MNDANorwichWaveney
@MNDANorWave
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Norwich & Waveney branch of the Motor Neurone Disease Association. Branch area defined by all NR and IP21-27 postcodes inclusive. Facebook: MNDANorwichWaveney
Joined November 2016
Do take part if you are living with MND or provide care for an individual living with MND. ~SH
🌡️🧠 We're investigating the Effects of Heat Events on Individuals with Motor Neurone Disease (MND), 📑Click the link for further information & to complete an online survey: -Individuals with MND: https://t.co/y97L5eEbMh -Carers of Individuals with MND: https://t.co/VJNcte4rBo
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Really good to see the MND Association campaigns team supporting the @spinalinjuries Association's Accessible Housing Campaign.
Last week, we joined the @spinalinjuries Association at Parliament Square to support the launch of their Accessible Housing Campaign. Everyone deserves a home that meets their needs. Find out more about their campaign here: https://t.co/qHkRegUU2d
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46 of us walked by the sea to d'feet MND on Saturday 11th October, raising a fantastic £794!🧡 Thanks to everyone who came and contributed, and to Jane for organising! #MND #MNDA #motorneuronedisease #walkforwellbeing #youarenotalone #livingwithMND
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100th Parkrun for Tim Angell, a keen runner diagnosed with MND but that did not stop him from completing the course in his wheelchair surrounded by family and friends! Read the full article here: https://t.co/hOtOWhirwN
edp24.co.uk
Crowds gathered to cheer on Tim Angell complete his 100th parkrun after his Motor Neurone Disease diagnosis.
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Putting the fun in fundraising 📷 One of our branch members Cerys completed the Great North Run last month and raised over £500 + gift aid for MNDA! Congratulations and well done from all of us here at the branch! #MND #MNDA #fundraiser #motorneuronedisease
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14-year-old ALS patient supports research trial aiming to find new treatment | King's College Hospital NHS Foundation Trust
kch.nhs.uk
A clinical trial investigating a potential treatment for a rare form of amyotrophic lateral sclerosis (ALS) has enrolled its youngest patient at the King’s Motor Neurone Disease (MND) Care and...
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This morning we hosted our first-ever fringe event at a political conference. The #MND community has told us how vital timely access to genetic testing is - and that’s exactly what we were discussing. Huge thanks to our brilliant panellists: Tanya Curry, Marc Barlow,
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Tonight we heard from @LisaSmartMP and @mpmwilko about the importance of #volunteering in your local communities. Discover more about @mndassoc volunteering opportunities, including campaigning, here ⬇️ https://t.co/ncsS7i0H9j
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Professional pup in progress 🐾 We were all saddened after the loss of Martin Burnell’s assistance dog Bella. She always brought a smile to your face. We were delighted when Martin arrived at our recent support session at Notcutts Garden Centre with new assistance dog Boycie.
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UPDATE: The wheelchair has now been claimed, but a walking frame, shower seat and a baby monitor are still available for anyone who has the need. Please email malcolm.chubbock@mndassociation.org or call 07876 206107 for more information.
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This week is #AccessibleHomesWeek! Accessible housing is essential for people living with #MND, yet many feel trapped in their homes and do not receive the support they need. Disabled Facilities Grants are designed to help fund essential home adaptations like ramps and stair
habinteg.org.uk
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The MND Association has addressed the independent Casey Commission into adult social care - an important opportunity to improve support for people living with #MND and their families. Read more below 👇
mndassociation.org
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Tea, coffee & catch up 📷 Join us for this month's online session to meet others living with MND in the South East region. 📷 Tuesday 16th September 📷 11:00am - 12:30pm Please contact Liz.Cooper@mndassociation.org for the meeting link. #MNDA #MND #livingwithMND
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…this friendly group shares experiences which may help you better navigate the sometimes intimidating system. Next online meeting, Monday, September 1, at 11 AM. Joining details are on the graphic. @MNDANorWave @MNDa_Cheshire @MNDA_WestYorks @MND_RWB @SussexMND
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Our Chairman, Malcolm Chubbock, was on BBC Radio Norfolk today to discuss Sarah Ezekiel's story, she was diagnosed with MND 25 years ago at 34 and lost her voice, but now AI has given Sarah her voice back. Listen in from 3:28:16 to hear the full story: https://t.co/bSVa34wZ2p
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Reminder for our guest speaker and presenter Hazel Carter at our next evening meeting who will be giving a talk on “how to avid burnout” talk, specifically for carers. 📅30th July 6:30-7:30pm Please email charlotte.stanfordgibbs@mndassociation.org for the link!
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Join us for a fabulous Autumn Fashion Show in support of the branch ✨🎀 🗓️ Friday 3rd October 7:30 PM 📍 Yaxham Village Hall, NR19 1RG For tickets & info email fashionshowmnda@gmail.com
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You still have time to sign our #PrescribeLife petition ⏲️ Your support will help to urge the government to make #tofersen accessible to people living with SOD1 #MND. You can sign here 👇
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BIPOC Online Support Group ⭐ For those affected by MND to connect, share & support each other in a safe space 📷 📅 3rd Tuesday monthly @12–1pm Contact: abigail.igbokwe@mndassociation.org
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Recently Diagnosed Group Meeting 🙌 If you or a loved one has recently been diagnosed with MND, we welcome you to join our friendly online group. Come along,get support, chat with others and ask questions 📅18th July @ 2pm via ZOOM Please email Lisa for joining details!
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