Harry Leeming
@HarryLeeming
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Founder of @visible_health | #MECFS #LongCovid | Building for invisible illness
London
Joined March 2020
Great to see this published and out there. It's a simple paper that shows us that folks with #LongCOVID, #MECFS and other complex chronic illnesses can benefit from using symptom tracking apps like @visible_health, designed FOR patients, BY patients. https://t.co/UnaQOrKL1Q 1/
frontiersin.org
IntroductionComplex chronic illnesses like Long Covid (LC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) are marked by fluctuating symptoms...
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Long Covid Is Real — And It’s Changing an Entire Generation Hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize.e Feature: https://t.co/q0QjHOh9Bq
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In the past few weeks of testing this feature in our free app, we’ve already connected more than 1,000 people with researchers. With over 200k people using Visible, we now have an incredible opportunity to fast-track clinical trial recruitment and help researchers get results
🚀 Today we’re launching a brand new feature: Clinical trials near you. In the Visible app, you can now find trials that match your diagnosis and location, and connect with researchers to take part. Here’s how we’re helping advance research into complex chronic illness 🧵
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We’re launching a new video series on HRV in complex illness! 🚀🎥 We've partnered with leading experts (@PutrinoLab @drboonlim) to better understand the link between the autonomic nervous system (ANS) and complex illness, what impacts it, and practical ways to manage it.
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If you’re interested in applying ML to real-world health challenges, find out more here:
app.welcometothejungle.com
Only matches tailored to your preferences. Only the most exciting, innovative and fast-moving companies.
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We're hiring ML engineers!🚀 We’ve quietly been building the largest longitudinal dataset on #LongCovid, #MECFS & more - connecting biometric, symptom & treatment data Help develop ML solutions to diagnose & manage these invisible illnesses, and improve the lives of millions⬇️
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Great to see Visible (@visible_health), and by extension ME/CFS & Long Covid, being featured in the New York Times 💙🙌
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🚨 Research update: New results, new study! At Visible, we’re not just helping people manage complex illness—we’re working to advance research and find treatments. 📄 We’ve just submitted a new study for peer review 🆕 We’re launching a new in-app study Let’s dive in… 🧵👇
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“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.” 5 years on, I wrote about long Covid and national denial.
theguardian.com
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
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Really proud of this piece. Grateful to Avalyn, Rowan and Sarah for sharing their stories. It's a national scandal that long Covid patients have been forgotten by the government, employers & society at large. The least we can do is keep talking about them https://t.co/OtIuB2V0sm
theguardian.com
Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic...
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Today I write for the @latimes: Long COVID is solvable, but we need more clinical trials. These include trials of drugs to clear #SARS-CoV-2 reservoirs: small pockets of the virus - or parts of the virus - that can persist long-term in people’s bodies. https://t.co/3PjL1IZe6M
latimes.com
Some people may remain ill after COVID infection because the virus still lurks in their bodies. The looming question now is: Who will pay for drug development and trials?
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Proud to have been a part of this @polybioRF effort to describe the path forward for #LongCOVID trials targeting SARS-CoV-2 persistence. We need a robust biomarker development program and to launch more trials to rigorously test treatments that target these pathways now.
BREAKING: Cutting-edge Recommendations Provide Treatment Path for Millions of Long COVID patients 💊 In a new report global experts outline key considerations to address persistent SARS-CoV-2; provide a roadmap to test critical new long COVID therapies: https://t.co/FKKdKtveS2
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Great to see stories of Visible’s impact like this. We still have so much work to do, but I’m excited about our plans for 2025. Note: even fitness journalists can get Long Covid. https://t.co/y8vAeVAuvu
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Chart from @wecrunchme showing just how low the NIH funding level is for ME/CFS & Long Covid compared to disease burden 🔍 $14 and $62 per disability-adjusted life year (DALY) respectively
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Beautiful new policy document on infection-associated chronic conditions by @mildTin. Carefully considered, clear arguments: - diseases like Long Covid aren't rare; they impose a large burden on the population - progress is possible; and it will benefit medicine more broadly
We are delighted to share our first CrunchME report, aimed primarily at policymakers 🙌 The Future is a Policy Choice - Addressing Infection Associated Chronic Conditions This report has been led by @mildTin and we're extremely grateful to her work on it. 🧵 1/n
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Great week for remote monitoring studies! Proud to get this one out in pre-print as well! In the previous study we pre-printed this week, we used data from the @visible_health app to see if we could predict symptom flares (we could), this study is a 1/
researchsquare.com
Chronic illnesses like Long Covid and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve fluctuating symptoms, often worsened by exertion. Home monitoring technologies may support symptom...
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📣 .@RachelReevesMP - take a listen to Prof Brightling’s @covidinquiryuk evidence on #LongCovid: “I would have thought the day before a budget that actually taking into consideration not just the personal impact but the society & economic impact is really important” ⬇️
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I’m extremely proud of my wife @miriamfrankmac for having the courage to speak publicly about her health. For the last 2.5 years she has been housebound with serious illness. Unable to leave the house, work, socialise or even speak on the phone to her friends. All things we
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I'm proud to join @SenSanders and @RepPressley in the fight against Long COVID. The Long COVID Research Moonshot Act will allocate $10 billion to accelerate research and improve treatment of long COVID. We can't ignore this public health emergency. https://t.co/SRvHCxwpvJ
motherjones.com
The Long Covid Research Moonshot Act would fund $10 billion to fight the illness.
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Our 1st episode features the remarkable @patientled co-founders @ahandvanish & @LisaAMcCorkell. We discuss the latest research & impact of patient-led advocacy into complex illnesses, including studies they’ve funded, the patient-led hypothesis journal & the Long Covid Moonshot
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