From December 2nd, every donation to the ME Association will be doubled for one week only!   Help us fund a research study looking at post-exertional malaise (PEM) and bring hope to thousands of people with ME/CFS and also Long Covid.   Find out more and sign up for a reminder to

@CarersUK Carers UK say: "Carers should not have to miss out on support designed to reduce some of the pressures caring can bring. Whether they care 24/7 or juggle care with work and family life, are new to caring or have been for many years, and wherever they live in the UK – all carers

Carers Rights Day is just around the corner! This years Carers Rights Day theme is 'Know your rights, use your rights', and will take place on Thursday 20th November. Find out more: https://t.co/jwaPNtUgQ4 Image credit: @CarersUK  #MECFS #pwME #LongCovid #Carers

The perfect stocking filler! ME Association Notelets - £3.50 for 8, free UK delivery Support the ME Association while giving a thoughtful gift this winter with our ME Association notelets. Each pack comes with 8 notelets and envelopes, and you can choose either beautiful flower

This year, we are doing the BigGive to raise funds for a new research study, looking at what happens in the muscles, at a cellular level, when a person with ME/CFS experiences Post-Exertional Malaise (PEM).   The BigGive means that all money donated during 2nd-9th December is

Reluctant runner Jack Hewitt completed the last of his Eight for A Mate marathons in Australia on Saturday – totally breaking through his £20,000 fundraising target for the ME Association and ME/CFS Australia.  Find out more: https://t.co/w2WIN5vPSe #MECFS #pwME #MEAssociation

.#Germany: Research funding for #PostInfectiousDiseases will receive 500 million Euros Read more here (translation is available on Google browser): https://t.co/SL9Hqy4Qm1 #MECFS #MyalgicEncephalomyelitis #LongCovid

The Morten Group: Hub for ME/CFS Research into Biomarker Research and Understanding the Biology of ME/CFS    Since 2016, the ME Association has funded various projects at the University of Oxford under the leadership of Professor Karl Morten.  The current project at the

MP Tessa Munt has tabled ME/CFS debate in Westminster Hall this week - template letter with important points from Dr Charles Shepherd Please write to your MP (via email) and ask them to attend the debate on Wednesday 19th November at 4.30pm. https://t.co/8RFKuQKHNC #pwME

*Welsh Senedd Debate on Severe and Very Severe ME* DEBATE POSTPONED AGAIN - TO 10TH DECEMBER! We’re sorry to report that there’s been a further postponement of the Welsh Senedd Debate on Motion 8884 – Severe and Very Severe ME - to be led by @Adamprice . 1/5 #pwme #severeme

Our 'Eight For A Mate!' Marathon Man Reaches Out for his Final £20,000    Cross your fingers for runner Jack Hewitt who hopes to complete the final stage of his Eight for A Mate series of marathons in Australia today – while reaching his £20,000 fundraising target for the ME

One of the free literature items available on our website is this review of research studies into PEM (Post-Exertional Malaise) in ME/CFS and Long Covid: https://t.co/OstF1F38ND #pwME #MECFS #LongCovid #PEM #MEResearch #LongCovidResearch

PoTS UK says: "Have your say – help us create the PoTS Passport! This document can be filled in and taken to appointments, or embedded in your hospital notes for inpatient stays or surgery. Our hope is that it will help ensure the people in charge of your care understand

Patient Caregiver Artist Coalition (PCAC): Jeremy Jeffs on Photographing ME and Ethical Collaboration "Diagnosed with Myalgic Encephalomyelitis (ME) in 1987, Jeremy brings lived experience to his creative work. Over the past three years he has been photographing people living

Jersey: Bailiwick Express: Decade-old ME/CFS guidelines considered not “fit for purpose.” Jersey resident with severe fatigue, limited work capacity, and reduced ability to carry out daily activities, argued that the guidelines greatly underestimate the impact of ME/CFS compared

2/2 Also covered in Nursing in Practice (link below) entitled: Fresh call to recognise long Covid as occupational disease for nurses https://t.co/8MIh396M7f #LongCovid #PostCovid #OccupationalDisease #BMA #RCN

1/2 BMA: ‘Unconscionable’ that the Government has not recognised Long COVID as an occupational disease, warns BMA and RCN https://t.co/dOBVi6h7Yb

The ME Association is currently funding a proof-of-concept clinical trial to develop and test a Personalised Dysautonomia Management Protocol (DMP) for people with ME/CFS and Long Covid. Find out more: https://t.co/atgx5ikgNG   Other research projects we’re funding:

Read more about the project:

Want to find out more about LDN(Low Dose Naltrexone), and the research the ME Association is funding?  Watch our interview with Dr Luis Nacul, principal investigator for this clinical trial:  https://t.co/hGXOGuoYRs   #MECFS #LDN #RamsayResearchFund

Find out more about the project: