Bridging the Gap 2025 registration is now open! This year's event is both virtual & FREE, with 4 talks that we hope advance shared understanding between physicians & patients. BTG is held in partnership with @AndrewCallenMD & @CUAnschutz. Learn more: https://t.co/e5u9ddRBBS

Thank you to @AndrewCallenMD, @NeuroradLal, and the rest of the paper's co-authors for their collaborative approach to this research, and seeking a better understanding from the patient's point of view. We appreciate the opportunity to contribute to this paper.

"The SIH-RADS system provides a structured approach to reporting dynamic myelography findings. [...] SIH-RADS improves clarity and communication, addressing a gap in reporting methods. Foundation Board Members Jen MacKenzie and @legalnomads are patient authors for this paper.

"This case underscores the importance of recognizing the interplay between congenital anomalies and acquired CSF pathology. substantial gaps remain in our understanding of CSF-lymphatic interactions, particularly in the context of congenital anomalies."

Some lateral CSF leaks are diminutive but others are more sizable. Childhood orthostatic headaches and recent leg weakness. Imaging shows a lateral CSF leak from the left L1 nerve root that was caused by an aberrant artery of Adamkiewicz piercing the dura. ⁦@spinalCSFleak⁩

"𝐍𝐚𝐯𝐢𝐠𝐚𝐭𝐢𝐧𝐠 𝐏𝐞𝐝𝐢𝐚𝐭𝐫𝐢𝐜 𝐒𝐩𝐢𝐧𝐚𝐥 𝐂𝐒𝐅 𝐋𝐞𝐚𝐤: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐢𝐧𝐭𝐨 𝐃𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐚𝐧𝐝 𝐂𝐚𝐫𝐞" 𝐏𝐫𝐞𝐬𝐞𝐧𝐭𝐞𝐝 𝐛𝐲: 𝐃𝐫. 𝐌𝐞𝐬𝐡𝐚 𝐌𝐚𝐫𝐭𝐢𝐧𝐞𝐳, 𝐌𝐃 🚨 𝐅𝐑𝐄𝐄 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 - 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗵𝗲𝗿𝗲: https://t.co/NqsTIIo6JF

I’ve been reflecting on advances in spinal CSF leak care over the past five years — and I truly believe it represents one of the most rapid and transformative evolutions in modern medicine.

Chronic treatment with prednisone, dexamethasone, and methotrexate for “idiopathic hypertrophic pachymeningitis” in a patient with second half of the day headaches and normal CT-myelogram. CSF-venous fistula at T8 Should’ve read ⁦@PeterGKranz⁩10 myths ⁦@spinalCSFleak

🆕️🔓 Critical Reappraisal and Validation of the Bern Score System for Diagnosing Spontaneous Intracranial Hypotension ℹ️ The authors assessed both sensitivity and specificity in an East Asian cohort. ✒️ Soyoun Choi et al. #spinalCSFleak #CSFleak #SIH https://t.co/7szby7o4eY

How useful are probabilistic SIH scoring systems in daily practice? A source of ongoing debate! CSF leak expert @AjayMadhavanMD takes us through a pragmatic approach to cases & what his latest work adds to this 🤩 👏🏾@TheAJNR @spinalCSFleak @issclsociety https://t.co/Y8SL2ITt4R

New in JNIS: a venographic classification of the epidural plexus (EP) to guide CVF embo through EP navigation. Success: >90% (Types I–II) → 50% (Type III). Type III = longer fluoroscopy + more EP perforations → prefer segmental vein access. Clinical outcomes highly favorable.

🚨Study supported by @spinalCSFleak https://t.co/5fH9S4NxrR🚨 Lumbar punctures are NO LONGER the standard for diagnosing spinal CSF leak! 📊 ~32% with SIH have NORMAL opening pressure. Symptoms + imaging now drive diagnosis. @WouterSchievink @ConnieDelineMD #SpinalCSFLeak #SIH

"Histopathologic Analysis of 5 Patients with CSF-Venous Fistulas after Surgical Nerve Root Ligation and Resection" https://t.co/n5NnS669wF @The_ASSR

New study alert! Our team analyzed 100 patients with SIH and found that spine MRI diverticular patterns can reliably predict CSF-venous fistula (CVF) location — a crucial step toward more targeted & efficient myelography. Perhaps the holy grail of CVFs? https://t.co/Jv89HYIZQb

"Careful understanding and refinement of patient positioning in dynamic CT myelography ensures the performance of high-fidelity examinations with maximal diagnostic yield, decreasing the need for repeat studies and lumbar punctures." Video article by @AndrewCallenMD et al:

"CSF-Venous Fistula Transvenous Onyx Embolization: Evaluation of Onyx Migration into the CSF and Potential One-Way Physiology" https://t.co/lCivMwaiPM #OpenAccess #CSFLeak @iantmark; @Mayoradiology; @The_ASSR

5 new #CSFleak articles in 1 day! And others this week. Thank you @TheAJNR & @theAJNR_EIC for your support in spreading research on this subject! @TimAmrheinMD @iantmark @WouterSchievink @PeterGKranz @TroyHutchins3 @Niklas_Luetzen @ZanderCharlotte @marcelmaya @AndrewCallenMD

For patients who’d like to share their lived experience of spinal CSF leak, we are inviting perspectives via a short video that we plan to compile and show at BTG 2025. For topics and instructions, please see here: https://t.co/PVDIJsY1TW We look forward to sharing your voice.

This year's physician speakers who will discuss their latest research are: @WouterSchievink @JrgenBeck @AjayMadhavanMD @AndrewCallenMD Full agenda, talk titles, and registration here: https://t.co/e5u9ddRBBS We hope to see you there!

Patients with #SIH often wait years for a diagnosis—but not all wait equally. Our new @TheAJNR paper explores these disparities and what they mean for equitable neurologic care. Congrats to @Mariapuello18 for leading this project! https://t.co/GD8M1zAXBK