CSF Leak Association
@csfleakuk
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The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
Scotland, England, Wales & NI
Joined April 2016
Over on our Instagram, Facebook, & LinkedIn (links in bio) you can view the full set of the graphics. For further information - including more details around what a CSF Leak is, methods of donation, and the link to our Shop, please check out our website: https://t.co/FrqJFOcF87
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๐จ New Paper Alert ๐จ Do you want to know more about rebound intracranial hypertension after CVF venous embolization? Read the latest from @DukeRadiology @DukeNeurorad
https://t.co/mabEDDCAU0
@issclsociety @The_ASSR @nbefera
ajnr.org
BACKGROUND AND PURPOSE: Cerebrospinal fluid-venous fistulas (CVF) are a common cause of spontaneous intracranial hypotension (SIH) and can be treated with transvenous embolization (TVE). Rebound...
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Huge thanks to @PeterGKranz, @MCWNeurorad for pushing forward understanding of #CSFleaks. Your dedication is truly life changing for patients๐
Welcome @PeterGKranz to @MCWNeurorad! Neither the inclement weather nor the flight delays - nothing could stop you from your commitment to educate the world and us on #CSF leaks @csfleakuk @csfleakinfo!! Thank you for your visit. @APKleinNeurorad @DarrenONeuroRad @MohitTCCNeuro
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"Enhancing Clarity in Dynamic Myelography Reporting: Results of a Survey of Patients and Referring Providers Evaluating a Standardized Reporting System in the Myelographic Work-Up of Patients with Suspected Spontaneous Intracranial Hypotension" https://t.co/JN4HgE7aF9
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๐ฃWorld Radiology Day Celebrating the vital role of radiology in diagnosing and treating CSF leaks. ๐We thank all those working to make advances in this field. Your expertise is transforming lives๐ #Neurology #Neuroradiology #CSFleak
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Some lateral CSF leaks are diminutive but others are more sizable. Childhood orthostatic headaches and recent leg weakness. Imaging shows a lateral CSF leak from the left L1 nerve root that was caused by an aberrant artery of Adamkiewicz piercing the dura. โฆ@spinalCSFleakโฉ
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Venous Angioplasty and Stenting as a Novel Therapeutic Strategy for Orthostatic Hypotension: A Retrospective Review https://t.co/5i0MsRpj88
#mdpijvd via @MDPIOpenAccess
mdpi.com
Background: Orthostatic hypotension (OH) is identified by a significant decrease in blood pressure upon standing from a seated or supine position. A reduction in systolic blood pressure of 20 mmHg...
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It's a condition you may not have heard of - with truly devastating effects. Learn more about the reality of CSF leaks and why more research and funding is urgently needed. Watch the new documentary, which launches on 03 December via our YouTube channel. #CSFleak
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Breakthroughs in neuroscience research and treatment are transforming whatโs possible, but without the right workforce in place, those innovations may never reach the people who could benefit. Thatโs why weโre calling for change together. https://t.co/dim3Dj9NlN
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Refractory IIH with CSF Rhinorrea treated with Venous sinus Stenting successfully @ManipalHealth Venous Manometry showed pressure gradient of 11mmHg. VSS is 2nd line of management in IIH and it deserve better recognition. Technically very simple #IIH #Neuroradiology #Neurology
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#OnlineFirst: Unraveling the cause of microspurs in spontaneous intracranial hypotension type 1: discogenic origin or calcified Hofmannโs ligament? https://t.co/ucN57ZVorE
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"๐๐๐ฏ๐ข๐ ๐๐ญ๐ข๐ง๐ ๐๐๐๐ข๐๐ญ๐ซ๐ข๐ ๐๐ฉ๐ข๐ง๐๐ฅ ๐๐๐
๐๐๐๐ค: ๐๐ง๐ฌ๐ข๐ ๐ก๐ญ๐ฌ ๐ข๐ง๐ญ๐จ ๐๐ข๐๐ ๐ง๐จ๐ฌ๐ข๐ฌ ๐๐ง๐ ๐๐๐ซ๐" ๐๐ซ๐๐ฌ๐๐ง๐ญ๐๐ ๐๐ฒ: ๐๐ซ. ๐๐๐ฌ๐ก๐ ๐๐๐ซ๐ญ๐ข๐ง๐๐ณ, ๐๐ ๐จ ๐
๐๐๐ ๐ช๐ฒ๐ฏ๐ถ๐ป๐ฎ๐ฟ - ๐ฅ๐ฒ๐ด๐ถ๐๐๐ฒ๐ฟ ๐ต๐ฒ๐ฟ๐ฒ: https://t.co/NqsTIIo6JF
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Brilliant reflections and a powerful source of hope for everyone affected by a CSF leak. This progress is changing lives๐
Iโve been reflecting on advances in spinal CSF leak care over the past five years โ and I truly believe it represents one of the most rapid and transformative evolutions in modern medicine.
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At Clarity Brain & Spine, we believe mentorship, empathy, and health equity are the foundation of progress in medicine. Together, we can build pathways that uplift every voice in neuroscience. ๐ถ ๐ค ๐ต #Neurointervention #WomenInMedicine #HealthEquity
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ALL STAR line-up @The_ASSR New Orleans 2026 meet- MULTIPLE CSF leak sessions ๐คฉ๐๐พ join me & experts @Niklas_Luetzen @AndrewCallenMD @AjayMadhavanMD @Eikeip @WouterSchievink @MarkMamloukMD @iantmark @MalinzakMichael @Federicoca36019 @LeviChazen @dgleao @nbefera @ZanderCharlotte ๐๐พ
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Chronic treatment with prednisone, dexamethasone, and methotrexate for โidiopathic hypertrophic pachymeningitisโ in a patient with second half of the day headaches and normal CT-myelogram. CSF-venous fistula at T8 Shouldโve read โฆ@PeterGKranzโฉ10 myths โฆ@spinalCSFleak
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Weโre calling for urgent action @10DowningStreet @DHSCgovuk to fix the neuro workforce crisis, inc. a Modern Service Framework (MSF) to define what good looks like in neurosciences & the workforce to deliver it. Share to show your support. https://t.co/AaDNaRi82R
#NHS
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๐๏ธ๐ Critical Reappraisal and Validation of the Bern Score System for Diagnosing Spontaneous Intracranial Hypotension โน๏ธ The authors assessed both sensitivity and specificity in an East Asian cohort. โ๏ธ Soyoun Choi et al. #spinalCSFleak #CSFleak #SIH
https://t.co/7szby7o4eY
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How useful are probabilistic SIH scoring systems in daily practice? A source of ongoing debate! CSF leak expert @AjayMadhavanMD takes us through a pragmatic approach to cases & what his latest work adds to this ๐คฉ ๐๐พ@TheAJNR @spinalCSFleak @issclsociety
https://t.co/Y8SL2ITt4R
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๐ #POTSAwarenessDayย ๐ โCSF leaksย can mimic or triggerย POTSโย ๐ฉUpright headacheย = red flag forย CSF leaksย โค๏ธHeart rate increase >30bpm on standing =ย POTSย ๐งSome haveย both conditions, complicating diagnosisย โ๏ธupright headache think CSF leaksโ๏ธ ๐ https://t.co/UfTG0wvDBl
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