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Immunodeficiency UK Profile
Immunodeficiency UK

@ImmunoUK

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Helping and giving advice to people living with primary or secondary immunodeficiency. Arming them with the knowledge to manage their condition effectively.

UK
Joined January 2012
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@ImmunoUK
Immunodeficiency UK
1 year
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easyfundraising.org.uk
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@ImmunoUK
Immunodeficiency UK
1 year
If you or someone you know is living with an immunodeficiency, check out our frequently asked questions about immunodeficiency. Gain a better understanding of the condition and learn about the support available. https://t.co/kg45jb91AK #immunodeficiency #primaryimmunodeficiency
immunodeficiencyuk.org
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@ImmunoUK
Immunodeficiency UK
1 year
Antibiotics and Immunodeficiency 🛡️ For those with immunodeficiencies, antibiotics are crucial. But did you know their use can be different from general practice? Educate yourself to stay safe! Check out our comprehensive guide: https://t.co/GPZxaiULnY #WAAW
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@ImmunoUK
Immunodeficiency UK
1 year
4 Simple Steps to Combat Antimicrobial Resistance: 1️ Only use antibiotics prescribed by a dr 2️ Complete your full course 3️ Never share or use leftover antibiotics 4️ Prevent infections: Practice good hygiene and stay up-to-date with vaccinations #WAAW
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@ImmunoUK
Immunodeficiency UK
1 year
On our website, we have created an extensive list of resources for patients, carers and professionals. They cover a wide range of topics including taking control of your healthcare and guides covering some of the most common immunodeficiencies.
immunodeficiencyuk.org
Our immunodeficiency resources are written with expert medical professionals and people affected to make sure it’s accurate and clear
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@ImmunoUK
Immunodeficiency UK
1 year
We've created some resources designed to help answer the questions families may have about the immune condition called combined immunodeficiency (CID).
immunodeficiencyuk.org
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@ImmunoUK
Immunodeficiency UK
1 year
🚀 Exciting news in newborn screening! The Generation Study by @GenomicsEngland and @NHSEngland is exploring whole genome sequencing to screen for genetic conditions 🤝 We are partnering to support families https://t.co/3Tikzaeoh5 #NewbornScreening #GenomicMedicine #PID
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@ImmunoUK
Immunodeficiency UK
1 year
When people with a primary or secondary immunodeficiency disease have an infection, it can make them more susceptible to developing long-term problems with their lungs. https://t.co/bOygK5zpr7
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@ImmunoUK
Immunodeficiency UK
1 year
Are you a member yet? It is completely free to sign up and only takes a few minutes. By becoming a member, you will receive regular updates on our activities and get our monthly newsletter which is packed with news vital to the immunodeficiency community https://t.co/NR0QZmSMHL
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@ImmunoUK
Immunodeficiency UK
1 year
Your click could help us win £1,000! Nominate Immunodeficiency UK in the @BenefactGroup's #MovementForGood awards. It takes just 30 seconds and costs nothing. The more nominations we get, the better our chances! Nominate here:
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Nominate a charity for a Movement for Good award now.
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@ImmunoUK
Immunodeficiency UK
1 year
#didyouknow that primary immunodeficiencies account for over 450 of the 6,000 recognised rare diseases? Our website has a wealth of information on a whole host of primary immunodeficiencies including patient stories and downloadable leaflets https://t.co/7qmlKBJ3kn
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@ImmunoUK
Immunodeficiency UK
1 year
Just diagnosed with common variable immune deficiency (CVID)? Then our CVID leaflet provides information and helps answer the questions patients and their families may have about these conditions. Download it here https://t.co/iuidblDkyq
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@ImmunoUK
Immunodeficiency UK
1 year
Show your support and raise awareness for immunodeficiency with our exclusive Immunodeficiency UK pin badges - now available for just £2! Wear your support with pride and help spread awareness wherever you go.
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immunodeficiencyuk.org
Show Your Support with Immunodeficiency UK Pin Badges Make a statement and raise awareness about immunodeficiency with our exclusive Immunodeficiency UK pin badges! Stylish and eye-catching, these...
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@ImmunoUK
Immunodeficiency UK
1 year
the Acumen team, which will take place in either central London or central Manchester. As a thank you for contributing to the interview session participants would receive £120 paid via bank transfer, and up to £100 towards travel reimbursements. 4/4
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@ImmunoUK
Immunodeficiency UK
1 year
Alternatively, you can email harriet.connell@acumenfieldwork.com directly or telephone Acumen’s offices on 0161 242 5215 and ask to speak to Harriet. After reviewing the pre-screening responses, suitable candidates for the study will be invited to take part in the session by 3/4
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@ImmunoUK
Immunodeficiency UK
1 year
Who currently receive treatment, or are due to start immunoglobulin treatment via subcutaneous injections (SCIG) To take part you need to complete the pre-screening eligibility questions at https://t.co/LRBnFSOC6I 2/4
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@ImmunoUK
Immunodeficiency UK
1 year
Acumen Fieldwork are looking to speak to people diagnosed with a primary immunodeficiency (PID) to take part in a study one hour interview, to support the development of an infusion set product. Involvement criteria: People diagnosed with a PID 1/4
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@ImmunoUK
Immunodeficiency UK
1 year
🌍 Today is World Mental Health Awareness Day 🧠 Living with immunodeficiency can impact your mental well-being. 💚 🌟 Visit the Rareminds Wellbeing Hub for: - Coping strategies - Mental health advice & more https://t.co/tA6kZe0tTb #WorldMentalHealthDay
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@ImmunoUK
Immunodeficiency UK
1 year
🌟 It's International Plasma Awareness Week! 🌟 Plasma donations save lives every day. For many people with immunodeficiencies, plasma-derived therapies are essential. Learn more about plasma donation and how it helps: https://t.co/vx27u9egXh #PlasmaAwarenessWeek @NHSBT
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@ImmunoUK
Immunodeficiency UK
1 year
X-linked Severe Combined Immunodeficiency (SCID) is one of the most serious primary immunodeficiencies. Our website has a wealth of information to help you learn more and we even have downloadable booklets that you can share with others https://t.co/yqRUI01abr
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