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CSF Leak Association Profile
CSF Leak Association

@csfleakuk

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The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.

Scotland, England, Wales & NI
Joined April 2016
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@csfleakuk
CSF Leak Association
4 months
Over on our Instagram, Facebook, & LinkedIn (links in bio) you can view the full set of the graphics. For further information - including more details around what a CSF Leak is, methods of donation, and the link to our Shop, please check out our website: https://t.co/FrqJFOcF87
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@csfleakuk
CSF Leak Association
9 hours
Huge thanks to @PeterGKranz, @MCWNeurorad for pushing forward understanding of #CSFleaks. Your dedication is truly life changing for patients๐Ÿ™
@MCWNeurorad
MCW Neuroradiology
10 hours
Welcome @PeterGKranz to @MCWNeurorad! Neither the inclement weather nor the flight delays - nothing could stop you from your commitment to educate the world and us on #CSF leaks @csfleakuk @csfleakinfo!! Thank you for your visit. @APKleinNeurorad @DarrenONeuroRad @MohitTCCNeuro
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@TheAJNR
AJNR
2 days
"Enhancing Clarity in Dynamic Myelography Reporting: Results of a Survey of Patients and Referring Providers Evaluating a Standardized Reporting System in the Myelographic Work-Up of Patients with Suspected Spontaneous Intracranial Hypotension" https://t.co/JN4HgE7aF9
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@csfleakuk
CSF Leak Association
3 days
๐Ÿ“ฃWorld Radiology Day Celebrating the vital role of radiology in diagnosing and treating CSF leaks. ๐Ÿ™We thank all those working to make advances in this field. Your expertise is transforming lives๐Ÿ’™ #Neurology #Neuroradiology #CSFleak
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@WouterSchievink
WouterSchievink
3 days
Some lateral CSF leaks are diminutive but others are more sizable. Childhood orthostatic headaches and recent leg weakness. Imaging shows a lateral CSF leak from the left L1 nerve root that was caused by an aberrant artery of Adamkiewicz piercing the dura. โฆ@spinalCSFleakโฉ
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@csfleakuk
CSF Leak Association
4 days
It's a condition you may not have heard of - with truly devastating effects. Learn more about the reality of CSF leaks and why more research and funding is urgently needed. Watch the new documentary, which launches on 03 December via our YouTube channel. #CSFleak
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@NeuroAlliance
The Neurological Alliance
6 days
Breakthroughs in neuroscience research and treatment are transforming whatโ€™s possible, but without the right workforce in place, those innovations may never reach the people who could benefit. Thatโ€™s why weโ€™re calling for change together. https://t.co/dim3Dj9NlN
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@SharathKumarGG7
Dr Sharath Kumar G
6 days
Refractory IIH with CSF Rhinorrea treated with Venous sinus Stenting successfully @ManipalHealth Venous Manometry showed pressure gradient of 11mmHg. VSS is 2nd line of management in IIH and it deserve better recognition. Technically very simple #IIH #Neuroradiology #Neurology
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@TheJNS
Journal of Neurosurgery
7 days
#OnlineFirst: Unraveling the cause of microspurs in spontaneous intracranial hypotension type 1: discogenic origin or calcified Hofmannโ€™s ligament? https://t.co/ucN57ZVorE
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@SpinalCSFCanada
Spinal CSF Leak Canada Charitable Organization
6 days
"๐๐š๐ฏ๐ข๐ ๐š๐ญ๐ข๐ง๐  ๐๐ž๐๐ข๐š๐ญ๐ซ๐ข๐œ ๐’๐ฉ๐ข๐ง๐š๐ฅ ๐‚๐’๐… ๐‹๐ž๐š๐ค: ๐ˆ๐ง๐ฌ๐ข๐ ๐ก๐ญ๐ฌ ๐ข๐ง๐ญ๐จ ๐ƒ๐ข๐š๐ ๐ง๐จ๐ฌ๐ข๐ฌ ๐š๐ง๐ ๐‚๐š๐ซ๐ž" ๐๐ซ๐ž๐ฌ๐ž๐ง๐ญ๐ž๐ ๐›๐ฒ: ๐ƒ๐ซ. ๐Œ๐ž๐ฌ๐ก๐š ๐Œ๐š๐ซ๐ญ๐ข๐ง๐ž๐ณ, ๐Œ๐ƒ ๐Ÿšจ ๐…๐‘๐„๐„ ๐—ช๐—ฒ๐—ฏ๐—ถ๐—ป๐—ฎ๐—ฟ - ๐—ฅ๐—ฒ๐—ด๐—ถ๐˜€๐˜๐—ฒ๐—ฟ ๐—ต๐—ฒ๐—ฟ๐—ฒ: https://t.co/NqsTIIo6JF
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@csfleakuk
CSF Leak Association
8 days
Brilliant reflections and a powerful source of hope for everyone affected by a CSF leak. This progress is changing lives๐Ÿ’™
@MarkMamloukMD
Mark Mamlouk
9 days
Iโ€™ve been reflecting on advances in spinal CSF leak care over the past five years โ€” and I truly believe it represents one of the most rapid and transformative evolutions in modern medicine.
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@MeshaMartinezMD
MeshaMartinezMD
10 days
At Clarity Brain & Spine, we believe mentorship, empathy, and health equity are the foundation of progress in medicine. Together, we can build pathways that uplift every voice in neuroscience. ๐ŸŽถ ๐ŸŽค ๐ŸŽต #Neurointervention #WomenInMedicine #HealthEquity
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@NeuroradLal
Lalani Carlton Jones
12 days
ALL STAR line-up @The_ASSR New Orleans 2026 meet- MULTIPLE CSF leak sessions ๐Ÿคฉ๐Ÿ™Œ๐Ÿพ join me & experts @Niklas_Luetzen @AndrewCallenMD @AjayMadhavanMD @Eikeip @WouterSchievink @MarkMamloukMD @iantmark @MalinzakMichael @Federicoca36019 @LeviChazen @dgleao @nbefera @ZanderCharlotte ๐Ÿ‘‡๐Ÿพ
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@WouterSchievink
WouterSchievink
10 days
Chronic treatment with prednisone, dexamethasone, and methotrexate for โ€œidiopathic hypertrophic pachymeningitisโ€ in a patient with second half of the day headaches and normal CT-myelogram. CSF-venous fistula at T8 Shouldโ€™ve read โฆ@PeterGKranzโฉ10 myths โฆ@spinalCSFleak
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@NeuroAlliance
The Neurological Alliance
13 days
Weโ€™re calling for urgent action @10DowningStreet @DHSCgovuk to fix the neuro workforce crisis, inc. a Modern Service Framework (MSF) to define what good looks like in neurosciences & the workforce to deliver it. Share to show your support. https://t.co/AaDNaRi82R #NHS
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@KerenLeah
Keren Leah
12 days
๐Ÿ†•๏ธ๐Ÿ”“ Critical Reappraisal and Validation of the Bern Score System for Diagnosing Spontaneous Intracranial Hypotension โ„น๏ธ The authors assessed both sensitivity and specificity in an East Asian cohort. โœ’๏ธ Soyoun Choi et al. #spinalCSFleak #CSFleak #SIH https://t.co/7szby7o4eY
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@NeuroradLal
Lalani Carlton Jones
15 days
How useful are probabilistic SIH scoring systems in daily practice? A source of ongoing debate! CSF leak expert @AjayMadhavanMD takes us through a pragmatic approach to cases & what his latest work adds to this ๐Ÿคฉ ๐Ÿ‘๐Ÿพ@TheAJNR @spinalCSFleak @issclsociety https://t.co/Y8SL2ITt4R
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@NeuroAlliance
The Neurological Alliance
17 days
What is a neurological condition? https://t.co/3cdUEKNRMF
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@csfleakuk
CSF Leak Association
17 days
๐Ÿ’œ #POTSAwarenessDayย ๐Ÿ’™ โ“CSF leaksย can mimic or triggerย POTSโ“ย  ๐ŸšฉUpright headacheย = red flag forย CSF leaksย  โค๏ธHeart rate increase >30bpm on standing =ย POTSย  ๐Ÿ’งSome haveย both conditions, complicating diagnosisย  โ—๏ธupright headache think CSF leaksโ—๏ธ ๐Ÿ”— https://t.co/UfTG0wvDBl
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