Decades of research and medical neglect means that ME, and now Long COVID, still have zero FDA-approved treatments 💊❌. Zero. By contrast, other major diseases (now with lower total disease burdens) have dozens. Hard to recover without treatment. #MECFS #LongCovid #IACI

I've used the longer form 'infection- and exposure-associated chronic illnesses' here, as I think it is the best phrase I have come across for capturing the set of diseases we are advocating for. But I remain open to better ideas and future refinements.

Join millions who have switched to Grok.

Context for my earlier poll: I'm always looking to refine & improve how we express our mission at @wecrunchme 📈. This is our current intro paragraph, which uses the phrase 'IACI' to indicate our scope, whilst centering ME/CFS (which is what I have, trigger unknown).

Does anyone know of any studies/surveys that have asked people what they think their ME was triggered by?. I think this would make a really useful @wecrunchme visual if there is a decent source 🙏. #MECFS #LongCovid.

Which term do you prefer?. 1. Infection-associated chronic illnesses (IACI). 2. Infection-associated chronic conditions (IACC). #MECFS #LongCovid.

RT @VirusesImmunity: 😭😭😭😭😭 .Thank you @cstroeckw for your incredible message 💙 You are always in my thoughts and heart. With great colleagu….

RT @useless_priest: 📰 News coverage of the NMCB research consortium on ME/CFS. Science editor of De Volkskrant, one of the largest papers….

RT @cstroeckw: Hi, it's Felda! 🙏💙. Christoph asked me to post this for him:. "I am deeply grateful to Prof. Akiko Iwasaki for dedicating he….

Ron Davis has entered the chat. #MECFS #LongCovid.

@DeryaTR_ @fidjissimo tagging in case any of your contacts might be able to help with this 🤞💙.

I am already using GPT5 Deep Research & Agent Mode on Plus tier, and it is a great help!.

I would love to be able to access ChatGPT Pro to be able to both speed up and improve the quality of our work at @wecrunchme (data-informed advocacy for ME/CFS & other IACIs) 🤖💙. It's $200 / month. If you like our work and would like to support this, drop me a DM 🙏🤞.

RT @DanMissailidis: I was surprised to see the huge reaction to the fact that we have two almost-finished PhD students working on ME/CFS. T….

@Karl_Lauterbach Diagramm zur Lebensqualität bei ME/CFS ☝️💙.

RT @RorPreston: ME/CFS weist eine der schlechtesten gesundheitsbezogenen Lebensqualität aller bekannten Erkrankungen auf. @wecrunchme 💙. #M….

@gabrielestroeck @weandmecfs @MECFSResearch @LiegendDemo @RWittenbrink @neurostingl . Please feel free to share and use this visual if helpful! 🇩🇪🇦🇹🇨🇭.

ME/CFS weist eine der schlechtesten gesundheitsbezogenen Lebensqualität aller bekannten Erkrankungen auf. @wecrunchme 💙. #MECFS #LongCovid

RT @ElkeAsen: @gabrielestroeck @VirusesImmunity This is so amazing 🥹 Christoph has had such an impact on the speed at which ME/CFS research….

RT @gabrielestroeck: Really speechless . ⁦@VirusesImmunity⁩ dedicated her great talk at IUIS Vienna to Christoph - Thank you Akiko ❤️❤️….

RT @RorPreston: New table in our ecosystem database at @wecrunchme for venture capital investments into IACI-focused tech companies 🌱. Hope….