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@dysautonomian

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i will face god and walk backwards into hell // 35, FtX/nonbinary // hEDS MCAS POTS MECFS SCDS AuDHD // under 18? go away

Joined January 2022
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@dysautonomian
hello, and i am all colors clay
4 months
all right, patreon page isn't 100% finished yet, but it's live anyway! $1 and $10 tiers--$1 tier still gets all the content, but $10 tiers get one custom Covid-conscious/chronic illness Midjourney PSA made by me! Will add more rewards in the near future
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@dysautonomian
hello, and i am all colors clay
4 months
@finngalkn "we can always tell" as they tell transmasculine people they'll never be a real woman 🤡
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@dysautonomian
hello, and i am all colors clay
2 years
@ArkieMiasma the CDC's willingness to do its job has ALWAYS been dependent upon which people would be harmed by its inaction
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@dysautonomian
hello, and i am all colors clay
2 years
@chasestrangio SCDS is caused by mineral deficiencies and thus is treated by reversing mineral deficiencies. The surgery doesn't even effectively *treat* SCDS. No one should ever have that surgery, yet many do. No articles about that either.
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@dysautonomian
hello, and i am all colors clay
2 years
@chasestrangio Medicine tried to convince me to have surgery where they cracked my skull open, sliced into my brain to move it out of the way, and left filler material inside my skull for the rest of my life, to treat superior canal dehiscence syndrome. This surgery is 100% unnecessary
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@dysautonomian
hello, and i am all colors clay
2 years
@JUNlPER the first time i saw a tweet like this it was four corporations. the next time i saw one it was five corporations. now its six. im getting worried here
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@dysautonomian
hello, and i am all colors clay
5 months
@mychemicalgutz next do ableism
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@dysautonomian
hello, and i am all colors clay
2 years
@quantum_quentin it's because of histamine dysregulation when you have a bunch of low-level allergies (which is what ADHD is), your "histamine bucket" gets more and more full across the day. this means you're often pretty amped at bedtime. avoiding allergens & mitigating inflammation helps tons
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@dysautonomian
hello, and i am all colors clay
4 months
@alitlstrawberry When you have another therapist and it's safe, please make sure to leave a review saying this is how she acted on any and all relevant sites to protect others 💛
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@dysautonomian
hello, and i am all colors clay
3 months
Can we talk about the community note claiming the little boy died of cerebral palsy rather than of starvation? Ableds see disabled people as so inherently deserving of death that if we're starved to death right next to abled family members they STILL say our disability killed us
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@dysautonomian
hello, and i am all colors clay
2 years
@Lanson17 suicide hotlines DO NOT HELP PEOPLE. they are based on the assumption that people don't have a good reason to end their life--the most UNHELPFUL assumption you could make. the times I have been closest to actually killing myself were ALL when I was dumb enough to try hotlines.
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@dysautonomian
hello, and i am all colors clay
2 years
@darshuio It’s actually because routine shaving causes low level scarring in skin—minerals accumulate in soft tissue and destroy melanocytes. The same thing causes baldness. In fact this one dynamic is the most important causal factor in aging.
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@dysautonomian
hello, and i am all colors clay
2 years
@ArkieMiasma sounds like someone has never heard of AIDS! to act like the CDC *used* to be fine but now suddenly isn't is not only to deny the blatant dehumanization and attempted genocide of queer men--something the general public was fine with--but also to ignore historical fact/context
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@dysautonomian
hello, and i am all colors clay
2 years
@TeezySooSkep hey uh has it ever occurred to you that.....Some Disabled People Can't Take Drugs Without Being Warned And That's Literally Fucking Assault. You Could Kill People. Thanks
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@dysautonomian
hello, and i am all colors clay
2 years
@chasestrangio The wild thing is, when I got top surgery, it didn't just alleviate my dysphoria. It also allowed me to heal from gastroparesis and compulsive breathholding--something wearing tight garments often (like a bra/binder) causes. There is *NO* official treatment for gastroparesis.
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@dysautonomian
hello, and i am all colors clay
2 years
@Mickeleh @boneysoups @mollyknefel Can you explain to me how me mentioning that I'm a nonbinary person who can still get pregnant erases women? Do you REALLY think people are going to forget women exist Michael REALLY
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@dysautonomian
hello, and i am all colors clay
2 years
@456_R2D2 @witchdctralex astrology=the study of how different energies medically affect your nervous system. you have a second immune system no one mentions. that's what your personality is. your birth chart shows what energies imprinted upon your nervous system, which determines how you react to things
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@dysautonomian
hello, and i am all colors clay
2 years
@vigneshr4m @punished_cait part of the problem is many anti-choice folks ARE that selfish. i look @ conservative porn in an academic way (bc someone has to i'm asexual so it's all bizarre to me). there is quite a lot of content written by women or men posing as women sexualizing late-term abortions
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@dysautonomian
hello, and i am all colors clay
5 months
@melissabreenx i was told dislocated femur and frostbite were anxiety
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@dysautonomian
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5 months
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@dysautonomian
hello, and i am all colors clay
2 years
@chasestrangio Medicine has its entire head up its own ass. Sadly, there is no treatment for that either.
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@dysautonomian
hello, and i am all colors clay
2 years
@Lanson17 they almost always use volunteers, yet receive tons in donations. where does that money go?? they also literally sell the information they get from (vulnerable) callers to corporations. suicide hotlines exist to make money off suicidal people and well-meaning but naive donors.
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@dysautonomian
hello, and i am all colors clay
6 months
@STARDVM Short-term disability is a thing. Pregnancy often falls into this category
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@dysautonomian
hello, and i am all colors clay
2 years
@GBBranstetter the overturning of roe, practically speaking, is the legalization is femicide.
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@dysautonomian
hello, and i am all colors clay
2 years
@acceptanxietyuk @Theholisticpsyc it's important to understand that while your lived experiences can definitely cause this, anyone with chronically elevated histamine is prone to hyperfocus. trauma changes the inflammatory response so you have more histamine, but long COVID also changes your inflammatory response
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@dysautonomian
hello, and i am all colors clay
2 years
@AryehCW I'll never understand why people misunderstand Judas. Jesus made it explicitly clear that he had come here to die. Judas was the person who made that possible. I've heard pastors say that Judas was the most faithful disciple, the only one mature enough to take the fall.
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@dysautonomian
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16 days
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@dysautonomian
hello, and i am all colors clay
2 years
@vigneshr4m this isn't something i'm particularly jazzed to talk about but i think it is important. there is a serious problem with the fetishization of pure cruelty, a lot of which is obviously directed at women, but also children, infants, and fetuses.
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@dysautonomian
hello, and i am all colors clay
3 months
@kakape I'm honestly amazed that society bothered to invent and produce iron lungs to take care of these patients when it's done nothing but gaslight people with long Covid
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@dysautonomian
hello, and i am all colors clay
3 months
@autogyniphiles Historic neurodivergent people's fixations are what drove the innovation that led from there to here. not sure what you mean by "before we had a lot of cool stuff." peak hyperfixation is inventing the cool stuff
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@dysautonomian
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2 years
You can literally be intersex yourself and have no idea. They never do karyotype testing unless your genitals are ambiguous when you pop out. But you can have "normal looking" genitals and still be intersex.
@TheRaDR
Rabbi Danya Ruttenberg
2 years
2-5% of ppl are born intersex. 1-2% of the population has naturally red hair. 2% of the population has green eyes. You likely know intersex people!! Whether or not you know that you do.
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@dysautonomian
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2 years
@blkgirllostkeys half of it is that and half of it is just that people with ADHD release too much histamine. histamine directly makes you more self-critical and more sensitive to criticism from others (this is why red dye worsens ADHD symptoms. it's an allergen. ADHD=psych allergy symptoms)
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@dysautonomian
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2 years
@indehisce I absolutely agree in principle, but I do just want to point out that having mast cell activation syndrome since birth in fact absolutely does prepare you to survive an airborne pandemic. Everyone thought I was cursed, but it was a blessing.
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@dysautonomian
hello, and i am all colors clay
2 years
@bennystarks I’d buy abandoned shopping malls and renovate them to be housing designed specifically for chronically ill and disabled people, with advanced air filtration systems and other measures to prevent the spread of infectious disease. There would be schools, med facilities, retail, etc
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@dysautonomian
hello, and i am all colors clay
2 years
@LauraMiers it's certainly not a recent thing! i've spent my whole life trying to talk to people about the chronic illness impacting a decent % of us. no one has ever been receptive, ever! and when you look at things like school shootings--yep, americans just have a dissociation problem
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@dysautonomian
hello, and i am all colors clay
2 years
@vigneshr4m there is more than one account making porn memes about repeatedly having late-term abortions on tumblr replacements like bdsmlr what happened when tumblr destroyed itself is people got pushed onto even more poorly regulated replacements. MAGA csa content is everywhere on bdsmlr
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@dysautonomian
hello, and i am all colors clay
5 months
@moontwerk Then give us a better two-word option because no one can say "potentially fatal cognitive dysfunction, memory loss, and brain damage" every single time. Every term for medical symptoms hides the reality. Almost like language/diagnoses are inherently reductive/violent!
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@dysautonomian
hello, and i am all colors clay
4 months
@helen_barnowl I love how medicine's entire "understanding" of autism is actually just like, a big ball of racism and misogyny
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@dysautonomian
hello, and i am all colors clay
5 months
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@dysautonomian
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2 years
@espiers I don't think we can say they believe any loss of manners is an erosion of the social contract, because ripping healthcare from 50% of Americans is definitely a loss of manners. I agree with your overall point, of course, but it's WHAT they consider a loss of manners that is key
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@dysautonomian
hello, and i am all colors clay
4 months
@oldenoughtosay fired, or, you know, KILLED
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@dysautonomian
hello, and i am all colors clay
5 months
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@dysautonomian
hello, and i am all colors clay
2 months
@clhubes When i was VERY young, my sister introduced me to swinging and poly dynamics using all our barbies, kens, and skippers. I'm honestly not sure where she learned about all that 😅
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@dysautonomian
hello, and i am all colors clay
4 months
@ekansthepokemon Not only insisting *they* shouldn't have to mask, but actively attacking medically vulnerable people for wearing a mask themselves. Ableds now fundamentally deny that there are ANY health problems that could be improved by masking, including insisting allergies don't even exist.
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@dysautonomian
hello, and i am all colors clay
2 years
@PomboPalomaRat the funny thing is Ana could just move to Minnesota and get literally the best insurance imaginable 100% for free as long as he makes $20k or less annually no excuse
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@dysautonomian
hello, and i am all colors clay
2 years
@i_am_remy_bot like, yeah. yep. sure are. line forms here
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@dysautonomian
hello, and i am all colors clay
2 years
@elisaperego78 The point of medical research is and has always been to discover treatments that are profitable, not to discover treatments that are effective. They will always pursue a profitable treatment over an effective one.
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@dysautonomian
hello, and i am all colors clay
2 years
@BatyaLewbel i do closed captioning professionally. i am obligated to follow my employer's style guide, no matter how stupid it is. if i do not follow their stupid rules they will just change it to comply anyway. talk to the people with the power ❤️ I've already protested and they dont care
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@dysautonomian
hello, and i am all colors clay
5 months
(idk OP & this is a response to tweets others have made, not this one. anyway here we go) No offense but if u as a trans woman believe you deserve to be worshiped by transmascs in a way that identically reproduces misogyny/male supremacy with diff labels then why even be trans
@dummyfigg
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5 months
No offense but if u cling on to your agab and care about it so much that u bring it up whenever someone disagrees with u why even be trans
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@dysautonomian
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3 months
@NBedera Bodily autonomy has only ever been for ableds. They have never cared about the rest of us. As someone with severe allergies, everyone who ever claimed to love me tried to kill me to prove to me i didn't have the disorder my doctor diagnosed me with. They don't see us as human.
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@dysautonomian
hello, and i am all colors clay
2 years
@darshuio This is also why some people need glasses and why vision typically worsens with age! When tissue mineralizes, it shrinks up and pulls on everything around it. Eyeballs are VERY squishy and easily distorted!
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@dysautonomian
hello, and i am all colors clay
2 years
@elisaperego78 For all this research I haven’t met anyone who’s been helped. All of this research has also been done while excluding the reality of the innate immune system and mast cell disease, which are key to long covid and which medicine always excludes Capitalism inherently harms the IIS
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@dysautonomian
hello, and i am all colors clay
2 years
@USGovCrisis @SarahOC_MECFS Yes, mental health has been weaponized to deny people healthcare, gaslight them, and rob them of quality of life
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@dysautonomian
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5 months
@philaheather They're always like "no other disorder is treated like this" OH REALLY lmao
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@dysautonomian
hello, and i am all colors clay
2 years
@FlorenceOfLabia @BluesteinLinda in the US at least we basically need to scrap the FDA and replace it with something that serves the actual humans involved
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@dysautonomian
hello, and i am all colors clay
2 years
@Theholisticpsyc It's especially important to understand that when they're trying to regulate their nervous system, what they're most directly trying to regulate is their inflammatory response. Neurodivergent people inherently have an overpowered inflammatory response that's harder to regulate!!
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@dysautonomian
hello, and i am all colors clay
5 months
i see trans women in the crowd the tweet i'm actually referencing came from who DEMAND all the same privilege they had when they were perceived as cis men. they literally demand supremacy over FTMs, demand we submit. it's why i don't engage with the trans community anymore
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@dysautonomian
hello, and i am all colors clay
2 years
@OrobasGacinovic Every boss I've ever had has made a joke about how I deserve to die for being disabled. Incidentally every boss I've ever had has also told me I totally saved their ass. They don't see any problem there.
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@dysautonomian
hello, and i am all colors clay
11 months
@SharpyRokOut Your DNA is actually completely meaningless--many people are intersex and genuinely have no idea--but yes, transgender hormone therapy absolutely does change your skeleton all over. Unless you have experienced medical transition, you don't actually know what you're talking about
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@dysautonomian
hello, and i am all colors clay
2 months
@joeolivermd Why are normies all such weird mouth-obsessed perverts
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@dysautonomian
hello, and i am all colors clay
5 months
@BlackVelvvett It really calls into question how we think of hardy vs sickly people. We assume those who never get cold/flu symptoms have a strong immune system. In reality, no symptoms when you're exposed to a pathogen is a weak immune system. Millions who think their IS is 💪 are wrong
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@dysautonomian
hello, and i am all colors clay
5 months
@DXvi79 It's like saying "Oh, so our food isn't GOOD ENOUGH FOR YOU, HUH" to someone who brings their own food to a party because of severe allergies. Ableds simply cannot understand that we're not all medically identical and are deeply offended when you do something they don't need to.
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@dysautonomian
hello, and i am all colors clay
2 years
@inurashii I’m transmasc but 5’3 so still wear my “girl” clothes, though my body reads as male. This one guy used to chase after me all the time screaming, “That is not a woman!!!!” I still laugh about it to this day. good job, buddy, you got it right!!!!
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@dysautonomian
hello, and i am all colors clay
3 months
@StashColTV One cool thing ableds don't seem to know is that you can actually just...have brunch at home! Mimosas are way cheaper when you make them yourself!
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@dysautonomian
hello, and i am all colors clay
2 years
@acceptanxietyuk @Theholisticpsyc i say that to say two things: 1. post viral illness can also cause it in addition to psychosocial trauma 2. if therapy doesn't help you stop obsessing so much over things, you need to medically control histamine better. histamine is 75% of PTSD/CPTSD
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@dysautonomian
hello, and i am all colors clay
4 months
@DonEford For those of us who aren't lucky enough to have someone else, the real torture is knowing we'll spend the rest of our lives in solitary confinement because no one else values our lives...not just seeing others lose. I'm so tired of the narrative always centering those w/ family
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@dysautonomian
hello, and i am all colors clay
1 month
@Unpop_Science This is only one major issue with dairy lobbying. There's one that's been going on FOR DECADES. everyone is still oblivious. Dairy heavily advertises the benefits of calcium for healthy bones, right? Well, what if I told you that too much calcium is FAR worse than not enough?
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@dysautonomian
hello, and i am all colors clay
2 years
@catladyactivist i don't know how i'll ever recover from the psychological trauma of so many people straight up not caring
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@dysautonomian
hello, and i am all colors clay
2 years
@imaniperry so the EPA can just continue EPAing?
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@dysautonomian
hello, and i am all colors clay
2 years
@bootyrot better: "i'll try to be patient with you for being allistic"
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@dysautonomian
hello, and i am all colors clay
2 years
@alyssaharad I’m not trying to one-up you, but please remember that many of us *already* had to live this way long before COVID was a thing. The gaslighting you have experienced the past few years, I have experienced nonstop since birth.
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@dysautonomian
hello, and i am all colors clay
2 years
@Lanson17 you should never, ever, ever waste someone's time by suggesting a hotline to them. it's the most offensive thing you could say in response to someone who's ready to kill themselves. you are just affirming that there is no help for them and that they do not matter to you.
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@dysautonomian
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4 months
@US_Pain Two more coexisting truths: I am resilient, and US pain policy is a farce designed to kill people. No one cares about your drivel. Don't bother
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@dysautonomian
hello, and i am all colors clay
7 days
@AndrewSolender @axios Why are Zionist Israelis more important to US politicians than actual US citizens? I'm literally homeless and starving, and this is what their priorities are?
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@dysautonomian
hello, and i am all colors clay
4 months
@wanderlusterers Able-bodied people are all LAUGHABLY useless and pathetic. So many people tell me they'd unalive if they had my condition...yet they still think they're stronger than me. Bro you cant even find one reason to live without cheese
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@dysautonomian
hello, and i am all colors clay
1 month
@HollytheOT Many autistic kids have a poorly known (but VERY common) disorder called superior canal dehiscence syndrome. With SCDS, the person relies on VISION for balance as the vestibular system is useless. Focusing on something tiny like eyes (and flashing lights) triggers sensory panic
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@dysautonomian
hello, and i am all colors clay
2 years
@ManyFacedDog it's wild how even in healthcare settings there is absolutely no awareness of what caution/safety means
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@dysautonomian
hello, and i am all colors clay
4 months
@ahouse4all Which means disabled people are at a huge disadvantage as our vulnerability can make relationships impossible. I've been homeless almost 3yrs. I can't have relationships because ableds would rather kill me than keep me safe. solitary confinement for my entire worthless life
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@dysautonomian
hello, and i am all colors clay
2 years
@ycsm1n She has chronically elevated histamine levels, which is incredibly common in neurodivergent people. Too much histamine literally makes eating and sleeping impossible. Histamine is the cause of mania. Covid vax made me go 45 days w/o eating or sleeping enough to count
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@dysautonomian
hello, and i am all colors clay
1 month
@HerbsandDirt Please google what tetanus does to you if untreated. It is horrifying. This is no joke.
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@dysautonomian
hello, and i am all colors clay
2 years
@e_urq Okay but as a transmasculine person there ARE still a ton of people who literally dont realize that transmasculine people exist. They have only ever heard of transfeminine people.
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@dysautonomian
hello, and i am all colors clay
2 years
@alyssaharad Because of MCAS, i need other people to take small steps to keep me safe. But no one ever has. I have literally never been able to trust anyone to make tiny changes to avoid seriously harming me. I don’t know if I will ever have a meaningful relationship of any sort.
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@dysautonomian
hello, and i am all colors clay
5 months
@simsimmaaz Yeah, they've been betrayed 150x more by previous generations than Gen x or Boomers (only 50x more than millenials tho) Blaming children for hating the people who literally destroyed the world is pathetic. You're punching down. They're punching up.
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@dysautonomian
hello, and i am all colors clay
4 months
@magicspeedwagon Kind of like how 2 afab trans people were murdered directly after the "afab trans people dont actually experience transphobic violence" discourse
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@dysautonomian
hello, and i am all colors clay
2 years
@babytheyby @MiggyStayedHome I know this is little consolation, but I live in constant fear of anaphylaxis, and luckily terror= adrenaline= basically homemade epipen. His body would likely be able to redirect blood so that he could still breathe in such a circumstance. I hope that helps a little ❤️
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@dysautonomian
hello, and i am all colors clay
2 months
@halfateaspn that's mast cell activation syndrome! it's either food or environmental allergies or a combo of both triggering it. Mast cell reactions can start up to 72 hours after exposure so it can be impossible to tell what you're reacting to
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@dysautonomian
hello, and i am all colors clay
4 months
@johnwaynec65940 Hi, I'm a "legitimately disabled person," diagnosed with mast cell activation syndrome and superior canal dehiscence syndrome before Covid. I can't participate in society on any level whatsoever because able-bodied people won't let me (it would be inconvenient.) Hope this helps.
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@dysautonomian
hello, and i am all colors clay
4 months
@talveon Just thinking about how much time i spent in therapy trying to convince myself that others didn't actually want to harm me. Turns out my anxiety was the most perceptive/realistic person in the room the whole time
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@dysautonomian
hello, and i am all colors clay
6 months
@acabthearab @MistressBlunt Yep, this is the industry people expect to save us--the ones who can't even be bothered to stop killing us. The real solutions will come from patients, not providers.
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@dysautonomian
hello, and i am all colors clay
3 months
@AnnMemmott still can't get over breathing listed as a stim. really making it obvious they wish we'd all just die 🫠
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@dysautonomian
hello, and i am all colors clay
3 months
@LolOverruled Then maybe DNC should pick a candidate worth voting for?
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@dysautonomian
hello, and i am all colors clay
4 months
@MeetJess No, because as someone born with mast cell activation syndrome, my entire life has been like this. What i'm struggling with is having my experiences, needs, and very life erased because people only care if they harm me with covid and dgaf if they murder me with toxic fragrances.
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@dysautonomian
hello, and i am all colors clay
2 years
@h_pan3 @webster wonder if he knows that peebus in bagina during menstruation between two super hetero, very married people is seen as equally bad as Butt Stuff in the bible because surprise, it was about public health, not morality now we have 🌈 running water 🌈
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@dysautonomian
hello, and i am all colors clay
5 months
@NateB_Panic The opinion that it's the mildest combined with the other recent article showing mice lacking in key immune cells had no symptoms is enlightening in a horrifying way. They know this is happening. They know it damages our immune systems and, they know most will believe their lies.
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@dysautonomian
hello, and i am all colors clay
4 months
@yungmedusa Yes, it's best to learn what you can from the app and then switch to either a physical book or come up with a code for google calendar. I have mine in google calendar as a "tolerance break" for my pain meds. Can be anything plausible
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@dysautonomian
hello, and i am all colors clay
4 months
@lmartods Can you explain what you mean by planned around the american consumer? /gen
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@dysautonomian
hello, and i am all colors clay
1 month
@Vanessa_ABee Inaccurate; cops beat their wives whether they laugh at the video or not
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@dysautonomian
hello, and i am all colors clay
2 years
@lisa_iannattone and now we know what is truly meant by "post-truth"
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@dysautonomian
hello, and i am all colors clay
4 months
@JamesThrot Not only can you generally not feel damaged organ tissue--the affected tissue becomes straight up numb. Not noticing it is a direct consequence of the damage.
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@dysautonomian
hello, and i am all colors clay
1 year
it still blows my mind that people are still confused as to why ehlers-danlos and MCAS are so comorbid MAYBE it's related to the fact that MAST cells LIVE in CONNECTIVE TISSUE!
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