Spotlight YOPD
@SpotlightYOPD
Followers
2K
Following
898
Media
206
Statuses
2K
The UK charity with global reach spotlighting Young Onset Parkinson's because it's a different rare condition. Around 10K YOPDers in UK. #YOPD
UK-based, global reach.
Joined May 2015
We’ve launched a brand new website on this World Parkinsons Awareness Day! Check out our wall of fame and why not upload your pic if you’ve got YOPD?.#parkinsonsawarenessday.
1
2
11
RT @plantsbloke: Young Onset Parkinson’s, joy, kindness and gratitude. It’s not easy at the moment. So here’s my thoughts on choosing joy….
0
36
0
0
1
0
A message from our CEO @plantsbloke to the Prime Minister and @UKLabour as they start to govern. “The health of a society can be measured by the way it treats the most vulnerable…” #parkinsons #yopd #election #disability
2
3
16
RT @plantsbloke: Please spread the word. As one of the signatories on behalf of @SpotlightYOPD and as someone with #parkinsons it’s somethi….
0
14
0
RT @plantsbloke: So good to meet up with Emma from @fight_pd this afternoon in Melbourne. Although I’m pretty tired from 2 weeks of deliver….
0
5
0
RT @plantsbloke: I was also told, because I could hold a walking stick that I had a good grip!? Ignoring the fact I sometimes need a stick….
0
5
0
RT @ParkinsonsUK: “The more we talk about those hidden symptoms, the better it will be for people.” -@plantsbloke. Some people find it usef….
0
10
0
New on our website. A letter our CEO was a co signatory of on behalf of Spotlight YOPD to the Prime Minister and his response. #advocacy #parkinsons.
0
3
2
Our CEO has just had another meeting in Westminster. This time with the DWP to discuss pip and other matters relating to YOPD.
Just had a meeting with the UK Minister of State for Disabilites Mimms Davies on behalf of the YOPD community where I was able to represent our needs for more help and assistance from diagnosis onwards. I felt we were heard. Grateful to @stevedouble for facilitating. #parkinsons
0
0
10
New on the podcast. Why Spotlight YOPD?.Please share around. It’s available on most podcast platforms. You can also subscribe so you don’t miss an episode. Please also leave us a review (especially if you like it!!). #podcast #parkinsons.
1
2
7
Some great content for those newly diagnosed with Parkinson’s on our new website
0
4
6
A great day!.
Love this picture of us staggering up Downing Street yesterday. So proud of what @moversand6 along with @ParkinsonsUK @CureParkinsonsT and @SpotlightYOPD have done to highlight the need for better Parkinson’s care with our #ParkyCharter
0
0
6
Have you checked out our new website? Join our wall of fame. Check out content for those newly diagnosed and so much more. Sign up for updates!
0
2
3
RT @plantsbloke: The latest edition of our podcast all about young onset Parkinson’s is out in which we chat with @kernowpdnurse our reside….
0
3
0
What a great day!.
Ionic moments tonight at Piccadilly Lights with @ParkinsonsUK 6 stories to reflect the good, the bad, the ups, the downs, the happy, the sad of Parkinson’s. Gaynor, Carl, Jagdeep, Gillian thank you for being there @SpotlightYOPD @LaceySolymar
1
3
23
On World Parkinson’s Day we support the @moversand6 Parky Charter with the petition supported by @ParkinsonsUK @CureParkinsonsT @SpotlightYOPD More money on research & better support for pwp
0
2
25
RT @elliejfinch: Lost count @RoseDon79544976 !Day 1 done, though - it you fancy a laugh, full video on Instagram #parkinsons #yopd #parkins….
0
4
0