Mike Willis
@histon_mike
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Ex ink-jet industry professional. Retired, but active in PPI - Public & Patient Involvement - especially related to T2 diabetes. Diagnosed with MND
Cambridge, UK
Joined December 2008
Warning- Accessibility rant! #Accessibility #wheelchairaccessible #mnd @mndassoc @mrmarksteel @ATGTICKETS
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Last call for the BCI survey! Closes Friday 12th September. @mndassoc @spinalinjuries @TheStrokeAssoc @LindAlliance
Have you completed the BCI survey yet? There’s still time! https://t.co/QVAhWVCkJt
#mnd #als #stroke #spinalcordinjury
@mndassoc @TheStrokeAssoc @spinalinjuries @LindAlliance
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Have you completed the BCI survey yet? There’s still time! https://t.co/QVAhWVCkJt
#mnd #als #stroke #spinalcordinjury
@mndassoc @TheStrokeAssoc @spinalinjuries @LindAlliance
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We're offering #ResearchFunding to address research priorities identified by @LindAlliance . These health and care priorities have been identified by patients, carers & clinicians to ensure that research helps the people who need it most. For more details and to apply for
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After two years of putting in the work to build things such as our vital PPIE group, in September we officially launch the Greater Manchester MND Research Partnership. Register to join us via the QR code in the poster below. We look forward to an exciting event in Salford!
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This is a call-out to those living with MND/ALS to help shape the future! If you are living with MND, or are a carer or clinician, please give up 15-20 mins of your time to complete the questionnaire at https://t.co/x3usZrIGiU Thank you! @mndassoc #MND #ALS
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Listen to @dsetters share his experiences of MND and our previous events. Are you a Scottish footy fan. Be like Dave and support the Scottish March of the Day for @MartinJ_MND, @DarbyRimmerMND & @MNDoddie5. Main sponsors @PFAScotland Be a walker/sponsor https://t.co/uOf3K1W7Vo
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Thanks for the publicity @RupertLowe10 A great boost for @MNDPatients @united2endmnd & @MNDresearch funding as well as the magnificent #row4mnd team. PS early warning - lilos expected to be spotted off Cleethorpes today! Keep 'em peeled! Donate at
row4mnd.com
Join us in an epic rowing challenge inspired by Rob Burrow and Doddie Weir, raising funds and awareness for Motor Neurone Disease.
'It's things you don't expect' Matthew Parker from ROW4MND spoke to #BBCBreakfast after Independent MP Rupert Lowe admitted mistaking the charity rowing crew for “illegal migrants” and alerting authorities https://t.co/ndsOfuEeLu
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The Coldstream Guards Band performed Black Sabbath's masterpiece Paranoid outside of Buckingham Palace as a tribute to Ozzy Osbourne on the day of his funeral. Don't let anybody tell you this isn't a great country. https://t.co/bDPUnVkAKu
https://t.co/OUGp6GOvHt
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"I can still..." Despite living with MND, Mike Willis (@histon_mike) is showing the world what he can still do. In this powerful video which Mike made for #GlobalMNDAwarenessDay, he challenges assumptions about life with #MND. 🧡
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This #FathersDay, we’re celebrating the strength, love & resilience of dads, grandads & father figures living with or affected by MND. 💙 Mike, Eugene, James, Martyn & Craig shared special memories with their families, reminding us how precious every moment is. 💬 Share your
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still dont know when (if?) my thesis will be uploaded to the official university repository so in the meantime heres a link to it on hcommons if anyone is interested: Duplicate, copy, print; towards a material history of the zine
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Want to know more about NHS Continuing Healthcare Funding (CHC)? Pls join support group TOMORROW, 11AM where we share our experiences to help @MNDpatients & their carers apply for this non-means tested, but often difficult to get, funding. Details to join the call are on poster.
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https://t.co/qbQAn5kIQR Over the last 3 years, Histon resident Mike Willis has lost the ability to speak clearly. Following his appearance this week on @BBCTheOneShow Mike shares with #HIHUB how technology could enable communication using brain waves. @mndassoc @NottmTrentUni
hihub.info
Over the last three years, Histon resident Mike Willis, who has a diagnosis of Motor Neurone Disease (MND), has lost the ability to speak clearly. Following his appearance this week on BBC's The One...
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Following his appearance this week on @BBCTheOneShow, Mike Willis (@histon_mike) shares how the technology he trialled could enable communication using brain waves. Read more 👇 🧠#MND
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It was great to be visited by Lindsey Burrow, @histon_mike and @BBCTheOneShow for a special report on our research into a low-cost brainwave reader to support people with #MND (from 1:20) @NTUadbe
https://t.co/Pt9RhM3GBJ
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On tonight’s episode of @BBCTheOneShow, Lindsey Burrow and Mike Willis (@histon_mike), who is living with #MND, head to Nottingham Trent University to find out about the development of new communication technology. Watch the feature here👉
bbc.co.uk
Ellie Simmonds, Matthew Goode, Sian Gibson and Conleth Hill join Roman and Alex.
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Please share this promising news @MNDwestsussex @MNDANorWave @WL_MND @MNDMidKent @MndaSouth @MNDsouthlondon @MNDEastLondon @MNDManchester @MNDACheshire @MNDsouthlondon
https://t.co/h3yGKFPgTh Our initial take on Mirocals results, including our asks of neurologists, charities, @NHSuk authorities & @DHSCgovuk @DHSCmedia Hoping for more news next week from @UK_mnd_CSG - @burrow_geoff @edslater @DarbyRimmerMND @joncoates73 @CharlotteHawkns
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This #WorldVoiceDay, we are highlighting the impact that losing your voice has on those living with #MND. Mike (@histon_mike) has shared his experience of voice loss, including some advice and guidance for people when talking to those who have communication difficulties.
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@mndassoc healthcare research grants are open for applications! This year we’re particularly interested in #MND research looking at: 💊Pain management 🏃♂️➡️ Exercise 🧠 Cognitive and behavioural symptoms Find out more and apply 👇 https://t.co/6yr0eFJ6RT
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