The Neurological Alliance
@NeuroAlliance
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People affected by neurological conditions still can’t get the healthcare they need. We need action now. Sign our open letter: https://t.co/b5h5bdfxtM
London
Joined March 2011
On #WorldMentalHealthDay, take care of your mind. Our Neuro Helpline nurses are here to listen, support, and guide you. Call our helpline for free on 0808 808 1000 or send an email to helpline@brainandspine.org.uk. #mentalhealth #neurologicalcondition
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Living with blindness or vision loss shouldn’t limit mobility. These riders say Waymo can help improve their independence.
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“Being involved with CMTUK has brought nothing but positives for my mental health and wellbeing” CMT might not always be visible, but its impact is! This Awareness Month, we’re shining a light on the unseen challenges and the strength found in support #charcotmarietooth
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On #WorldMentalHealthDay we are highlighting the work of our member centres in supporting people and families in coming to terms with a neurological diagnosis and the challenges that brings. Visit https://t.co/8pmh4Xp0lt to find a centre that can help. #MentalHealthMatters
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“When we talk about mental health, kindness can make such a difference. The way we treat ourselves, and the way we support those around us, really matters.” – Pierce, Bereavement Services Officer Learn more: https://t.co/qe7JavJ9rl
#worldmentalhealthday #SUDEP #epilepsy #grief
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Today is #WorldMentalHealthDay 🧡 Looking after your mental wellbeing matters - especially when living with or affected by #MND. Evangeline, Simon and Craig each found ways to care for their mental health, from holistic massage and psychological support to respite care grants.
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If you've struggled with the mental health impact of migraine, you're not alone 💙 Our helpline is here for you: https://t.co/L26Mfo61n7.
#WorldMentalHealthDay
migrainetrust.org
We know that living with migraine is difficult, that's why we offer free, confidential information and support for everyone affected by migraine. No matter your question or migraine history, we are...
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“The helpline was my lifeline when I was diagnosed.” When Simon was told he had Parkinson’s at 45, he felt completely overwhelmed until he called our helpline. This World Mental Health Day, we’re reminded how vital timely support can be. We’re here for you: 0808 800 0303.
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We’ve joined with @ParkinsonsUK @NeuroAlliance @Moreincommon_ at #LPC25 to amplify the voices of people with neurological conditions. 🗣️ Our incredible panel discussed challenges in accessing and delivering quality neurological care. And how to drive real progress. @Jas_Athwal
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Unfortunately, i was hacked 4 months ago and have no means of buying hype. Managed to quickly secure my hypurr so thankful for that. Despite being sidelined with no bags ill always champion Hyperliquid.
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We’re celebrating Black History Month! Meet Nikoma, who lives with MS, and his wife Simone 🧡 They share how important it is to change the belief that MS only affects White people. And how much it matters to feel seen! Read more: https://t.co/rNq9LiNEhW
#bhmuk #MSCommunity
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The call for evidence is open from today until midnight on Friday 7 November, find out more and share your views using the link below. https://t.co/B7IVWId1hU
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Crucially, the Plan needs to be backed up by leadership and investment. Alongside responding directly, we’ll work with members and the wider community to make sure it delivers a neuro workforce fit for the future."
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Despite affecting at least 1 in 6 people, services and the workforce that support people affected by neurological conditions continue to face immense and growing pressure. The Workforce Plan is a vital opportunity to tackle these challenges head-on.
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"An urgent assessment of the neuro workforce, action to address regional inequalities in staff distribution and equipping the workforce with the skills they need to provide healthcare in the future are just some of the areas where the Plan can help deliver for the neuro community
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🧠 Initial thoughts from our Policy and External Affairs Manager @SamMountney on the NHS Workforce Plan consultation below:
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Thank you to the people who took part in the trial, and to the researchers making this possible. Your courage and hard work are helping change lives. More information about the trial and next steps is available from our fantastic members @HDA_tweeting . https://t.co/Y0rXxyxb5K
hda.org.uk
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For our part, we’ll keeping working with our members, the health system and people affected by neurological conditions to ensure that successes in research can deliver real change for the neuro community.
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This is a big step forward—not just for Huntington’s, but for other neurodegenerative conditions too. There’s still a lot more work to do but it’s an important milestone as the first successful treatment for this devastating condition.
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🧬 A new gene therapy for Huntington’s disease has shown very promising results in a recent clinical trial. The treatment, called AMT-130, was safe, well tolerated, and slowed progression of the condition by up to 75%. It might even help protect and repair brain cells.
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This #MigraineAwarenessWeek we’re proud to support our members @MigraineTrust. #MigraineMeans disruption, missed opportunities & being let down by systems meant to help. It’s so much more than “just a headache.” 🎥 Watch their new campaign film: https://t.co/ZpOMbopWn6
We are kicking off #MigraineAwarenessWeek with our brand-new campaign film which illustrates what #MigraineMeans for many of the one in seven people living with the condition.
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