With so much physical damage from #GuillainBarreSyndrome, it can be easy to overlook the emotional impact #GBS can cause. It helps to talk, visit:. Get Togethers: Emotional Support: Peer Support:

A big #InflammatoryNeuropathiesUK thank you to Dot for raising a fantastic £536.49 to help us provide our support! She hosted a #Bingo & #Buffet day to raise funds for #GBS/#GuillainBarreSyndrome information and advice🩷. Thank you, Dot and friends!

Some #behindthescenes shots from.our filming session in Kendal. A huge thanks to Zoe for sharing her #GuillainBarre story and the #KendalWasps for allowing us into their #rugbyclub to film. We can't wait to reveal these impactful stories of #GBS to the world soon. #bts

We love tools that make the world a little more accessible, and this community recommendation (thanks Pete) could be a game changer for a lot of people in the #CIDP or #MMN world, or for those living with #GBS residuals.

Rich was joined in #InflammatoryNeuropathiesUK studios by Georgina Carr, Chief Exec of The @NeuroAlliance recently for a new episode of IN all honesty. Here's a clip discussing the findings of #MyNeuroSurvey. Available now on Spotify, Apple, or Amazon.

RT @GiveBloodNHS: ‼️ BREAKING NEWS: We've now dispatched 500,000 litres of plasma, to make life-saving medicines!. It’s all thanks to the g….

IN all honesty, a podcast by Inflammatory Neuropathies UK, is back with very special guest - Georgina Carr, Chief Executive of #TheNeurologicalAlliance!. Spotify: Apple: Amazon:

A huge thank you to Nicole for sharing her emotional #GuillainBarreSyndrome story. #GBS struck at the height of the pandemic - Christmas 2020. Here's her story:. #InflammatoryNeuropathiesUK #RareCondition #covid #NHS

Well done to Pete MacKenzie who took over BBC Radio nan Gàidheal during drive time to share three songs that mean a lot to him, and share a little of his #GBS journey via host, @DerekPluto. Pete's segment is from 36 mins: #GuillainBarreSyndrome

We've had some great fundraising thanks to supporters on #easyfundraising! Thanks to you we raised £80.47! If you're not signed up yet, join today & raise free donations when you shop online. Sign up before midnight (31st) & we could win a £500 donation!

A very happy birthday to Christine Beattie, celebrating her 70th today. Usually the person of honour receives the gifts, but Christine has kindly organised a fundraiser on her special day after experiencing #GBS in 2014. Thank you, Christine! 🎂🎈

These aren't easy to stories to read and we know they're even harder to share and relive. However, these posts do get attention and the more people learn, the better care, treatment, support will become in the UK, so thank you 🩷. #GuillainBarreSyndrome #GBS #RareConditions

Good luck to #HollingworthLakeRowingClub who are taking on 24h of rowing to raise funds for #InflammatoryNeuropathiesUK!. They're supporting member Jason Hardman who has been diagnosed with #guillainbarresyndrome, you can support them at #GBS

Are you part of the #InflammatoryNeuropathiesUK group on Facebook? You can join 4,000+ people with experience of #GBS, #CIDP, #MMN, #Vasculiticneuropathy, #MADSAM, #SIDP, & more. or search GBS/CIDP/MMN/Inflammatory Neuropathies UK Community on Facebook.

It helps to talk. If you've experienced #GBS you may feel alone, even while surrounded by loved ones. We can link you with someone who has lived it for a conversation, a vent, or just a friendly ear.

Whether you had #GBS twenty years ago, or have been diagnosed with #CIDP this last week, we're here to support you on your #InflammatoryNeuropathies journey. Let's chat:. 📱01529 469910.✉ hello@inflammatoryneuropathies.uk.WhatsApp us: 07878 090965.Or DM us (we're InflamNeuroUK)

We've released a July wrap up on FB/Insta. We want to thank our supporters for a great July. We've had #fundraisers, seen Rich in #Vienna learning about #plasma, Chris was in #Lancashire for a #GBS #documentary record, and Claire's hardly been off the phone. Bring on August!

We post a lot about negative impacts of #GBS, #CIDP, & #MMN, but in a lot of comments there's a spark of light - bonded families, new outlooks. A word of optimism could help someone newly diagnosed, worried what the future'll bring, so please share any positive stories below!

Are you up to date with our latest newsletter? In it, we discuss our AGM, survey results, and our opinion on the government #welfarereforms as they impact the #GBS, #CIDP, #MMN and #InflammatoryNeuropathy community in the UK: #benefitreforms #PIP #Welfare

FREE (now we've got your attention) places available at #SwimSerpentine this September 20th. If you're part of a fitness club, they may also be interested in this offer as well. If you want to take on a mile of #openwater swimming, contact hello@inflammatoryneuropathies.uk