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MND Association Profile
MND Association

@mndassoc

Followers
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Following
87K
Media
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Statuses
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Our vision is a ๐ŸŒŽ free from ๐ฆ๐จ๐ญ๐จ๐ซ ๐ง๐ž๐ฎ๐ซ๐จ๐ง๐ž ๐๐ข๐ฌ๐ž๐š๐ฌ๐ž #MND

England, Wales & N. Ireland
Joined March 2012
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@mndassoc
MND Association
1 year
Our MND Connect Helpline is here to support all those living with and affected by motor neurone disease, offering information and support on all aspects of MND. Call: 0808 802 6262 Email: mndconnect@mndassociation.org Visit: https://t.co/XQLnZjgU9y ๐Ÿ’ฌ #MND
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@mndassoc
MND Association
10 hours
One week to go ๐Ÿ‘ MND Association patron, Kevin Sinfield, spoke to BBC Breakfast this morning one week out from his sixth 7 in 7 Challenge!
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@mndassoc
MND Association
19 hours
1 WEEK TO GO โฐ We can't believe we are 1 week out from Kev's next #7in7 challenge '7 in 7 Together'. Have you got a message of good luck for Kev and his team? Share it below. ๐Ÿ‘‡ #MND
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@mndassoc
MND Association
23 hours
MND moves fast. Housing adaptations donโ€™t. People wait months for changes they need in weeks. Some die waiting. Itโ€™s unacceptable. Everyone with MND deserves dignity, safety and swift support. Help fix this and unlock the door.๐Ÿ”“ Write to your councillor - change is urgent.๐Ÿ‘‡
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@mndassoc
MND Association
2 days
People with MND are at the heart of what we do. Their stories and experiences help raise awareness and strengthen our community. ๐Ÿงก Tom & Rob, Diana and Kamilaโ€™s stories are now live on the Story Hub - take a look ๐Ÿ“–
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@mndassoc
MND Association
3 days
Sikhs raise more than ยฃ3,000 with 15km walk through Coventry๐Ÿšถโ€โ™‚๏ธ #MND https://t.co/aYHJJfE6pR
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@mndassoc
MND Association
4 days
Singer and songwriter Catherine is donating a portion of the proceeds of her new song 'It's Christmas Eve' to the MND Association, in honour of her friend Lewis Moody following his recent diagnosis.๐Ÿงก๐ŸŽ„๐Ÿ‰ 'It's Christmas Eve' is available to stream on all platforms. ๐ŸŽถ
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@mndassoc
MND Association
4 days
#TheAshes are officially underway! ๐Ÿ Are you a keen cricketer? Why not Hit Six for MND and organise a cricket fundraiser! ๐Ÿงก#MND
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@mndassoc
MND Association
4 days
Mike, who has MND, is helping to collect survey responses about Voice Banking for a @ucl study. If you have experience with speech loss, please consider completing the survey linked below. ๐Ÿงก๐Ÿ‘‡ #MND
@histon_mike
Mike Willis
4 days
Have you lost your speech or at risk of doing so? Then please help with this survey: SURVEY https://t.co/HLLq487Vri @mndassoc @OracleHNCUK @CurePSP @MSAtrust @scope @TheStrokeAssoc #mnd #als #FND #MSA #PSP
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@mndassoc
MND Association
4 days
โ€˜You should be so proudโ€™ HRH The Prince of Wales tells Rob Burrowโ€™s family at MND centre opening #MND https://t.co/WHOUsIf6PP
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independent.co.uk
The Prince of Wales met Burrowโ€™s children, his wife Lindsey, and his rugby team-mate Kevin Sinfield when he opened the new MND centre in Leeds.
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@mndassoc
MND Association
5 days
If you care for someone with MND, we may be able to assist you with a Carerโ€™s Grant. The aim of the grant is to allow carers to take a break from their caring duties. This may be a pamper day, a short break or assistance towards a hobby. Find out more. ๐Ÿ‘‡ #CarersRightsDay
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@BBCBreakfast
BBC Breakfast
5 days
'You should be very proud, Rob's legacy will continue' Prince William has officially opened the Rob Burrow Centre for Motor Neurone Disease in Leeds - which was built after more than ยฃ6-million was raised #BBCBreakfast @LeedsHospitals @mndassoc @LDShospcharity @leedsrhinos
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@mndassoc
MND Association
5 days
Today is #WorldChildrensDay ๐Ÿ’™ We provide support for children and young people affected by MND, from memory making days, resources to help them understand the disease and counselling support. Find out more ๐Ÿ‘‡
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@mndassoc
MND Association
5 days
If you provide necessary care to someone and this is likely to impact on your wellbeing, you are entitled to a Carer's assessment. A Carer's assessment is an opportunity to discuss the impact of the caring role agree a support plan. Find out more ๐Ÿ‘‡ #CarersRightsDay
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@mndassoc
MND Association
5 days
Today is #CarersRightsDay ๐Ÿงก We are here to support family members as they take on the role of carer following an MND diagnosis. Our Caring and MND guide explores ways to consider your own needs and wellbeing and helps you understand your rights as a carer. #MND
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@mndassoc
MND Association
6 days
Geoff Burrow: โ€˜Rob was always smiling. He had a no crying policyโ€™ The rugby legendโ€™s family reflect on his extraordinary courage, the fight for better MND care, and the legacy that continues to grow #MND https://t.co/qCsjs1Y817
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telegraph.co.uk
The rugby legendโ€™s family reflect on his extraordinary courage, the fight for better MND care, and the legacy that continues to grow
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@mndassoc
MND Association
6 days
To find out more about how you can get involved, head to the volunteering section on our website ๐Ÿ‘‰ https://t.co/Ktew81tBSH #InternationalMensDay
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@arkanalabs
Arkana Laboratories
5 months
Have you integrated APOL1 genetic testing into your practice? Discover the No-Cost APOL1 Genotyping Program for eligible patients sponsored by Vertex Pharmaceuticalsโ€”helping you deliver precision care without added cost. Learn more today!
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@mndassoc
MND Association
6 days
"My journey began in 2015 when my dad was diagnosed with MND." shared Andrew. "As an Association Visitor l know we make a difference. We are able to help with signposting, liaise with health professionals, and most importantly be a listening ear. "I would encourage anyone to
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@mndassoc
MND Association
6 days
This #InternationalMensDay, we are sharing some of the incredible men in our community's stories with you all. ๐Ÿ’™ Meet Andrew, one of our invaluable Association Visitor (AV) volunteers. He offers emotional support and gives information about the Association and other services,
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