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Ataxia and Me CIO 1184030 Profile
Ataxia and Me CIO 1184030

@Ataxia_and_Me

Followers
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Following
27K
Media
20K
Statuses
79K

#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma

Wales - Cymru + Global
Joined August 2016
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
10 days
Checkout our #SocialMedia channels and our website https://t.co/ViA0Dv0i6C from #Ataxia / #Raredisease #Charity based in #Wales with a #Global Following #Patient #Pharma #StrongerTogether
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
1 hour
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 hours
It’s day 11 of Ataxia Advent! β›„οΈπŸ€ #Ataxiaadvent #Ataxiaandme #Knowataxia #Raredisease
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
21 hours
ICYMI We’re into the double digits of our #Ataxia #Advent calendar! Time is flying πŸ’« πŸŽ„ #Ataxia_Advent #Ataxiaandme #kNOwAtaxia #RareDisease
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
22 hours
PLEASE We need YOUR #Nomination! @benefactgroup is giving Β£1,000 to charities #Atacsia #Ataxia #Charity #Cymru / #Wales ( December draw) βœ… Scan the QR code or visit https://t.co/i99EcqQyek βœ… Enter our charity number 1184030 βœ… Submit β€”it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
1 day
We’re into the double digits of our Ataxia Advent calendar! Time is flying πŸ’« πŸŽ„ #Ataxiaadvent #Ataxiaandme #Knowataxia #Raredisease
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
ICYMI Day 9 of our #Ataxia #Advent! πŸŽπŸ’™ #Ataxia_Advent #Ataxiaandme #kNOwAtaxia #RareDisease
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
Ataxia, could be the most serious condition you have never heard of .. #Ataxia is NOT a foreign #Cab / #Taxi https://t.co/fiH7wEf7KE support us (via our @Localgiving , appeal #fundraising page) https://t.co/aHibJnKGYn
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@alex_tonks
Alex Tonks
3 days
Super proud of @OwenHughes42 from @haematology_CU co-supervised by @GeneFiddler , funded by @ResearchWales, who will be presenting his work today at #ASH25 where he has identified potential new targets for #AML therapy. Well done Owen πŸ˜ŠπŸ‘. Come by 5021 to discuss PcHi-C, NFIC
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
Day 9 of our Ataxia Advent! πŸŽπŸ’™ #Ataxia_Advent #kNOwATAXIA #raredisease
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@Jeevatrials
Jeeva Clinical Trials Inc.
3 days
Jeeva Clinical Trials was proud to attend the FALL 2025 Innovators Summit by HITLAB. Our Founder & CEO Harsha Rajasimha joined leaders in digital health, AI & clinical trials to drive global healthcare innovation. πŸ‘‰ https://t.co/35h4IYO7dQ #JeevaTrials #HITLAB #HealthTech
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
3 days
LOOKY, @YBarbican #Restaurant Kidwelly #Christmas tree has re-used the #boxes we re-donate from a #Business to #Charity #Donation by @willsmerwagg via @agoodthing_uk Send less to landfill and more to a good cause
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
3 days
ICYMI Its day 8 of Ataxia Advent! Swipe for a fun fact (to use in your #Christmas Pub #Quiz πŸ˜‰) #Ataxia_Advent #Ataxia #kNOwAtaxia #RareDisease
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
3 days
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
3 days
Its day 8 of Ataxia Advent! Swipe for a fun fact (to use in your Christmas Pub Quiz πŸ˜‰) #Ataxiaadvent #Ataxiaandme #Knowataxia #Raredisease
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
4 days
PLEASE We need YOUR #Nomination! @benefactgroup is giving Β£1,000 to charities #Atacsia #Ataxia #Charity #Cymru / #Wales ( December draw) βœ… Scan the QR code or visit https://t.co/i99EcqQyek βœ… Enter our charity number 1184030 βœ… Submit β€”it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
4 days
Our 7th Ataxia Advent post of the year! πŸ’™ #Ataxiaadvent #Ataxiaandme #Knowataxia #Raredisease
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
5 days
We need YOUR nomination! @benefactgroup is giving Β£1,000 to charities #Atacsia #Ataxia #Charity #Cymru / #Wales ( December draw) βœ… Scan the QR code or visit https://t.co/i99EcqQyek βœ… Enter our charity number 1184030 βœ… Submit your nominationβ€”it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
5 days
Ataxia, could be the most serious condition you have never heard of .. #Ataxia is NOT a foreign #Cab / #Taxi https://t.co/fiH7wEf7KE support us (via our @Localgiving , appeal #fundraising page) https://t.co/aHibJnKGYn
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
5 days
Welcome to day 6 of Ataxia Advent! 🌟 #Ataxia_Advent #kNOwATAXIA #raredisease
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