"I say to them, what have you given up?" Patients with #CSFleaks are often forced to adjust their lifestyles drastically - giving up family activities, hobbies, fitness, professions, and their life as they knew it. Watch our new documentary via our YouTube from 3rd Dec.

Looking forward to speaking at #ASSR24 this week on #CSFleaks. I’ll be addressing things we often talk little about: challenges, pitfalls, and failures, followed by some tips for success!

Fun night with friends from all over the world dining and discussing future ideas in #CSFLeaks at #ASSR24!

@AndrewCallenMD shows how to use myelography including dynamic CT to find #CSFLeaks. #ASSR23 -@OrmsbyMD

🧠 Migraine Awareness: CSF leaks are often misdiagnosed as migraines 💡 Upright headache? Think CSF leak! 💙 Help us raise awareness and advocate for swift accurate diagnosis. 🔗 Read Donia's story: https://t.co/eOfUgvnNqE #MigraineAwarenessWeek #CSFLeaks #CSFLeakAssociation

@MarkMamloukMD shows lots of great percutaneous techniques to treat all 3 types of #CSFLeaks. #ASSR23 -@OrmsbyMD

@runnrun69632861 #脳脊髄液減少症 #脳脊髄液漏出症 こちらのブログで✨️ 今回の署名活動の意義について とてもわかりやすく教えていただきました🌱ご署名がまだの方もぜひ読まれた上で⇩公式協会HPから https://t.co/6KHTyM04O5

We are SO looking forward to this diagnostic #CSFleaks session led by @AndrewCallenMD @MarkMamloukMD @LindaGr4510 & @mrobbinsmd! It's 1 of 2 sessions covering the topic, and is sure to be packed with insights related to the diagnosis & treatment of #CSFleaks. Don't miss it!

#脳脊髄液減少症 子どもたちにも優しい検査を🤲 署名活動に賛同される方🌱 ⇩公式協会HP✍ https://t.co/8pvLXNWpC4 従来の診断のためには 🏥遠方の病院：入院 丸一日かけて☢️4回の撮影🩻 ↕️ 生食パッチ：入院なし👍 持続注入：検査兼治療にもなります✨ #脳脊髄液漏出症 #静脈瘻 #CSFleak #CSFH #CVF

It's a condition you may not have heard about - with truly devastating effects. Introducing 'Chronic Headache Mystery – Hidden Stream: The Untold Story of a CSF Leak'. Learn more about the reality of #CSFLeaks and why more research and funding are urgently needed. This new

#脳脊髄液減少症 #脳脊髄液漏出症 #静脈瘻 #CSFleak #CSFH #CVF 脳脊髄液減少症の診断が 全国の🏥に広がる可能性あり👀 詳しくは 脳脊髄液減少症の最新情報 🍁金沢勉強会で📝24日（月・祝） https://t.co/SqWr5JxewG 申込💻 https://t.co/taccQRcJa2

🏴󠁧󠁢󠁷󠁬󠁳󠁿 We’re heading to the RCGP Annual Conference 2025 in Wales! 🌟 We’re thrilled to be part of this leading event that brings together over 2,400 GPs from across the UK. 🗓️ 9–10 Oct 2025 GPs are key to CSF leak healthcare. Your voice will be heard! 💙 #RCGPAC #TeamGP #CSFLeaks

Honored to speak about the latest developments of #CSFleaks this morning at #SFNS2024 in this multidisciplinary society in beautiful Napa. @SFNeuro

Open Access: Case of superficial siderosis after remission of #IntracranialHypotension symptoms w epidural patching highlights the importance of post-treatment monitoring in patients w ventral spinal #CSFleaks & #SIH @DrIanCarroll & @WouterSchievink https://t.co/NnwWKeudIa

@jhoukMD from @DukeNeurorad providing us with an important lesson on contextualizing MRI brain findings in #CSFLeaks

The #ASSR23 agenda is packed with some 𝙞𝙣𝙘𝙧𝙚𝙙𝙞𝙗𝙡𝙚 sessions covering everything from #oncology and #spine #imaging innovations to trauma, #CSFleaks, and more 🤯 Which topics are you the most excited to explore next month? #MedEd #radiology #NeuroRad

Thanks to @MarkMamloukMD for a very helpful talk on how to treat #CSFLeaks at #ASSR23! #pedineurorad #neurorad #irad #spine #fortressofglue

Thank you #BRAINWEEK / #PAINWEEK for inviting me and @DrIanCarroll to speak on #csfleaks!

@CSFleaks They’re great! So glad it helped you. I have used them for years before my leak because I was born with an inner ear disorder and can’t equalize. They can be good for elevators too. In North America, for anyone seeing this, Earplanes are the best option (in my opinion):