1/5. We've updated our 'Manifesto for ME' - now 'Act For ME'. We've sent the updated doc to all MPs, asking them to #ActForME & pledge support for our 3 key calls (see thread below). We've also created a template letter for you to send to your local MP, asking for their support

🚨 Organisational statement . We have provided a statement on our use of the platform 'X', which is available to read on our website 👇. . #pwME #MECFS #MyalgicE

Thanks so much for all your support @dannyjred.

🚨 Recording available. The recording from our 2024 AGM is now available 👇. Also available on our YouTube channel 📹. Thank you to all who attended & submitted questions – we really hope the session useful & informative. #pwme #MECFS #MyalgicE

We’re delighted to announce @JoPlattLeigh MP as the newest member of our Parliamentary Champions network! 🎉. We’d like to thank Jo for her commitment to support #pwME & #longCovid & we very much look forward to working with her 🤝

🚨 Recording available. The recording from our Genetics Centre of Excellence webinar is now available to view (also available on our YouTube channel) 👇. Thanks to everyone who attended and helped make this happen!. #MECFS #MyalgicE #pwME #MEResearch

Together, with over 60 organisations, we signed Turn2Us' open letter to the Chancellor ahead of the budget announcement today, calling for a more compassionate and just narrative around those receiving the social security that they are entitled to 👇 .

RT @KarenLHargrave: Today we've sent a #ThereForME letter, co-signed by 28 organisations and smaller initiatives, to @LaylaMoran @Commons….

RT @KateFordTimes: If you can, please listen to today’s episode of #thestory. It’s a tough listen, but it’s important. We’re immensely grat….

The government has called for patients, organisations, and NHS staff to share their ideas to make the NHS fit for the future. We’ll be responding to this request organisationally and will be sharing our submission online. You can take part too-

🚨 Our 2023-24 Annual Report is now available. You can read more about our work in supporting #pwME using the link below 👇. . A special thank you to the wonderful artist Maya & Ink for the front cover!. #MECFS #MyalgicE

*Trigger Warning: Severe ME and death*.The Guardian: Maeve Boothby O’Neill died because of a discredited view of ME. Full article: #MECFS #pwME #MyalgicE #severeME

Learn about ME is funded by @scotgov and delivered in partnership by Action for ME, the @MEAssociation & @meactionscot to promote Dr Nina Muirhead's highly-rated @StudyPRN #MedEd module on #MECFS & produce insightful podcasts and webinars.

On 26 Sep, Dr Nina Muirhead & Dr Robin Kerr led a free #LearnAboutME webinar for GPs. ✅ c.50 🩺 profs registered & sent presentations.✅ 100% more confident supporting #pwME after. Recordings, slides & transcripts below 👇. #MECFS #MyalgicE #GPEducation

Submit your masterpiece by 18 November. Visit our website to find out how to get involved: #MECFS #MyalgicE #MyalgicEncephalomyelitis #LivingWithME.

There are two entry categories, 18s & under & adults, so let your imagination run wild with Christmas magic! 🎅🎨. Winning cards will be chosen by the Action for ME team & announced on 29 Nov. Winning designs will be available to purchase, helping make a difference to #pwME.

🎄✨ Calling all creatives – our Christmas ecard competition is back! ✨🎄. Get your pens, pencils, brushes, digital tools & any other materials ready (you can use whatever you like!) - starting from 14 October, we are inviting you to design your very own festive ecard!

RT @TomKindlon: UK Action for ME @actionforme Genetics Centre of Excellence webinar. 24 October, from 2 to 3 pm hosted by AfME, speakers in….

To read more about the TCS London Marathon record: If you’re interested in fundraising for us, visit our website: #MyalgicE #MyalgicEncephalomyelitis #LivingWithME #Fundraising #LondonMarathon2024.

Here at Action for ME, we are so incredibly grateful to our wonderful runners & supporters who took part in the 2024 event, & are a part of this outstanding achievement!. Your invaluable efforts help make a difference to #pwME – we couldn’t do what we do without you 💙.