Lisa McCorkell
@LisaAMcCorkell
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on twitter/x hiatus. formerly: @patientled | MPP | she/her | natures 10 2022
Oakland, CA
Joined January 2013
@RobertKennedyJr @HHSGov given your commitments, I expect you to push back on your boss for the harmful actions taken in this executive order. Advisory Committees are critical for good policy and oversight, providing perspective from those impacted by policies.
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3 weeks ago @RobertKennedyJr committed to collaborating with healthcare providers, researchers, and patients to better understand and mitigate #LongCovid's impact. The Advisory Committee would have been a key part of that, and now it will be terminated.
The Federal Advisory Committee on Long COVID has been ordered terminated on 2/19/25 within 14 days. “the Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID.” . #LongCOVID.
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RT @C19LH_Advocacy: The Federal Advisory Committee on Long COVID has been ordered terminated on 2/19/25 within 14 days. “the Secretary of….
whitehouse.gov
By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1.
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RT @id_cure: Did your existing health issues get worse after a #COVID infection, or did you develop new onset #LongCOVID? Tune in to our fr….
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RT @NewsfromScience: “The impact of the collective executive orders and directives appears devastating.”
science.org
Researchers facing “a lot of uncertainty, fear, and panic”
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RT @patientled: Have you checked out @C19LH_Advocacy's fantastic Comprehensive Guide to #LongCovid yet? It covers a wide range of topics fr….
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RT @patientled: We're hiring 2 new roles! These are 6-month contracts with possible extension, and can be between 25-40 hrs/week. Deadline….
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RT @luckytran: New modeling study finds that if everyone in the United Kingdom had worn N95 or FFP2 masks from the start of the pandemic, t….
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RT @C19LH_Advocacy: Urge @POTUS to take executive action on #LongCOVID before leaving office!. Learn more & send a letter ⬇️..
actionnetwork.org
In April 2022, the Biden Administration issued a memorandum directing federal agencies to examine the long-term effects of COVID-19, including Long COVID, to advance research, improve care, and...
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RT @WildNycgirl: NIH Town Hall on Strategic Plan for Disability Research.Tuesday, 12/3, 2024 | 2:30-3:30 p.m. ET.NIH is in the initial sta….
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RT @zeynep: Some of the most promising research on debilitating Long Covid was funded by a small patient group using the $5 million they go….
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RT @bhanlon15: New York Times: 'A Great Idea for People With a Terrible Disease: Let’s Find a Cure Ourselves'. 'For people with debilitatin….
nytimes.com
A group of long Covid patients is financing research and making progress.
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RT @MichaelPelusoMD: Excited to share this @ScienceTM viewpoint with @DrMaureenHanson on why #LongCOVID #MECFS and other infection-associat….
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RT @patientled: Good morning! The @polybioRF 2024 Fall Symposium is kicking off shortly, and we will be live tweeting the entire event! Fol….
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RT @emily_rj: Thank you @LisaAMcCorkell and @patientled for speaking to @statnews to keep Long Covid and patients with infection associated….
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RT @PutrinoLab: I know today is a frightening day for many with #LongCOVID, #MECFS, chronic #lyme and other infection-associated chronic co….
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RT @C19LH_Advocacy: As many of you are waking up to some devastating news, please know that you’re not alone in feeling the weight of this….
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Great opportunity to have your voice heard and to participate in this next phase of RECOVER. Please submit responses and share with other patients, caregivers, researchers, and clinicians!.
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NIAID issued an RFI for RECOVER-TLC! They seek responses on:.1. Potential therapeutics for #LongCovid.2. Interest in being involved on working groups.3. Biomarkers to be used in Long COVID clinical trials.4. General feedback on RECOVER-TLC. More info here
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RT @julialmv: People with #LongCOVID deserve equal access to prescriptions that could lessen their symptom burden & information about poten….
statnews.com
Opinion: Some medications for #LongCovid that are already on the market may provide relief. Obtaining them requires a lot of time and money.
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