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CurePSP Profile
CurePSP

@CurePSP

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Following
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To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

New York, NY
Joined April 2009
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@CurePSP
CurePSP
10 hours
Season two of The Collective Mind is here! We’re back with Chris and Mike, two amazing community members who have used their time since Chris’ PSP diagnosis to make the most of every moment together. Listen to the full episode here:
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@CurePSP
CurePSP
2 days
We were honored to visit the #CurePSP Center of Care at the Kaye Edmonton Clinic in Alberta, Canada. Their interdisciplinary approach to PSP, CBD and MSA care, led by Drs. Miyasaki and Shetty, is a model of innovation, compassion and community engagement. #BecauseHopeMatters
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@CurePSP
CurePSP
4 days
🏃‍♀️ FINAL CALL: Join #TeamCurePSP at Tokyo Marathon 2026!. Applications close July 7th - 2 days left! Race Tokyo's streets March 1st. Turn your miles into hope for PSP, CBD & MSA. Apply: #TokyoMarathon2026 #TeamCurePSP . ©️TOKYO MARATHON FOUNDATION
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@CurePSP
CurePSP
8 days
🏃‍♀️ Run through Tokyo with #TeamCurePSP at the 2026 Tokyo Marathon! Experience Japan's vibrant capital on March 1, 2026. Applications now open for this world-renowned race with electric atmosphere! . Apply: . #TokyoMarathon2026 #RunForACause
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@CurePSP
CurePSP
13 days
CurePSP was proud to be represented at the @UTSWMedCenter Annual Parkinson’s Symposium by amazing volunteers Ileen McFarland & Lisa Henderson! They shared resources on PSP, CBD & MSA and highlighted their monthly support group. Thank you both for your compassion & advocacy! ❤️
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@CurePSP
CurePSP
14 days
By joining the CurePSP #Genetics Program, you can contribute to meaningful progress in understanding PSP, CBS and MSA. Your participation may lead to improved diagnosis, future treatment options and access to clinical trials. Our goal is 1,000 participants—help us get there!.
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@CurePSP
CurePSP
14 days
DNA samples undergo whole genome sequencing at the @NIH, and if significant genetic variants are found, results can be reviewed with a genetic counselor. #GeneticResearch.
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@CurePSP
CurePSP
14 days
🧬 The #CurePSP Genetics Program has received over 350 applications from individuals helping to advance understanding of the genetic causes of PSP, CBS and MSA, all through a free, at-home DNA collection. 🔗 Learn more or enroll today:
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@CurePSP
CurePSP
16 days
Join us on the green in Raleigh, NC, for a special day of golf honoring Katie Lyons, who is courageously living with PSP. ⛳️ Enjoy food, community, and guest speakers, all in support of CurePSP's mission. Register:
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@CurePSP
CurePSP
29 days
We're honored to share Shayne Campbell's story - one of our Team CurePSP NYC Marathon runners. He's running in memory of his father for PSP awareness. Thank you, Shayne, for your dedication. #TeamCurePSP #NYCMarathon.
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@CurePSP
CurePSP
1 month
She’s joined by Dr. Janis Miyasaki, neurologist and co-director of a CurePSP Center of Care at @UAlberta, who highlights the value of compassionate, team-based care. A moving conversation on resilience, technology, and support for those living with PSP.
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@CurePSP
CurePSP
1 month
🎙️ Former Rep. @JenniferWexton shares how AI-generated speech helps her continue advocating after her PSP diagnosis.
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@CurePSP
CurePSP
1 month
PSP Awareness Month may be over, but we still need your help with advocacy. Rep. Suhas Subramanyam has reintroduced the House Resolution for PSP Awareness Month recognition. Use our toolkit to contact Congress and urge cosponsorship: #PSPAwarenessMonth
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@CurePSP
CurePSP
1 month
People travel hours from multiple states for expert care in Salt Lake City. We visited our CurePSP Center of Care co-directed by Dr. Paolo Moretti & Dr. Guillaume Lamotte at @UUtah. They're building comprehensive care for PSP, CBD & MSA patients. #CurePSP #BecauseHopeMatters
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@CurePSP
CurePSP
1 month
CurePSP is investing in tomorrow’s breakthroughs today: Our Urso and Jim Atwood Neuroscience Student Fellowship Grants are empowering the next generation of scientists to continue unlocking the mysteries of PSP, CBD and related diseases:
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@CurePSP
CurePSP
1 month
Now that May has come to a close, we’re filled with gratitude.❤️. Thank you to families, care partners, advocates, medical professionals & researchers who helped raise awareness for PSP, CBD & MSA during #HopeInAction.
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@CurePSP
CurePSP
1 month
As our May Month of Awareness comes to a close, we want to take a moment to spotlight a special event that kicked off the month: our inaugural Run for Hope 5K & 1 Mile Walk. Over 100 community members gathered at the Detroit Riverwalk, bringing no shortage of energy!#HopeInAction
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@CurePSP
CurePSP
1 month
During #MayAwarenessMonth, we’re proud to highlight the @chumontreal #CurePSP Center of Care, now also a Mission #MSA Center of Excellence. ⭐. Their team is making a real impact for people living with #PSP, #CBD and #MSA through expert care, research & education. #HopeInAction
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@CurePSP
CurePSP
1 month
Help us spread PSP awareness at the federal level! Use our toolkit to contact your members of Congress to cosponsor the 2025 House Resolution recognizing May as PSP Awareness Month, reintroduced by Rep. Suhas Subramanyam. Advocate with CurePSP!
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@CurePSP
CurePSP
1 month
The Tau Global 2025 Lived Experience Panel, featuring Paul, Beth & Linde (living with PSP, CBD & FTD family history), deeply moved 500+ researchers. “It touched my heart,” said Dr. Min, a CurePSP grantee. It was a powerful connection that we’ll keep fostering. ⭐
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