 6⃣0⃣0⃣0⃣ rare diseases
🌏 300 million people live with a rare disease accross the world
Rare diseases currently affect 3.5% - 5.9% of the worldwide population👨👩👧👦
Learn more about what is a
#raredisease
👉
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TODAY is
#RareDiseaseDay
! 💙💚💜
All over the world, the rare disease community are sharing their colours and demanding equity for people living with a rare disease.
As a global community, we have a powerful voice! 📣
How are you sharing your colours today? 👇👇👇
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2K
In 2021 we have
#RareDiseaseDay
events happening in:
🇦🇩🇦🇷🇦🇹🇦🇺🇧🇦🇧🇭🇧🇬🇧🇫🇧🇪🇧🇴🇧🇷🇧🇼🇨🇦🇨🇮🇨🇱🇨🇾🇨🇷🇨🇴🇨🇳🇨🇿🇩🇪🇩🇰🇩🇿🇪🇨🏴🇫🇮🇪🇸🇪🇪🇫🇷🇬🇦🇬🇧🇬🇪🇬🇫🇬🇷🇬🇵🇬🇳🇬🇭🇬🇹🇭🇰🇭🇷🇭🇺🇮🇩🇮🇪🇮🇱🇮🇳🇰🇪🇯🇵🇯🇴🇮🇹🇮🇸🇮🇷🇲🇱🇱🇺🇱🇹🇱🇸🇱🇧🇱🇻🇱🇾🇲🇦🇲🇩🇲🇪🇲🇰🇲🇹🇲🇾🇲🇽🇳🇮🇳🇱🇳🇴🇳🇵🇳🇿🇵🇱🇵🇰🇵🇪🇵🇦🇴🇲🇵🇷🇵🇹🇵🇾🇷🇸🇷🇺🇷🇴🇷🇼🇸🇦🏴🇸🇪🇸🇰🇸🇬🇹🇭🇹🇳🇺🇸🇿🇼🇿🇦🏴🇻🇪🇺🇾🇺🇿🇺🇦🇹🇿🇹🇷🇱🇾🇵🇲🇦🇲🇰🇿🇳🇬
😱🤯👏👏👏
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TODAY is Rare Disease Day! How will you
#ShowYourRare
today in solidarity with rare disease patients all over the world? Get involved:
#RareDiseaseDay
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🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking
#RareDiseaseDay
2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact!
#ShareYourColours
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Today is
#RareDiseaseDay
2019! Events are taking place in 90+ countries around the world to raise awareness of the impact of rare diseases. Find an event near you
#ShowYourRare
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Today is
#RareDiseaseDay
2020, the rarest day if the year!
How will you raise awareness today for people living with a rare disease and their families?
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Welcome to
#RareDiseaseDay
, Europe! 🎉
There are over 300 million people who live with a rare disease in Europe.
With events taking place all over the continent, there's plenty to get involved in today!
How are you getting involved in
#RareDiseaseDay
in Europe?👇👇👇
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📢 NEW! The official
#RareDiseaseDay
video is out NOW
🎉Watch the 6 real life stories and be inspired to join the 2021 campaign.
👥 Share this post with your followers using this hashtag
#RareDiseaseDay
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It is now
#RareDiseaseDay
across the globe 🌍
📌 Organise and post your event:
✨ Join the Global Chain of Lights &
#LightUpForRare
:
📖 Share your story:
🔥 Share our resources:
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Incredible moment from
#RareDiseaseDay
in Dubai! The tallest building in the world showing Rare is proud lit up in Rare Disease Day colours! Thank you Loulou Foundation
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Time for Africa and Europe to mark
#RareDiseaseDay
2023!
TV broadcasts, radio podcasts, public transport visuals… Through various means, the community is sharing our call for equity everywhere! Are you also ready to share your colours 💙💚💜?
👉
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Welcome to
#RareDiseaseDay
, Europe! 🌍
Over 3⃣0⃣ million people live with a rare disease in Europe. On average, it takes 5-7 years before a diagnosis is given 🧑⚕️
This year over 40 countries will organise Rare Disease Day events in Europe.
👉👈
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Tomorrow it's
#RareDiseaseDay
2023!
💡 Light up at 7 pm wherever you are to raise awareness for people living with a rare disease!
🏛️ Find a monument being lit up near you:
🏠 Find out how to light up your home:
#LightUpForRare
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We are 300 million people living with a rare disease around the world! On
#RareDiseaseDay
let’s join together across borders & diseases to raise awareness!
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Yesterday was
#RareDiseaseDay
.
We would like to sincerely thank 🙏 everyone that took part in the campaign! We invited you to
#LightUpForRare
✨ and to
#ShareYourColours
💙💚💜 and you answered our call beautifully.
Together let's continue advocating for a more equitable society!
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World famous landmark the Colosseum in Italy shining bright for
#RareDiseaseDay
!
@uniamofimronlus
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Tomorrow is
#RareDiseaseDay
💜💚💙
How are you planning on getting involved? Let us know in the comments below! 👇👇👇
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Everybody give a warm welcome to THE AMERICAS 🌎, the last region to join the
#RareDiseaseDay
activities!
We are a global rare disease community, together we have a powerful voice📣
Are you taking part in Rare Disease Day in North, Central, or South America? Let us know! 👇👇👇
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Today marks the first day of Rare Disease Awareness Month!
Join us this month in raising awareness for the 300 million people living with a rare disease all around the world!
➡️Find out how you can get involved:
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#Live
The Leaning Tower of Pisa shining bright for
#RareDiseaseDay
! Thank you
@ern_reconnet
for making this happen
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📣 Time to support
#RareDiseaseDay
!
Share this card on your timeline and let everybody know that you SUPPORT and TAKE PART in Rare Disease Day!
👉👈
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TOMORROW IS
#RareDiseaseDay
!
What do you have planned for the day? Visit to find out what others are up to!
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Have your social media pledge cards ready? Downloadable in 8 languages from our website, show your support for Rare Disease Day now! Get them here:
#RareDiseaseDay
#ShareYourColours
#Awareness
#LightUpForRare
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Thank you for making
#RareDiseaseDay
2020 a fantastic success with thousands of events held in over 100 countries to raise awareness for people living with a rare disease!
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Today we say... THANK YOU! 💜
During the weekend more than 4⃣5⃣0⃣ buildings have been lit up for
#RareDiseaseDay
Thousands of events organised in over 100 countries 🌏
But awareness raising continues this week & beyond 💪
Rare is many. Rare is proud. Rare is strong.
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📅 Today is
#RareDiseaseDay
2021, the rarest day of the year!
How are you raising awareness for people living with a rare disease and their families?
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Yesterday, over 650 buildings were lit up for
#RareDiseaseDay
and 1000s of events took place in over 100 countries 🌏
Thank you to everyone who shared their colours and participated in events.
Together we can paint a picture of a brighter future. 💙💚💜
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Tomorrow is
#RareDiseaseDay
! Join the Global Chain of Lights! 🌍
The rare disease community will unite to spread solidarity with monuments, offices, schools, and homes lighting up in the Rare Disease Day colours!
Don't miss out on Feb 29, 7 PM local time!
#LightUpForRare
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The Empire State building in New York was lit up in the colours of
#RareDiseaseDay
– sending a powerful message of solidarity to the worldwide rare disease community! Thank you to our friends at
@RareDiseases
for sharing!
#ShowYourRare
What an incredible way to close out
#RareDiseaseDay
2019 in the United States! Thank you
@EmpireStateBldg
for lighting up New York City in honor of the biggest day of the year for 350 million people around the globe impacted by
#rarediseases
.
#ShowYourStripes
#ShowYourRare
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Illuminating buildings has become part of
#RareDiseaseDay
This year we have more than 1⃣5⃣0⃣ buildings changing their colours to raise awareness for people living with a rare disease!
📣Tell us which building you would like illuminated for Rare Disease Day 👇👇👇
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BREAKING NEWS! The official
#RareDiseaseDay
2018 poster is out now! Share with your friends and let's spread the word about Rare Disease Day 2018 Download the poster from
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Why raise awareness? Shedding light on rare diseases is vital. Limited healthcare knowledge leads to delayed diagnoses, while expensive treatments pose financial burdens. Advocacy can drive better resources, research, and quality of life. 💙
#RareDiseaseDay
#ShareYourColours
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Are you ready to share your colours 💚💙💜 this
#RareDiseaseDay
?
Show your support by sharing our pledge cards on your social media channels. They are available in 8 languages!
👉
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🎉 Today marks the first day of Rare Disease Awareness Month 2023!
📣 Join us this month to raise awareness for the 300 million people living with a rare disease worldwide!
👉 Find out how you can get involved:
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Rare Disease Day 2018 is on 28 February!
Join us on social media to
#ShowYourRare
- from face paint selfies to a Thunderclap campaign, there are many creative ways to take part:
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An enormous thank you to everyone who took part in
#RareDiseaseDay
2019! Thousands of events were held in a record 100 countries! All your actions immensely supported the rare disease community around the world.
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For
#RareDiseaseDay
we need everyone to join the movement to redefine rare!
More than 300 million people living with a rare disease, families & carers form the rare disease community 🌎
Rare is many. Rare is strong. Rare is proud.
How will you redefine rare❓
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Everyone can participte in raising awareness for people with rare diseases, including healthcare professionals, researchers & pharmacists
We take this opportunity to send a special thanks to all of their work, care & dedication during the global pandemic
#RareDiseaseDay
❤️
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This
#RareDiseaseDay
, we call for action to eliminate barriers preventing people living with a rare disease's full participation in society.
Share our Official Rare Disease Day video, translated into over 40 languages, to spread our call for equity!
👉
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The team at
@eurordis
mark Rare Disease Day in style in Paris, France!
Is your place of work getting involved in
#RareDiseaseDay
? Share your pictures below! 👇👇👇
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Your incredible support for Rare dazzled us! 🌟 Through our Global Chain of Lights, you illuminated awareness about rare diseases, lighting up the world. Stay tuned for a video featuring highlights from the
#LightUpForRare
campaign! Together, we make a difference!
#RareDiseaseDay
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THE OFFICIAL RARE DISEASE DAY 2017 VIDEO IS OUT NOW!
Share the video to become part of the international
#RareDiseaseDay
campaign!
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What is
#RareDiseaseDay
?
🌎Rare Disease Day began in 2008 as an international campaign to raise awareness for people living with a rare disease.
🗓Rare Disease Day takes place on the last day of February each year with 100s of events held in +100 participating countries!
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How will you show that Rare is many, Rare is strong, Rare is proud on Rare Disease Day? Don’t forget to use
#RareDiseaseDay
and tag
@rarediseaseday
in your posts!
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It's the evening in Australia and
#RareDiseaseDay
is almost over! Check out Yagan Square in Perth lit up in Rare Disease Day colours!
@RareVoices
Light up organised by Andrew Bannister.
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Out now! Download the official poster for
#RareDiseaseDay
2020 now available via . Share it today to show your support for the rare disease community!
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With research, possibilities are limitless. Share and be a part of the change this
#RareDiseaseDay
!
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Did you know that 72% of rare diseases are genetic?
Others are caused by infections, environment, allergies, or are rare cancers.
On Rare Disease Day the whole rare disease community comes together to raise awareness for rare diseases.
Get involved:
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Thank you for making Rare Disease Day 2018 such a success!
Whether it be hosting an event, telling your story, or showing your rare, your involvement has increased awareness of the challenges faced by those living with a rare disease >>
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#RareDiseaseDay
is breaking the isolation of many people living with a rare disease in
#Asia
🌏 and their families
Our heroes represent the great collaboration that the rare disease community has shown in Asia
#strongertogether
👉👈
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3 DAYS TO GO UNTIL
#RareDiseaseDay
!
What do you have planned for the day? Here are three ways to get involved!
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Parents of children living with a rare disease have been in the forefront of the organisation of
#RareDiseaseDay
events in Africa 🌍 in the last decade.
Their STRENGTH 💪has inspired the community in over 15 countries to raise awareness for people living with a rare disease
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Now's the time to
#ShowYourRare
for
#RareDiseaseDay
2019! Get inspired to paint your face and share a selfie to show your support for the rare disease community!
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We would like to extend a huge thank you to the 67 National Alliance Partners of Rare Disease Day 💙💚💜
As a global community, we have a powerful voice! 📣
👉 Find a National Alliance Partner in your country:
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Events for
#RareDiseaseDay
have taken place in how many countries and regions...
2008 - 18
2009 - 30 🔼
2010 - 45 🔼
2011 - 55🔼
2012 - 63🔼
2013 - 72🔼
2014 - 84🔼
2015 - 85 🔼
2016 - 85 =
2017 - 94🔼
2018 - 90🔻
2019 - 101🔼
2020 - 103🔼
2021 - 1⃣0⃣7⃣ confirmed! 🎉👏👏
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Did you know that some of the Rare Disease Day materials are translated into 8 different languages? 🤯
In which language do you support and take part on
#RareDiseaseDay
?
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#RareDiseaseDay
2019 is today! What action are you taking to raise awareness of rare diseases today? Join the global movement for rare diseases.
#ShowYourRare
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The message for
#RareDiseaseDay
2020 is that rare is many worldwide, rare is strong every day and that rare is proud everywhere! Download the campaign materials at
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A global chain of lights for people living with a rare disease and their families!
📸Can you name which country and city we can thank for this breathtaking photo?
#RareDiseaseDay
💡Hint: Does it look like an igloo to you?
Rare is proud 🦸
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Share your colours and show your support for
#RareDiseaseDay
2022! 💙💚💜
Find out what it's all about 👉 👈
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Today is Rare Disease Day! Watch and share the video to show your support with those living with a rare disease around the world!
#ShowYourRare
#RareDiseaseDay
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Last but not least, the Americas are joining
#RareDiseaseDay
activities!
Whether they wear their best sneakers 👟 or ice skates ⛸️, the rare disease community is ready to act for rare! Are you ready to follow their example?
Check out what's going on 👉
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Check out amazing highlights from
#RareDiseaseDay
around the world! What was your favourite moment from the day?
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Rare Disease Day is being taken to the next level!
Thanks to a
@ChanZuckerberg
grant announced today, we will amplify the rare disease voice even further. This & a 2nd grant awarded to
@RareDiseases
make up $1.3m to support global rare disease community
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Kicking off Rare Disease Day 2022... It's Oceania! 🌏
With over 50 events taking place across the continent today, Oceania is leading the way for
#RareDiseaseDay
Are you marking Rare Disease Day in Oceania? Let us know how you're getting involved! 👇👇👇
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We would like to highlight the Ukrainian🇺🇦 patient groups, that despite the ongoing war, successfully joined the Global Chain of Lights. Unable to do so in the traditional manner, they teamed up with the Kyiv city museum and lighted up small-scale replicas of Ukrainian monuments.
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Did you know? The number of people living with a rare disease is equivalent to the world’s 3rd largest country. Download, edit and adapt
#RareDiseaseDay
infographics from . Share them on social media to spread the word about Rare Disease Day on 29 February!
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📣Let's make some noise!
On
#RareDiseaseDay
we call for people living with a rare disease to have equal opportunities to realise full potential in family, work & social life.
Tag your policymaker & demand EQUITY for people living with a rare disease!
👉
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The 2015 video is OUT - bring people
#livingwith
a
#raredisease
out of the shadows:
http://t.co/fyysRiZUsF
http://t.co/1pxRadhECz
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Only one day to go! Join the
#ShowYourRare
face paint campaign for Rare Disease Day 2019! Find out all the different ways you can
#ShowYourRare
>>
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7 days to go until
#RareDiseaseDay
2022! 🎉
What are you planning to do for Rare Disease Day? Let us know in the comments below! 👇👇👇
Find an event taking place near you:
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TOMORROW is Rare Disease Day 2018!
#ShowYourRare
by sharing a selfie of your face paint skills on your social media channels!
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Out now! Download the official poster for
#RareDiseaseDay
2019 now available via . Share it today to show your support for the rare disease community.
#ShowYourRare
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Everyone is invited to light or decorate their home with the
#RareDiseaseDay
colours at 🕖 7 PM your local time on Monday, 28 February 2022.
With
#LightUpForRare
we spread a message of solidarity and hope to the rare disease community.
Get involved 👉
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5⃣ days to go!
5⃣ ways to get involved!
Tell your story🧑
Share the video ▶️
Submit your event 📅
Download the materials 📩
Upload your social media frames 🖼️
👉👈
#RareDiseaseDay
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The doctors, nurses and carers strongly support a better daily life of the people living with a rare disease and their families
Tag here this special person who supports you!
#RareDiseaseDay
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28 February 2022 is Rare Disease Day.
But what does that really mean?
#RareDiseaseDay
is the global movement dedicated to raising awareness and generating change for the 300 million people living with a rare disease around the world.
Join us this year:
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The theme for Rare Disease Day 2018 is research!
In a recent survey, rare disease patients identified a lack of public funding as the main obstacle to rare disease research. See full survey results:
Sign up for future surveys:
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Coming soon! WORLD PREMIERE of the
#RareDiseaseDay
2021 official video in over 30 languages.
Save the date: 5 FEBRUARY at 12:00 GMT+1 and be part of the global campaign! 🦸
Don’t forget to bring popcorn! 🍿🍿🍿
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Get ready to join the Global Chain of Lights! 💙💚💜
As it turns to 7 PM across the globe in every timezone, join us as we watch the world
#LightUpForRare
🌎
Remember to use
#LightUpForRare
to be featured on our social media posts!
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🌏 Rare Disease Day begins in Oceania!
From Australia's deserts to Micronesia's islands, the continent unites to shed light on rare diseases!
Join the global movement for awareness and support! 🌟
#RareDiseaseDay
#LightUpForRare
#ShareYourColours
#Awareness
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You want to advocate for people living with a rare disease but you don’t know how? 🤔
📣 Learn how to advocate using the
#RareDiseaseDay
equity toolkit!
👉
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BREAKING NEWS! The official
#RareDiseaseDay
2017 poster is out now!
Download here:
#RareDisease
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What is a
#RareDisease
?
A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000 and in the United States when it affects fewer then 200,000 Americans at any given time.
Over 300 million people worldwide are affected by Rare Diseases.
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The Rare Disease Day 2024 poster is here! 🥳
Join us in the lead up to 29 February by sharing on social media, hanging it up on your wall, or just showing your friends!
#RareDiseaseDay
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Have you seen the official 2022 Rare Disease Day video?
Now available in 46 languages - watch now:
#RareDiseaseDay
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Just one month to go until
#RareDiseaseDay
2022!
Are you ready to share your colours?
Get prepared by downloading all our materials available in 8 languages:
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Only 100 days to go!
Preparations have already started for Rare Disease Day 2018! Make sure you're ready to make this year's edition even bigger!
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Equity means:
✔️ social opportunity,
🏫 non-discrimination in education and work, and
🏥 equitable access to health, social care, diagnosis and treatment.
Join us on 28 February for a more equitable society!
➡️Check out our equity toolkit:
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Some rare diseases are so rare that many doctors have never come across them in their careers, and people living with a rare disease end up facing in many cases.
A loooong diagnosis ⏳
Misdiagnosis 🌀
No diagnosis ❌
Learn more about this issue
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We would like to say a massive thank you to all of our Rare Disease Day superheroes! 💙💚💜
👉 Watch the official
#RareDiseaseDay
2022 video to learn more about the heroes' stories:
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#RareDiseaseDay
is bigger than ever! With events in over 80 countries it's a truly global movement- & still growing!
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