PIDs Kenya
@PIDsKenya
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Patient organisation dedicated to creating awareness, improving diagnosis, treatment and quality of life of persons with primary immunodeficiencies in Kenya.
Nairobi, Kenya
Joined July 2018
Join the @PIDsKenya and @KnhResearch webinar on 25th April 2024 commemorating the #WorldPIWeek as we continue advocating for early diagnosis and access to care for PID patients. @AfricanAsid @ipopi_info. Registration link: https://t.co/7qdjBRwxb6
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🌟IPOPI's second video of our celebration of the World PI Week 2024! 🎥🌎 In this second video, we'll hear from Giang Houng, a representative from our patient organisation in Vietnam (#VietPIPS), sharing their journey on the challenges and developments in accessing early
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NEW IPOPI MINI DOCUMENTARY A Closer Look at Primary & Secondary Immunodeficiencies! 🟰 Explore similarities & differences 🩺 Importance of early diagnosis 🏥 Diagnosing PID in patients with cancer 🌏 Unique LMIC challenges ❤️ Patient journeys https://t.co/1UGs3ySkbe
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“I am not alone”- parting shot from @PiNSA_ZA at the 8th African PID Patients Meeting held in Casablanca, Morocco on 14-15 June, 2023. Umoja ni nguvu. @ipopi_info
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It's a wrap! Our 8th African PID Patients Meeting has concluded, and what an incredible gathering it was! 🌍✨ Thank you to all the attendees, speakers, and supporters for making this meeting so successful. 📣 Stay tuned for future initiatives in Africa and beyond.
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Our African PID Patients Meeting in Morocco is only five days away! 📆 🔊 We're honoured to share this crucial message from Dr Leïla Jeddane, President of the African Society for Immunodeficiencies. More info: https://t.co/Hs3qBNjbjp
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“In Africa, where medical care is often limited, early diagnosis is crucial to ensure people with primary immunodeficiencies receive much needed treatment and care.” Valuable insights shared by @CynthiaOlotch, IPOPI Board member from Kenya. https://t.co/Hs3qBNjbjp
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Collaboration is crucial in improving the conditions for patients with #primaryimmunodeficiency in Africa. We are pleased to collaborate closely with @AfricanAsid and other stakeholders to promote the advancement of diagnosis and care in the region. 🤝 https://t.co/Hs3qBNjbjp
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#IPIC2023 is coming to Rotterdam on 8-10 November! 🎉 Join experts in the field to discuss clinical updates, the latest research, and best practices for managing primary immunodeficiencies. Expand your knowledge and network with peers. Register now https://t.co/tg7PC5OJXX
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"Seeing the numbers makes me feel less alone." Hear from Hellen Ayaga, a mother from Kenya, in our 2nd video for #WorldPIWeek. Learn why collecting PID data is crucial for improving patient care. https://t.co/3EJiNhh4uA
@PIDsKenya
#PIDLifeIndex
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African PID patient leaders & healthcare professionals! 📣 Join us for the 8th African PID Patients Meeting in Casablanca, Morocco, June 14-15. Organised in parallel with the ASID Congress, this is a great chance to share PID knowledge! 🧬 👉 https://t.co/Zb1ZbbC9JR
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In search of a free and easy way to monitor your immunodeficiency? 4ID is here for you. 👩⚕️ Immunodeficiency parameters 🤒 Symptoms 💊 Prescription and treatments 🗓️ Appointments and absences 🔔 Reminders Sign up now https://t.co/57ImKZiPBt
#4IDHealthAgenda
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We are at the #AHAIC2023! How does regulatory reliance work? How can its implementation accelerate access to medicines for patients? This afternoon, Cynthia Olotch from IPOPI participated in a session devoted to this topic, organised by @IFPMA! 👉 https://t.co/T3vO5rHawB
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Share your #MyPhysicianAndI stories today! The IPOPI #WorldPIWeek Photo Campaign 2022 aims to encourage conversation about this collaboration, increase connectedness as well as celebrate the close collaboration we know you have with your medical advisors. https://t.co/X63ta9nnb5
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Welcome @ipopi_info #IPIC5 biennial conference on #PrimaryImmunoDeficiencies #PID starting tomorrow in #Algarve #Portugal Lots of education material along with 3 days of medical 🏥 👩🏽⚕️ 🧑⚕️ 👨🏻⚕️ and scientific conferences from experts around the world 🌍 🌎
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IPOPI warmly welcomes all #IPIC5 Edition delegates to Vilamoura. We are very much looking forward to the various congress program sessions, poster presentations and in-person networking. #primaryimmunodeficiencies #PID #IEI
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Ready to make plans to travel? Got new research to present? We look forward to welcoming you at #IPIC5 and are overjoyed to inform that application for #travelgrants is now open! All details: https://t.co/ldiMVkElBu
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IPIC 5th Edition - Travel grants for junior doctors now available:
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Less than 24h away⏰IPOPI Webinar on #CalculatedGlobulins usage in #PrimaryImmunodeficiency diagnosis! Register here https://t.co/jxtlm6PLiT Prof Condino Neto & @ProfSteveH will detail clinical benefits for #earlydiagnosis and lab perspective of the technique. Sep 16, 15h CEST
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