Kevin J. Fowler Principal The Voice of the Patient
@gratefull080504
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Consulting business: recruiting early intervention kidney disease + kidney transplant trials;Moved from Chicago back home to STL; Move treatment of CKD upstream
Saint Louis, MO
Joined January 2010
If there was ever an argument why the treatment of #kidneydisease must move upstream, look at 5 year survival on #hemodialysis + how it compares to cancer + other diseases Thanks @Kidney_Kula + @4_kidney for sharing cc @soledadobrien @PostRowland @KHNews @LizSzabo @NYTHealth
Reading the most recent issue of @CJASN and I was struck by this figure from Joseph Bonventre’s editorial. I hope findings like these can help our health system appreciate the need for and value of nephrologists and their research! #medtwitter #pedneph
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Since yesterday was my last day serving on the Kidney Health Initiative Board of Directors, I am reflecting upon my past 10 and half years serving on the inaugural Patient Family Partnership Council and two terms on the BOD. My relationship with KHI and the American Society of
linkedin.com
Professional global and national patient advocate. Value proposition based upon over 25… · Experience: The Voice of The Patient, Inc. · Location: St Louis · 500+ connections on LinkedIn. View Kevin...
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This was a collaborative effort between Amber Paulus, PhD, Danielle Kirkman, PhD, Dr. Gupta from @VCUHealth + myself on our proposal to maximize life after kidney transplantation.
Dr. Belding Scribner envisioned kidney care that enabled comprehensive rehabilitation to help restore independence and purposeful living for recipients of kidney transplants. This perspective in #ASNCJASN outlines the changes that are still needed to achieve that vision.
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Congratulations @LVRiella to you and your colleagues.
We’re proud to share 3 historic breakthroughs @mgh_transplant ✅3rd kidney xenotransplant completed at MGH — patient thriving at 90 days ✅7+ months dialysis-free: longest survival w/ a pig kidney ever ✅FDA clears larger trial @eGenesisBio
@MGHMedicine @MGHSurgery @MGBKidneys
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On #pkdawareness day, I would like to recognize my Aunt, Laverene Duvall on her almost $1.7 million donation to the in 2013. As she was dying, my sister Joanne Fowler and I encouraged her direct to direct her estate to the @PKDFoundation . Her spirit lives on with her generous
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This is a very sobering story for people who have received a kidney transplant. For the over 20 years that I have had my kidney transplant, I have chosen to remain on brand. Why? I want to ensure the consistency of my supply and to avoid the consequences of switching from one
propublica.org
When Joe DeMayo’s donated kidney started to fail earlier than expected, he didn’t know that the drug he was taking could’ve left him vulnerable — and that one of the most formidable drug regulators...
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I am in agreement with you @PeterPReese1 I am looking forward to report or presentation.
My goal for the few weeks is to convince you that transplant is transforming. New technologies are knocking down our main challenges. Why make the case now? New trainees just started. They might fall for transplant. July 1: we'll publish the vision. @ParisTxGroup @ESOTtransplant
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Amidst the excitement surrounding CONFIDENCE data, how many nephrologists are actually prescribing finerenone or SGLT2 inhibitors? My sense is that utilization of both medications quite low individually. If I am mistaken, please correct me. Otherwise, I remain skeptical on
Original Article: Finerenone with Empagliflozin in Chronic Kidney Disease and Type 2 Diabetes (CONFIDENCE trial) https://t.co/AqeFwQNqpn
#ERA25 | @ERAkidney
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Today @nephcure is celebrating the first ever #FSGS awareness day. Due to the collaboration between the nephrology community + @nephcure the future has never looked better for people with #FSGS. I encourage you to sign up through the link below. I will be there tonight.
Dimerix recognises & supports @NephCure’s first-ever #FSGSAwarenessDay, 10 June 2025. #FSGS can affect anyone and often progresses silently. Awareness empowers patients, supports carers & advances research. 🔗 https://t.co/klpVKYflth
#Dimerix #biotech #kidneyhealth
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Well said @kidneyrebel
Tolvaptan for PKD went generic. The insurance company is making me go generic, but I'll always appreciate @OtsukaUS - you funded the drug trials, you stuck with it when times got tough, and you made sure I had access to the medication for almost 7 yrs. @ $10 month max. 🙏
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On this #MemorialDay I am thinking about all of the people who lost a child , sibling, parent or friend to ensure our freedom.
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I hope that my article and this special issue of @Transpl_Int Life after Traansplantation serves as a platform to improve QOL + particpation in life for transplant recipients cc @ESOTtransplant #openaccess #organdonation
🔎 It’s time to reshape the narrative: Life after a kidney transplant is more than survival - quality of life must be prioritised. Read Kevin Fowler’s (@gratefull080504) fresh perspective and call to action in @Transpl_Int's Special Issue. @ESOTtransplant Read here ⬇️
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I would like to thank Maarten Naesens, MD @ESOTtransplant @Transpl_Int for the opportunity to write my position statement on where the field of transplantation needs to shift to. Now is the time to improve quality and participation of life after transplant.
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Thank you @LVRiella for your efforts to advance #xenotransplantation to provide the opportunity for people to live.
He’s thriving nearly 4 months after receiving a gene-edited pig kidney at @mgh_transplant @MGHSurgery @MGHKidneys @harvardmed. “He was tired of just surviving. A pig kidney gave him a shot at living.” @CNN 🔗
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Great news for the #FSGS community!!
📢 Dimerix announces US licensing deal for DMX-200 with NASDAQ-listed @amicusrx1 (US$2.2B market cap)—our 4th deal, totalling ~A$1.4B in potential value. Hear directly from CEO Dr Nina Webster in our Investor Webinar today at 11 AM AEST:
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Wishing everyone a #happyeaster and #passover
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I'm a patient advocate who supports Medicaid for the 1 in 5 Americans who rely on it. @senhawleypress, please #ProtectMedicaid
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Tomorrow night 3/25/25 at 9 pm EST, only on #Bluesky #MedTwitter #NephTwitter #NephJC We discuss the latest guidance from @goKDIGO on #ADPKD. Topics including screening, med therapy, KRT, ADPLD & lifestyle recs You have to be there, I in-cyst 🫣 https://t.co/00NfXHHzqP
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Well said @MarkHertling Me too.
Some have disappointed, some had bad policy, some made big mistakes. But I’ve never in my life been ashamed of American leaders. Until today.
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I applied for @AST_info membership + received this response: "While we find your transplant advocacy work impressive and honorable, you unfortunately do not qualify for AST membership at this time. Our current membership bylaws require members to have a direct scientific or
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I am grateful to contribute to this Patient Reported Outcome Measure with @dpeipert @amywaterman @jfriedo + @DanielaLadnerMD While I am grateful for this project, it is important to recognize that it has been known for some time of the cognitive issues associated with
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx https://t.co/nfSQNaiQK1
#OpenAccess
@jfriedo @amywaterman @DanielaLadnerMD @gratefull080504 #VisualAbstract
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