Ataxia and Me CIO 1184030
@Ataxia_and_Me
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#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
Wales - Cymru + Global
Joined August 2016
Checkout our #SocialMedia channels and our website from #Ataxia / #Raredisease #Charity based in #Wales with a #Global Following #Patient #Pharma #StrongerTogether for @rarediseaseday
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#Ataxia is NOT a foreign Cab/Taxi.Be aware of this #RareDisease--👍 .Follow @Ataxia_and_me #Ataxia #charity Wales. Support us at our .@Localgiving webpage.
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RT @AtaxiasARG: Expanding the clinical spectrum of RAB3A: from cerebellar ataxia to spastic paraplegia.@Brain1878 .
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RT @Share4Rare: 🤔 Do you want to launch a research project with your #raredisease and your associates? Not sure how to benefit from the ser….
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RT @AtaxiasARG: The clinical burden of #Friedreich ataxia in the United States: A retrospective claims database analysis..
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RT @lifearc1: These human medulloblastoma (DAOY) cells have been probed for IL6 RNA during motor neuron disease assay development, along wi….
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RT @SBDRareProject: Having seen many posts on different SEN related social media platforms about the film ‘Out of My Mind’ we knew we had t….
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ICYMI.** THANK YOU ** .Anonymous for your generous #Donation.#Ataxia #Raredisease #Pateint #Charity #Wales + Global. #FindYourPower to support us at. #StrongerTogether
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📣 We have delivered an open letter to the #Government calling for greater awareness and support to ensure people with a #RareDisease receive the care and understanding they need and deserve. Read the full letter here to learn more: #IAmNumber17
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RT @OHRareDisease: Thank you Alan for sharing your story and raising awareness for the whole #raredisease community 💪💪💪.
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RT @AtaxiasARG: Cerebellar involvement in #HIV is typically associated with opportunistic infections or neoplasia. This case illustrates th….
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MT @RareBeacon.The recent report published by @LifeArc1 and @GeneticAll_UK gives several recommendations on how we can #ChangeTheRareFuture and get treatments to people with a #RareDisease faster. Read it here:
The recent report published by @LifeArc1 and @GeneticAll_UK gives several recommendations on how we can #ChangeTheRareFuture and get treatments to people with rare conditions faster. Read it here:
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ICYMI.Today is #InternationalParamedicsDay #ParamedicsDay. A big Thank you to our #Paramedics We support the day at #Ataxia / #RareDisease #Patient #Charity #Wales.#UnityAndCommunity.#StrongerTogether
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THANK YOU .Anonymous for your generous #Donation.#Ataxia #Raredisease #Pateint #Charity #Wales + Global. #FindYourPower to support us at. #StrongerTogether
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We’re More Than Our #Platelet Counts—Let’s Talk Immune Thrombocytopenia Together!. The Platelet Disorder Support Association (PDSA) @pdsa_itp is hosting its 25th Annual #ITPConference that brings patients, families, and experts together to talk real-life solutions and share lived
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Are you #Ataxia aware ?.Be aware of this #RareDisease .#PatientAdvocacy.#Health #Medical.#PatientEngagement. #StrongerTogether.#Donate at .
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RT @UCLBrainScience: @UGI_at_UCL @UCLPsychiatry @UCLeye @Moorfields @MeiraGTx @AndrewsNose @UCLEarInstitute @uclh @UCLIoN @UCLPALS 💊 First….
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