Grateful to all involved in the Research Community for their dedication to Tuberous Sclerosis #Research. Enabling families like mine to have improved life enhancing & life saving treatments. Research gives us hope for a #TSCure for those yet to be born with #TSC #RDD2022 @UKTSA

🚨 Now resurfacing — video of Ruth Davidson absolutely ripping into Robert Jenrick. She reads his old tweet slamming Farage and asks how he suddenly did a full 180. Jenrick’s response? “When you’re a politician you say things you don’t mean.” You honestly couldn’t script this.

This St David’s Day, we’re celebrating Welsh researchers making a global impact on health and wellbeing. Discover five ways their work is shaping healthier, safer and fairer futures. https://t.co/cu39Rfu28W

Rare Diseases Day, we raise awareness of Glycogen Storage Disease. It can be fatal in newborns or less severe type causing hypoglycaemia, due to a lack of enzyme that converts glycogen into glucose. CYP & Adults will feel unwell on fasting/after exercise. https://t.co/Xx8sWm7IK6

Today marks the beginning of Brain Tumour Awareness month. It's when we think about the 79 people a day, whose lives will be devastated by a brain tumour diagnosis. brainstrust is here for all brain tumour patients and carers. Find out more here; https://t.co/zmiRuwgjxR

The new UK Clinical Trial Regulations come into force in April 2026 and will have an impact on GCP requirements. Find out more about the changes by attending our #ResearchWalesFaculty webinar. Register now for 17 March 2026: https://t.co/4KeEoyW1fk

We are proud to be part of this @NIHRresearch funded study, led by @KingsCollegeLon @KingsCollegeNHS and supported by @UNEEG_medical https://t.co/KhiNWzge2L https://t.co/BgpMK2owoW Thanks to Adam for sharing his story

We are at a pivotal moment at Ring20 and we have some exciting announcements coming in the next few weeks... a stronger team, research news, and new opportunities to connect. We're fighting back, more resilient than ever! #RareDiseaseDay #rarequity #r20 #epilepsyawareness

Naomi doesn't have HFI, but lives with 5 siblings who all do have HFI. She explains how her older sister has sustained liver damage because HFI was not diagnosed. It is vital for the lives of children born with HFI, that they are diagnosed before liver damage starts. At HFI

The UK Standards for Public Involvement are now being translated into other languages - helping lower barriers to public involvement worldwide. Find out more https://t.co/t8r6aWVjjU

Those religious people and lobbyists in full:

Great and proud to attend the #RareDiseaseDay Parliamentary reception in #CardiffBay, last night #Networking, #Ataxia awareness and meeting #RareDisease colleagues and friends #Equity for #Rare #health conditions

Every single disabled-led organisation in the UK opposes the Assisted Dying Bill. Hear our voice! We are not lobbyists or religious - we oppose medically-assisted suicide on reasoned and practical grounds.

At SUDEP Action, our events bring our community together as we work towards a future with no preventable #epilepsy deaths. We’re planning what comes next, and we want your voice to shape it. We’d love to hear your feedback: https://t.co/2k7CORkZg5 #SUDEP #epilepsyawareness

Here are at the #RareDiseaseDay Wales reception

Get to know Raquel Manfron, one of our amazing #londonmarathon runners, who is running in memory of her daughter Caroline Moreno: https://t.co/2rXmm0va6m “Every time I run, I talk to my daughter more than ever.” Support Raquel: https://t.co/EwosJcLFve #SUDEP #epilepsy

Daw Rheoliadau Treialon Clinigol newydd y DU i rym ym mis Ebrill 2026 a byddant yn cael effaith ar ofynion ACD. Darganfyddwch fwy am y newidiadau trwy fynychu ein gweminar #CyfadranYmchwilCymru. Cofrestrwch nawr ar gyfer 17 Mawrth 2026: https://t.co/EhqSWBgmwt

Could you get creative for Purple Day? Host a purple craft sale or sell your purple art, jewellery or poetry to help raise awareness of epilepsy. When you sign up, we will send you all the free resources you need to help spread awareness on Purple Day: https://t.co/jiKCNErjGV

Clive's family takes immense pride in his legacy becoming a Guilding Star for Safety 🌟 by combining his #SafetyChecklist and Natasha video @SudepAction Champion and #EpSMon app we finally bridge the cap between policy and protection,They Save Life's @NHSMidlands 👍👍

Times investigation: They had special educational needs. The state failed them so badly that they took their own lives We uncover the stories of 20 young people whose recent deaths are blamed on failures by schools, councils and hospitals to give them the support they needed

CW: AI generate child restraint and isolation room images. Today a day early than expected, we release "We Are More". This song centers the voices of children whose experiences have too often been misunderstood, minimized, or silenced. This is not just music. It is a message. A