This is a great summary on the approach to testing for #immunodeficiencies - #MedEd #MedTwitter #WorldPIWeek @Info4PI @ImmUnityCanada @WorldPIWeek @IDFCommunity

In honour of ‘Rare Disease Day’ we challenge you to share how it feels to have a rare disease. I’ll start ….. #RareDiseaseDay2023 #ProAbility @Info4PI @IDFCommunity #WearePI @ImmunoUK @WorldPIWeek @ImmunologyNews @OD_UHD_NHS @eurordis @debbiedee015 @PappuDeepa @elayne100360

During #WorldPIWeek we're focused on advocating for access to treatment for every person diagnosed with primary immunodeficiency (PI). Here are the treatment options available for someone with PI. 👇

It's so important for #healthcare providers and the public to be aware of these 'warning signs' - Although these are considered to be #RareDiseases there are many adults and kids affected worldwide! @WorldPIWeek @ImmunoUK @ImmUnityCanada @IDFCommunity @Info4PI #WorldPIWeek

#PIFact: April 22-29 is #WorldPIWeek! ❤️ Stay tuned in to our social channels as we’ll be spreading awareness, sharing stories of resilience, and advocating for better care and support for individuals living with PI! #WPIW

Although there are approximately 500,000 diagnosed with primary immunodeficiency (PI) in the U.S, thousands more go undetected. Help us raise awareness for #WorldPIWeek

#WorldPIweek - Day 6 👇🏻 Here is a quick look into the 4 stages of #testing Data source - @Info4PI #Primaryimmunodeficiencies #PIDs

We’re celebrating #WorldPIWeek with gratitude for the incredible doctors, brave patients & passionate advocates worldwide who stand tall in the face of Primary Immunodeficiency. Let's continue to shine a light on PI ❤️⁠ Check out the FULL video on our Instagram! #WPIW #INFO4WPIW

My wishlist for #WorldPIweek , #primaryimmunodeficiency

Today kicks off #WorldPIWeek, and this year, we are working towards our mission in loving memory of Vicki Modell, global patient advocate and leader of World Primary Immunodeficiency Week. Join us this week in commemorating Vicki and celebrating #WPIW. 💖 #INFO4WPIW

Members of our #Immunology clinical, nursing & scientific teams were in the hospital today promoting #WorldPIWeek & raising awareness of #PrimaryImmunoDeficiency. Our Immunology Department continues to be at the forefront of testing, diagnosing & treating these rare disorders. 👏

Join the many patients, policymakers, healthcare professionals, researchers, journalists, company representatives, and other partners that come together this week to shine the light on what living with a PI means and how to deliver change. #WorldPIWeek #MedTwitter

Living with primary immunodeficiency (PI) can feel like an uphill battle against a misunderstood condition. This week we're raising awareness for PI and ensuring access to diagnosis and treatment for every person diagnosed. #WorldPIWeek

#WorldPIweek - Day 5 #PIDs - "Group of more than 450 disorders of #human #immune #system with varying degrees of severity" So here is a quick tour of our body’s #defense system components #primaryimmunodeficiencies #PID Data source - @Info4PI

Getting sick is quite natural ! But how often is "too often"? #WorldPIweek - Day 5 👇🏻Let us take a quick look at the 10 #PI #warningsigns 👇🏻For wider reach a poster in #hindi is also available Data credits - @Info4PI #primaryimmunodeficiency #pids

Meet Elena, a SCID and bone marrow transplant survivor! This #WorldPIWeek, let's amplify the voices of folks like Elena and demand improved access to diagnosis and treatment for primary immunodeficiencies. #WorldPIWeek #SCID #BoneMarrowTransplant #AccessToCare

Join the @PIDsKenya and @KnhResearch webinar on 25th April 2024 commemorating the #WorldPIWeek as we continue advocating for early diagnosis and access to care for PID patients. @AfricanAsid @ipopi_info. Registration link: https://t.co/7qdjBRwxb6

#PrimaryImmunodeficiency (PID) causes children and adults to have infections that come back frequently or are unusually hard to cure. Two or more of these warning signs could indicate the presence of an underlying PID. #WorldPIWeek @ImmunoUK

⚡Newborn Screening SAVES LIVES!⚡ In honor of #WorldPIWeek, physicians Antonio Condino of São Paulo, Brazil and Pere Soler-Palacín of Barcelona, Spain speak on the importance of #NewbornScreening for #SCID all around the world. Learn more here: https://t.co/7TaXz97MUg #INFO4WPIW