PANDAS Ireland
@PandasIRL
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An autoimmune disorder in children which affects the brain causing tics, OCD, severe anxiety, and irrational fears.
Ireland
Joined July 2014
Please listen as @PatKennyNT talks to Prof @laoneill111 about #pandas #pans. It feels so amazing to hear this being talked about on national radio. Thank you 🙏 @ellenfkenny @LCAIreland @ticktalkireland
https://t.co/s183SKG0mZ
newstalk.com
Professor Luke O’Neill tells us how in rare incidents, common infections can spark psychiatric illnesses.
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Thank you for raising awareness of Pandas/Pans in Ireland. We have been struggling to create awareness for years https://t.co/gW88TQLZhu
@laoneill111 @ellenfkenny
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@laoneill111 We are here Prof Luke O'Neill, since 2014. So many Irish families are so happy to hear your voice. We need your voice. We are free to talk anytime #pandas #pans @PatKennyNT @NewstalkFM @theEXPANDAssoc
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In this @UlyssesNeuro podcast, two Irish families bravely share their stories on what it's like as parents to children with Pans/Pandas. @NeuroimmuneFDN @ASPIREpans
@MyKidIsNotCrazy @theEXPANDAssoc @PandasPans
https://t.co/Hc9HameLt2
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In this @UlyssesNeuro podcast, two Irish families bravely share their stories on what it's like as parents to children with Pans/Pandas. @NeuroimmuneFDN @ASPIREpans
@MyKidIsNotCrazy @theEXPANDAssoc @PandasPans
https://t.co/Hc9HameLt2
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In this @UlyssesNeuro podcast, two Irish families bravely share their stories on what it's like as parents to children with Pans/Pandas. @NeuroimmuneFDN @ASPIREpans
@MyKidIsNotCrazy @theEXPANDAssoc @PandasPans
https://t.co/Hc9HameLt2
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This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
Finally--structures of D1, D2, D3, D4 and D5-dopamine receptors!! Congrats to folks from @RothLabUNC , Eric Xu's lab and many others. https://t.co/vCo8tXudlc
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Looking forward to discussing our research on PANDAS/PANS with clinicians and medical providers at the end of the month! Thank you @PANDASPPN and @PANDASnetwork for organizing the webinar! Please register soon!
Join Dritan Agalliu, PhD for an in-depth discussion on breaking PANDAS/PANS research! 6/29 at 6pm ET. Registration is required. Hosted in partnership by PANDAS Physicians Network @PANDASPPN & @PANDASnetwork Register https://t.co/gZ2NBR9xI6 Info https://t.co/Ad8OPmV5Ti
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NEW REVIEW: 1) provides an overview of clinical and pathophysiological aspects of PANS and PANS-related disorders; 2) summarizes key points for clinicians assessing and treating PANS patients. #PANS #PANDAS #Autoimmune #Encephalitis #Genetics
dovepress.com
This narrative review aims to provide an overview on the main clinical and pathophysiological aspects of PANS and PANS-related disorders (PANS-RD).
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"Emerging research has implicated inflammation and immunological dysfunction as potential players in a variety of neuropsychiatric conditions, including schizophrenia, depression and autism." #PANS #PANDAS
@OCO_ireland
A catatonic woman awakened after 20 years. Her story may change psychiatry https://t.co/rShkLcLH6U
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Prof Belinda Lennox, head of psychiatry at the University of Oxford, calls for an overhaul of the diagnosis and treatment of psychiatric disorders ahead of the relaunch of a clinical trial of immune-modulating treatments:
theguardian.com
Patients to be treated with medicines used for arthritis and lupus in relaunch of pioneering UK trial
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Amazing art exhibition depicting a mothers journey with #PANS #PANDAS @NEPANSPANDAS @NeuroimmuneKids @PANDASPPN
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Medical professionals with an interest in progressing the detection and treatment of #PANS #PANDAS in the U.K. might benefit from input/collaboration from the global scientific and medical community, including: @DAgalliu SAB @PANDASnetwork ROADMAP @PANDASPPN
As the chair of the Scientific Advisory Board for @PANDASnetwork we have outlined a new ROADMAP for PANDAS/PANS basic and clinical research, treatment and education. You can find it here! Educate yourself! #PansPandasAwarenessDay
https://t.co/ZgPuYjM2QZ
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Today is PANS PANDAS Awareness Day. Now, more than ever, we need to provide PANS PANDAS support and resources. ASPIRE is here for you! Share this one page handout on PANS PANDAS. https://t.co/mbr9GFBRbl
#PANSPANDASawareness
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Diagnosing and treating #PANS/#PANDAS are keys to recovery. Being aware of the possible symptoms is the first step. https://t.co/6XaSdnc9Nd
#PansPandasAwareness #OCD #ARFID #redflags
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This is Ethan in 2021, he's a happy, healthy boy. He was treated with high dose antibiotics, clean diet, supplements. He has some residual symptoms but is doing great. There is hope once treated, the sooner the better https://t.co/5ruqn1dEn6
@PandasPans @PANDASnetwork @ASPIREpans
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This is Ethan in 2014, his brain was under attack. He had continuous horrible tics, ocd, hallucinations, terrible irrational fear & anxiety, brain fog, urinary frequency & sadness https://t.co/gW88TQLZhu
@PandasPans @PANDASnetwork @NEPANSPANDAS @ASPIREpans @PANDASPPN #PansPandas
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Every year on 9th October, patients, families, healthcare professionals, support groups across the globe come together to raise awareness and spread understanding of PANS/PANDAS. Your support in helping to spread awareness of #PansPandasAwarenessDay is much appreciated.
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PPN would like to welcome Susan Swedo, MD to the @PANDASPPN #PansPandasAwareness Tweetchat! Tweet your #PANS #PANDAS questions & follow along with the hashtag #AskSwedoPpn.
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Ethan went into school today armed with info to raise awareness of #pans #pandas ahead of #pandasawarenessday tomorrow @PandasPans @NEPANSPANDAS @ASPIREpans @PANDASnetwork @pandasinstitute @PANDASPPN @pandas_pans @BethAMaloney @ICGPnews
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