MS Society UK
@mssocietyuk
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We’re here to provide support for people living with multiple sclerosis and drive research into better treatments. Together, we are strong enough to stop MS.
Joined December 2007
Today is #DaveDay – a day to remember our wonderful supporter Dave Myers. We hope everyone taking part in the motorbike ride and celebrations in Barrow has a fantastic day!
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We'd like to say a massive THANK YOU to JK Rowling for donating to #MSResearch! . This is a hugely generous donation to the University of Edinburgh. We’re delighted to hear that this money will help significantly in furthering research into the condition.
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Tonight, @scott_mills will be back for our virtual pub quiz!. He is joined by a host of celebrity friends including @MollieKing, @AinsleyFoods, @Maisie_Williams and @ChefTomKerridge!. Join us at 8pm:. Facebook Live: Youtube:
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We are getting a lot of mentions regarding a story in the press about the National MS Society in the USA. We are separate charities so please direct any correspondence to the National MS Society.
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Today is #WorldMSDay - and we're raising awareness of invisible symptoms. MS can have many symptoms - not everyone will experience all of them, and some can be hidden. More info: . Today, please RT and help spread the word! #MyInvisibleMS #WorldMSDay2019
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"A little consideration, a little thought for others, makes all the difference.”. A. A. Milne, Winnie the Pooh, #EmpathyDay
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People with #MS are losing access to the support they need to live independent lives. And it’s because of the 20 metre rule. Enough is enough. PIP needs to change. Tell the UK Government to #ScrapPIP20m - add your voice:
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A huge good luck to @kad_c and @AliSmith_T38 who will be competing in the #ParalympicGamesParis2024 which starts tomorrow. Kadeena and Ali are both living with MS, join us in wishing them luck! . 📸 @ParalympicsGB
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We are truly saddened to hear the news that Dave Myers has passed away. He was a much loved, long-term supporter of the MS Society. Dave brought so much enthusiasm, joy and commitment to all that he did for us. We wish to send his family and friends our sincerest condolences.🧡
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Evidence shows cannabis can help relieve #MS pain and muscle spasms. We think the government should legalise cannabis for medicinal use
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We’re appalled that the Prime Minister is not replacing the Minister for Disabled People. Despite making up almost a quarter of the population, disabled people are yet again being treated like they don't exist. (1/4)
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You're braver than us @officialvizeh - we couldn't go bald! 👨🦲. We are all hugely proud of what you achieved for people living with MS - from the ghost chili to having cream and egg in your hair before having it shaved off - you are a legend! Hope you're getting some sleep!🧡.
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A trial of cancer drug bexarotene has proven that human myelin can be repaired. Now, a trial of diabetes drug metformin will build on this work. Repairing myelin is vital to stop MS. Prof Alasdair Coles explains the results, and how repairing myelin can stop MS progression ⬇️📽️
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'My son has MS. That has made me clear that MS needs far more focus. We need more neurologists.' - Thank you to @AlfDubs for speaking up for people with MS in the Lords debate on the 75th anniversary of the NHS last Thursday.
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Breaking (and absolutely brilliant!) news: a review ordered by the Home Office concluded that doctors should be able to prescribe cannabis for medicinal use. Research shows it can help with pain and muscle spasms: #CannabisForMS.
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We've seen the news about Selma Blair and her diagnosis. Lots of people in the MS community will be really grateful to Selma for her decision to speak out. She’ll raise vital awareness of a condition that affects more than 100,000 people in the UK.
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The amazing Christina Applegate receiving a standing ovation at the #Emmys2024 last night! WOW!. Thank you for raising awareness of #MS 🧡👏🏾 . #MultipleSclerosis.
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We'd like to say a massive thank you to Rose Leslie and Emilia Clarke, who attended our #SMSBattles quiz last night to help us raise vital funds for MS research. Thank you Rose and Emilia! #StopMS
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The Prime Minister promised to 'fix social care' and he must keep his word and deliver for the millions of older and disabled people of working age and their carers. Email your MP and ask them to act now: #KeepYourPromiseBoris
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This is huge news!!! Amazing to hear the Home Secretary commit to make cannabis for medicinal use a reality. This is a huge step for people with #MS, and now we must make sure everyone who could benefit can access cannabis in a safe and responsible way
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It’s a landmark day for the treatment of MS – after months of campaigning the first treatment for early primary progressive MS has been approved! Read more about ocrelizumab:
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Thank you to our wonderful celebrity supporter, Nicola Walker for sharing her #FancyDress4MS photo with us 🧡. What’s your fancy dress this MS Awareness Week? . Join us on Friday, 29 April, it’s easy and it’s free to sign up 👉
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We’ve got a plan to #StopMS, and we need you on our team!. #TeamStopMS is for anyone and everyone. No audition needed.📽️🎞️. Kit Harington, Rose Leslie, @AinsleyFoods, Alun Armstrong, @scott_mills, @andyserkis and @IvoGraham are on the team. Join them!. ➡️
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A huge THANK YOU to Kit Harington, Rose Leslie, @DeborahMeaden, Paul Merton, @kad_c and Nicola Walker for joining as at our Carols by Candlelight concert to help raise awareness of #MSResearch. We're very grateful for your support!.#StopMS #MSChristmasCarols
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"Promise me you’ll always remember: You’re braver than you believe, and stronger than you seem, and smarter than you think." #WinnieThePoohDay
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#GameOfThrones star Kit Harington reading 'Christmas' by Sir John Betjeman at our Carols by Candlelight! A huge thank you for his support! #StopMS #MSChristmasCarols
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‘I’m fighting every single day to try and get here’ 🧡 . Listen to @LinaFJNielsen talk about competing in the Olympics and having MS. 👇.
We are so proud of you @LinaFJNielsen ❤️. 💬 "10 years ago I had to learn how to walk again". #WhereItStarts | #Paris2024 | #Athletics.
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Our #LondonMarathon runners 2019! Give a huge round of applause! Each and everyone is running to support people living with #MS. #MSSuperstars
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Amy was diagnosed with #MS nearly 6 years ago at the age of 18. Since then, she's achieved a 2:1 in her degree and being working for 18 months. She's also conquered Ben Nevis, run a 10K run and went skiing for the first time! Huge applause 👏👏 #MSWeek #MSAwarenessWeek
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We’re thinking of @chrishoy and his wife Sarra. He’s revealed today that his cancer is terminal and she’s also been diagnosed with MS. It’s a lot for one family to face. 🧡. Read more via @DailyMirror .➡️ (1/2).
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We're extremely grateful to the brilliant, Nicola Walker who has joined #TeamStopMS! Thank you for your support. 🧡. Are you on the team yet? There are so many ways you can get involved. No audition needed:
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A massive congratulations to the brilliant, @kad_c on winning gold in the women's C4-5 500m time trial and setting a new world record of 34.812 seconds in the process! #ParaCycling. 🥇👏🧡 #ParalympicsGB . We're so proud of you! Way to go, Kadeena.🧡
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Great news! We’re delighted the Chief Medical Officer recognises the evidence that cannabis can effectively manage MS symptoms. We've been campaigning for almost a year to legalise cannabis for medicinal use for #MS pain and muscle spasms. #CannabisForMS.
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We are thrilled to announce Laurence and Jackie Llewelyn-Bowen as our new MS Society Ambassadors! 🧡 . Both Laurence and Jackie’s mothers lived with MS and they have been supporters of the MS Society’s work for many years. 💻 Find out more:
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"Don’t insult us by sending someone with no knowledge of disability to asses us, don’t see us being able to walk 20 metres as a reason not to qualify for help.". A powerful account from @samrenke on PIP and why the current system needs to change:
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✍️ We’re about to knock on the door behind us to hand in over 13,000 signatures. We’re calling on @Keir_Starmer as Prime Minister to commit to make change for people with MS.
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It's #WorldMSDay! Today we'll share info on support for managing symptoms for all types of MS, the latest #MSresearch and much more! Also - watch out for our new film about treatments - follow #TreatMeRight for more. Join the conversation - we'll look out for your tweets!
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The first international, large scale study into HSCT is completed. The results show haematopoietic stem cell transplantation (HSCT) is an effective and safe treatment for people with highly active relapsing #MS that are not responding to existing DMTs:
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Are you a #GOT fan? Kit Harington and Rose Leslie are inviting 6 lucky people for a dinner - all in aid of people living with MS! Please help us spread the word and RT! Find out more: #SMSBattles A huge thank you to Kit and Rose for their support!
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@AndyCSP @greeneking Hi Andy, thank you for sharing your sister's story. We are shocked and saddened to hear that this happened to her. We can understand this will be upsetting. If she needs information and support on legal and equality rights our Helpline would welcome a call on 0808 800 8000.
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Today, Sativex was approved on the NHS England for muscle spasms in MS. We've been campaigning for access to Sativex across the UK. Hundreds of you have shared their experiences with NICE - and NICE has finally listened! . Paul is one of them - watch our video ⬇️📽️
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Congratulations to our amazing Ambassador .@kad_c on being awarded an OBE in the New Years Honours!. Well done Kadeena, we're so proud of you 🧡.
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In the new edition of @hellomag, @scott_mills talks movingly about his mum Sandra & being an MS Society Ambassador.
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"It is quite possible the woman sitting next to you is one of thousands of people in the UK with an invisible disability that makes her far more at risk from Covid-19.". A great article by @shiftms' CEO @gpeps - have a read!👇 #coronavirus #COVID2019uk.
My interview with the huffpost - you never know who is vulnerable to coronavirus. That's why it's vital we all play our part .@shiftms.
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The marvellous @ElyarFox is fighting for people with #MS to get the right treatment. Join him, join us: http://t.co/F7jjjB4Cb4
#treatmeright.
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Octopus, the world's first multi-arm, multi-stage trial for progressive MS, has started recruitment! #StopMS. But what is Octopus? And how does it work?. Trial lead Professor Jeremy Chataway explains Octopus and how it will test treatments.📽️⬇️. Read more:
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Today is International Day of Disabled Persons - Let's raise awareness!. It's important to remember: not all disabilities are visible. Some are invisible. Please RT. #IDPD2023
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It's #MSAwarenessWeek - and we want to know, how does MS make you feel?. Throughout the week we want you to use the hashtag #MSMakesMe to tell us how MS makes you feel. We asked people in the MS community to share how MS makes them feel. 🎥⬇️. Please RT.
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And they’re off - our 20K walkers have set out. If you’re in London today be sure to give them a wave! 👋 #MSWalk
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A massive GOOD LUCK to everyone running the #LondonMarathon today in aid of people with #MS. You are all amazing! #MSSuperstars
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#HopeReborn is here! 🎬🎶 . Classical music composer @FabioDandrea has released a single to help raise awareness of MS, and vital funds for us and @OvercomingMS. The accompanying music video stars our supporter Rose Leslie! . Watch the full video:
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Evidence shows medicinal cannabis can help with muscle spasms and pain in #MS. If you're watching #StephandDomCannabis and want to know more about medicinal cannabis and #MS, we've got info on who could benefit, access and the current legal situation:
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"If my support can make a bit of difference for families, I’m all in." . We're thrilled to announce our new Ambassador @ChefTomKerridge! . Here's a message from Tom 📽️🎬 . He talked to us about growing up with a father who had MS, and the impact it had:
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It's #WorldMSDay - but what is MS?. Multiple sclerosis is a condition that affects the brain and spinal cord. Watch our overview of what MS is, the treatments and support that's available. On @WorldMSDay let's help people understand #MS - please RT. ℹ️
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Calling all pub quiz fans!. We’re excited to announce that from next week, our brilliant Ambassador @scott_mills will be hosting a virtual pub quiz to support everyone affected by MS. And you can join!. 🗓️Starting from Wed, 08 April, 8pm.📍Facebook Live:
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"Clearly, I was internalising my problems – my grief, if you like – and this was the result.”. Read a very personal and emotional interview with @HairyBikers Dave Myers about his parents, and what it was like to care for his mum (who was living with MS):
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This week, join us and help raise awareness for #MS! Throughout the week, we'll be sharing inspirational stories from the MS community, talk about the latest #MSresearch and our reseach success stories and we'll continue to #KissGoodbyeToMS! #MSawarenessweek #MSWeek
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Myelin is the protective coating around our nerves. And finding ways to repair myelin is a key goal in our search for treatments to stop MS progression. Today it's been reported that clemastine, an active ingredient in anti-histamines, might be able to repair myelin in MS. (1/2)
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A very happy #WorldMSDay everyone! Let's raise awareness!. Today we're talking about treatments and we're celebrating #MSResearch! Let's start the day with these stunning visuals from #MSResearch projects. The below is a mix of stem cells, myelin cells and white matter!
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A huge thank you to @10DowningStreet for recognising the brilliant contribution our volunteers are making, and all the achievements of recent #MSResearch!.
"From my mother’s experience, I know how incredibly tough living with MS can be. So thank you for all that you have done and let’s work together to make stopping MS a reality." - PM @Theresa_May at the @MSSocietyUK reception at Downing Street.
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Huge congrats to our Ambassador @kad_c on her massive success at the @ParaAthletics Championships #London2017 🥇🥇🥇
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Holly was diagnosed with #MS in 2016. Through the help of her MS nurse and MS treatments, she's been able to stay positive – travelling, gaining a new job, welcoming a baby boy and starting her nurse training. Huge 👏👏 to her bravery and determination #MSWeek #MSAwarenessweek
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We are thrilled to announce the wonderful @JanisWinehouse as our latest Ambassador! We’re incredibly grateful to Janis and all our fab volunteers who dedicate their time and energy to helping us stop #MS. Congratulations Janis 🎉👏
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This afternoon, @charlotte2153 was elected as Chair of the All Party Parliamentary Group (APPG) for multiple sclerosis (MS). The APPG for MS is a cross-party group of Parliamentarians who are committed to tackling the issues that affect people with MS. (1/2)
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Great news! Siponimod has just been licensed as the first oral disease modifying treatment for people with secondary progressive MS. This is an exciting step forward for MS treatment. We’ll bring you more news on this shortly!. More info:
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A very happy #MothersDay2018 to all the amazing mums living with or affected by #MS! Big applause to all of you!
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Did you just watch @BBCBreakfast and heard Roy’s incredible story? After 10 years using a wheelchair, Roy is able to walk again after having HSCT treatment: #bbcbreakfast
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What is MS? We asked people what they think multiple sclerosis is. Most people have a vague idea what MS is, but lots of them are a bit confused. Throughout this week, we’ll be sharing stories and experiences from the MS community. Join us! #MSAwarenessWeek
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A host of famous names have added kisses to cards in support of #MS research to help us #KissGoodbyeToMS 💋! Fans can own these unique gifts by bidding NOW at for the next 10 days. Good luck! #AKissForACause
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We are delighted to announce the brilliant Alun Armstrong as our latest Ambassador! We’re incredibly grateful to Alun and all our amazing volunteers who dedicate their time and energy to helping us #StopMS. Congratulations Alun! 👏🎉
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We're wishing a massive GOOD LUCK to all #MSSuperstars running the #LondonMarathon today! You are all amazing!! It's going to be a hot day - take care in the heat. Here's @LondonMarathon's advice for runners:
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"I'm proud the money I raised will make a big difference to the MS community.” . Huge applause to Al (below right) and @BiketheUKforMS who raised over £29,000 for #MSResearch! And big thanks to @ChefTomKerridge for featuring them on @BBCTwo #loseweightandgetfit - tune in now!
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A massive thank you to Kit Harington for joining #TeamStopMS!. Team Stop MS is for anyone and everyone. No audition needed! 📽️🎬. ➡️ #StopMS
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Our MS Helpline has scooped the 'Helpline of the Year' award at the @HelplinesUK #HLAwards2018! Give a MASSIVE applause to our brilliant Helpline Team. They're there with information and emotional support for everyone affected by #MS: 0808 800 8000 or helpline@mssociety.org.uk
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Give a huge applause to Sara Weller. She is living with MS and is taking on the #LondonMarathon in a wheelchair!. What an amazing #MSSuperstar!. Read her story and how she prepared for the marathon:
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Today is #WorldMSDay and this year's theme is #MSConnections. Today, we'll be raising awareness of MS and sharing just some of the ways our community is providing support and helping people affected by MS to connect. 🧡. Join us in raising awareness - RT to spread the word!
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BREAKING NEWS: The first treatment for primary progressive #MS has been recommended for a licence across Europe! Ocrelizumab could be prescribed to people living with early primary progressive MS. We've got all the details for you:
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Amazing news! You spoke up for people with #MS and today plans to delay access to treatments for new patients in NI were dropped. THANK YOU!
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We'd like to thank our celebrity supporters who are attending this year's SMS Battles and giving up their time to help raise vital funds for MS Research!. Thank you, Kit Harington, Rose Leslie, @davemorrissey64, @onebiggins, @SuranneJones and @IvoGraham to name a few.🧡👏
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Huge thank you to @themaccabees who, last week, hosted an exclusive gig ahead of their UK tour to raise funds to help stop MS. Incredible! 🎸
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This is an outrage! The Chancellor must apologise to disabled people. His comments show ignorance about the contributions they make. We want a sincere apology that includes acting on our calls to provide the support people with MS need.
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“I don’t feel tired. I feel like I have the flu.” Fatigue is a common symptom of #MS, but very often misunderstood! Please RT our video and help us raise awareness! Here is our info on fatigue: #MSWeek #MSawarenessweek How would you describe fatigue?
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Huge thanks to our Ambassador @felixwhite and the brilliant #Tailenders @gregjames @jimmy9 and @itsmattchin for supporting us at their #Tailenderslive show at @HackneyEmpire in London yesterday! Go well! #tailendersoftheworlduniteandtakeover #TeamStopMS
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It's #WorldSleepDay. We thought this is an opportunity to speak about a symptom of #MS that's very common, but often misunderstood by people who haven't experienced it: fatigue. Watch our animation or read more here: Please RT!
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Our supporter Mike Dawson, 46, is setting out to be the first person with #MS to swim the English Channel 👏
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A massive GOOD LUCK to all our brilliant #MSSuperstars running the #LondonMarathon today!. You are all amazing! 🧡. We'll be there to cheer you on all the way to the finishing line.
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We've launched our most ambitious appeal. You’ll see people with MS on TV and print, getting loud to #StopMS!. We're aiming to raise £100 million for #MSResearch. Scientists think we could have treatments for everyone with MS in late stage trials by 2025:
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There are only 5 weeks to go until our #MSChristmasCarols at @StPaulsLondon!. Among our special guests: Rose Leslie and Kit Harington, who'll each be doing festive readings!. Thank you to Rose and Kit! And to @RoyalLondon for sponsoring our event:
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Well said! Our @MScymru colleague Sophie spoke up for people with MS affected by PIP and the benefits system at @bbcquestiontime! Too many people are made to go through the appeal process to only have it overturned a year later! #ScrapPIP20m.
‘I think for you to sit there and say that the Tories are looking after the most vulnerable in society is absolutely appalling’.This audience member criticises the austerity measures adopted by the government. #bbcqt
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Our Carols by Candlelight - event is back!🎄🎵🎅. This year, special guests include Kit Harington and Rose Leslie! . Join us for an evening of music, Christmas carols and festive readings: #MSChristmasCarols #GameofThrones #ChristmasCarols
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Yesterday was #WorldMSDay - thanks again to everyone who joined the conversation and helped raise awareness!. MS is complex and different for everyone. To help explain what #MS is, we created our new animation. Please RT - let's help people understand #ThisIsMS.
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Thank you @1capplegate for speaking out about your MS diagnosis and raising awareness. If you’ve read Christina’s story and have questions or concerns about multiple sclerosis (MS) please get in touch: 0808 800 8000 or helpline@mssociety.org.uk.
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"We know PIP is failing people with MS, with too many people not getting the support they need.". Our Head of Campaigns and External Relations, @JonathanRBlades, explains why PIP is failing people with MS - and why the UK Government needs to take action now! #PIPFails
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Our Head of Campaigns and External Relations @Georgina_MSS is at Number 10 Downing Street to speak up for the 10,000 people living with MS that could benefit from access to cannabis-based medicines on the NHS. #SpeakUpForMS #CannabisForMS 📣 📣
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Brilliant news! The Home Secretary has announced cannabis for medicinal use will be made available from 1 November! . MS is often painful and exhausting, and this change in the law is a huge step towards helping many people living with #MS.
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