
CurePSP
@CurePSP
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To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.
New York, NY
Joined April 2009
We were honored to visit the #CurePSP Center of Care at the Kaye Edmonton Clinic in Alberta, Canada. Their interdisciplinary approach to PSP, CBD and MSA care, led by Drs. Miyasaki and Shetty, is a model of innovation, compassion and community engagement. #BecauseHopeMatters
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🏃♀️ FINAL CALL: Join #TeamCurePSP at Tokyo Marathon 2026!. Applications close July 7th - 2 days left! Race Tokyo's streets March 1st. Turn your miles into hope for PSP, CBD & MSA. Apply: #TokyoMarathon2026 #TeamCurePSP . ©️TOKYO MARATHON FOUNDATION
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🏃♀️ Run through Tokyo with #TeamCurePSP at the 2026 Tokyo Marathon! Experience Japan's vibrant capital on March 1, 2026. Applications now open for this world-renowned race with electric atmosphere! . Apply: . #TokyoMarathon2026 #RunForACause
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CurePSP was proud to be represented at the @UTSWMedCenter Annual Parkinson’s Symposium by amazing volunteers Ileen McFarland & Lisa Henderson! They shared resources on PSP, CBD & MSA and highlighted their monthly support group. Thank you both for your compassion & advocacy! ❤️
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By joining the CurePSP #Genetics Program, you can contribute to meaningful progress in understanding PSP, CBS and MSA. Your participation may lead to improved diagnosis, future treatment options and access to clinical trials. Our goal is 1,000 participants—help us get there!.
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DNA samples undergo whole genome sequencing at the @NIH, and if significant genetic variants are found, results can be reviewed with a genetic counselor. #GeneticResearch.
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We're honored to share Shayne Campbell's story - one of our Team CurePSP NYC Marathon runners. He's running in memory of his father for PSP awareness. Thank you, Shayne, for your dedication. #TeamCurePSP #NYCMarathon.
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🎙️ Former Rep. @JenniferWexton shares how AI-generated speech helps her continue advocating after her PSP diagnosis.
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PSP Awareness Month may be over, but we still need your help with advocacy. Rep. Suhas Subramanyam has reintroduced the House Resolution for PSP Awareness Month recognition. Use our toolkit to contact Congress and urge cosponsorship: #PSPAwarenessMonth
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People travel hours from multiple states for expert care in Salt Lake City. We visited our CurePSP Center of Care co-directed by Dr. Paolo Moretti & Dr. Guillaume Lamotte at @UUtah. They're building comprehensive care for PSP, CBD & MSA patients. #CurePSP #BecauseHopeMatters
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Now that May has come to a close, we’re filled with gratitude.❤️. Thank you to families, care partners, advocates, medical professionals & researchers who helped raise awareness for PSP, CBD & MSA during #HopeInAction.
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As our May Month of Awareness comes to a close, we want to take a moment to spotlight a special event that kicked off the month: our inaugural Run for Hope 5K & 1 Mile Walk. Over 100 community members gathered at the Detroit Riverwalk, bringing no shortage of energy!#HopeInAction
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During #MayAwarenessMonth, we’re proud to highlight the @chumontreal #CurePSP Center of Care, now also a Mission #MSA Center of Excellence. ⭐. Their team is making a real impact for people living with #PSP, #CBD and #MSA through expert care, research & education. #HopeInAction
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