Hannah
@herlifeinpixels
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Co-lead @patientled for #LongCovid | Qualitative research | Systems designer | 2x Recovering tech founder | Global citizen & Award-losing artist
Tokyo-to, Japan
Joined July 2009
RT @ahandvanish: One of the biggest advocacy opportunities of the year has launched - FDA/CURE-ID's #LongCovid treatment survey!. There are….
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RT @dsethlewis: UPDATE! In addition to @LisaAMcCorkell & @ahandvanish, three other members of the PLRC leadership team will be coming to th….
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RT @patientled: We're happy to release a new patient-led paper on returning to work & episodic disability in #LongCovid! . Thank you to @BS….
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RT @edyong209: 🛑I wrote about what “fatigue” really means for people with long COVID and ME/CFS, and why this profoundly debilitating sympt….
theatlantic.com
Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.
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RT @ahandvanish: A major piece of medical research came out this week: . It is now *confirmed* that spinal cord injuries can suppress immun….
medpagetoday.com
Study may explain why infection risk soars after some injuries
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RT @ErinSandersNP: This is how we inspire revolutionary change and make this ALL different. REIMAGINE what is possible ♥️. This world wasn….
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RT @patientled: We’re excited to announce that the 1st issue of the Patient-Generated Hypotheses Journal is available as a pdf on our websi….
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RT @patientled: We have a new paper out in @NatMentHealth on mental health & coping in #LongCovid!. Mental health is historically complex t….
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RT @patientled: We at @patientled are hiring a part-time grant writer at 20 hours/week!. Applicants with lived experience of chronic illnes….
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RT @loscharlos: The updated #LongCovid posters are now up on @SFBART 🚈 !. Thanks @kfrhoads for inviting @LisaAMcCorkell & I to work on this….
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RT @ales_frost: #TheAcidTest, I'm hoping for some community support!. @Naomi_D_Harvey has the GlucoRx order in the UK, nearly ready to mail….
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RT @microbeminded2: This is an excellent survey created by @patientled designed to better understand how #COVID-19 infections and reinfecti….
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RT @herlifeinpixels: 🇨🇦Canadians: Please sign this House of Commons petition to support access to remote work. This will reduce in-person C….
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RT @Naomi_D_Harvey: New paper by @sunsopeningband presenting a newly validated questionnaire for quantifying the impact of PEM/PESE on dail….
journals.sagepub.com
BACKGROUND: Existing instruments often are inappropriate to measure the effects of post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)...
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RT @UofTCOVIDRehab: Thank you so much to our panelists, @herlifeinpixels, Anisha, Melissa, Susie, Mark, Harriet, and @AlyssaaErinn for shar….
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RT @LongCOVIDPhysio: Closing today! This is your last chance to nominate and apply to join our team. Do you want to help shape the future o….
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RT @tmprowell: A study from #Brazil finds 1 in 4 adults who had mild #COVID19 demonstrated cognitive deficits. The average age of study par….
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FYI After signing, you'll get an email to confirm support before it registers your signature. Don't forget this step!. Electronic petitions need 500+ signatures (we just passed 700!) in order to be presented or tabled in the House of Commons and receive a government response.
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🇨🇦Canadians: Please sign this House of Commons petition to support access to remote work. This will reduce in-person COVID exposures, provide access to financial security and workplace protection for disabled people & caregivers #pwLC #LongCovid
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