NephCure
@nephcure
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Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.
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Joined June 2020
RT @ISGDtweets: Exciting news! 🌟 The ISGD Centers of Excellence in Glomerular Disease criteria have been finalized after 2+ years of meticu….
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RT @ISGDtweets: Meet our distinguished international and multidisciplinary leadership and team of ISGD COE-GD Evaluators! They are ready to….
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RT @gratefull080504: Today @nephcure is celebrating the first ever #FSGS awareness day. Due to the collaboration between the nephrology c….
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RT @RareRevolutionM: 👉 Learn more about rare kidney diseases, genetic testing, and how to take action at #FSGS #Glo….
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#DidYouKnow FSGS occurs more frequently in adults than in children?.@NephCure is supporting our community this #FSGSAwarenessDay in order to raise.awareness of this debilitating rare kidney disease.
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Did you know that 13% of African Americans have the APOL1 gene changes that can cause APOL1 kidney disease?. Help us spread awareness and education by registering for our APOL1 Awareness Town Hall below:.
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RT @RareRevolutionM: Join @nephcure on 29 April, 7pm ET for a vital townhall discussion that will focus on urgency in raising awareness on….
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RT @SWadhwaniMD: This is an incredible step forward for our #FSGS patients!! Huge shout out to everyone involved in #PARASOL ☂️ ✨ for pavin….
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RT @Tobias_B_Huber: Published today: JCI - Passive transfer of patient-derived anti-nephrin autoantibodies causes a podocytopathy with mini….
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During #NationalKidneyMonth, we're uniting patients, families, researchers, and physicians to drive RKD awareness and ensure those at risk or affected by these diseases receive the right education and support. Join us in creating a future without RKD.
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Today is Rare Disease Day! . This year, we're going to #LightUpForRare in honor of our rare kidney disease community - recognizing the challenges of their journey and reestablishing our commitment our rare kidney disease patients and families.
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25 years ago, rare kidney disease (RKD) was a lonely battle fought in the dark. NephCure turned on the light. Starting in 2000, we’ve been the leading voice creating hope for patients navigating RKD. The work isn’t done. But today, we stand 25 years closer to a cure for RKD.
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RT @Cure4MyJulia: #GivingTuesday2024 PLEASE support @nephcure they help us with #RKD like Julia’s #FSGS.There is NO known cause or NO CURE….
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RT @GbadegesinLab: Looking forward to having major stakeholders in the room to discuss clinical and research areas of need in rFSGS. Hopefu….
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RT @rarediseasesnet: New research from the #NephroticSyndrome Study Network (NEPTUNE):. ✅ Exploring How Residential #AirPollution Affects D….
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That’s a wrap on @ASNKidney #KidneyWk ! A huge thank you to all the attendees, speakers, and organizers for making Kidney Week an unforgettable experience. Together, we’re creating a brighter future for kidney health worldwide!
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RT @louise_oni: Outstanding talk by @DannyGale_1 on the fantastic global project PARASOL @nephcure @ISGDtweets . (Again supported by @Renal….
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