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MSA Trust Profile
MSA Trust

@MSAtrust

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The UK and Ireland's only charity supporting people affected by Multiple System Atrophy. We rely entirely on voluntary donations and fund research into MSA.

London, N1 0QH
Joined January 2011
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@MSAtrust
MSA Trust
2 hours
Our HealthUnlocked community has over 300 active members and is a fantastic resource that allows people affected by MSA to share their thoughts, tips and experiences. Join our supportive community and sign up for free here - https://t.co/gCOnckyx2C
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@MSAtrust
MSA Trust
20 hours
Thank you to one of our incredible fundraisers, Andy Jackson, who organised a street collection in aid of the MSA Trust. “Newick Bonfire Society, for me, is where I can be most alive, and I am surrounded by people who care for me and will go that extra mile for me."
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@MSAtrust
MSA Trust
1 day
It's #TrusteesWeek and we want to take this opportunity to celebrate and thank our incredible board. They give up their time, free of charge, to review and ensure that we continue to provide the highest quality support and services to people affected by MSA.
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@MSAtrust
MSA Trust
2 days
This Christmas, your support can make a real difference by funding essential training and awareness for external HCPs. Please consider donating to our 2025 Christmas Appeal- https://t.co/l4djH6zZ5B
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@MSAtrust
MSA Trust
3 days
Sam and Emma are at the @ScottishPower Foundation Awards ceremony today in Glasgow. We received generous funding from the Foundation to support the work of our Social Welfare Specialist service. The Awards highlight the work of the charities that have been funded this year.
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@MSAtrust
MSA Trust
3 days
It's Children's Book Week so we would like to share our Children's Activity Book, which aims to provide those aged 4-11 with information about a loved-ones diagnosis of MSA. It has fun activities, illustrations and stickers! Get yours here - https://t.co/p8wCIAsth7
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@MSAtrust
MSA Trust
4 days
Our MSA Health Care Specialists always encourage people affected by MSA to start planning for the future as early as possible. From mobility to finances, there's a lot to consider, and to assist you we have our Planning for the Future page on our website https://t.co/Tj4oq3ga3u
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@MSAtrust
MSA Trust
6 days
Good, consistent mouth care and oral hygiene is important for health and well-being. In the latest MSA News, our MSA Nurse Specialist Anna Kent looks at some of the ways you can ensure good mouth care. You can read the article in issue 74 of MSA News - https://t.co/pmJjLtEPBC
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@MSAtrust
MSA Trust
7 days
This #FreeWillMonth we have partnered with the National Free Wills Network to give you the chance to update your Will for free- https://t.co/G9tbgwgMUD
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@MSAtrust
MSA Trust
8 days
MSA News is out now! Your autumn edition includes articles on Oral Hygiene, support for Carers and volunteering at the trust. Look out for it in your inboxes and on doorsteps from today. You can find all editions of MSA News here - https://t.co/Bw6XafYp7s
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@MSAtrust
MSA Trust
9 days
Our Hospital Information Folder can be helpful for routine or emergency admissions. It gives medical staff an overview of MSA and there's space to fill in information about your particular needs. You can order your folder, free of charge, by emailing support@msatrust.org.uk
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@MSAtrust
MSA Trust
12 days
We have three webinars on our Website: our Introduction to MSA Webinar presented by Samantha Pavey, managing blood pressure, hosted by Katie Rigg and Palliative Care in MSA hosted by Dr. David Oliver. You can view all current and upcoming webinars here - https://t.co/uCfBAZs6W7
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@MSAtrust
MSA Trust
13 days
On Tuesday we will be holding an in-person Support Group for anyone affected by MSA in Devon. The meeting will be run by our MSA Nurse Specialist, Jill Lyons. If you would like to RSVP please email support@msatrust.org.uk
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@MSAtrust
MSA Trust
15 days
Planning for your first Will doesn’t have to be complicated. This #FreeWillMonth with our free Will-writing service, you can create a simple, legally-binding Will with the support of our trusted partner, the National Free Wills Network. https://t.co/G9tbgwgMUD
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@MSAtrust
MSA Trust
22 days
Next Wednesday we will be holding an in-person Support Group for anyone affected by MSA in Kent. The meeting will be run by our MSA Nurse Specialist, Anna Kent. If you would like to RSVP please email support@msatrust.org.uk
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@MSAtrust
MSA Trust
23 days
We’re excited to welcome you to our 2025 Christmas Shop. Every purchase you make helps us support people living with Multiple System Atrophy (MSA) and brings us one step closer to finding a cure. https://t.co/qBtNNM74OS
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@MSAtrust
MSA Trust
23 days
We have some new items on our second-hand equipment page, where members advertise items they would like to sell, many being sold for a low price or given away for free. Be sure to take a look, our page might have just what you're looking for - https://t.co/9XRAHd4LKZ
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@MSAtrust
MSA Trust
24 days
Written by fellow professionals, our Specialist Guides aim to share expertise and specific occupational information. We have guides for GP's, Carers, Physiotherapists, Occupational Therapists and Speech and Language Therapists. Find the guides here - https://t.co/1Z7u91I4gn
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@MSAtrust
MSA Trust
26 days
We are pleased to share an article outlining the excitement surrounding ATH434 and its potential impact on multiple system atrophy (MSA). https://t.co/S9pbN28nGT
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@MSAtrust
MSA Trust
28 days
If you #TickTheBox when you donate – thank you! Gift Aid allows the MSA Trust to provide more vital support and information for everyone affected by MSA. For more information or to complete a Gift Aid declaration, please visit our website- https://t.co/og0KJdLdS3
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