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Jeffrey Modell Foundation (JMF) Profile
Jeffrey Modell Foundation (JMF)

@Info4PI

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Following
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JMF is a global nonprofit dedicated to #PrimaryImmunodeficiency Advocacy, Research, Education, Newborn Screening & Genetic Sequencing to #CurePI worldwide 🌎

Global PI Village
Joined March 2013
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@Info4PI
Jeffrey Modell Foundation (JMF)
4 years
Kids get sick 🤒 But how often is too often? Primary Immunodeficiency (PI) causes frequent #infections that can be hard to cure. 1:500 people are affected by PI. If your child exhibits 2+ of the #10WarningSigns 🚨, speak to a physician. See the signs at https://t.co/eRGIvr4Bdh
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@Info4PI
Jeffrey Modell Foundation (JMF)
3 days
Myth: #PlasmaDonation is risky and complicated. Fact: Plasma donation is a safe, well-regulated process, and most donors can give regularly. Donated plasma is then used to create life-saving therapies for patients with #PrimaryImmunodeficiency and other serious conditions. Every
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@Info4PI
Jeffrey Modell Foundation (JMF)
4 days
💙 November is #NationalFamilyCaregiversMonth. Behind every person living with #PrimaryImmunodeficiency is a network of caregivers — parents, partners, siblings, children, and friends — who give endless strength, love, and hope. This month, we celebrate all those who care,
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@Info4PI
Jeffrey Modell Foundation (JMF)
8 days
👩‍🔬 To every student, scientist, and innovator — thank you for shaping the future of PI care. #InternationalSTEMDay #PrimaryImmunodeficiency #STEM #JeffreyModellFoundation #SeeTheUnseen #ScienceSavesLives
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@Info4PI
Jeffrey Modell Foundation (JMF)
11 days
The Jeffrey Modell Foundation was proud to attend and support the Latin American Society for Immunodeficiencies (LASID) meeting this year. We’re always inspired by the incredible collaboration, innovation, and dedication within the global immunology community.  This year’s
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@Info4PI
Jeffrey Modell Foundation (JMF)
13 days
📣 Only one week left! Don’t miss the first-ever #JMFSpeakerSeries event, happening November 10, 2025, at 11 AM EST! Join us as we celebrate Vicki Modell’s legacy on her birthday with an inspiring conversation led by Dr. Lisa Forbes-Satter, featuring world-renowned immunology
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@Info4PI
Jeffrey Modell Foundation (JMF)
17 days
Jammer’s been busy spreading awareness — and so have our taxi-top ads! 🚕💙 We love seeing JMF on the move, reaching new places and new people across the globe. Have you seen Jammer or one of our ads lately? Tag us and let us know where!
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@Info4PI
Jeffrey Modell Foundation (JMF)
19 days
MYTH: #PrimaryImmunodeficiency only affects children. FACT: While some severe forms of PI become apparent in infancy, approximately 75% of diagnoses are made in adults.📌 Primary Immunodeficiency doesn’t discriminate - all ages can become affected. Let’s break the myths and share
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@cecipolih
Cecilia Poli
1 month
LASID’s tribute to wonderful , kind, strong and empowering Vicky Modell @Info4PI thanks so much Vanessa for everything you do and for being with us today and always!
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@S_Delafontaine
Selket Delafontaine
24 days
Huge thanks 🙏🏻 to @LASIDimmuno and @Info4PI for giving me the opportunity to present this case and the beautiful work of @MarjonWouters of @IsabelleMeyts group 🧬💊
@LASIDimmuno
LASID
1 month
Selket Delafontaine presenting a mindblowing case invilving ADA2 and HLH!
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@Info4PI
Jeffrey Modell Foundation (JMF)
24 days
📣 Have you registered yet? Don’t miss the first-ever JMF Speaker Series event, happening November 10, 2025, at 11 AM EST! Join us as we celebrate Vicki Modell’s legacy on her birthday with an inspiring conversation led by Dr. Lisa Forbes-Satter, featuring world-renowned
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@Info4PI
Jeffrey Modell Foundation (JMF)
26 days
Waking up with a #ChronicIllness means your day starts heavy. Before your eyes even open, your mind is flooded not with typical morning thoughts, but with the omnipresent reality of your condition. Your life has been completely reshaped: the daily pill regimen, the constant cycle
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@Info4PI
Jeffrey Modell Foundation (JMF)
1 month
CALLING ALL PATIENTS! 😁 Would you like the chance to be featured on our social media platforms and website? We’d love to share your story with the global PI community! Click here: https://t.co/NYdr1Frrqk
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@Info4PI
Jeffrey Modell Foundation (JMF)
1 month
Next up in our #PIIdentified #BENTA (B cell Expansion with NF-κB and T cell Anergy) disease - a very rare #PrimaryImmunodeficiency caused by changes in the CARD11 gene. These changes make the CARD11 protein overactive, which disrupts the immune system. Though rare, learning about
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@Info4PI
Jeffrey Modell Foundation (JMF)
1 month
🚨 Save the Date! 🚨 We’re thrilled to announce the very first JMF Speaker Series event, taking place November 10, 2025, at 11 AM ET. This special event will be held in honor of the late Vicki Modell on her birthday, celebrating her legacy and lifelong dedication to the PI
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@Info4PI
Jeffrey Modell Foundation (JMF)
1 month
Ever wondered what it’s like to donate plasma? ✨ Our team member Megan went through the entire process, from check-in to donation, and is sharing what her experience looked like step by step. Plasma from donations like hers are used to create life-saving medicines for people
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@Info4PI
Jeffrey Modell Foundation (JMF)
1 month
💙 This International Plasma Awareness Week, we want to say one thing: thank you. To every plasma donor around the world-you are heroes, lifesavers, and the reason patients with PI and other rare diseases can thrive. 🌍✨ From patients, physicians, and our JMF family: we are
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@Info4PI
Jeffrey Modell Foundation (JMF)
1 month
💡 3 things you may not know about plasma: 1️⃣ Less than 5% of eligible people donate plasma. 2️⃣ Plasma can’t be manufactured-it can only come from generous donors. 3️⃣ 130 donations are needed to treat just one PI patient for one year. This is why plasma is truly life-saving. 💙
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@Info4PI
Jeffrey Modell Foundation (JMF)
1 month
It’s International #PlasmaAwarenessWeek! 💙 Plasma is powerful. From saving the lives of PI patients to treating neurological and autoimmune conditions, plasma-derived therapies are essential. Yet, less than 5% of eligible people donate plasma—and patients need thousands of
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@Info4PI
Jeffrey Modell Foundation (JMF)
2 months
🔷 Today is #APDSAwarenessDay, a day to shine a spotlight on Activated PI3K Delta Syndrome, a rare immunodeficiency that often overlaps with other immune conditions. By raising awareness, sharing stories, and supporting research, we can help more people get the diagnosis and care
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@Info4PI
Jeffrey Modell Foundation (JMF)
2 months
💙 Meet Etta, a little fighter whose life was saved by #NewbornScreening for #SCID. Diagnosed just days after birth, Etta underwent a lifesaving stem cell transplant before her first birthday. Thanks to early detection, she’s now home, growing stronger every day, and preparing
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