ME Association
@MEAssociation
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We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Gawcott, Bucks, for all UK
Joined December 2009
NICE release a new Clinical Knowledge Summary (CKS) on ME/CFS . Clinical Knowledge Summaries provide primary care practitioners with a readily accessible and brief summary of the current evidence base on a condition along with practical advice on diagnosis and management. The new
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RT @MEResearchUK: Amy Woodget has hosted an incredible Garden Tea Party! . “We had nearly 90 people attend, who were super generous. So muc….
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Thanks so much for your support Amy @Amy_Woodget!.Ninety guests enjoy Amy's biomed garden party | ME Association blog | 9 July 2025:.#Bromsgrove #mecfs #NaturalEngland #MEresearch.#MEResearchUK #MEAssociation.
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NB: The MEA is currently funding research into LDN - you can find out more here:
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Health Central: “My Journey With Long COVID”. "I’ve had to make conscious trade-offs. I can’t do everything at 100%, and I’m going to try to prioritize my energy for my kids. I try to maintain a baseline and make sure that I’m not overextending. Read more:.
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Guardian: Benefit cuts will hit severely disabled people despite ministers’ claims, say charities. "Organisations including Scope, Z2K and the MS Society say the legislation, which is due to be voted on again by MPs on Wednesday, fails to account for disabilities if they are.
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Health and Care Scot: Scotland’s ‘invisible’ patients and carers. Neurological Alliance of Scotland have released a new report, ‘Today's Challenges, Tomorrow's Hope', gathering insights on the experience of neurology patients in Scotland, including people with ME/CFS. Find out.
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Medical Matters – Sarcopenia and ME/CFS. Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA. Q: What is sarcopenia and how does it impact older people with ME/CFS?.A: Search the free information
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ICS ‘Can Do’ Health and Care Awards 2025 event took place on Friday 4 July 2025. Alexis Johnys, NHS Suffolk and North East Essex ICB was Highly Commended for her coproduction excellence in achieving the endorsement of a new integrated and combined ME/CFS and Long Covid Service.
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July is Disability Pride Month - A chance to celebrate diversity, promote inclusivity, and spread awareness. A time not only to highlight the issues disabled people face but also a month to show support to one another. ME/CFS and Long Covid are life-altering illnesses, although
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2/2 "We found 45% of LC cases that were associated with a greater number and duration of acute-phase symptoms. Cardiovascular and/or gastrointestinal symptoms in the acute phase were associated to protection against LC development, while pulmonary, otorhinolaryngological,.
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1/2 Nature: Protective role of anti-SARS-CoV-2 antibody responses against vital organ related long COVID symptoms. A new paper in Nature reports on the relationship between acute phase Covid symptoms, and the development of Long Covid. Read more:
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Back to the golden age of disco - Steve Heald books 'Odyssey' to play Bournemouth for our research fund on Saturday, 2nd August.#Odyssey #bournemouth #MEAssociation #ramsayresearchfund #MECFS #steveheald #keywest #bournemouthpier.
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The UK ME/CFS Biobank have sent #MECFS samples around the world to researchers working on the next important breakthroughs. Join this global effort by applying for some of the biobanks free ME/CFS samples, available until the end of this month. Details:
👨🔬 👩🔬 We always want to support early-career researchers with the next breakthrough in #MECFS research. 🧪 That’s why we’re offering researchers free ME-CFS samples to help your projects, PhDs & publications. Send your application by 31 July 🔽.
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RT @DPACSheffield: 'Therefore, we feel the estimated prevalence of people with a potential diagnosis of ME/CFS could be as high as 1.35mill….
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RT @MEAssociation: The founder of the York ME Community Group, Bill Clayton @clanman3, has been honoured with a book that shows his dedicat….
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RT @MEAssociation: Summer's here!. The world-renowned Odyssey are playing Bournemouth Pier in aid of the ME Association on Saturday 2nd Aug….
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Read the addendum to the blog: #MECFS #pwME #LongCovid #MEAssociation #WelfareCuts #ListenToME #TakingThePIP.
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Ella Smith, MEA Welfare Rights Consultant, has written a blog explaining the what the Universal Credit and Personal Independence Payment bill is about, what changes to the bill are being considered, and why it matters for people with ME/CFS and Long Covid.
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Literature Review: T cell exhaustion as a possible driver of post infection fatigue syndromes. This new paper contains a literature review of this important aspect of immune system dysfunction in ME/CFS. T cell exhaustion is an aspect of immune system dysfunction that is being.
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The Kumar and Clark Medical Textbook has been updated for 2025, and Dr Charles Shepherd states that the new ME/CFS entry is even worse than the previous edition. We will be writing to the publishers about the revised entry. Read more about the situation:
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