Lisa McCorkell
@LisaAMcCorkell
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on twitter/x hiatus. formerly: @patientled | MPP | she/her | natures 10 2022
Oakland, CA
Joined January 2013
@RobertKennedyJr @HHSGov given your commitments, I expect you to push back on your boss for the harmful actions taken in this executive order. Advisory Committees are critical for good policy and oversight, providing perspective from those impacted by policies.
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3 weeks ago @RobertKennedyJr committed to collaborating with healthcare providers, researchers, and patients to better understand and mitigate #LongCovid's impact. The Advisory Committee would have been a key part of that, and now it will be terminated.
The Federal Advisory Committee on Long COVID has been ordered terminated on 2/19/25 within 14 days. “the Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID.” https://t.co/3ynHMqa05v
#LongCOVID
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The Federal Advisory Committee on Long COVID has been ordered terminated on 2/19/25 within 14 days. “the Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID.” https://t.co/3ynHMqa05v
#LongCOVID
whitehouse.gov
By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1.
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Did your existing health issues get worse after a #COVID infection, or did you develop new onset #LongCOVID? Tune in to our free webinar on January 23rd to learn how you can get involved in a study we're working on with the FDA and other patient orgs. 1/10
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“The impact of the collective executive orders and directives appears devastating.”
science.org
Researchers facing “a lot of uncertainty, fear, and panic”
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Have you checked out @C19LH_Advocacy's fantastic Comprehensive Guide to #LongCovid yet? It covers a wide range of topics from what is Long COVID to how to apply for support services to how to contact Congress. A great resource to utilize and share! https://t.co/V5TqsF0Fhx
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We're hiring 2 new roles! These are 6-month contracts with possible extension, and can be between 25-40 hrs/week. Deadline Dec 31! 1) Partnerships & Advocacy Coordinator 2) Fundraising & Operations Manager Please share widely! https://t.co/V9PYWTOjri
#LongCovid #neisvoid #pwme
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New modeling study finds that if everyone in the United Kingdom had worn N95 or FFP2 masks from the start of the pandemic, the rate of COVID-19 transmission would have been 9 times lower.
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Urge @POTUS to take executive action on #LongCOVID before leaving office! Learn more & send a letter ⬇️ https://t.co/m2tsFOBqH5
actionnetwork.org
In April 2022, the Biden Administration issued a memorandum directing federal agencies to examine the long-term effects of COVID-19, including Long COVID, to advance research, improve care, and...
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NIH Town Hall on Strategic Plan for Disability Research Tuesday, 12/3, 2024 | 2:30-3:30 p.m. ET NIH is in the initial stage of developing an agency-wide NIH Strategic Plan for Disability Research. #MECFS #LONGCOVID Register:
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Some of the most promising research on debilitating Long Covid was funded by a small patient group using the $5 million they got from @VitalikButerin — in cryptocurrency! That's why picked @patientled as my choice for this year's donation guide. Great way to make a difference.
New York Times: 'A Great Idea for People With a Terrible Disease: Let’s Find a Cure Ourselves' 'For people with debilitating long Covid, the new year heralds a cruel anniversary: Some are experiencing their fifth year with the agonizing illness...' https://t.co/3eA1E8xCs4
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New York Times: 'A Great Idea for People With a Terrible Disease: Let’s Find a Cure Ourselves' 'For people with debilitating long Covid, the new year heralds a cruel anniversary: Some are experiencing their fifth year with the agonizing illness...' https://t.co/3eA1E8xCs4
nytimes.com
A group of long Covid patients is financing research and making progress.
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Excited to share this @ScienceTM viewpoint with @DrMaureenHanson on why #LongCOVID #MECFS and other infection-associated chronic conditions should be studied together as part of a coordinated research agenda. https://t.co/rJLSuO59Wh
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Good morning! The @polybioRF 2024 Fall Symposium is kicking off shortly, and we will be live tweeting the entire event! Follow along on this 🧵 1/
It’s time! Our Fall Symposium is tomorrow, November 8th, at 11 AM EST. If you haven’t had the chance yet, sign up now to secure your spot. We’re looking forward to sharing our project updates! https://t.co/ZzNngS2GMz
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Thank you @LisaAMcCorkell and @patientled for speaking to @statnews to keep Long Covid and patients with infection associated chronic conditions at the front of the science and medicine conversation https://t.co/YegMFstiXj
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I know today is a frightening day for many with #LongCOVID, #MECFS, chronic #lyme and other infection-associated chronic conditions. Today, all I can offer is a small piece of advice and a small piece of reassurance. Advice: please take care of yourselves and practice some 1/
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As many of you are waking up to some devastating news, please know that you’re not alone in feeling the weight of this moment. Many of us are grieving this outcome, especially those in the #LongCOVID, #IACC, and #disability communities, who will bear a profound impact. The work
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Great opportunity to have your voice heard and to participate in this next phase of RECOVER. Please submit responses and share with other patients, caregivers, researchers, and clinicians!
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NIAID issued an RFI for RECOVER-TLC! They seek responses on: 1. Potential therapeutics for #LongCovid 2. Interest in being involved on working groups 3. Biomarkers to be used in Long COVID clinical trials 4. General feedback on RECOVER-TLC More info here
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People with #LongCOVID deserve equal access to prescriptions that could lessen their symptom burden & information about potential risks. More about how & why in this op-ed by @loscharlos and me, which was sparked by a discussion the @patientled team: https://t.co/wHWaOjJ8KF 1/2
statnews.com
Opinion: Some medications for #LongCovid that are already on the market may provide relief. Obtaining them requires a lot of time and money.
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