Thank you to everyone who participated in, attended, and contributed to the success of the 2nd Canadian SIH Conference! This event would not have been possible without the dedication of our incredible speakers, organizing committee, board members, volunteers & our sponsors.

"𝐍𝐚𝐯𝐢𝐠𝐚𝐭𝐢𝐧𝐠 𝐏𝐞𝐝𝐢𝐚𝐭𝐫𝐢𝐜 𝐒𝐩𝐢𝐧𝐚𝐥 𝐂𝐒𝐅 𝐋𝐞𝐚𝐤: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐢𝐧𝐭𝐨 𝐃𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐚𝐧𝐝 𝐂𝐚𝐫𝐞" 𝐏𝐫𝐞𝐬𝐞𝐧𝐭𝐞𝐝 𝐛𝐲: 𝐃𝐫. 𝐌𝐞𝐬𝐡𝐚 𝐌𝐚𝐫𝐭𝐢𝐧𝐞𝐳, 𝐌𝐃 🚨 𝐅𝐑𝐄𝐄 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 - 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗵𝗲𝗿𝗲: https://t.co/NqsTIIo6JF

If you’re a patient still searching for answers — or someone navigating any uncertain diagnosis — please remember: #DontLoseHope. The science is moving fast. Healing is possible. And you are not alone. 💙

I’ve been reflecting on advances in spinal CSF leak care over the past five years — and I truly believe it represents one of the most rapid and transformative evolutions in modern medicine.

Chronic treatment with prednisone, dexamethasone, and methotrexate for “idiopathic hypertrophic pachymeningitis” in a patient with second half of the day headaches and normal CT-myelogram. CSF-venous fistula at T8 Should’ve read ⁦@PeterGKranz⁩10 myths ⁦@spinalCSFleak

🧠 Join the Canadian Headache Society’s HCP Webinar Series! Topic: Spontaneous Intracranial Hypotension (SIH) 📅 Nov 21, 2025 | 12–1pm EST 🎤 Dr. Farnaz Amoozegar Register 👉 https://t.co/b41NFvHpqr #Neurology #CME #Headache #SIH

🧠 Join the Canadian Headache Society’s accredited Case Capsules for Neurologists (English webinar)! ✅ Up to 1.5 Mainpro+ / Royal College CME credits 📅 Nov 20, 2025 | 6–7pm EST 🎤 Dr Farnaz Amoozegar & Dr Tommy Chan Can’t attend live? A self-directed accredited option is

How useful are probabilistic SIH scoring systems in daily practice? A source of ongoing debate! CSF leak expert @AjayMadhavanMD takes us through a pragmatic approach to cases & what his latest work adds to this 🤩 👏🏾@TheAJNR @spinalCSFleak @issclsociety https://t.co/Y8SL2ITt4R

Systematic review in #Headache supports less emphasis on #LumbarPuncture & greater reliance on imaging when diagnosing #SIH Link: https://t.co/vQp9xjSdeR @SimyParikh @ConnieDelineMD @TimAmrheinMD @JCGneuro @PeterGKranz @marcelmaya @StephenSilbers1 @WouterSchievink et al

New study alert! Our team analyzed 100 patients with SIH and found that spine MRI diverticular patterns can reliably predict CSF-venous fistula (CVF) location — a crucial step toward more targeted & efficient myelography. Perhaps the holy grail of CVFs? https://t.co/Jv89HYIZQb

Today is #WorldMentalHealthDay, a time to raise awareness about the importance of mental health and well-being. If you are struggling, please know this:  You are not alone. We see you. Reaching out for support is a strength. #MentalHealthMatters #SpinalCSFLeak #SIH

Bridging the Gap 2025 registration is now open! This year's event is both virtual & FREE, with 4 talks that we hope advance shared understanding between physicians & patients. BTG is held in partnership with @AndrewCallenMD & @CUAnschutz. Learn more: https://t.co/e5u9ddRBBS

Seeing the unseen — that’s the challenge and the promise of imaging. My episode on Frame by Frame: Rethink Imaging explores “Detecting the Undetectable” and the evolving story of spinal CSF leaks. 🎧

Patients with #SIH often wait years for a diagnosis—but not all wait equally. Our new @TheAJNR paper explores these disparities and what they mean for equitable neurologic care. Congrats to @Mariapuello18 for leading this project! https://t.co/GD8M1zAXBK

Grateful to be part of the Canadian Headache Society Conference (Sept 26–27, Toronto)! Thank you @CanHeadacheSoc for the opportunity to highlight our mission, raise awareness of #spinalCSFleak, and connect with dedicated physicians to improving patient care.

Very nice study from Ajay Madhavan, @NeuroradLal @Niklas_Luetzen and @Federicoca36019 on the benefits of saline pressurisation for improving detection of CSF-venous fistulas at myelography in #SIH https://t.co/fR02TnnWrq

#WorldSuicidePreventionDay We stand with those living with #SpinalCSFLeak/#SIH Too often, patients struggle for years without care. This delay deepens suffering and increases risk.  Increased awareness, timely care & equity matter. 💜

Excited to share that @SpinalCSFCanada will be at the Canadian Headache Conference, organized by the @CanHeadacheSoc We’re looking forward to raising awareness, highlighting our mission & connecting with leaders in headache. Register now & join us there. ⬇️⬇️⬇️

90+% of patients we see with infratentorial superficial siderosis have an underlying spinal CSF leak. This week we saw two other causes: a IVth ventricular ependymoma (postop dural thickening from overdraining shunt) and bilateral jugular vein occlusion ⁦@LivingwithSS⁩ ⁦

💦Leak first? vs cSDH first? 🧠 👇 find a fresh paper with very practical insights from the #CSF team @UniFreiburg https://t.co/XG1AiW4Xjr #SIH #CSFleak #headache #CSDH @JrgenBeck @Niklas_Luetzen @EANSCSF

This is a nice paper: Mesoscale CISS Imaging for the Detection of Dural Defects in Spinal CSF Leaks. Wegscheid et al. https://t.co/DZpYZ78mVC