NickyProctor
@NickyProctor
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Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
York, uk
Joined November 2010
December 19th. Thank you for being #ThereForME, Joan McParland MBE @hope4mefibroni! Joan is the founder and coordinator of Hope 4 ME & Fibro Northern Ireland. Nominated by Rebecca. ✨
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2) This will be the sixth year that we're making these yearly overviews of ME/CFS research. You can reread our previous write-ups on our website: https://t.co/obs8TcCq9r
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It's not too late to order our book for Xmas! We are still really proud of the reviews and are so pleased that #pwme and all #hcps have found it useful not just #physios. @PhysiosForME
@thecsp @WorldPhysio1951
https://t.co/7VEzAf4wfU
physiosforme.com
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https://t.co/trcxbc8qtN A reminder to hcps - please fill out this survey before Xmas if you are living with #LongCOVID or #ME - esp need radiographers, paramedics, orthoptists, prosthetists, podiatrists and dentists thanks @PhysiosForME
physiosforme.com
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Coming in 2026: a hybrid online/in-person continuing professional education course for clinicians. Looking forward to being able to work with any groups who are interested in spending a little prep time and a day on their weekend exchanging ideas and working on new competencies.
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@IainBritton @1goodtern @EmmaJaneWallace No problem. I’m really sorry the public health messaging around this had been to awful & confusing. Unfortunately the current NHS IPC guidelines have STILL not been updated to reflect the science that shows irrefutably that SARs2 like other resp pathogens had airborne 1/
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Long COVID Resources: I have been uploading and organizing research, handouts and information on Long COVID and associated conditions. It's a work in progress, if you have helpful materials to add or suggestions, please reach out: https://t.co/OBOr9CycIa 💙
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Finally! Thank you @BBCFergusWalsh for saying what the official NHS Infection Prevention and Control Guidance doesn’t - that baggy blue surgical masks don’t keep you safe from flu viruses. He advised to use proper FFP3 respirator masks. And stay home when sick. Both great advice.
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Thanks to @RachaelMaskell for being #ThereForME for York central constituents, and beyond! 🙏 And as ever huge thanks to @KarenLHargrave and the @ThereForME_UK for their continuing excellent advocacy work! 🥰
🔎 Some interesting (and depressing) responses recently to questions in parliament on severe and very severe ME. First up, this question from Baroness Scott revealed the criteria that will be used to decide whether a specialised service is commissioned for v severe ME
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#Oliverscampaign Thankyou @wesstreeting for ordering this public enquiry into the countless avoidable & often negligent deaths @TEWV
https://t.co/TtGtv47rhs
theguardian.com
Health secretary announces investigation into Tees, Esk and Wear Valleys trust that has seen young patients take their own lives
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Good info on dysautonmia here. It’s not what the average GP would tell us! How we get tested in the U.K. and how we can encourage the NHS to provide IVs is another matter! #ME #LongCovid
Medication categories for dysautonomia: Treatment depends on the subtype and the underlying physiology of the autonomic dysfunction. Here are the main groups: 1/
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Great to see this published and out there. It's a simple paper that shows us that folks with #LongCOVID, #MECFS and other complex chronic illnesses can benefit from using symptom tracking apps like @visible_health, designed FOR patients, BY patients. https://t.co/UnaQOrKL1Q 1/
frontiersin.org
IntroductionComplex chronic illnesses like Long Covid (LC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) are marked by fluctuating symptoms...
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@JoshMacAlister (UK Minister for children & families) acknowledges that C0VID & flu are airborne. With the right mitigations we could protect people better; whether this is children & staff in schools or patients & staff in medical settings.We would love to see places made safer
Written response to my excellent MP @IanMurrayMP from @JoshMacAlister (Minister for Children and Families, UK). UK gov knows SARS-2 like SARS-1 is primarily airborne.
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M.E./C.F.S is lifelong. Stop harmful reassessments. Recognise it under the Severe Conditions Criteria. #SCCforME @DWPgovuk @stephenctimms @patmcfaddenmp #MEcfs #pwME #Disability Campaign info - https://t.co/7gTSXydGxd
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Please take ten minutes, if you have them, to take part in this one-day campaign by @StripyLightCIC Excellent resources means it was quick and easy to do. @LongCovidAdvoc @NickyProctor @Naomi_D_Harvey @sunsweptforest
Please take part tomorrow if you are able to. Info, and 'Starter Pack' (templates and graphics) can be found here - https://t.co/tPMEulaq9g
#pwME #MEcfs #SocEnt #Carers #Politics
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👋Facebook friends 3 months ago my Facebook account was wrongly disabled by @Meta & I've been unable to get it reinstated @CaroleBruce17 has kindly shared an📧on FBook which can be sent to Meta on my behalf by those who feel able to Very grateful to everyone for your help💙
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Debate on Severe & Very Severe ME on Wednesday Dec 10th in Wales. 🏴
It’s finally here! @Adamprice , MS, will be presenting the debate on Severe / Very Severe ME https://t.co/uwbj5xYiyC Contributions from other Senedd Members make up over half of the hour-long debate. So - Get your voice heard! 1/3
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Survey for healthcare practitioners with ME/CFS or Long Covid.
https://t.co/trcxbc8qtN 150 responses in 2 weeks. Thank you all for completing. Just a reminder that it is open until 31st Dec and it allows for pacing (can save responses and cont at another time). Please share widely. Still some professions not reached @PhysiosForME
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https://t.co/trcxbc8qtN 150 responses in 2 weeks. Thank you all for completing. Just a reminder that it is open until 31st Dec and it allows for pacing (can save responses and cont at another time). Please share widely. Still some professions not reached @PhysiosForME
physiosforme.com
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@LongCovidReigns @visible_health CrunchME has a database of clinical trials with any BPS nonsense stripped out - and if we've missed something, if you flag we will review and remove if appropriate: https://t.co/myIMg8MOpW We will also be considering a 'near me' feature with location search on our site🔍
crunchme.notion.site
Lead Contributor: Lisa Kava | Last Update: 2025-08-09 | Made available under the Open Database License (ODbL)
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