My blog can be found at https://t.co/Okt2G6nylu It covers, amongst other topics, the so-called "Secret Files" on #ME (myalgic encephalomyelitis), #KarinaHansen and the #PACE trial of treatments for Chronic Fatigue Syndrome (sic). Other interests are available.

From today's AI Secret daily newsletter (always worth a read). "AI may not replace managers overnight, but it’s erasing the path to becoming one — and that’s how a talent shortage becomes structural."

I had some brief contact with Chris Patten in the early 1980's. I felt we had little in common, politically speaking. Funny how things can change so radically over time, now united by the desire for an independent, robust media landscape & an old-fashioned requirement for "truth"

2/2 According to The Register: https://t.co/meiTxzCnpy

1/2 IRONY ALERT: the UK's Department for Work and Pensions (DWP) is awarding a contract to IBM to work on AI projects. Translation: the department for work is introducing the same tools blamed for eroding jobs......

2/2 My blog is at https://t.co/Okt2G6nylu I stepped back from active advocacy 3 years ago but continue to monitor events/developments re. the #ME community, esp media handling & strategic affairs. Decades of stigma, neglect & abuse must be addressed before we can move forward.

1/2 Today is #SevereMEDay Despite recent events we have yet to change an entire culture, as I've detailed ad nauseam (link in 2/2 below). Only then will proper funding, research/education/health & social care start to catch up. History matters: screenshot from post 10yrs ago.....

2/2 "The US, which had already dropped down to a 'problematic' overall rating, fell a further two spots from its 2024 position to 57th place, immediately behind Sierra Leone and Romania." https://t.co/TWvWpq6t0i

🧵 1/2 Link in second post: RSF downgrades global press freedom index to all-time low: "The global average press freedom score has fallen for the first time into RSF's 'difficult' territory." UK at no 20. Should do better than this.......

My website https://t.co/wIYdBjm870 has recently experienced an increase in traffic, causing it to slow down when downloading documents. I've been checking it periodically and it is still working but you may need to be patient & try more than once. Apologies for any inconvenience.

Link to blog home page: https://t.co/wIYdBjm870 Link to series of posts on the "secret" files: https://t.co/ctH25NDLH2 Link to DSS/DWP file: https://t.co/kNC57Kw0aB Link to MRC file:

There's been some recent discussion on social media re the "secret" files on #ME which has included some misinformation. For clarification: I got both files (DSS/DWP & MRC) opened up in 2012 (using FOIA 2000) & published on my blog. Still some redactions but most info available.

This is a good example of why an alliance of #ME charities/groups shd retain appropriate law firm on permanent basis (& shd hv done so way before now). @MEAssociation @actionforme @MEActNetUK @MEResearchUK @Invest_in_ME All kudos to #LongCovid groups for this proactive strategy.

Excellent letter to @GwynneMP from solicitors representing #LongCovid groups regarding airborne transmission of virus (pp 2&3 in comments) This is great example of how campaign groups can use proactive legal routes to advance their concerns. #ME & #mecfs communities shd take note

Not suggesting mask-wearing mandatory (not everyone able/willing) but disappointed that simple gesture reducing transmission of airborne viruses not actively encouraged esp in healthcare settings. Keeping distance/improved ventilation better but not available in all public spaces

Just returned from routine outpatient screening (yes on a Sunday afternoon). Apparently the UK is in the middle of a "quademic". We wore masks. Not one single other person in the hospital, patient or HCP, was masked up. How many more potentially preventable deaths will there be?

"This is an extinction-level event for the idea of objective truth on social media". https://t.co/L2isdLAOdp

Wishing everyone peace and joy in the festive season and for the coming year.

4/4 I am awaiting comment from a representative of the Charity. If one is forthcoming, I will add it here. Thank you @lammas_leaves @NickyProctor

3/4 .....a charity which avoids external scrutiny. Opening up access to this AGM would have been a way of reassuring other community members of the ME Association's commitment to operating with transparency and in accordance with the recommendations of the Charity Commission."

2/4 I replied: "Given the current spotlight on its governance, it is very disappointing that the longest-serving major ME charity chooses to exercise its discretion to deny AGM access to other stakeholders in the ME community. Many stakeholders may prefer not to subscribe to...