NephCure
@nephcure
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Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.
Remote
Joined June 2020
Nominate a NephCure Specialist! 🌟 We’re seeking pediatric & adult nephrologists who exemplify excellence in clinical care. You can nominate more than one clinician (one form per nominee), and self-nominations are welcome. https://t.co/pbsBeZWWkh
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If you or someone you know could benefit from a rare kidney disease (glomerular disease) clinical trial, we’ve built a tool to help you easily find the right fit. Explore available trials here: https://t.co/urujhOsw5M
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This #GivingTuesday, make a meaningful impact in the fight against rare kidney disease. 💚 Your gift supports patients, fuels research, and brings us closer to new treatments—and a cure. Donate or start a fundraiser today:
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This #GivingTuesday, make a lasting impact in the fight against rare kidney disease. 💚 Your gift fuels research, supports patients, and brings us closer to a cure. Give today at https://t.co/Ab0wBV6j5g
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If you or someone you know needs guidance on a kidney-friendly diet, we’ve got you covered. Explore helpful tips, meal guidance, and nutrition resources on our website: https://t.co/0MnzFmmWv4
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Nominate a NephCure Specialist! 🌟 We’re seeking pediatric & adult nephrologists who exemplify excellence in clinical care. You can nominate more than one clinician (one form per nominee), and self-nominations are welcome. https://t.co/pbsBeZWWkh
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Mark your calendars: Giving Tuesday is Dec 2! Whether you donate, start a personal fundraiser, or request a matching gift from your employer, your support helps save kidneys and lives. Give at: https://t.co/Ab0wBV6j5g
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NephCure has released state policy recommendations to improve care, diagnosis & access for people living with rare kidney diseases. Shaped by clinicians, advocates & patients, these insights outline key actions to speed diagnosis & prevent kidney failure. https://t.co/4cqTsQZjor
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Julianne shares her journey with FSGS and how NephCure has supported her along the way. Explore our patient resources, and help us make a difference by donating today at https://t.co/ec67jpPI3P.
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Today is C3G Awareness Day! At ISGD, we stand with people living with this rare kidney disease. As a medical society for GD experts, we're committed to raising awareness and moving the science forward to bring more hope and solutions to the C3G community. #C3GAwarenessDay
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Today is C3G Awareness Day! C3G affects just 2–3 per million people, but no one faces it alone. Together we can raise awareness, accelerate research, and support patients + families. We are #RareTogether 💚 🔗 https://t.co/knflKatqLq
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Chairs @kidneybiz & @IqtidarMyda discussing the challenges our #IgAN patients face and our cross-stakeholder mission! @nephcure
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Red card 🟥 or green card 🟩? At today’s IgAN Alliance Workshop in Chicago, every voice matters. Patients, caregivers, clinicians & more are shaping solutions together in real time to break down barriers in IgAN care and creating interactive dialogue! #IgAN #RareKidneyDisease
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Pleased to be participating in @nephcure IgAN Alliance Stakeholder Collaborative Workshop to move forward this important initiative for improving IgAN diagnosis and access to care!
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Kicking off the inaugural IgAN Alliance meeting with our favorites @edgarvlermamd and @nephcure CEO Josh Tarnoff 🙌
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Happening NOW in Chicago! The IgAN Alliance is hosting a workshop with patients, caregivers, doctors, researchers & industry partners to tackle barriers to care and drive patient-centered solutions. Together, we're charting a path forward! 💚#IgAN #RareKidneyDisease
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On July 28th, the FDA approved Apellis' drug, EMPAVELI (pegcetacoplan), for patients ages 12 and older living with C3G or primary IC-MPGN. This expands treatment options for both teens and adults affected by these rare kidney diseases. Learn more at:
nephcure.org
In a continued wave of progress for rare kidney disease (RKD) treatments, the FDA has approved the drug EMPAVELI (pegcetacoplan) for use in patients 12 - Read more about The FDA Approves EMPAVELI,...
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