MND Association
@mndassoc
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Following
87K
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Our vision is a ๐ free from ๐ฆ๐จ๐ญ๐จ๐ซ ๐ง๐๐ฎ๐ซ๐จ๐ง๐ ๐๐ข๐ฌ๐๐๐ฌ๐ #MND
England, Wales & N. Ireland
Joined March 2012
Our MND Connect Helpline is here to support all those living with and affected by motor neurone disease, offering information and support on all aspects of MND. Call: 0808 802 6262 Email: mndconnect@mndassociation.org Visit: https://t.co/XQLnZjgU9y ๐ฌ #MND
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One week to go ๐ MND Association patron, Kevin Sinfield, spoke to BBC Breakfast this morning one week out from his sixth 7 in 7 Challenge!
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MND moves fast. Housing adaptations donโt. People wait months for changes they need in weeks. Some die waiting. Itโs unacceptable. Everyone with MND deserves dignity, safety and swift support. Help fix this and unlock the door.๐ Write to your councillor - change is urgent.๐
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People with MND are at the heart of what we do. Their stories and experiences help raise awareness and strengthen our community. ๐งก Tom & Rob, Diana and Kamilaโs stories are now live on the Story Hub - take a look ๐
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Christmas song raises funds for the Motor Neurone Disease Association #MND
https://t.co/84oQurjhLJ
inyourarea.co.uk
Catherine Di Mambro has composed 'It's Christmas Eveโ to raise funds for the charity
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Sikhs raise more than ยฃ3,000 with 15km walk through Coventry๐ถโโ๏ธ #MND
https://t.co/aYHJJfE6pR
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Neurologist awarded first Rob Burrow professorship #MND
bbc.co.uk
The professorship will fund Dr Johnathan Cooper-Knock's research into MND for the next eight years.
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Singer and songwriter Catherine is donating a portion of the proceeds of her new song 'It's Christmas Eve' to the MND Association, in honour of her friend Lewis Moody following his recent diagnosis.๐งก๐๐ 'It's Christmas Eve' is available to stream on all platforms. ๐ถ
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Mike, who has MND, is helping to collect survey responses about Voice Banking for a @ucl study. If you have experience with speech loss, please consider completing the survey linked below. ๐งก๐ #MND
Have you lost your speech or at risk of doing so? Then please help with this survey: SURVEY https://t.co/HLLq487Vri
@mndassoc @OracleHNCUK @CurePSP @MSAtrust @scope @TheStrokeAssoc
#mnd #als #FND #MSA #PSP
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โYou should be so proudโ HRH The Prince of Wales tells Rob Burrowโs family at MND centre opening #MND
https://t.co/WHOUsIf6PP
independent.co.uk
The Prince of Wales met Burrowโs children, his wife Lindsey, and his rugby team-mate Kevin Sinfield when he opened the new MND centre in Leeds.
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If you care for someone with MND, we may be able to assist you with a Carerโs Grant. The aim of the grant is to allow carers to take a break from their caring duties. This may be a pamper day, a short break or assistance towards a hobby. Find out more. ๐ #CarersRightsDay
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'You should be very proud, Rob's legacy will continue' Prince William has officially opened the Rob Burrow Centre for Motor Neurone Disease in Leeds - which was built after more than ยฃ6-million was raised #BBCBreakfast @LeedsHospitals @mndassoc @LDShospcharity @leedsrhinos
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Today is #WorldChildrensDay ๐ We provide support for children and young people affected by MND, from memory making days, resources to help them understand the disease and counselling support. Find out more ๐
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If you provide necessary care to someone and this is likely to impact on your wellbeing, you are entitled to a Carer's assessment. A Carer's assessment is an opportunity to discuss the impact of the caring role agree a support plan. Find out more ๐ #CarersRightsDay
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Today is #CarersRightsDay ๐งก We are here to support family members as they take on the role of carer following an MND diagnosis. Our Caring and MND guide explores ways to consider your own needs and wellbeing and helps you understand your rights as a carer. #MND
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Geoff Burrow: โRob was always smiling. He had a no crying policyโ The rugby legendโs family reflect on his extraordinary courage, the fight for better MND care, and the legacy that continues to grow #MND
https://t.co/qCsjs1Y817
telegraph.co.uk
The rugby legendโs family reflect on his extraordinary courage, the fight for better MND care, and the legacy that continues to grow
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To find out more about how you can get involved, head to the volunteering section on our website ๐ https://t.co/Ktew81tBSH
#InternationalMensDay
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Have you integrated APOL1 genetic testing into your practice? Discover the No-Cost APOL1 Genotyping Program for eligible patients sponsored by Vertex Pharmaceuticalsโhelping you deliver precision care without added cost. Learn more today!
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"My journey began in 2015 when my dad was diagnosed with MND." shared Andrew. "As an Association Visitor l know we make a difference. We are able to help with signposting, liaise with health professionals, and most importantly be a listening ear. "I would encourage anyone to
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This #InternationalMensDay, we are sharing some of the incredible men in our community's stories with you all. ๐ Meet Andrew, one of our invaluable Association Visitor (AV) volunteers. He offers emotional support and gives information about the Association and other services,
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