THANK YOU to everyone who made the International Forum on COVID Rehabilitation Research a success on Friday! We appreciate everyone who was able to participate online and in-person!
@uoftmedicine
@LongCOVIDPhysio
In his keynote yesterday,
@DrMark_Faghy
spoke about the need to find all the puzzle pieces 🧩 for
#LongCOVID
. Hearing about the ongoing efforts of people with lived experiences, researchers, and clinicians at yesterday’s Forum shows that it is possible!
Jessica DeMars's
#KeyMessage
from the
#COVIDRehab
Forum:
Believe patients when they tell you they can't exercise. PEM breaks the rules of exercise/physical activity. Despite evidence that exercise is harmful, it is difficult for clinicians to acknowledge it.
@BreathewellPT
Thank you to all our attendees, whether you were online or in-person, for your engagement and participation in an important dialogue on
#COVIDRehab
research!
Thank you to
@fisiocamera
for all of the incredible illustrations that went with yesterday’s Forum and support in the Zoom chat! Thank you to
@LongCOVIDPhysio
and
@LongCOVIDWebCA
for your partnership in putting on the event!
Dr. Mark Faghy’s
#KeyMessage
from the
#COVIDRehab
Forum:
We must work with patients to develop safe and effective treatments for
#LongCOVID
. To help we must understand, to understand we must learn and to learn we must listen.
@DrMark_Faghy
@DrMark_Faghy
Phenomenal overview of
#PEM
We can tolerate certain levels of stimuli, but if we breach that threshold, symptoms are triggered. This can include even routine activities.
We are excited to announce registration is open for the 2024 International Forum on COVID Rehabilitation Research on Friday April 19th. The Forum will be held in hybrid format.
Read more and register for free here:
Kiera McDuff’s
#KeyMessage
from the
#COVIDRehab
Forum: Pacing is not a cure for
#LongCOVID
but is a helpful living strategy with the aim to mitigate or prevent multidimensional health challenges of Long COVID. Adults with Long COVID use many analogies to communicate about pacing.
On March 7,12-1pm EST, Helen Skiffington (OT) and Dr. Kelly O'Brien (PT) are presenting a webinar, "Long COVID and episodic disability: Considerations for rehabilitation" with
@CAOT_ACE
.
@OT_Skiff
@KellyOBrien25
For more info and to register:
#LongCOVID
Keynote session 2: panel discussion
Community engagement in rehabilitation research - a year in review
Building capacity to learn from persons with lived experiences about their perspectives engaging in
#COVIDRehab
research and to reflect on the PLRC scorecard 1 year later
Dr. Jaylyn Leighton's
#KeyMessage
from the
#COVIDRehab
Forum:
Long COVID (and experiences of illness/disability) not only impacts one’s physical health and cognition, it also impacts one’s psychosocial health (mental and emotional wellness and sense of social connectedness).
Adam Brown's
#KeyMessage
from the
#COVIDRehab
Forum:
It is challenging to distill a large body of research and information on a diverse set of patients with
#LongCOVID
and skillfully apply it to a single individual (“N of one”) through clinical reasoning.
@CornerstonePhys
Panelist Nisa Malli from Patient Led Research Collaborative shares lived experience with Long COVID. “I had every symptom. I forgot to turn off the stove. I forgot how to read and write.”
#COVIDForum
We can't wait to host the fantastic speakers and panelists for the International Forum on COVID Rehabilitation Research, supported by
@uoftmedicine
and in collaboration with
@LongCOVIDPhysio
, on Friday April 21 from 10am-4pm ET! Click here to register:
We are really looking forward to hosting the International Forum on COVID Rehabilitation Research, supported by
@uoftmedicine
and in collaboration with
@LongCOVIDPhysio
! Our keynote presentation will be "Back to the Future for Long COVID Research" presented by
@sunsopeningband
.
#ICYMI
the videos from the 2023 International Forum on Rehabilitation Research are on
#YouTube
and can be accessed from our website:
We highly recommend watching the fantastic research evidence sessions and keynote presentations from the Forum!
#COVIDRehab
Have a say 🗣️
Tell us your
#COVIDRehab
research priorities - what are researchers doing well, how can we prioritize certain topics better, or what COVID rehab topics have not yet been addressed?
Comment below 👇
Thank you so much to our panelists,
@herlifeinpixels
, Anisha, Melissa, Susie, Mark, Harriet, and
@AlyssaaErinn
for sharing your experiences with the audience today!
Agree completely with Hannah Wei’s (
@patientled
) comment that successful
#LongCOVID
co-design with patient partners requires researchers to budget for their involvement. As
@sunsopeningband
put it—“what gets budgeted, gets done!” ✅
Register now! The Network is excited to host
@BreathewellPT
to present a Special Rehab Grand Rounds. The event will be accessible both online and in-person (at University of Toronto) on April 18th from 12-1pm! More info, and registration:
#COVIDRehab
This video, "Safe Long COVID Rehabilitation," by
@LongCOVIDPhysio
will premiere tomorrow! This video, along with the rest of the Long COVID Physio video series, will be an excellent resource for
#COVIDRehab
clinicians, and for patients.
@CAOT_ACE
@PhysioCan
Today’s Special Rehab Grand Rounds presented by
@BreathewellPT
was fantastic! Thank you so much to Jessica for visiting us
@UofT
to share your knowledge on
#COVIDRehab
!
Victor Ezeugwu’s key message from the
#COVIDForrum
: We investigated
#LongCOVID
& RTW in our review. Of 14 studies that included or evaluated a RTW intervention, 9 show promise. Our findings shed light on potential strategies for supporting RTW
@EzeugwuVictor
Next steps for
@DrMark_Faghy
and team include: Developing safe and effective
#LongCOVID
Rehabilitation Services
If you are working on this as well, let us know how we can all collaborate.
Nisa Malli
@nisamalli
and Kiera McDuff, PT, will present "Understanding
#LongCOVID
and Episodic Disability to Inform Rehabilitation Approaches" online on May 26th from 12-1pm EDT.
#COVIDRehab
@PhysioCan
Register here:
It is
#LongCOVID
Awareness Day and we want to connect with others interested in
#COVIDRehab
!
Register for free for "Recognizing Long COVID in clinical practice: would you recognize it if you saw it?", presented by
@BreathewellPT
, April 18 from 12-1pm ET!
@DrMark_Faghy
and his team have published 57 peer-reviewed journal articles (and counting) on
#COVIDRecoveryandRehab
!
Ongoing projects include patient advocacy, incorporating patient voices as a leading priority.
Dr. Todd Davenport
@sunsopeningband
presented the
#keynote
presentation at the 2023 International Forum on COVID Rehabilitation Research entitled, "Back to the Future for Long COVID Research"
This report from the International Conference, "ME/CFS and Long COVID - Treatment and Rehabilitation" summarizes key information from the conference, including recommendations for assessment and treatment of
#LongCOVID
by
#rehab
providers.
The report from the International Conference, "ME/CFS and Long COVID – Treatment and Rehabilitation," is available!
The conference was held online and in person October 7-8, 2022, in Tampere, Finland. Keynote speakers include Ron Davis & David Systrom!
The Long COVID Physio Forum
#LCPForum
continues to deliver outstanding presentations and panels.
@jpbettger
shared another really important takeaway, "We need to engage people with lived experience as our knowledge translators."
@LongCOVIDPhysio
#COVIDrehab
Helen shares importance of OTs in helping people return to work and every day activities. “We’re all the same motivated people (who want to work) just trapped in bodies that don’t let us do as much anymore.”
While you wait for the recordings from the 2024 International Forum on COVID Rehab Research, check out the posters from the Forum on our website!
Congrats to
@Nadine_A_PhD
,
@PtAgarwal
and Chantal Lin and their teams for their abstract and poster awards!
The McMaster GRADE Centre and
@CochraneCanada
will develop 6 evidence-based health guidelines for post-COVID-19 condition (PCC). Read more: .
If you live in Canada, you can provide input with this survey:
#LongCOVID
@Know_HG
@long_covid
@markhrutledge
"We must consider the repercussions (trauma, PEM, effort, energy...) of participating in research, but children need to be involved in research, just like anyone else."
- Sammie Mcfarland,
@LongCovidKids
and advisory committee member
The recording from
@BreathewellPT
's Special Grand Rehab Rounds is now available! 📽️
#ICYMI
, be sure to watch it now on our website () or YouTube channel ().
Check out our new website!
We launched our website at the International Forum on COVID Rehabilitation Research on April 21st. This will be a resource to learn about the Network, funding opportunities, resources & publications, news & events, and more!
This webinar is happening tomorrow from 12-1pm EDT! Nisa Malli
@nisamalli
and Kiera McDuff, PT, will present "Understanding
#LongCOVID
and Episodic Disability to Inform Rehabilitation Approaches."
#COVIDRehab
@PhysioCan
Register here:
Behdin’s Key Message from the
#COVIDForum
:
3 themes related to work participation among participants with SLE during the pandemic
📌 the impact of the illness experience on work
📌 stigmatization of illness disclosure
📌 availability of resources and accommodations
@behdin
Dr. Simon Décary
@SimonDecary
presented "Integrating Rehabilitation in Care Models for Long COVID: third update of a living systematic review" at the 2023 International Forum on COVID Rehabilitation Research. If you missed it, check out the recording!
Recordings of the presentations from Friday's
#COVIDRehab
Forum will be available on our website soon! Stay tuned:
In the meantime, you can view recordings from last year's Forum here:
@LongCOVIDPhysio
@LongCOVIDWebCA
Today is the final day to register for the International Forum on COVID Rehabilitation Research!
Don't miss out on the excellent presentations we have planned, including this panel featuring
@nisamalli
@BreathewellPT
@alirendely
@OT_Skiff
and others!
The
#LCPForum
has been excellent so far! Thank you to
@BreathewellPT
and the rest of the panel who just presented on "What is Safe Long COVID Rehabilitation?" It was a great discussion with many great takeaways!
@LongCOVIDPhysio
Chester Ho (
@UAlberta
) notes barriers. “We do not do a good job with chronic disease management. We need to have a multidisciplinary approach…and include psychosocial interventions.”
Thanks to a wonderful team, “Conceptualising the episodic nature of disability among adults living with
#LongCOVID
: a qualitative study,” is now published in
@GlobalHealthBMJ
! Click here to read the article:
Be sure to watch the recording of this discussion about bridging
#LongCOVID
research to clinical practice with
@nisamalli
and a multidisciplinary team of
#COVIDRehab
professionals!
Rehabilitation was among one of the most frequently sought-out, but not received services among people living with
#LongCOVID
. How can access to rehabilitation services be improved?
Come listen to Dr. Fiona Jones
@JonesFio
as she presents "Listen trial - creating positive rehabilitation connections in the face of uncertainty" at the International Forum on COVID Rehabilitation Research! Register here:
@uoftmedicine
@LongCOVIDPhysio
We are really looking forward to hosting the International Forum on COVID Rehabilitation Research, supported by
@uoftmedicine
and in collaboration with
@LongCOVIDPhysio
! Our keynote presentation will be "Back to the Future for Long COVID Research" presented by
@sunsopeningband
.
We look forward to Dr. Doug Gross
@DP_Gross
presenting "Social Engagement and Employment among People with Long COVID" as one of the speakers at the International Forum on COVID Rehabilitation Research! Register here:
@LongCOVIDPhysio
@uoftmedicine
Share your
#COVIDRehab
research! Submit an abstract for poster presentation at the International Forum on COVID Rehabilitation Research! Review the guidelines for abstract submission and submit here: The deadline to submit is Friday February 2, 2024!
We are excited to announce registration is open for the 2024 International Forum on COVID Rehabilitation Research on Friday April 19th. The Forum will be held in hybrid format.
Read more and register for free here:
The Rehabilitation Science Research Network for COVID
@Caregiving_UofT
@KellyOBrien25
is presenting at the
@RSIUofT
Leadership Rehab Rounds on Wednesday November 23 at 12pm EST. Here is the link to join:
Wow! What an amazing first day at the Long COVID Physio Forum
#LCPForum
! There were so many important things to take away from today, but I think the biggest was this: always listen to the patient, always believe them.
@LongCOVIDPhysio
#COVIDrehab
“Don’t gaslight the patient. Whatever they have to say is important. Only after the patient has told their story, then you can take your objective piece”
@ninachigbo
Dr. Kelly O'Brien
@KellyOBrien25
, Co-Director of the Rehabilitation Science Research Network for COVID, presenting at the Long COVID Physio Forum
#LCPForum
about the conceptualization and measurement of Episodic Disability.
@LongCOVIDPhysio
#COVIDrehab
Join us on April 21st from 10am-4pm EDT for the International Forum on COVID Rehabilitation Research! The aim is to advance knowledge transfer and collaborations in
#COVIDRehab
research and practice.
@LongCOVIDPhysio
@uoftmedicine
Register here:
Tomorrow is the big day! We will be hosting the International Forum on COVID Rehabilitation Research. Register here: ! See our wonderful lineup of speakers and panelists in the program below!
#COVIDRehab
1/ Check out these two new resources for people with
#LongCOVID
, published by Realize
@HIVandRehab
! Navigating healthcare appointments and disability income benefits can be a huge challenge for people with Long COVID.
The
#COVID19
pandemic impacted delivery of
#rehab
services. Rehab providers pivoted to use
#telehealth
to deliver services to patients. Many continue to offer virtual services.
@HainesKimberley
et al. discuss barriers and enablers to telehealth use among PTs during the pandemic.
"Patient involvement is about making the research better. When it gets published, we want it to have impact on how we get treated." –
@Know_HG
(Margaret O'Hara)
@long_covid
#UK
We are excited to hear from Dr. Marina Wasilewski
@mbastaw
as one of the speakers at our upcoming International Forum on COVID Rehabilitation Research!
#COVIDRehab
Register here for this free, hybrid event:
@LongCOVIDPhysio
@uoftmedicine
Looking forward to hearing these excellent speakers
@OT_Skiff
and
@KellyOBrien25
present their webinar "Long COVID and episodic disability: Considerations for rehabilitation" on March 7th from 12-1pm EST! Don't forget to register!
@CAOT_ACE
On March 7,12-1pm EST, Helen Skiffington (OT) and Dr. Kelly O'Brien (PT) are presenting a webinar, "Long COVID and episodic disability: Considerations for rehabilitation" with
@CAOT_ACE
.
@OT_Skiff
@KellyOBrien25
For more info and to register:
#LongCOVID
The Rehabilitation Research Network for COVID supported 15 U of T students from the Rehab Sector to attend the
#LCPForum
@LongCOVIDPhysio
. Nicole, PT Student, shares how attending the forum supported her
@UofT_PT
MScPT research project on experiences of PTs treating
#LongCOVID
.
Final day to register for TOMORROW'S International Forum on COVID Rehabilitation Research!
We have exciting speakers and panelists lined up, including
@DrMark_Faghy
, who will present "Unlocking the Mystery of Post-Exertional Malaise in Long COVID."
The Special Rehab Grand Rounds by
@BreathewellPT
is tomorrow from 12-1pm ET! Make sure you register now to attend this excellent presentation. A recording will be sent to all registrants after the event.
#COVIDRehab
Register now! The Network is excited to host
@BreathewellPT
to present a Special Rehab Grand Rounds. The event will be accessible both online and in-person (at University of Toronto) on April 18th from 12-1pm! More info, and registration:
#COVIDRehab
Submit your abstract for poster presentation at the International Forum on COVID Rehabilitation Research now! The deadline to submit is this Friday Feb 2.
Share your
#COVIDRehab
research! Review the guidelines for submission and submit here:
We are excited to announce registration is open for the 2024 International Forum on COVID Rehabilitation Research on Friday April 19th. The Forum will be held in hybrid format.
Read more and register for free here:
Four new announcements today about the Long COVID Physio International Forum
#LCPForum
👉 Registration is now open 🎉
👉 Full programme available
👉 Speakers list revealed
👉 Learning objectives announced
Find out more🧵
#LongCOVID
#FBLC
#GlobalPT